Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2014

Lupus and interstitial cystitis-crumbs it is painful

For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I...

For many years, I have suffered from what were thought to be recurrent uti's but...

•9 years ago

confused!!

Hi !! i have p.b.c diagnosed a year ago , i have been told i have another auto immune disease because it has shown up in my blood. i was sent to a consultant...

Hi !! i have p.b.c diagnosed a year ago , i have been told i have another auto i...

•9 years ago

Can anyone give me reassurance?

I have lupus and have just been diagnosed with pulmonary fibrosis and bronchiectasis. I am having a lung function test next week to see how bad my lungs are....

I have lupus and have just been diagnosed with pulmonary fibrosis and bronchiect...

•9 years ago

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Lupus appointment

I saw my rhumy today cut story short she said I had suffered a mini flare up I refused steriods again so have upted the hydroxy to 2 a day and increase dose of...

I saw my rhumy today cut story short she said I had suffered a mini flare up I r...

•9 years ago

Flares

Hi all I have posted before but not had a diagnosis of any SLE but have diagnosed Raynauds think it was ANA test I had for this , i also suffer mainly right...

Hi all I have posted before but not had a diagnosis of any SLE but have diagnose...

kazhodluckymilo17

•9 years ago

Pain behind Ribs

Evening Everyone, Has anyone ever experienced pain behind their ribs quite high under bust on the right hand side ? I've had this for about a week now weirdly...

Evening Everyone, Has anyone ever experienced pain behind their ribs quite high...

•9 years ago

Sle and depression

Sle and methotrexate , please can anyone advise me how long this takes to help I'm so down with my lupus and heart problems

Sle and methotrexate , please can anyone advise me how long this takes to help I...

•9 years ago

St Thomas's Referral

Morning everyone, After my appointment yesterday with my rheumatologist, I'm being referred to St Thomas's / The Louise Coote Lupus Unit (which I believe is...

Morning everyone, After my appointment yesterday with my rheumatologist, I'm be...

•9 years ago

Whoops! I have extremely low haemoglobin levels NOT neutrophile

Hi, I've had a call fr hospital about my health & it turns out I mis-heard in my confusion - I have extremely low haemoglobin levels. Any advice or relevant...

Hi, I've had a call fr hospital about my health & it turns out I mis-heard in my...

•9 years ago

How to discuss osteoporosis treatment with my doctors?

Guys, this is going to be a long one....I need help, but things are so complicated that I feel as if I'd better explain the background to this question fairly...

Guys, this is going to be a long one....I need help, but things are so complica...

•9 years ago

lupus

Hi has any one got osteoporosis aswell as lupus SLE ? im just getting one thing after the other bit fed up sorry steph

Hi has any one got osteoporosis aswell as lupus SLE ? im just getting one thing ...

•9 years ago

Thrush

Does anybody else suffer often with thrush? If so how can I keep it from returning? Went and got another caneston tablet. I suffer every few months with this.

Does anybody else suffer often with thrush? If so how can I keep it from returni...

adrienneioannou

•9 years ago

Flares :(

I am in a flare and feel terrible and so down :( I have an appointment with a new rheumatologist on Thursday and am praying for help! Not sure why I am...

I am in a flare and feel terrible and so down :( I have an appointment with a n...

•9 years ago

Wish me luck everyone!

Rheumatology appointment this afternoon at 2pm. Really hoping to get to the bottom of a few things today! I've got a list as long as my arm (haven't we...

Rheumatology appointment this afternoon at 2pm. Really hoping to get to the bot...

•9 years ago

1st day at work

i finally decided to starr my voluntary work yesterday. although i was 35mins late (am i bad). i felt good and responsible. after 3yrs of being off work am...

i finally decided to starr my voluntary work yesterday. although i was 35mins la...

•9 years ago

ANA blood test in September, results back end of November...

Hi all, I've been feeling very ill for a long time, I am 21 years old but feel like I'm 80. I've seen countless doctors and I've been pushed around, ignored...

Hi all, I've been feeling very ill for a long time, I am 21 years old but feel l...

•9 years ago

Is this normal

Have been on azathaiprine for about 3 weeks now. The last few days have been feeling really sick, esp at night. Last night was very sick and it was all black!...

Have been on azathaiprine for about 3 weeks now. The last few days have been fee...

•9 years ago

Lupus nephritis? Wish me luck..

Hi my symptoms started in winter numb fingers toes.then red blotches on fingers and toes then swelling. Then facial swelling.then flares . fever tiredness...

Hi my symptoms started in winter numb fingers toes.then red blotches on fingers ...

•9 years ago

Exercise

I was wondering does anyone with vascilitis or small fibre neuropathy have any tips on exercises

I was wondering does anyone with vascilitis or small fibre neuropathy have any t...

•9 years ago

Lip

Anyone know what this is it is like a colesore but my lip where is is swelled out .

Anyone know what this is it is like a colesore but my lip where is is swelled ou...

•9 years ago

IV bisphosphonates experiences?

Just had a letter re my 3 yearly dexa scan bone density report. This is my 5th scan since 2001. so far I've only had osteopenia & a high rate of loss of bone...

Just had a letter re my 3 yearly dexa scan bone density report. This is my 5th ...

•9 years ago

Lupus flare

God I hate having a lupus flare been going on for weeks now some days I've been able to get about better but some days sooooooo painful. Drugs doing nothing...

God I hate having a lupus flare been going on for weeks now some days I've been ...

•9 years ago

Hi..am I going crazy.. I am so sore...please ...help

OK so some that knew me....I started with pain I'm my 20 s....ribb.. Back pain..on few years.. No one said what's up....32 ish had a MRI had a operations.....

OK so some that knew me....I started with pain I'm my 20 s....ribb.. Back pain.....

•9 years ago

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