Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2014

What contraception do you use??

Hi All, Ive been on Cerazzete for the past 3 years due to very heavy periods and Marvelon contributing to a flare. Im getting fed up of the constant spotting...

Hi All, Ive been on Cerazzete for the past 3 years due to very heavy periods a...

Corrosion

•10 years ago

3 Replies

Hi does a reflux and a prolapse of the cervix have any connection x

I have them both at once and it is getting me down so muchx

libainfo1

•10 years ago

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How quickly did your health deteriorate after diagnosis?

I have been thru so much since being diagnosed a year ago . At that time i thought it wasnt hoing to be a big deal because of how the rhrumy positoned it. Now...

I have been thru so much since being diagnosed a year ago . At that time i thoug...

Hidden

•10 years ago

9 Replies

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Cystoscopy and CT kidney scan booked. What to expect?

OK, you may recall I asked for advice on blood in urine 3 weeks ago? I am just starting my 3rd week long course of antibiotics and today was informed of a date...

OK, you may recall I asked for advice on blood in urine 3 weeks ago? I am just s...

Bonnie39

•10 years ago

2 Replies

Would it make any difference if I take my pred at night and not in the morning. Missed taking today and I am not eating like a pig,

Lozzanne

•10 years ago

11 Replies

On the topic of Colloidal Silver. Does anybody know....If the body is being pumped with pharmaceuticals Will the Silver be effective?

It is my friends dog, who has lupus...i want to try the silver on her...but she is taking Rx narcotics and I'm concerned about interaction/ineffectiveness

It is my friends dog, who has lupus...i want to try the silver on her...but she ...

ZaNorah

•10 years ago

12 Replies

Does anybody have problems with there Dip and Pip joints feeling like there popping out?

I've noticed this before when I'm flaring. But it feels like the Dip joint (closest to nail) and pip (middle knuckle) just want to pop out and they crackle....

I've noticed this before when I'm flaring. But it feels like the Dip joint (clos...

Jo883

•10 years ago

4 Replies

Atos

I just heard on the new today that Atos are pulling out of their contract early because of death threats. Government are angry that it went public because...

I just heard on the new today that Atos are pulling out of their contract early ...

jacqueline121

•10 years ago

9 Replies

I wonder if anyone can advise me if suffering from controlling bladder and requires urgent trip to Toilet?

I have a problem of after drinking 2 cups of water I must rush to toilet before loosing the control. Any ecffective medicine has anybody tried? Appreciate your...

I have a problem of after drinking 2 cups of water I must rush to toilet before ...

sparvizi

•10 years ago

15 Replies

Could anyone advise on what I should do I have epilepsy and have at least 1 seizure per week which I can take 24-48 hrs to recover from

I attended atos medical advisor said she recommended 2year as my condition hadnt changed since 1995 when I got word back I have been placed in work related...

I attended atos medical advisor said she recommended 2year as my condition hadn...

donna1689

•10 years ago

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Does anyone else overheat after exertion?

I can start to get hot, red face, feel like I am burning up inside etc. then I can't cool down. Next I feel ill, a bit dizzy, tearful followed by by being...

I can start to get hot, red face, feel like I am burning up inside etc. then I ...

saranne

•10 years ago

13 Replies

Why are my bloods not playing ball?

I have been diagnosed with lupus (skin and query SLE), joint hypermobility, and reynaulds. Since Christmas I have had recurrent infections (tonsils, ears and...

I have been diagnosed with lupus (skin and query SLE), joint hypermobility, and ...

tjperfick

•10 years ago

11 Replies

piturty gland problems???

hi all,recently ive been having strange visual problems,lights in my eyes,vidual snow dislike of bright like all very scary,went to drs they said optical...

hi all,recently ive been having strange visual problems,lights in my eyes,vidual...

poodlegal

•10 years ago

6 Replies

Work, mind and body

Ive still not been diagnosed as yet,I'm now in the possibly fibromyalgia/connective tissue disorder? Dont really know category . Im up and down, and am on...

Ive still not been diagnosed as yet,I'm now in the possibly fibromyalgia/connect...

tmh66

•10 years ago

2 Replies

Numbness,tingling limbs, memory,balance and speech,fatigue.. the list goes on.. referred to neurologist but all results r FINE! now what!!

Told that there is no central nervous system involvement - which I am very pleased about (MRI brain scan and lumbar picture came back fine)- so Neurologist...

Told that there is no central nervous system involvement - which I am very pleas...

Hidden

•10 years ago

15 Replies

I have been on methotrexate for 5 months with effects of mild nausea, this weeks dose has literally knocked me for six

I feel extremely nauseated it is the third day after taking mtx and I still feel extremely nauseated I just want this feeling to go away is there any...

I feel extremely nauseated it is the third day after taking mtx and I still feel...

Ninamann

•10 years ago

4 Replies

Anyone with lupus qualified for a disabled parking badge?

Hi, the fatigue and joint pains get do bad, i wish i could park closer to shops etc. if anyone knows about this, please can u let me know? Many thanks x

Hi, the fatigue and joint pains get do bad, i wish i could park closer to shops ...

Hidden

•10 years ago

19 Replies

Enfield Lupus Group at Hair & Lifestyle Expo 06/04/2014

Enfield Lupus Group have generously been offered an information table and an opportunity for a short presentation at the upcoming "Natural Hair & Lifestyle...

Enfield Lupus Group have generously been offered an information table and an opp...

Paul_Howard

Partner•10 years ago

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Fell off 'the grid'...

After falling downstairs from the top to 3 from the bottom. I am nit new to this, it happens a lot BUT Ive never fractured my thoracic vertebrae before in the...

After falling downstairs from the top to 3 from the bottom. I am nit new to this...

Nanuuk

•10 years ago

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How bad is it that we just dont know how we will feel when we wake up each day??

Im finding it increasingly tough not knowing how going to feel the next day. Actually sometimes how i feel changes hour by hour

Im finding it increasingly tough not knowing how going to feel the next day. Ac...

Hidden

•10 years ago

8 Replies

Anyone else who has to ask for Mycophenolate & Hydroxy every month from GP instead of having it on repeat prescription?

I saw my GP yesterday to discuss various tests & treatments I have been having recently (I was diagnosed with MCTD with 'lupus like symptoms' according to...

I saw my GP yesterday to discuss various tests & treatments I have been having r...

tcogb

•10 years ago

12 Replies

Autoimmunity and gluten.

http://wellness-punks.com/videos/gluten-and-autoimmunity-in-20-minutes This video is well worth persevering with, especially the last 5 minutes, where the...

http://wellness-punks.com/videos/gluten-and-autoimmunity-in-20-minutes This vid...

chlorophyle

•10 years ago

4 Replies

Critical Illness Insurance

Does anyone have any experience of making a claim against Critical illness Insurance for their SLE? I am unable to work due to the chronic fatigue and other...

Does anyone have any experience of making a claim against Critical illness Insur...

MargaretGail

•10 years ago

10 Replies

newly diagnosed

I have suffered with a horrible skin complaint for 10 years and have seen many dermatologists, I saw a new specalist from London on Friday and he told me I had...

I have suffered with a horrible skin complaint for 10 years and have seen many d...

ulsterchick61

•10 years ago

13 Replies

FIND A PIN AND PICK IT UP, ALL THE DAY YOU'LL HAVE GOOD LUCK

Probably only the older of us will recognise this saying, I count myself amongst that group. Please, if you find a pin, send it to me. In my imagination I...

Probably only the older of us will recognise this saying, I count myself amongst...

KathinAyrshire

•10 years ago

6 Replies

Should an ultrasound of the kidneys be excruciatingly painful?

Only, I've just been for an abdo scan because of various issues I've been having, and when it came time for the doctor to run the probe of my kidneys (both...

Only, I've just been for an abdo scan because of various issues I've been having...

Hidden

•10 years ago

22 Replies

Looking awful but feeling ok?

Most of the posts here touch upon people commenting how well one looks when in fact that person is suffering. I'm having the reverse experience at the moment....

Most of the posts here touch upon people commenting how well one looks when in f...

Purpletop

•10 years ago

31 Replies

Possible disruption to public transport around the St Thomas' area!

Hi guys Vauxhall bus station lies around on mile from St Thomas, built at vast expense to help link and flow public and car transport more efficiently. Bus,...

Hi guys Vauxhall bus station lies around on mile from St Thomas, built at vast...

MaryF

•10 years ago

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Online research study looking at social support and quality of life in people with lupus

Researchers at the University of Limerick in Ireland are investigating links between social supports and quality of life in individuals with lupus. They are...

Researchers at the University of Limerick in Ireland are investigating links bet...

Paul_Howard

Partner•10 years ago

19 Replies

has anyone applied for personal independent payment and were accepted I have a face to face interview tomorrow and don't no what to expect

debby197

•10 years ago

20 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2014

What contraception do you use??

Hi does a reflux and a prolapse of the cervix have any connection x

How quickly did your health deteriorate after diagnosis?

Cystoscopy and CT kidney scan booked. What to expect?

Would it make any difference if I take my pred at night and not in the morning. Missed taking today and I am not eating like a pig,

On the topic of Colloidal Silver. Does anybody know....If the body is being pumped with pharmaceuticals Will the Silver be effective?

Does anybody have problems with there Dip and Pip joints feeling like there popping out?

Atos

I wonder if anyone can advise me if suffering from controlling bladder and requires urgent trip to Toilet?

Could anyone advise on what I should do I have epilepsy and have at least 1 seizure per week which I can take 24-48 hrs to recover from

Does anyone else overheat after exertion?

Why are my bloods not playing ball?

piturty gland problems???

Work, mind and body

Numbness,tingling limbs, memory,balance and speech,fatigue.. the list goes on.. referred to neurologist but all results r FINE! now what!!

I have been on methotrexate for 5 months with effects of mild nausea, this weeks dose has literally knocked me for six

Anyone with lupus qualified for a disabled parking badge?

Enfield Lupus Group at Hair & Lifestyle Expo 06/04/2014

Fell off 'the grid'...

How bad is it that we just dont know how we will feel when we wake up each day??

Anyone else who has to ask for Mycophenolate & Hydroxy every month from GP instead of having it on repeat prescription?

Autoimmunity and gluten.

Critical Illness Insurance

newly diagnosed

FIND A PIN AND PICK IT UP, ALL THE DAY YOU'LL HAVE GOOD LUCK

Should an ultrasound of the kidneys be excruciatingly painful?

Looking awful but feeling ok?

Possible disruption to public transport around the St Thomas' area!

Online research study looking at social support and quality of life in people with lupus

has anyone applied for personal independent payment and were accepted I have a face to face interview tomorrow and don't no what to expect

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