Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for June 2014

I am currently taking methotrexate but have found the only drug that actually works for my symptoms is 25mg of prednisone

Has anyone took this long term and what side affects have you experienced?

Deary

•10 years ago

9 Replies

Nasal ulcer !

OK folks, I know this is not one of the wee worst symptoms but my nose feels like it is being ravaged, slowly eaten away. I've had, what feels like an ulcer,...

OK folks, I know this is not one of the wee worst symptoms but my nose feels lik...

kyliesinead

•10 years ago

8 Replies

How many kind of blood tests for lupus?

Is anyone know how many kind of tests for lupus: WBC, CMP, ESR, CRP, Ana, Antibodies, Sjogren's, C3&C4...and what those numbers are reflecting lupus? I have...

Is anyone know how many kind of tests for lupus: WBC, CMP, ESR, CRP, Ana, Antibo...

kimc

•10 years ago

3 Replies

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feeling hot and sick in night Lupus?

Hi im an newly diagnosed with SLE and still coming to terms with this news and my symptoms, I have the classic rash, joint pain and fatigue. Last night I woke...

Hi im an newly diagnosed with SLE and still coming to terms with this news and m...

hanb27

•10 years ago

6 Replies

June's Blog (Part 2) - Sarah's experience of working with lupus

Hi everyone. The second part of this month's blog has been written by Sarah. She has shared her experiences of working with lupus. Thank you so much Sarah...

Hi everyone. The second part of this month's blog has been written by Sarah. She...

Paul_Howard

Partner•10 years ago

1 Reply

June's Blog (Part 1) - Kiren's experience of working with lupus

Hi everyone. This months blog has been written by Kiren. She has shared her experiences of working with lupus. Thank you so much Kiren for taking the time...

Hi everyone. This months blog has been written by Kiren. She has shared her expe...

Paul_Howard

Partner•10 years ago

1 Reply

Can't sleep because of pain then the painkillers keep me awake!

Im starting to feel like im going to bray my head against a wall until im knocked out! Im in pain so much i cant sleep without strong painrelief but then the...

Im starting to feel like im going to bray my head against a wall until im knocke...

Hidden

•10 years ago

2 Replies

Skipped MTX per Rheum. Is it normal the butterfly rash is more bright and burning than ever?

And it's like I'm having a bad allergic reaction. Does anyone have headache, allergy symptoms with lupus? Has anyone had to skip MTX for a week and then...

And it's like I'm having a bad allergic reaction. Does anyone have headache, al...

pen727

•10 years ago

3 Replies

Down goes Lee-Anne

This weekend I took another tumble down the stairs ops When I was telling my friends about it and trying to last it off one of them pointed out that this...

This weekend I took another tumble down the stairs ops When I was telling my ...

wotshernameagain

•10 years ago

12 Replies

Lack of sleep!

Keep waking up between 2 and 3 in the morning . Then it's toss, turn, achey legs and can't get back to sleep. Has anyone tried anything that helps? Seriously...

Keep waking up between 2 and 3 in the morning . Then it's toss, turn, achey legs...

chandlermandy

•10 years ago

21 Replies

Remission for lupus

To all the lupus out there, who had suffer or surviving from lupus for some long period of time. Is any of you going to remission and survive from lupus? I...

To all the lupus out there, who had suffer or surviving from lupus for some long...

kimc

•10 years ago

8 Replies

Lung hurting

My lungs have been hurting for a while now and I have not smoked ever and I've been getting these pain in my legs and the sharp pain is getting worse also I...

My lungs have been hurting for a while now and I have not smoked ever and I've b...

noxemberr

•10 years ago

6 Replies

ATOS How black and white is it?

My daughter is due an examination soon but like most of us has good and bad days. Do ATOS require a yes/no answer or can you explain the issues you face. If...

My daughter is due an examination soon but like most of us has good and bad days...

DaleDiva

•10 years ago

6 Replies

The irony of it...

I have a diagnosis of MCTD with my symptoms leaning most obviously towards Limited Scleroderma. All Winter I have suffered the ill effects of cold, damp...

I have a diagnosis of MCTD with my symptoms leaning most obviously towards Limit...

Hidden

•10 years ago

5 Replies

for cuttysark

I took and posted this pic a couple of months ago but my stomach has got much more swollen since then .cant wear trousers over stomach

I took and posted this pic a couple of months ago but my stomach has got much m...

anbuma

•10 years ago

11 Replies

for cuttysark

swollen neck couldn't find pic of swollen stomach so will ahve to take one.

anbuma

•10 years ago

10 Replies

Dreadful tiredness? I'm used to times when I feel excessively tired but am going through a period of over 2 weeks when I have no energy?

Had a sore throat and no energy at all for nearly 3 weeks now. Could happily sleep for 18 hours a day? Any suggestions?

Had a sore throat and no energy at all for nearly 3 weeks now. Could happily sle...

Rockhopper

•10 years ago

4 Replies

Need help with medication please.. new to lupus

Hi.. firstly i would like to say i am so greatful for this site.. its the only place where people understand :) i have been diagnosed with sle lupas and...

Hi.. firstly i would like to say i am so greatful for this site.. its the only ...

pearl123

•10 years ago

12 Replies

Has anyone experienced coming off aizathiaprine and had bad joint pain? Had lupus 13 years and been on them meds for a year?

My white cells are now too low so they have taken me off them. My joints are so painful and really struggling!

My white cells are now too low so they have taken me off them. My joints are so ...

Traross

•10 years ago

7 Replies

Spoonie Gardening

Since I was very naughty and totally derailed another thread with my garden-whitter *cough* I've started a new thread. I used to do a lot of manual work and...

Since I was very naughty and totally derailed another thread with my garden-whit...

Silvergilt

•10 years ago

40 Replies

Can I raise my white blood count up?

Range of white blood count is from 3.4 -10.2. Mine is 3.2 , so....it's low. I'm wondering if there is a treatment or diet can help me to raise white blood...

Range of white blood count is from 3.4 -10.2. Mine is 3.2 , so....it's low. I'm ...

kimc

•10 years ago

5 Replies

How to dress for skin lupus, black or white color to block out the harmful sun light?

I diagnosed for skin lupus a year ago. Doctors say I have to stay out of the sun light or the ultraviolet, use sun block every day and cover myself up. It is...

I diagnosed for skin lupus a year ago. Doctors say I have to stay out of the sun...

kimc

•10 years ago

5 Replies

feeling absolutely awful - and really!!

all done to day is walk my dogs (and take Annie to vets)and then so weak from doing that -got bus home and straight back to bed.in pm -came back from vets with...

all done to day is walk my dogs (and take Annie to vets)and then so weak from do...

anbuma

•10 years ago

18 Replies

Has anyone found that lupus has caused bladder issues?

Hi have you found that having lupus may have caused some issues with your bladder or anything to do with the whole urinary tract, or is it that your bladder...

Hi have you found that having lupus may have caused some issues with your bladde...

Danielle2419

•10 years ago

18 Replies

How do you know your Platelets Counts etc ?

Hi, I'm in the UK, and give been reading on posts that you know what your platelet counts are and what your inflammation counts are etc. I was diagnosed...

Hi, I'm in the UK, and give been reading on posts that you know what your platel...

georgie63

•10 years ago

6 Replies

Letting the past go

My dry eyes pear anxiously from the confines of my UV protected cell. Perhaps today the sun will forget to shine. Maybe for a while, I can escape. Could spears...

My dry eyes pear anxiously from the confines of my UV protected cell. Perhaps to...

adrian_holland

•10 years ago

5 Replies

Does anyone have trouble sleeping more than 4 hours a night?

I am getting tired of waking up every night. At the beginning of this week, I couldn't breathe, and that was waking me up. Now, I am breathing better, but...

I am getting tired of waking up every night. At the beginning of this week, I co...

Natura

•10 years ago

23 Replies

enquired about domestic cleaners

rang a company today and said minimum is 2hours per week at £15 an hour.cant afford that.what are the chances of claiming PIP .I only get low rate care at...

rang a company today and said minimum is 2hours per week at £15 an hour.cant af...

anbuma

•10 years ago

29 Replies

Help,unsure if I can claim.

Hi all, just a question, does anybody know the new ? Criteria for claiming pip @ ESA? On lupus,pain,(fluctuations conditions) don't know if it's good or bad,...

Hi all, just a question, does anybody know the new ? Criteria for claiming pip @...

1963

•10 years ago

4 Replies

Anyone have any advice? I am pregnant. (I have Hughes syndrome & Lupus).

If I have worked it out correctly, I am around 5weeks pregnant. I have started taking the heparin injections daily and 150mg aspirin daily. I had my follow up...

If I have worked it out correctly, I am around 5weeks pregnant. I have started t...

kirstyleigh

•10 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2014

I am currently taking methotrexate but have found the only drug that actually works for my symptoms is 25mg of prednisone

Nasal ulcer !

How many kind of blood tests for lupus?

feeling hot and sick in night Lupus?

June's Blog (Part 2) - Sarah's experience of working with lupus

June's Blog (Part 1) - Kiren's experience of working with lupus

Can't sleep because of pain then the painkillers keep me awake!

Skipped MTX per Rheum. Is it normal the butterfly rash is more bright and burning than ever?

Down goes Lee-Anne

Lack of sleep!

Remission for lupus

Lung hurting

ATOS How black and white is it?

The irony of it...

for cuttysark

for cuttysark

Dreadful tiredness? I'm used to times when I feel excessively tired but am going through a period of over 2 weeks when I have no energy?

Need help with medication please.. new to lupus

Has anyone experienced coming off aizathiaprine and had bad joint pain? Had lupus 13 years and been on them meds for a year?

Spoonie Gardening

Can I raise my white blood count up?

How to dress for skin lupus, black or white color to block out the harmful sun light?

feeling absolutely awful - and really!!

Has anyone found that lupus has caused bladder issues?

How do you know your Platelets Counts etc ?

Letting the past go

Does anyone have trouble sleeping more than 4 hours a night?

enquired about domestic cleaners

Help,unsure if I can claim.

Anyone have any advice? I am pregnant. (I have Hughes syndrome & Lupus).

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