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LUPUS UK

31,734 members • 28,093 posts

All posts for February 2015

Does anyone have experiences with Rituximab?

So I've been having IVIg on and off for the last 8 months and while it works well for me it's really difficult to make the whole week off college and work fit...

So I've been having IVIg on and off for the last 8 months and while it works wel...

IrishLupie

•9 years ago

7 Replies

Breathing problems and palpitations

Hi All, I'm at a loss of what to do.. For about six weeks I've been going to my gp about the fact that I keep getting palpitations and I am short of breath. I...

Hi All, I'm at a loss of what to do.. For about six weeks I've been going to my ...

Hidden

•9 years ago

12 Replies

SLE, burning feet and hands

Good day all, Does anyone have the same problem? My hand and feet are burning and I've noticed that at night I have a pins and needles in my feet, does...

Good day all, Does anyone have the same problem? My hand and feet are burning ...

Ashleye

•9 years ago

17 Replies

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Prednisone and Indigestion.

I have been on steroids of different strengths for over a year.I was diagnosed with Lupus SLE.most times I am controlled with prednisone 3 mg but had to be...

I have been on steroids of different strengths for over a year.I was diagnosed w...

meggie83

•9 years ago

15 Replies

UCTD now turning into Lupus and or Vasculitis?

Hi all, I am a 39 years old woman and seeking for advice with my health issues. I am sick for 3,5 years now and this has caused a significant reduction in my...

Hi all, I am a 39 years old woman and seeking for advice with my health issues....

Patricia2015

•9 years ago

16 Replies

Benlysta???!!!

Hi, have any of you tried Benlysta? I live in the US, and it's my understanding that it was FDA approved over here first. Now they are using it in Europe and...

Hi, have any of you tried Benlysta? I live in the US, and it's my understanding ...

Terrier_Lady

•9 years ago

11 Replies

Persecution Of The Chronically Ill

This is what happens when our compassion wanes. http://youtu.be/euVOUalg6PQ As discussed in the video, here is the link to the story of the Las Vegas cancer...

This is what happens when our compassion wanes. http://youtu.be/euVOUalg6PQ As ...

Hidden

•9 years ago

2 Replies

Have lupus fibromyalgia and emphysema . For past three months have had very swollen neck making breathing much worse has anyone else hadthis

It's not thyroid dawn thanks guys

dawnbeaven

•9 years ago

11 Replies

Rheumatologist says sjogrens can predispose me to infections: comments anyone?

Am preparing for IV zolendronate treatment to start soon, and at a recent Rheumatology Metabolic Bone Unit appt, the consultant noted my persistently low WBC...

Am preparing for IV zolendronate treatment to start soon, and at a recent Rheu...

Barnclown

•9 years ago

9 Replies

Visit to Neurology - feeling blue

I was referred to neurology due to the nerve pains that make up the general 'noise' of symptoms my body makes: -shooting electric shock like pains on left...

I was referred to neurology due to the nerve pains that make up the general 'noi...

Maya23

•9 years ago

13 Replies

Nasty GP

I've written previous posts about my difficulties re my daughter and I. After 2 complaints due to lack of help for symptoms For myself and daughter from...

I've written previous posts about my difficulties re my daughter and I. After 2 ...

roubyroo

•9 years ago

4 Replies

Weakness

I am on week three of mycophenolate. I have been experiencing the feeling of my legs being weaker and my hands shaking. Anyone else experience this?

I am on week three of mycophenolate. I have been experiencing the feeling of m...

adrienneioannou

•9 years ago

11 Replies

Phone call from Capita

I have applied for PIP and am having my face to face assessment next week but this morning, I had a phone call from a nurse at Capita asking me how my...

I have applied for PIP and am having my face to face assessment next week but th...

lillyanne

•9 years ago

22 Replies

Amitriptyline - your experiences please?

I've recently been prescribed Amitrityline for nerve pain arising from compressed vertebrae probably caused by long term steroid use? Unfortunately after 3...

I've recently been prescribed Amitrityline for nerve pain arising from compresse...

Rockhopper

•9 years ago

15 Replies

Bolton area pls

Myself and my mum has finally decided we will be moving to bolton by next month. My aunty stays there too. I know about the royal hospital which is close to...

Myself and my mum has finally decided we will be moving to bolton by next month....

ijeasike

•9 years ago

4 Replies

I itch so much especially at night the meds I am taking is not stopping the itching

sometimes I get in the shower to relieve the itching for a little while

Mrs-h

•9 years ago

6 Replies

Confused???

Hi all, wondering if anyone else has this question , my diagnoses ( as stated in letter to gp I have a copy sent to me) says I have. SLE , Sorgrens , mixed...

Hi all, wondering if anyone else has this question , my diagnoses ( as stated in...

Skid

•9 years ago

3 Replies

Flare & neurology appointment

After nearly 4 months of remission (with blood tests in December showing a negative ANA!) I was hopeful that I would continue with my run of good health, with...

After nearly 4 months of remission (with blood tests in December showing a negat...

Maya23

•9 years ago

40 Replies

Illprost

First week our the way. Had illprost aka flolan which opens up the blood vessels. Wait and see what the next few weeks are like, if there is any improvement on...

First week our the way. Had illprost aka flolan which opens up the blood vessels...

dzagotskillz

•9 years ago

1 Reply

Vitamin D

I have been reading a lot about taking high levels of Vitamin D for the treatment of auto-immune disorders and I wondered what kind of levels are usually...

I have been reading a lot about taking high levels of Vitamin D for the treatmen...

Wendy39

•9 years ago

18 Replies

Hep A vaccine

Hi all been told by school (work ) that I have to have the hep a vaccine , has anyone else had it or know how it will affect lupus? On hydroxychloroquine and...

Hi all been told by school (work ) that I have to have the hep a vaccine , has a...

chandlermandy

•9 years ago

4 Replies

Inflamed eyes

it could be because of the angle of the sun or because I've tried wearing makeup again but my eyes are really itchy and sting, especially in the inner corners....

it could be because of the angle of the sun or because I've tried wearing makeup...

Silvergilt

•9 years ago

10 Replies

Those with raynauds help

I have a long history of illness. All signs say lupus, and I'm on hydroxychloroquine but without a definite diagnosis (missing the vital antibody, but ANA is...

I have a long history of illness. All signs say lupus, and I'm on hydroxychloroq...

happyp

•9 years ago

19 Replies

Sharp pain up left front of neck to head

Anyone get pain running up front left side of neck up to top of head, back of head. Don't remember if it went to top of head first or lower back of head. Felt...

Anyone get pain running up front left side of neck up to top of head, back of he...

Natura

•9 years ago

15 Replies

Laser or IPL? Can lupus patients have treatment?

Hay there I had my baby girl at 38weeks my birth was amazing, but nw have problems with the joints again ad tiredness anyways the q was laser or IPL i heard...

Hay there I had my baby girl at 38weeks my birth was amazing, but nw have proble...

Mainshah

•9 years ago

8 Replies

What emollient creams help most (e.g. Cetraben etc)

Sjogrens sicca symptoms are even worse for me this winter than ever. Am coping ok I guess, but my feet are especially needy....I do file off the dry hard skin...

Sjogrens sicca symptoms are even worse for me this winter than ever. Am coping ...

Barnclown

•9 years ago

14 Replies

How did your lupus start ?? What signs ?

Hey I'm currently being tested for lupus amount other conditions.. I've had a real rough few Months it's all started with restless legs then chest pains or...

Hey I'm currently being tested for lupus amount other conditions.. I've had a r...

Prada2015

•9 years ago

22 Replies

Vasculitis

Amongst other illnesses i have now been diagnosed with severe arterial disease and due to speedy diagnosis I have had stents fitted to both legs which has...

Amongst other illnesses i have now been diagnosed with severe arterial disease ...

notoverthehill

•9 years ago

3 Replies

Looking for a lupus doctor

Anyone now a good lupus specialist in and around the crewe Cheshire area please ???

Anyone now a good lupus specialist in and around the crewe Cheshire area please ...

Olibop

•9 years ago

11 Replies

Vestibular neuritis

Has anyone had this? Very bad vertigo with nausea. Treating with Prednisolone 60 mg first three days, then 40 mg seven days. Not a lupus diagnose yet..

Has anyone had this? Very bad vertigo with nausea. Treating with Prednisolone 60...

Leenalina

•9 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2015

Does anyone have experiences with Rituximab?

Breathing problems and palpitations

SLE, burning feet and hands

Prednisone and Indigestion.

UCTD now turning into Lupus and or Vasculitis?

Benlysta???!!!

Persecution Of The Chronically Ill

Have lupus fibromyalgia and emphysema . For past three months have had very swollen neck making breathing much worse has anyone else hadthis

Rheumatologist says sjogrens can predispose me to infections: comments anyone?

Visit to Neurology - feeling blue

Nasty GP

Weakness

Phone call from Capita

Amitriptyline - your experiences please?

Bolton area pls

I itch so much especially at night the meds I am taking is not stopping the itching

Confused???

Flare & neurology appointment

Illprost

Vitamin D

Hep A vaccine

Inflamed eyes

Those with raynauds help

Sharp pain up left front of neck to head

Laser or IPL? Can lupus patients have treatment?

What emollient creams help most (e.g. Cetraben etc)

How did your lupus start ?? What signs ?

Vasculitis

Looking for a lupus doctor

Vestibular neuritis

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