Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2014

strangest dream

just woke from my sleep and had weird dream but possibly true as to how I feel now.from what I can remember -having severe pelvic pain so much that I could...

just woke from my sleep and had weird dream but possibly true as to how I feel n...

anbuma

•10 years ago

6 Replies

Changing from dosulepin

Hello, Wonder if anyone can help me. I have just been phoned by my GP to tell me that after 8years of using this drug I have to stop taking it as there are...

Hello, Wonder if anyone can help me. I have just been phoned by my GP to tell me...

Brynffynnon

•10 years ago

5 Replies

Hi all, contacted dwp yesterday about pip, they said they contacted atos beginning Feb.

Rang them they said I am in a Que and will be delt with when my case comes up on their computer. Do they not realise the stress they cause which just makes us...

Rang them they said I am in a Que and will be delt with when my case comes up on...

KarenC

•10 years ago

9 Replies

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Esa

Have been receiving ESA wrag for last year. It has now stopped . Has anyone been successful in reapplying and having the benefit reinstated

Have been receiving ESA wrag for last year. It has now stopped . Has anyone been...

clova

•10 years ago

11 Replies

Fatigue & Work, how does everyone cope?

How does everyone cope with work? I work full time, quite a stressful job, having a major flare, already had a week off but really struggling with...

How does everyone cope with work? I work full time, quite a stressful job, havin...

Bexs18

•10 years ago

15 Replies

Fatigue & Work, how does everyone cope?

How does everyone cope with work? I work full time, quite a stressful job, having a major flare, already had a week off but really stuggling with...

How does everyone cope with work? I work full time, quite a stressful job, havin...

Bexs18

•10 years ago

7 Replies

Cerebral Lupus?

Follow-up from today... I met with the wonderful Prof Hunt at St Thomas' in London this morning to discuss my recent condition. I wrote a bit about my...

Follow-up from today... I met with the wonderful Prof Hunt at St Thomas' in Lon...

Hidden

•10 years ago

7 Replies

Feeling worse after starting Mehotrexate?

Have just swallowed 3rd lot of MTX. Since starting i have been feeling worse in myself. Endless fatigue, more pain and generally feeling like death warmed up....

Have just swallowed 3rd lot of MTX. Since starting i have been feeling worse in ...

Hidden

•10 years ago

9 Replies

MRI scan on spine - abnormal bone marrow.....

Hi everyone I went to the Drs yesterday and got results for MRI scan. I was told that I have abnormal looking bone marrow, but that it didn't look malignant...

Hi everyone I went to the Drs yesterday and got results for MRI scan. I was tol...

Jo883

•10 years ago

7 Replies

UCTD

Just been diagnosed with undifferentiated connective tissue disease after more than 2 years of investigations. My signs and symptoms are mainly pointing at...

Just been diagnosed with undifferentiated connective tissue disease after more t...

kyliesinead

•10 years ago

19 Replies

Neurologist in belfast or edinburgh

Could anyone recommend a neurologist in either of the cities above as I need a second opinion ,as I recently attended a very rude and disinterested...

Could anyone recommend a neurologist in either of the cities above as I need a s...

charlie007

•10 years ago

3 Replies

Does anyone recognize this type of rash, is it Lupus related?

I get asked each time I go to my OPA but I have never mentioned this because it comes and goes really quickly. The longest I have had it has been 2 days. It...

I get asked each time I go to my OPA but I have never mentioned this because it ...

Whathappned

•10 years ago

7 Replies

missing posts?

receive emails in response to posts/questions/other threads but cannot find them to read?

receive emails in response to posts/questions/other threads but cannot find them...

anbuma

•10 years ago

1 Reply

Cant decide if I am just a lazy, lazy person or tired without enough spoons for the things I keep 'thinking' I should do!

So low in motivation and energy for the past few months and getting worse. Increased the anti-depressives and waiting for an effect. All I have done today is...

So low in motivation and energy for the past few months and getting worse. Incr...

Whathappned

•10 years ago

13 Replies

Can anyone tell me if I can get help with paying for Prescriptions ?

Teaspoon13

•10 years ago

4 Replies

Supplements

Has anyone found any benefit with over the counter supplements? I was reading the post suggesting that Vitamin D can be useful and I think I may try it but...

Has anyone found any benefit with over the counter supplements? I was reading th...

LtAngua52

•10 years ago

3 Replies

Can anyone advise please what is the best website to help me understand what my blood test results mean?

I know what the main ones mean, like ANA, and Complement levels, but the recent set are Double Dutch to me! I've got things I've never heard of like DNA Abs,...

I know what the main ones mean, like ANA, and Complement levels, but the recent ...

Lucy74

•10 years ago

8 Replies

Can of worms!

Right I've had my blood results and they have come back negative and all is well. No lupus! I asked the doctor for a raynards test, he said he would get back...

Right I've had my blood results and they have come back negative and all is well...

shell2138

•10 years ago

32 Replies

Anyone have trouble breathing deeply?

Trouble breathing last night, all night up and waking up snorting like I had sleep apnea. Never had this problem before or snoring going on my entire life. Is...

Trouble breathing last night, all night up and waking up snorting like I had sle...

Natura

•10 years ago

21 Replies

Being well and truly looked after

Hi all, you will know of my recent poor health and the concerns that I had starting on medication for my very high blood pressure (I did not know I was so...

Hi all, you will know of my recent poor health and the concerns that I had start...

bestbuddy

•10 years ago

1 Reply

Swollen legs / ankles - gone down since taking hydroxy - vasculitis?

Has anyone else had a similar experience? I was diagnosed with Subacute Cutaneous Lupus (SCLE) with most SLE symptoms but no internal organ involvement, in...

Has anyone else had a similar experience? I was diagnosed with Subacute Cutaneou...

Wendy39

•10 years ago

2 Replies

Can anyone tell me, is blephitis anything to do with sle?

+ve ANA and APS. APS being treated with warfarin. No treatment for SLE. Could an attack of blepharitis be due to SLE which I believe is in flare due to rapidly...

+ve ANA and APS. APS being treated with warfarin. No treatment for SLE. Could an...

Bonnie39

•10 years ago

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Low lymphocyte count and mycophenolate mofetil

Hey everyone. Just wanted to see if anyone on mycophenolate has a low lymphocyte count. Mine has been getting lower and lower, now on 0.6. I am so worried that...

Hey everyone. Just wanted to see if anyone on mycophenolate has a low lymphocyte...

joannebond360

•10 years ago

8 Replies

Hello everyone I currently have hypothyroidism diagnosed several years ago. In 2010 I went to my GP with overall joint pain, muscle aches,

tired. I felt like I couldn't do anything nor did I want too. Working my job was hard enough. The GP ran blood test, it came back with a positive ANA. I was...

tired. I felt like I couldn't do anything nor did I want too. Working my job was...

Sally79

•10 years ago

15 Replies

Body shaking all our it look likes im on a vibro plate in the gym....anyone ever had this experience.

Hi all, well being it was nice outside decided to sit a watch hubby paint the fence...after a hour went indoors and started shacking whole body quivering like...

Hi all, well being it was nice outside decided to sit a watch hubby paint the fe...

willowwag

•10 years ago

8 Replies

awaiting diagnosis

hi 9 months ago lumps started appearing on my leg, having just returned from a foreign holiday. my gp was useless and kept telling me they were insect bites,...

hi 9 months ago lumps started appearing on my leg, having just returned from a f...

kiwid

•10 years ago

2 Replies

weakness(not necessary lupus problem)

woke this morning with the same persistent pelvic pain.tightness in neck and pressure on stomach.had breakfast -choked on cereal -difficulty swallowing that...

woke this morning with the same persistent pelvic pain.tightness in neck and pre...

anbuma

•10 years ago

7 Replies

Lupus and Tiredness

Respect to all the ladies with lupus out there. I just wanted to suggest that ever since I have been taking Vyvanse I have been able to cut my sleep from 10...

Respect to all the ladies with lupus out there. I just wanted to suggest that e...

bballhorn

•10 years ago

3 Replies

Strange sensation to legs!

I've been getting a strange sensation to both my legs, really weird feeling of heat running up both legs and then seconds later a sensation of what I can only...

I've been getting a strange sensation to both my legs, really weird feeling of h...

cocobella123

•10 years ago

8 Replies

Muscle weakness

The last couple days I've experienced muscle weakness in my legs and it scares me. I will be walking and without warning my leg will become jelly and I lose my...

The last couple days I've experienced muscle weakness in my legs and it scares m...

Judylynne

•10 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2014

strangest dream

Changing from dosulepin

Hi all, contacted dwp yesterday about pip, they said they contacted atos beginning Feb.

Esa

Fatigue & Work, how does everyone cope?

Fatigue & Work, how does everyone cope?

Cerebral Lupus?

Feeling worse after starting Mehotrexate?

MRI scan on spine - abnormal bone marrow.....

UCTD

Neurologist in belfast or edinburgh

Does anyone recognize this type of rash, is it Lupus related?

missing posts?

Cant decide if I am just a lazy, lazy person or tired without enough spoons for the things I keep 'thinking' I should do!

Can anyone tell me if I can get help with paying for Prescriptions ?

Supplements

Can anyone advise please what is the best website to help me understand what my blood test results mean?

Can of worms!

Anyone have trouble breathing deeply?

Being well and truly looked after

Swollen legs / ankles - gone down since taking hydroxy - vasculitis?

Can anyone tell me, is blephitis anything to do with sle?

Low lymphocyte count and mycophenolate mofetil

Hello everyone I currently have hypothyroidism diagnosed several years ago. In 2010 I went to my GP with overall joint pain, muscle aches,

Body shaking all our it look likes im on a vibro plate in the gym....anyone ever had this experience.

awaiting diagnosis

weakness(not necessary lupus problem)

Lupus and Tiredness

Strange sensation to legs!

Muscle weakness

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