Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,711 members • 28,080 posts

All posts for April 2014

Hi I am 27 n I was 24 when I was diagnosed with SLE n I have had one knee replaced n 27 treatmens of cemo

I have another knee replacement coming up in June I have lost all my hair n all my teeth n now finally after 3 yrs of pain I am finally -1 but what does that...

I have another knee replacement coming up in June I have lost all my hair n all ...

mona2014

•10 years ago

5 Replies

April's Blog (Part 2) - Stephanie's experience of studying with lupus

Hi everyone. The second part of this month's blog has been written by Stephanie. She has shared her experiences of studying whilst living with lupus. Thank...

Hi everyone. The second part of this month's blog has been written by Stephanie....

Paul_Howard

Partner•10 years ago

2 Replies

Hi, I'm new

I just thought I'd introduce myself since I'm new to the community. I've been living with autoimmune disorders for 10 years, diagnosed with Juvenile Dermato...

I just thought I'd introduce myself since I'm new to the community. I've been li...

IrishLupie

•10 years ago

7 Replies

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Side effects of Hydroxy

I have been on Hydroxy(400mg a day) going on my 3rd month for RA. I am having stomach aches, gas and a mild headache that is constant. My question is, has...

I have been on Hydroxy(400mg a day) going on my 3rd month for RA. I am having s...

penman55

•10 years ago

9 Replies

Does this sound like Gastroparesis? If not, what else?

I started a starch free diet several months ago due to severe abdominal bloating and distention that doctors have yet to discover a cause of. Initially when I...

I started a starch free diet several months ago due to severe abdominal bloating...

gaga101

•10 years ago

7 Replies

New lupus employment guides now available

Hi everybody, I'd just like to let you know that the two new employment guides are now available. I'd like to thank the community here for their involvement...

Hi everybody, I'd just like to let you know that the two new employment guides ...

Paul_Howard

Partner•10 years ago

5 Replies

Does anyone have night sweats and aches and pains tapering steroids?

Hi everyone. Tapering prednisilone, currently tapering half mg a month, down to 6&5mg alternate days and the aim is to get to 5mg by my next appointment in...

Hi everyone. Tapering prednisilone, currently tapering half mg a month, down to ...

joannebond360

•10 years ago

9 Replies

April's Blog (Part 1) - Beth's experience of studying with lupus

Hi everyone. The first part of this month's blog has been written by Beth. She has shared her experiences of studying whilst living with lupus. Thank you so...

Hi everyone. The first part of this month's blog has been written by Beth. She h...

Paul_Howard

Partner•10 years ago

7 Replies

Hi all just asking how long people wait to c a rheumatologist thanks

Alan55

•10 years ago

10 Replies

Anyone feel worse after eating high sugar foods?

Hi All, Unfortunately (but I'm sure in not unique!), I sometimes succumb to my sugar addiction and have a major "pig out" on chocolate or something similar....

Hi All, Unfortunately (but I'm sure in not unique!), I sometimes succumb to my s...

Rockhopper

•10 years ago

8 Replies

cyclophosphamide?

Hi everyone, My renal consultant and rheumatologist have been monitoring me for quite a while now but are concerned that my condition is still not controlled....

Hi everyone, My renal consultant and rheumatologist have been monitoring me for...

Priya_S

•10 years ago

16 Replies

Newbie!

Hi everyone! So I've only just found this site after coming across the blogs regarding having lupus & studying but I'm so glad that 3 years into being...

Hi everyone! So I've only just found this site after coming across the blogs re...

Priya_S

•10 years ago

6 Replies

Raynauds

Does anyone have raynauds? It can be 100 degrees and my fingers and toes are purple. I'm the only one that wears mittens in the summer. My feet are always...

Does anyone have raynauds? It can be 100 degrees and my fingers and toes are pu...

Judylynne

•10 years ago

18 Replies

Two rheumy a in 2 different states. Both did blood work. First one said positive ANA but that the DNA test was definite positive and meant

Lupus. Recently moved to another state. New rheumy took many, many blood tests to rule out other things. Said ANA negative but positive DNA .... He hesitated...

Lupus. Recently moved to another state. New rheumy took many, many blood tests t...

Jbug

•10 years ago

6 Replies

Has anyone got any tips on explaining to an 11 year old inquisitive girl and a caveman 14 year old boy what their mum has?

Both are intelligent kids, both reasonably helpful and will do their rooms etc. after the usual reminders. The 14 year old does need physically removing from...

Both are intelligent kids, both reasonably helpful and will do their rooms etc. ...

Whathappned

•10 years ago

6 Replies

Lupus butterfly rash?

I Have this rash on my face it's pink and it seems to not go away. it dose not itch or hurt but it seems to not like the sun.

I Have this rash on my face it's pink and it seems to not go away. it dose not i...

Hidden

•10 years ago

4 Replies

Do I have a butterfly rash?

I Have this rash on my face it's pink and it seems to not go away. it dose not itch or hurt but it seems to not like the sun. here is a pic of it on twitter....

I Have this rash on my face it's pink and it seems to not go away. it dose not ...

Hidden

•10 years ago

14 Replies

breaking pills in half hydrochloroquine/plaquinil?

dumb question here...I have mild lupus. Have any of you good folks broken these pills in half to take? I started out at 200mg twice a day (had side...

dumb question here...I have mild lupus. Have any of you good folks broken these ...

dgleds

•10 years ago

32 Replies

Me again does anybody with an autoimmune disease suffer from a bad stomach and wind after a flare any answers would be appreciated thanks

Alan55

•10 years ago

13 Replies

For those with diagnosed Lupus, what was your ANA test result?

I know different labs create different results, but I received a result of 1:640 homogenous. I havent been to a rhemmy yet, but I guess I want to see what my...

I know different labs create different results, but I received a result of 1:640...

mmeeeeeelllllll

•10 years ago

9 Replies

I was diagnosed with SLE in 2008 but they said they think I have had it for a very long time. I was on very high doses of prednisone!!

from the high dose of prednisone I got steroid phycosis I ended up on a vent.and my heart had stopped 3 times in the helicoptor that was 3 years ago. anyone...

from the high dose of prednisone I got steroid phycosis I ended up on a vent.and...

krisdy

•10 years ago

3 Replies

Hi! 6 years ago I came down with a mystery illness. So far no doctors had been able to give me a diagnosis, could it be lupus? More details:

I was just wondering whether if I posted a fairly detailed history of my case, symptoms and test results would you be able to offer any ideas about whether it...

I was just wondering whether if I posted a fairly detailed history of my case, s...

omron

•10 years ago

17 Replies

acupuncture?

anyone tried it? is it safe for lupies?

poodlegal

•10 years ago

10 Replies

sun light/redness

I use 50 and thirty factor sun cream, but why do I still go so red and I am annoyed that people say I am burnt, I tell them I have a skin condition to keep...

I use 50 and thirty factor sun cream, but why do I still go so red and I am anno...

gco34

•10 years ago

8 Replies

bodyache returning

I have now done a course of Cocodimal with hardly any effect, back to GP today and she has now put me on a course of anti inflammatory Naproxen for a month but...

I have now done a course of Cocodimal with hardly any effect, back to GP today a...

bodyache

•10 years ago

3 Replies

I was diagnosed with discoid lupus about 8 years ago.My scalp is full of bald patches and sores nothing works. I feel on my own with this.

started suffering severe joint pain, lethargic, fuzzy head, memory loss, insomnia. Gp's tested me for SLE which was normal, so they GP, and rhyme chaps says...

started suffering severe joint pain, lethargic, fuzzy head, memory loss, insomni...

lol-lou

•10 years ago

19 Replies

Hello everyone, can you help? I've been given Azathioprine,what are the likely side effects?

I realise we are different in our response to meds but I know people have so much more knowledge than the leaflet I've been given. I was diagnosed last...

I realise we are different in our response to meds but I know people have so muc...

tallytutu

•10 years ago

6 Replies

Has anyone ever used natural therapy drugs for Lupus ??? I have Fibromyalgia also and try to stay away from too many things?

I keep also seeing things about support. I just found out yesterday. and I am getting as Much as I did with Fibro, Not much. This is very serious and freaking...

I keep also seeing things about support. I just found out yesterday. and I am ge...

Nobody1963

•10 years ago

9 Replies

Hi everyone

My name is Judy. I was diagnosed with SLE about 14 years ago. I have good and bad days like everyone else. Sometimes when I feel well I go in denial and then...

My name is Judy. I was diagnosed with SLE about 14 years ago. I have good and ba...

Judylynne

•10 years ago

5 Replies

SLE and possible CNS problems...

Hello! It's my first time on here would be really grateful for some advice and info as I've been experiencing possible CNS probs over the last few months....

Hello! It's my first time on here would be really grateful for some advice and ...

heidieidi

•10 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2014

Hi I am 27 n I was 24 when I was diagnosed with SLE n I have had one knee replaced n 27 treatmens of cemo

April's Blog (Part 2) - Stephanie's experience of studying with lupus

Hi, I'm new

Side effects of Hydroxy

Does this sound like Gastroparesis? If not, what else?

New lupus employment guides now available

Does anyone have night sweats and aches and pains tapering steroids?

April's Blog (Part 1) - Beth's experience of studying with lupus

Hi all just asking how long people wait to c a rheumatologist thanks

Anyone feel worse after eating high sugar foods?

cyclophosphamide?

Newbie!

Raynauds

Two rheumy a in 2 different states. Both did blood work. First one said positive ANA but that the DNA test was definite positive and meant

Has anyone got any tips on explaining to an 11 year old inquisitive girl and a caveman 14 year old boy what their mum has?

Lupus butterfly rash?

Do I have a butterfly rash?

breaking pills in half hydrochloroquine/plaquinil?

Me again does anybody with an autoimmune disease suffer from a bad stomach and wind after a flare any answers would be appreciated thanks

For those with diagnosed Lupus, what was your ANA test result?

I was diagnosed with SLE in 2008 but they said they think I have had it for a very long time. I was on very high doses of prednisone!!

Hi! 6 years ago I came down with a mystery illness. So far no doctors had been able to give me a diagnosis, could it be lupus? More details:

acupuncture?

sun light/redness

bodyache returning

I was diagnosed with discoid lupus about 8 years ago.My scalp is full of bald patches and sores nothing works. I feel on my own with this.

Hello everyone, can you help? I've been given Azathioprine,what are the likely side effects?

Has anyone ever used natural therapy drugs for Lupus ??? I have Fibromyalgia also and try to stay away from too many things?

Hi everyone

SLE and possible CNS problems...

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