Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2014

ESA!

Hi I was on incapacity benefit, and after an assessment have just been given ESA, on the support group, it is very confusing, as only for 3 months? I cant find...

Hi I was on incapacity benefit, and after an assessment have just been given ESA...

Luppykate

•10 years ago

7 Replies

any men on here with lupus I have lupus and lupus nephritis and lupus epilepsy. suffered since early 20,s had rheumatoid arth. from toddler

don't seem to see any other males with it

Andrewc

•10 years ago

6 Replies

Just read in Lupus News & Views: Lupus UK has...

..achieved Information Standard accreditation....so Lupus UK publications will now be listed on NHS Portals as information sources! This is really good news...

..achieved Information Standard accreditation....so Lupus UK publications will n...

Barnclown

•10 years ago

7 Replies

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Muscle and Heart Problems ?

Im getting worried as my body temperature is high and it has an affect on my muscles especially above my knees .. they burn from inside. This usually happens...

Im getting worried as my body temperature is high and it has an affect on my mus...

Elle-26

•10 years ago

2 Replies

Am I a fraud?!!

Please can anyone help,I am at my wits end.4 years ago after an indepth investigation with a reumatologist who initially was convinced I had lupus,I was...

Please can anyone help,I am at my wits end.4 years ago after an indepth investig...

twinx57

•10 years ago

11 Replies

Help with cost of new windows

Do you know or anyone have any information if I can get any help with the cost of new windows I have old alliminum ones and in the winter they are so cold and...

Do you know or anyone have any information if I can get any help with the cost o...

lennox

•10 years ago

1 Reply

confusion...vitamin D low test results...

I haven't been called by doctor yet, but I can see my results on line, and im pretty low on vitamin D. My Question: The cause, is it from sunscreen and not...

I haven't been called by doctor yet, but I can see my results on line, and im pr...

dgleds

•10 years ago

15 Replies

Pain in lower left side of my back.

About a month ago I was told off a G.P that I had protien, blood and white blood cells in my urine given three days of medication and sent on my way. After the...

About a month ago I was told off a G.P that I had protien, blood and white blood...

Geordie-chick

•10 years ago

5 Replies

White blood cells

Hi there everyone hope your all okay I was just wondering I have lupus and am always monitoring my health with blood pressure monitor and urine home test kits...

Hi there everyone hope your all okay I was just wondering I have lupus and am al...

Danielle2419

•10 years ago

5 Replies

new here pregnant with lupus positive results

Hi all of you... I am so woried. I finaly got my positive pregnancy test after my daughter Joana was stilborn in January this year at 36 week , the reason...

Hi all of you... I am so woried. I finaly got my positive pregnancy test aft...

Glassart

•10 years ago

9 Replies

Discharged from Rheumatologist

Friday I had 1st and last appointment with my Rheumatologist. Out come from appointment was vitamin D deficiency causing joint and muscle pain. No sign of...

Friday I had 1st and last appointment with my Rheumatologist. Out come from app...

juliekendell

•10 years ago

2 Replies

Need Inspiration

I started aching on Thursday - All over pain! still got it... its not terrible but its there and its constant! Feeling really depressed and more tired than I...

I started aching on Thursday - All over pain! still got it... its not terrible b...

Kellyleg

•10 years ago

5 Replies

Nose piercing

I was diagnosed with Anti Phospholipid Antibody Syndrome 12 yrs ago and I am on Coumadin..... I had my nose pierced a few years after being diagnosed I had no...

I was diagnosed with Anti Phospholipid Antibody Syndrome 12 yrs ago and I am on ...

Canadianblues2000

•10 years ago

2 Replies

17 weeks Pregnant, can I have a flare during pregnentcy?

I'm 17 weeks pregnent I have lupus was dignosed a year ago, resently my left arms has been hurting me ad elbow pain went to docs ad she said I had poor...

I'm 17 weeks pregnent I have lupus was dignosed a year ago, resently my left arm...

Mainshah

•10 years ago

4 Replies

Exercise induced flare??????

Hi all, I have always been physically active - swimming, running and cycling and participated in long distance running and triathlon events. That obviously was...

Hi all, I have always been physically active - swimming, running and cycling and...

Hidden

•10 years ago

19 Replies

Rituximab

I have just been awarded funding for this drug which has taken a year! Wondered if anyone had it and what there experience is?

I have just been awarded funding for this drug which has taken a year! Wondered...

dzagotskillz

•10 years ago

7 Replies

Depomedrol / depromedrone injection

Just had my first jab today, and was wondering what good (and bad) experiences others have had with it. I've been suffering with quite bad joint pains all...

Just had my first jab today, and was wondering what good (and bad) experiences o...

Diagnosed2012

•10 years ago

3 Replies

New and grateful I found you

I have no clue how to use a blog. How do I know if I hsve a response? I am 70 and diagnosed with connective tissues disease in January. Per doctor lupus,...

I have no clue how to use a blog. How do I know if I hsve a response? I am 70...

1000faces

•10 years ago

10 Replies

Amitriptyline or Gabapentin

Hi all, The consultant has told me I have fibromyalgia as well as SLE. He told me this is common among people with SLE. He is asking GP to put me on...

Hi all, The consultant has told me I have fibromyalgia as well as SLE. He told...

Vicci

•10 years ago

12 Replies

Embrel deliveries

A positive post. I don't like privatised healthcare. However, my hospital in Edinburgh gets bupa home health care to deliver. So far, four deliveries. I get a...

A positive post. I don't like privatised healthcare. However, my hospital in Edi...

cathie

•10 years ago

1 Reply

Cellcept and twitching

Has anyone on cellcept experienced twitching? My eye has been twitching intermittently which I could also attribute to allergies. What's more concerning is I...

Has anyone on cellcept experienced twitching? My eye has been twitching intermi...

lnselou79

•10 years ago

8 Replies

News & Views Magazine - Summer 2014 Edition - OUT NOW

We had our wonderful volunteers back in the office yesterday and we were packing up News & Views magazines into envelopes and sending them to all the LUPUS UK...

We had our wonderful volunteers back in the office yesterday and we were packing...

Paul_Howard

Partner•10 years ago

1 Reply

Tramadol

I knew something was going on with prescriptions for tramadol my daughter just went to pick up my script from chemist and she had to sign for them because it...

I knew something was going on with prescriptions for tramadol my daughter just w...

ebril

•10 years ago

2 Replies

Art appearing in Times Square exhibit

Apropos of absolutely nothing but I need to crow a bit; one of my paintings -when I was still able to paint -has been accepted into a collage evxibitbwhich...

Apropos of absolutely nothing but I need to crow a bit; one of my paintings -whe...

Silvergilt

•10 years ago

20 Replies

Please someone Help

My hair are all going , medication not working I can't cope , I rather die that have no hair, sorry everyone x Lupus run and ruined my life and now it's...

My hair are all going , medication not working I can't cope , I rather die that ...

Hidden

•10 years ago

33 Replies

Can aloe Vera gel help?

I'm told that Aloe Vera gel juice can help with lupus of the skin. Has anyone else heard or have experiences of this? thanks in advance.

I'm told that Aloe Vera gel juice can help with lupus of the skin. Has anyone el...

monsterjay

•10 years ago

7 Replies

Ear

Hi for last couples of weeks I have been getting a like buzzing sound in my right ear , any elase ,,

Hi for last couples of weeks I have been getting a like buzzing sound in my rig...

missmopp

•10 years ago

7 Replies

imbalance walking

I feel imbalance while walking.. i cnt even walk 3 steps without any support! i went to docter n he said it was vitamin n calcium deficiency.. he gave me some...

I feel imbalance while walking.. i cnt even walk 3 steps without any support! i ...

neha9

•10 years ago

12 Replies

Diagnoses of sorts

Went to rheumy appointment last month and have now been diagnosed with CTD of some sort and fibromylagia. Have had all ena dsdna tests done all come back...

Went to rheumy appointment last month and have now been diagnosed with CTD of so...

Hopey

•10 years ago

5 Replies

do I ask again?

hello lupus buddies, I have begun my fight for PIP and have read on here and other places that a letter from my gp would help strengthen my case. so I wrote a...

hello lupus buddies, I have begun my fight for PIP and have read on here and ot...

caninecrazy

•10 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2014

ESA!

any men on here with lupus I have lupus and lupus nephritis and lupus epilepsy. suffered since early 20,s had rheumatoid arth. from toddler

Just read in Lupus News & Views: Lupus UK has...

Muscle and Heart Problems ?

Am I a fraud?!!

Help with cost of new windows

confusion...vitamin D low test results...

Pain in lower left side of my back.

White blood cells

new here pregnant with lupus positive results

Discharged from Rheumatologist

Need Inspiration

Nose piercing

17 weeks Pregnant, can I have a flare during pregnentcy?

Exercise induced flare??????

Rituximab

Depomedrol / depromedrone injection

New and grateful I found you

Amitriptyline or Gabapentin

Embrel deliveries

Cellcept and twitching

News & Views Magazine - Summer 2014 Edition - OUT NOW

Tramadol

Art appearing in Times Square exhibit

Please someone Help

Can aloe Vera gel help?

Ear

imbalance walking

Diagnoses of sorts

do I ask again?

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