Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,841 members • 28,183 posts

All posts for February 2014

Tell me about histones?

I seem to have an issue with Histones. I have always had an issue with my skin reacting quickly to any irritation, even applying moisturizer, by getting very...

I seem to have an issue with Histones. I have always had an issue with my skin ...

Chapter

•10 years ago

1 Reply

hey Mild lupus friends, I have a question...meds/no meds?

Hi! Ok I have been later told I have mild lupus..so far anyways. At first I was going to be put on steroids (I refused them)...then plaquenil...

Hi! Ok I have been later told I have mild lupus..so far anyways. At first I was ...

dgleds

•10 years ago

21 Replies

Does anyone get soreness around their eyes, on the forehead and round the neck. Its very sore and dry, looks burnt.

flossy1

•10 years ago

2 Replies

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lupus and heart failure. left side of heart affected

finally after two years of tests I have been diagnosed with a heart problem affecting the left side of my heart. its now only 35% working. been walking very...

finally after two years of tests I have been diagnosed with a heart problem affe...

tintin49

•10 years ago

6 Replies

I have both APS and SLE (plus plethora of other AIs). My Rhuemy wants me to take Methotrexate (MX),

which I believe is more of a Rhuematoid Arthristis drug, with a bad reputation for side-effects. Has anyone with SLE been prescribed MX and if so, what is...

which I believe is more of a Rhuematoid Arthristis drug, with a bad reputation f...

KatieA

•10 years ago

14 Replies

Can anyone help. For a year I have had pain in my elbow top and bottom. My gp said it was tennis and golfers elbow.

I have so far had 3 steroid injections. Helps for a while but back again with vengeance. I don't want to have anymore injections. I have tried Physio. One of...

I have so far had 3 steroid injections. Helps for a while but back again with ve...

Gillyg

•10 years ago

11 Replies

Should I phone rheumatology about my body rash?

I had my first rheumatology appointment at the beginning of January. At the time I had lots of blood tests and chest X-ray and was told I have fibromyalgia and...

I had my first rheumatology appointment at the beginning of January. At the time...

Katt

•10 years ago

7 Replies

As anyone had IVGG or Benlysta to treat lupus and if so did it help?

Signat

•10 years ago

5 Replies

Meaning of MCV and red blood cell distribution width?

My last 3 blood tests (6-mercaptopurine monitoring) have shown a slow but steady increase in mean corpuscular volume (MCV) and red blood cell distribution...

My last 3 blood tests (6-mercaptopurine monitoring) have shown a slow but steady...

Hidden

•10 years ago

4 Replies

Does anyone else get really dry skin on their face along with their butterfly rash?

I have dry/flaky skin, which is really painful at times, around my eyes and eyebrows. Tried various creams, included steroid ones prescribed by the hospital,...

I have dry/flaky skin, which is really painful at times, around my eyes and eyeb...

leighmac89

•10 years ago

3 Replies

Single mum, worried what will happen if this Lupus gets worse... who will look after us?! :-(

Since being (finally) diagnosed last January - I'm slowly deteriorating. No major organ damage but the fatigue, aches and pains, I get numbness/tingling,...

Since being (finally) diagnosed last January - I'm slowly deteriorating. No majo...

Hidden

•10 years ago

39 Replies

B12 Injection did absolutely nothing. I have Lupus, Sjogrens, Raynauds, Celiacs, Infectious Diseases, including parasites, fungus, bacterias

I am dangerously anemic 6. Dowm by halg in just 2.monyhs. Hemoglobin 11.0, Hematocrit 33.9 very low. Ferritin Serum 7 dangerously low. Vitamin deficient in...

I am dangerously anemic 6. Dowm by halg in just 2.monyhs. Hemoglobin 11.0, Hema...

Very_Sick

•10 years ago

8 Replies

lupus butterfly rash?

this s about best pic I could egt.know some f you have said its rosacea?it is on cheeks and across nose

this s about best pic I could egt.know some f you have said its rosacea?it is on...

anbuma

•10 years ago

8 Replies

I have been lucky enough to have had a disability car for the past two and a half years, due to run out this year. What do I do?

Do I have to apply for DLA again? Do I get awarded this automatically again? or do I know apply for the PIP that everyone is talking about? So confusing,...

Do I have to apply for DLA again? Do I get awarded this automatically again? o...

susan17

•10 years ago

11 Replies

So so tired...

I am in week 4 of a Lupus flare. really broken sleep pattern and severe fatigue. off work ...and they dont really have any understanding of lupus because most...

I am in week 4 of a Lupus flare. really broken sleep pattern and severe fatigue....

pigsty

•10 years ago

21 Replies

Lupus or not

I haven't been on this site for sometime now as been very confused, I had been getting treated for lupus, raynards, syrogrenes, malar rash and other things by...

I haven't been on this site for sometime now as been very confused, I had been g...

luupysue

•10 years ago

14 Replies

Anyone had eye problems? Just come back from a long appointment at optitians , quite worried.

Ok I put my hands up as a lot of us are known to put off going so it has been around three years since my last eye check, The optitian was very thorough and...

Ok I put my hands up as a lot of us are known to put off going so it has been ar...

crankyme

•10 years ago

4 Replies

Has anyone been diagnosed with lupus by an immunologist?

I have been to a rheumy but didn't get far with her. Now my doctor has put me on Hydroxychloroquine because of the pain I am in and it is having some effect...

I have been to a rheumy but didn't get far with her. Now my doctor has put me o...

Whatamess2

•10 years ago

3 Replies

wisparolo.

Can anyone tell me if there are any good doctors and also any good endocrinologists in the County Durham area there was a doctor in our area who was going too...

Can anyone tell me if there are any good doctors and also any good endocrinologi...

wisparolo

•10 years ago

Be the first to reply

TEESSIDE LUPUS SUPPORT GROUP MEETING

Everyone is welcome!! Come and we share information and educate others and support one another, Teesside Lupus Support Group Meeting Date: 29 March 2014...

Everyone is welcome!! Come and we share information and educate others and supp...

Pipido36

•10 years ago

Be the first to reply

I have developed a new symptom: extremely sensitive teeth. Can this be anything to do with my lupus? Does anyone else have this?

Hidden

•10 years ago

6 Replies

Depression and Care Co-ordination

Hi All, Haven't posted in a while as I have just been trying to get on with things. However I am in the midst of a really bad lupus bout and simply carrying...

Hi All, Haven't posted in a while as I have just been trying to get on with thi...

cass1984

•10 years ago

2 Replies

Knee and ankle pain. Is it lupus or fibromyalgia?

Hi, I was diagnosed with fibromyalgia and sjrogrens a number of years before lupus came calling. Fibromyalgia is very painful but my knees and feet are a...

Hi, I was diagnosed with fibromyalgia and sjrogrens a number of years before lup...

flossy1

•10 years ago

6 Replies

Do I feel ok because of the meds?

I started out with discoid lupus, then last year had a very bad flare, aches pains, deep tissue inflammation, low blood count, anaemia, etc etc, then diagnosed...

I started out with discoid lupus, then last year had a very bad flare, aches pai...

dawnepearse

•10 years ago

7 Replies

lumber puncture

iam awaiting to go for one and iam very anxious about this, has anyone had this and has a positive experience they can share with me,, since having a stroke...

iam awaiting to go for one and iam very anxious about this, has anyone had this ...

mojo

•10 years ago

5 Replies

Tingling and numb fingers

Hi, i was wondering if anybody has tips to help with tingling and numb fingers in the morning. The paon is quite bad and when i wake in the morning i cant use...

Hi, i was wondering if anybody has tips to help with tingling and numb fingers i...

lollalettuce

•10 years ago

5 Replies

Liflunomide.....

Hi all...just wondering if any of you have been on this DMARD yourselves and how you have found it. I have only been on a few days but all seems to be going...

Hi all...just wondering if any of you have been on this DMARD yourselves and how...

mstr

•10 years ago

12 Replies

ESA Assessment transfer from IB

I have Rec the phone Call n the Assessment Pack Limited capability 4 work Questionnaire!!! More n more I look in2 it eg Google it more WORRIED I am getting!!!!...

I have Rec the phone Call n the Assessment Pack Limited capability 4 work Questi...

MancRhian

•10 years ago

6 Replies

Anybody taking two different lots of steroids ?

Hi anybody taking two lots of steroids. I've been on prednisone for over 30 years & now been prescribed Budenofalk for microscopic colitis. It has really...

Hi anybody taking two lots of steroids. I've been on prednisone for over 30 year...

tremarel

•10 years ago

2 Replies

Nausia

Hi all I have SLE and am on Hydroxy chloroquine sulphate and have been for some years. I am in the middle of a flare and the fatigue is debilitating but my new...

Hi all I have SLE and am on Hydroxy chloroquine sulphate and have been for some ...

MargaretGail

•10 years ago

24 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2014

Tell me about histones?

hey Mild lupus friends, I have a question...meds/no meds?

Does anyone get soreness around their eyes, on the forehead and round the neck. Its very sore and dry, looks burnt.

lupus and heart failure. left side of heart affected

I have both APS and SLE (plus plethora of other AIs). My Rhuemy wants me to take Methotrexate (MX),

Can anyone help. For a year I have had pain in my elbow top and bottom. My gp said it was tennis and golfers elbow.

Should I phone rheumatology about my body rash?

As anyone had IVGG or Benlysta to treat lupus and if so did it help?

Meaning of MCV and red blood cell distribution width?

Does anyone else get really dry skin on their face along with their butterfly rash?

Single mum, worried what will happen if this Lupus gets worse... who will look after us?! :-(

B12 Injection did absolutely nothing. I have Lupus, Sjogrens, Raynauds, Celiacs, Infectious Diseases, including parasites, fungus, bacterias

lupus butterfly rash?

I have been lucky enough to have had a disability car for the past two and a half years, due to run out this year. What do I do?

So so tired...

Lupus or not

Anyone had eye problems? Just come back from a long appointment at optitians , quite worried.

Has anyone been diagnosed with lupus by an immunologist?

wisparolo.

TEESSIDE LUPUS SUPPORT GROUP MEETING

I have developed a new symptom: extremely sensitive teeth. Can this be anything to do with my lupus? Does anyone else have this?

Depression and Care Co-ordination

Knee and ankle pain. Is it lupus or fibromyalgia?

Do I feel ok because of the meds?

lumber puncture

Tingling and numb fingers

Liflunomide.....

ESA Assessment transfer from IB

Anybody taking two different lots of steroids ?

Nausia

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