Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for February 2014

Just been to see my GP and he dropped a bombshell!

I have been suffering with my lower back for the last few weeks, it had apparently gone into spasm but yesterday after I decided I felt a better, took myself...

I have been suffering with my lower back for the last few weeks, it had apparent...

Houghton73shaw

•10 years ago

6 Replies

Reducing Plaquenil anyone?

My rheumatologist is reducing my Plaquenil from 400mg to 200mg per day. Does anyone have any experience with reduction in hydroxy? Any bad reaction? How...

My rheumatologist is reducing my Plaquenil from 400mg to 200mg per day. Does an...

Purpletop

•10 years ago

34 Replies

Hi I need holiday insurance. Can you recommend any?

kate47

•10 years ago

6 Replies

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Hi newbie here, I was just wondering about taking steroids alternate days, & does anybody else do this I have just been reduced again 5mg/8

I am 29 years old, I was diagnosed 12 months ago after nearly a five-year battle of going back and forth from doctors. After the birth of my daughter, My...

I am 29 years old, I was diagnosed 12 months ago after nearly a five-year battle...

Jjscosycakes

•10 years ago

5 Replies

February's Blog (Part 2) - Wendy's Journey to Diagnosis

Hi everyone. For the second of this month's blogs Wendy has written about her experiences in getting diagnosed with lupus. Thank you so much Wendy for...

Hi everyone. For the second of this month's blogs Wendy has written about her ex...

Paul_Howard

Partner•10 years ago

2 Replies

Hello i was wondering do you know when and where the next Lupus meeting will be held belfast N I

libainfo1

•10 years ago

1 Reply

C3 and C4 levels up and down? Discharged after 1out of 5 showed negative for auto immune screen!!!

Advice please. My son is 5 and his blood was being monitored as they suspected Systemic Lupus. 4 of his blood tests showed low C4 with regular leg pains and...

Advice please. My son is 5 and his blood was being monitored as they suspected S...

meeche1978

•10 years ago

2 Replies

18 weeks pregnant and so down are things just going to get worse?

Hi everyone thanks for reading I'm 22 and 18 weeks pregnant with a unplanned baby and pregnancy is kickin me up the bum lol I'm in so much pain and my mobility...

Hi everyone thanks for reading I'm 22 and 18 weeks pregnant with a unplanned bab...

Zoezoe752

•10 years ago

5 Replies

Reducing steroids for Polymyalgia. Dow to 4mg from 5mg and don't know if it's that or not but osteoarthritis flaring up.

Had been diagnosed with the arthritis a few years ago and have never felt it in feet or hands before, but now wondering if the steroids have masked it. Should...

Had been diagnosed with the arthritis a few years ago and have never felt it in ...

Briagh

•10 years ago

3 Replies

Hi Is there a support group in London does anyone know?

I have had SLE for about 12 years I would like to know if there is a support group in London it is nice to talk to someone who has it or is going through it

I have had SLE for about 12 years I would like to know if there is a support gro...

sharon53

•10 years ago

14 Replies

TEESSIDE LUPUS SUPPORT GROUP MEETING on the 29th March 2014

Everyone is welcome!! Come and share information and educate others and support one another, Teesside Lupus Support Group Meeting Date: 29 March 2014...

Everyone is welcome!! Come and share information and educate others and suppor...

Pipido36

•10 years ago

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Return to work

Is anybody either working or going through a phased return to work? I have been off since May 2013 and a phased return is being mooted. The idea is I do...

Is anybody either working or going through a phased return to work? I have been ...

DaleDiva

•10 years ago

12 Replies

Hi just reading post re 'ginger tea' and would like to know how much water to mix with fresh ginger?

flossy1

•10 years ago

7 Replies

what ib2 glycoproteins ? the range should be between 0 - 5 and its 11.7

Malteser

•10 years ago

2 Replies

What's next after dermatologist confirms lupus after punch biopsy

Hi to everyone, just wanted to introduce myself. Have suspected Lupus for last 20 years or so with rashes and many symptoms. In this time have seen 3...

Hi to everyone, just wanted to introduce myself. Have suspected Lupus for last 2...

Pat11

•10 years ago

3 Replies

February's Blog (Part 1) - Jenny's Journey to Diagnosis

Hi everyone. The first of this month's blogs has been written by Jenny about her experiences in getting diagnosed with lupus. We'd like to say a big thank...

Hi everyone. The first of this month's blogs has been written by Jenny about her...

Paul_Howard

Partner•10 years ago

4 Replies

Now I am cross! Why don't doctors communicate with patients??!

Hi there I haven't posted on here for a while because I am on the dizzy merry go round of the NHS trying to discover what is wrong with me. I am so so sorry...

Hi there I haven't posted on here for a while because I am on the dizzy merry g...

melodypond

•10 years ago

21 Replies

Oxfordshire based patients

saw an amazing Rheumy at the Nuffield yesterday. Prof Luqmani, can highly recommend him. Been referred to all and sundry and there he was on my doorstep....

saw an amazing Rheumy at the Nuffield yesterday. Prof Luqmani, can highly recomm...

loublou

•10 years ago

8 Replies

Feeling discriminated against on my return to work....

I am , and I say against the advice of my GP and family( Rhuemy says entirely up to me) returning to work after 5months off. This was since the diagnosis of...

I am , and I say against the advice of my GP and family( Rhuemy says entirely up...

Houghton73shaw

•10 years ago

15 Replies

My dr is finally investigating my symptoms and testing me for Lupus any advice please

I'm completely new to all this Lupus business, for years my Dr has tried fobbing me off with my fatigue being down to me being over weight and my under-active...

I'm completely new to all this Lupus business, for years my Dr has tried fobbing...

laura2786

•10 years ago

9 Replies

Government Plans to Share Patient Data-through ATOS!

The following is a copy of a post I have placed on the Hughes Syndrome HU pages. It applies equally here and indeed elsewhere. Can I draw the attention of...

The following is a copy of a post I have placed on the Hughes Syndrome HU pages....

tim47

•10 years ago

5 Replies

does anyone know?

i ahve printed off a copy of a symptoms checklist fro hypothyroidism to present to my gp.where can I find the same for lupus

i ahve printed off a copy of a symptoms checklist fro hypothyroidism to present ...

anbuma

•10 years ago

3 Replies

Azathioprine

I just been but back on this after about a 10yr break. I had a child and at the time it wasn't safe to take whilst pregnant. My lupus has been on Gas Mark...

I just been but back on this after about a 10yr break. I had a child and at the...

kazp

•10 years ago

15 Replies

Do You Want To Stop Jeremy Hunt From Closing Any Hospital He Feels Like In England? Please Sign The Petition To Stop Him Before Its Too Late

Do You Want To Stop Jeremy Hunt From Closing Any Hospital He Feels Like In England? Please Sign The Petition To Stop Him Before Its Too Late Do You Want To...

Do You Want To Stop Jeremy Hunt From Closing Any Hospital He Feels Like In Engla...

MaryF

•10 years ago

Be the first to reply

Aloe Vera

Hi there, I meet a lady today. She came to talk about Forever living, they do products which have Aloe Vera I found that someone had used it and it's changed...

Hi there, I meet a lady today. She came to talk about Forever living, they do pr...

tiggergirl

•10 years ago

23 Replies

Since I was diagnosed with Lupus 16 years ago, my teeth have gone from bad to worse..the problem now mainly is the color,

even the whitening kit is not working, anyone else experienced problems?

strawberrylips

•10 years ago

8 Replies

New to this site

Im trying to find a understanding and knowlegable rheumatologist with expereince of muscle and vein inflamation. I live in the north west Lancs but can easily...

Im trying to find a understanding and knowlegable rheumatologist with expereince...

yorkshiregirl44

•10 years ago

4 Replies

Night sweating

really suffering these last few weeks with the dreaded night sweats. I expect my avn to wake me up with pain. But finding the sweats a real pest. Any tips? Is...

really suffering these last few weeks with the dreaded night sweats. I expect my...

loublou

•10 years ago

25 Replies

DLA appeal !

Hi everyone I ain't been on here in a while some of you may remember that I posted that my wife had her dla stopped with no medical evidence, because some...

Hi everyone I ain't been on here in a while some of you may remember that I post...

silverback

•10 years ago

19 Replies

Does anyone take duloxetine for chronic pain syndrome and suffer with sweating from it?

Hi guy's, My rheumy put me on duloxetine 60mg about 2 months ago for nerve pain and ever since I started it I've been suffering from hot flushes and sweating...

Hi guy's, My rheumy put me on duloxetine 60mg about 2 months ago for nerve pain...

sezzie

•10 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2014

Just been to see my GP and he dropped a bombshell!

Reducing Plaquenil anyone?

Hi I need holiday insurance. Can you recommend any?

Hi newbie here, I was just wondering about taking steroids alternate days, & does anybody else do this I have just been reduced again 5mg/8

February's Blog (Part 2) - Wendy's Journey to Diagnosis

Hello i was wondering do you know when and where the next Lupus meeting will be held belfast N I

C3 and C4 levels up and down? Discharged after 1out of 5 showed negative for auto immune screen!!!

18 weeks pregnant and so down are things just going to get worse?

Reducing steroids for Polymyalgia. Dow to 4mg from 5mg and don't know if it's that or not but osteoarthritis flaring up.

Hi Is there a support group in London does anyone know?

TEESSIDE LUPUS SUPPORT GROUP MEETING on the 29th March 2014

Return to work

Hi just reading post re 'ginger tea' and would like to know how much water to mix with fresh ginger?

what ib2 glycoproteins ? the range should be between 0 - 5 and its 11.7

What's next after dermatologist confirms lupus after punch biopsy

February's Blog (Part 1) - Jenny's Journey to Diagnosis

Now I am cross! Why don't doctors communicate with patients??!

Oxfordshire based patients

Feeling discriminated against on my return to work....

My dr is finally investigating my symptoms and testing me for Lupus any advice please

Government Plans to Share Patient Data-through ATOS!

does anyone know?

Azathioprine

Do You Want To Stop Jeremy Hunt From Closing Any Hospital He Feels Like In England? Please Sign The Petition To Stop Him Before Its Too Late

Aloe Vera

Since I was diagnosed with Lupus 16 years ago, my teeth have gone from bad to worse..the problem now mainly is the color,

New to this site

Night sweating

DLA appeal !

Does anyone take duloxetine for chronic pain syndrome and suffer with sweating from it?

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