Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for May 2015

Hand pain

Hi all. Thought I would pick your brains! Again!! This is my left hand, sorry the photo is not the best, after I had taken a bag of carrots out from the...

Hi all. Thought I would pick your brains! Again!! This is my left hand, sorry th...

Hidden

•9 years ago

6 Replies

How do i unsubsribe

Hi could someone help with this Somehow i got subscibed to the lupus community i m baffled how it happened but its not my ailment i don t want all the posts...

Hi could someone help with this Somehow i got subscibed to the lupus community i...

Seaelf

•9 years ago

2 Replies

Persistent chest pain

Does anyone suffer 4rm persistent chest pain. Atimes if feels like d bone in my chest area is pulling apart or a sharp percing pain in the chest. I ve had a...

Does anyone suffer 4rm persistent chest pain. Atimes if feels like d bone in my ...

ijeasike

•9 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Lupus swelling?

Hello to all who read this. I have a dx of SLE/uctd with constantly evolving symptoms. I haven't been well this week and have had bad knee pain. The swelling...

Hello to all who read this. I have a dx of SLE/uctd with constantly evolving sy...

Fennella02

•9 years ago

6 Replies

Disease progression??!! Let's share our experiences, it might be helpful for all to know what to expect in the future!

I am 37 with Lupus. Doctors never told me whether it is mild or severe, cutaneous or not, and how it will evolve but i really want to know… Every time an...

I am 37 with Lupus. Doctors never told me whether it is mild or severe, cutaneou...

tsouko

•9 years ago

4 Replies

Any advice please

I am in desperate need of answers instead of keep being told i am complex case!!! i have lupus and Antiphoslipids, and chronic asthma, Just on 17th april 2015...

I am in desperate need of answers instead of keep being told i am complex case!!...

rlupus

•9 years ago

5 Replies

Feel This Pain: Gastroparesis

New "Feel This Pain" video is up: Gastroparesis. More than just a little "tummy trouble," this disease brings pain and life-changing symptoms that don't just...

New "Feel This Pain" video is up: Gastroparesis. More than just a little "tumm...

Hidden

•9 years ago

2 Replies

On prednisone but losing weight?

Hi. I have a question. I am on a low dose of prednisone 5mg per day due to a recent flare up. Previously the minute (it seemed) I started on prednisone I would...

Hi. I have a question. I am on a low dose of prednisone 5mg per day due to a rec...

Hidden

•9 years ago

4 Replies

Question for anyone with lupus!!

Hi I was diagnosed with lupus a month ago,i am still waiting for my call back from my ru dr? I was just taking meds for under active...

Hi I was diagnosed with lupus a month ago,i am still waiting for my call back fr...

1TeiaMarie

•9 years ago

7 Replies

Is their a Lupus group in Essex please

Looking to join a group for support as families really have No idea about how you feel x

Looking to join a group for support as families really have No idea about how y...

Sugarplumb

•9 years ago

3 Replies

Positive Acl tests, but asymptomatic. Aspirin or clopidogrel for primary pevention?

Hello everyone ! I have positive blood tests for lupus but except the skin I dont have any significant symptoms. Recently I tested positive for Acl and anti b2...

Hello everyone ! I have positive blood tests for lupus but except the skin I don...

Bobo_j

•9 years ago

1 Reply

Lupus Test

Can anyone tell me difference between the old ANA and new lupus Test. Didn't Know that there was 1 until the nurse was looking for the blood test on computer...

Can anyone tell me difference between the old ANA and new lupus Test. Didn't Kn...

BARTLETT27

•9 years ago

2 Replies

Ulcerated left eye

Just an update about the ulcer that was in my left eye nearly two weeks ago. The pain started on Saturday the 16th Of May and I went to the A&E early Sunday...

Just an update about the ulcer that was in my left eye nearly two weeks ago. The...

Maureenpearl

•9 years ago

14 Replies

Feel very demoralised

Apologies in advance for the long and rambling post. Haven't been feeling great lately and had an appt today at the hospital. For me one of my problems is...

Apologies in advance for the long and rambling post. Haven't been feeling great ...

tjperfick

•9 years ago

14 Replies

Mycophenolate tiredness

I have Sjogren's Syndrome.. I am now taking Mycophenolate (as well as Plaquenil). I have been taking 1 x 500 mg tablet twice a day with no problems but in the...

I have Sjogren's Syndrome.. I am now taking Mycophenolate (as well as Plaquenil)...

bones-bones

•9 years ago

1 Reply

May's Blog - Lynne's experience of her first rheumatology appointment

For May and June we have invited people to share their experiences about their first rheumatology appointment for our blog. This month's story comes from...

For May and June we have invited people to share their experiences about their f...

Paul_Howard

Partner•9 years ago

3 Replies

Feeling Positive Today

Hello Pals Thanks for all the positive response. I feel much better today and can even type! Wow what joy! I am smiling!!! For the past 3 weeks I have hit...

Hello Pals Thanks for all the positive response. I feel much better today and c...

eunidarling

•9 years ago

6 Replies

MCTD/Lupus

Is there a Lupus group in Somerset/Devon area? I live near Taunton, thanks.

Hidden

•9 years ago

8 Replies

Headaches

Hi About 20 months ago I was told by a rheumatology consultant that I had connective tissue disorder leaning towards Lupus and was prescribed...

Hi About 20 months ago I was told by a rheumatology consultant that I had connec...

Jogest

•9 years ago

18 Replies

once again unexplained bruising

OK so I was on steroids for poison ivy but this is ridiculous. I woke up with my entire inner thigh pitch black on Monday and on Tuesday my entire lower right...

OK so I was on steroids for poison ivy but this is ridiculous. I woke up with my...

bajou67

•9 years ago

5 Replies

Bit scared

I'm feeling a bit scared because I've had a letter from neurology that says the last MRI I had has flagged up a couple of things. I was having an MRI to see...

I'm feeling a bit scared because I've had a letter from neurology that says the ...

Maya23

•9 years ago

12 Replies

New to Lupus

New here and feeling scared and alone. I'm in a flare and my body aches so bad with muscle weakness. I am used to doing so much now a walk to the bathroom...

New here and feeling scared and alone. I'm in a flare and my body aches so bad w...

MrsLeach

•9 years ago

23 Replies

just found out

hi ive just found out ive got lupus though my specialist doing tests cos i had 6 miscarriages in 2 yrs and just lost one at 11 weeks, 4 weeks ago.. ive also...

hi ive just found out ive got lupus though my specialist doing tests cos i had 6...

cala

•9 years ago

10 Replies

Groups

Does anyone know of a lupus group in Leicester.

Tiamaria1951

•9 years ago

5 Replies

Turmeric

Hi all Lupey sufferers. I recently found out that Turmeric and black pepper is good for Lupas. I brought some capsules, I take two a day. This Sunday will be...

Hi all Lupey sufferers. I recently found out that Turmeric and black pepper is g...

Razoo

•9 years ago

12 Replies

Gp problems

After the reception I got from my doc,he said we all get tired,I just looked at him,he has no concept what lupus and connective tissue disease like,I phoned...

After the reception I got from my doc,he said we all get tired,I just looked at ...

Jeffscott69

•9 years ago

2 Replies

Strange rash

Ideveloped a strange circular very itchy rash on both of my calves one is now the size of a saucer ,i thought at first I had ringworm ,went to doctors and saw...

Ideveloped a strange circular very itchy rash on both of my calves one is now th...

Kimmi56

•9 years ago

6 Replies

MCTD and all that goes with it!

Hi, after being diagnosed for MCTD with Lupus Myositis, Raynaud's and I don't know how many more on top. I broke my neck as a 14 year old and last year had a...

Hi, after being diagnosed for MCTD with Lupus Myositis, Raynaud's and I don't kn...

Hidden

•9 years ago

6 Replies

Lupus rash?

Hi guys , have had this on my neck for about a week. Was wondering if it's a lupus rash, only ever had the butterfly rash on my face before, so not sure.

Hi guys , have had this on my neck for about a week. Was wondering if it's a...

chandlermandy

•9 years ago

9 Replies

Re.methotrexate

For amandajane76 , I hope you see this amandajane, I tried to send you a private message but it's not sending again. I too was on methotrexte and it was okay...

For amandajane76 , I hope you see this amandajane, I tried to send you a private...

Elfie1

•9 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2015

Hand pain

How do i unsubsribe

Persistent chest pain

Lupus swelling?

Disease progression??!! Let's share our experiences, it might be helpful for all to know what to expect in the future!

Any advice please

Feel This Pain: Gastroparesis

On prednisone but losing weight?

Question for anyone with lupus!!

Is their a Lupus group in Essex please

Positive Acl tests, but asymptomatic. Aspirin or clopidogrel for primary pevention?

Lupus Test

Ulcerated left eye

Feel very demoralised

Mycophenolate tiredness

May's Blog - Lynne's experience of her first rheumatology appointment

Feeling Positive Today

MCTD/Lupus

Headaches

once again unexplained bruising

Bit scared

New to Lupus

just found out

Groups

Turmeric

Gp problems

Strange rash

MCTD and all that goes with it!

Lupus rash?

Re.methotrexate

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive