Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for January 2014

How did you explain your condition to your young children?

Hi everyone, I'm hoping you can all be of assistance. I've had an email from a lady who was recently diagnosed with lupus, and is having trouble helping her...

Hi everyone, I'm hoping you can all be of assistance. I've had an email from a l...

Paul_Howard

Partner•10 years ago

6 Replies

Hi all. Can anyone give me advice on travel insurance. I would like to see my little granddaughter in Switzerland on her 5th birthday.

flossy1

•10 years ago

8 Replies

Shaking and trembling, hurts to the point of crying

Im 13 years, and i keep having these problems, i have had them for about a month. First it started out where my head really hurt, i couldnt stand up or just...

Im 13 years, and i keep having these problems, i have had them for about a month...

ForgottenChild

•10 years ago

8 Replies

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Does anyone have trouble sleeping on mycophenolate?

Hi everyone. I have just upped my mycophenolate dose to 750mg in the morning and 750mg at night. I have been suffering ever since with trouble sleeping. It's...

Hi everyone. I have just upped my mycophenolate dose to 750mg in the morning and...

joannebond360

•10 years ago

31 Replies

hi everyone, got up today with the start of a rash on my face, Just a few very small weeping spots. what can i use?

also in hospital on the 10/2 at sunderland for a ILOPROST INFUSION and quite worried about it. Anyone with any tips? thankyou x x x x

also in hospital on the 10/2 at sunderland for a ILOPROST INFUSION and quite wor...

louloubabalou

•10 years ago

1 Reply

We want your stories for our blog!

This year for our blog, we want to feature your stories each month. For January and February we're looking for people to share their story about dealing with a...

This year for our blog, we want to feature your stories each month. For January ...

Paul_Howard

Partner•10 years ago

12 Replies

Does anyone know what high c3 levels mean?

I saw my gp this morning following my recent flare and she said my c3 levels were high (169) but didn't know what it meant. My c4 levels were 0.31. I've...

I saw my gp this morning following my recent flare and she said my c3 levels wer...

sezzie

•10 years ago

2 Replies

Rhuematology update good news

Hello guys just an update in my rhuematology appointment. I got transferd from Bridgend to swansea as travelling from swansea to Bridgend was a pain now I am...

Hello guys just an update in my rhuematology appointment. I got transferd from B...

blondie22

•10 years ago

1 Reply

Nhs complaints

hi guys. If anyone has a complaint about the nhs EG appointment or been treated unfairly or any complaint at all. Here is the complaints e-mail address if...

hi guys. If anyone has a complaint about the nhs EG appointment or been treated ...

blondie22

•10 years ago

4 Replies

Does anyone have a problem with their Primary Care Trust refusing to prescribe medication ordered by the consultant? What is the solution?

Hidden

•10 years ago

9 Replies

Colchicine and pregnancy advice please ;)

Hello, I am on colchicine for suspected Metiterranean fever and cannot come off it as it causes severe pericarditis and other complications. I am planning a...

Hello, I am on colchicine for suspected Metiterranean fever and cannot come off ...

lollalettuce

•10 years ago

1 Reply

Typs for keeping warm

Hey guys I find my office unbearably cold especially in my fingers and toes as I get Raynaud's phenomenon but unfortunately gloves are not appropriate for...

Hey guys I find my office unbearably cold especially in my fingers and toes as...

wotshernameagain

•10 years ago

6 Replies

Steroids

From just before Xmas I felt myself becoming slower and slower to the point I've no energy ache all over and could make sleeping an official sport! I've tried...

From just before Xmas I felt myself becoming slower and slower to the point I've...

eejit

•10 years ago

16 Replies

Roof of mouth itches like crazy!

When I wake of a morning my mouth itches like crazy sometimes and the only way it can get at it is with my tongue. After the itch subsides, I am left with a...

When I wake of a morning my mouth itches like crazy sometimes and the only way i...

bestbuddy

•10 years ago

4 Replies

SLE and terrible itching after shower!

I was diagnosed with SLE 3 years ago and theres alot that goes on but this is by far the worst... Itching. So this has probably already been discussed but I...

I was diagnosed with SLE 3 years ago and theres alot that goes on but this is by...

Danie_Leshaye

•10 years ago

24 Replies

I live in Australia. Anyone experiencing increased photosensitivity symptoms with their Lupus-sores from scratching itchy tingling skin?

I just went online & discovered this site. I have been inspired by your stories & helpful comments. It is often hard to keep positive with this disease...

I just went online & discovered this site. I have been inspired by your stories ...

Aussielupie

•10 years ago

15 Replies

PIP news and its actually good

I called the guys at DWP to try and get an idea of how long it would take for my PIP claim to be proceed. I was surprised to be told by the advisor that it...

I called the guys at DWP to try and get an idea of how long it would take for my...

wotshernameagain

•10 years ago

40 Replies

BUCKET LIST

I'm 68 years old, have a business to run that relies on house sitters, and so have to curb my enthusiasm for 'nefarious' undertakings, travelling alone, which...

I'm 68 years old, have a business to run that relies on house sitters, and so h...

KathinAyrshire

•10 years ago

19 Replies

Anyone having problems taking Alendronate (Alendronic Acid) for osteoporosis as a result of taking steroids for 14 years?

I suffered a spinal fracture last August and was told that it was probably because I'd been taking varying doses of steroids for 14 years for my SLE and APS. I...

I suffered a spinal fracture last August and was told that it was probably becau...

Rockhopper

•10 years ago

5 Replies

hi can anyone tell me how to go about private opinion andhow much it will cost thx

maggied54

•10 years ago

21 Replies

lupus or not

if I have scalp condition (follicular something?),butterfly rash on face,rash on hands and legs and nasal sores-would not link them all to lupus?my dr said...

if I have scalp condition (follicular something?),butterfly rash on face,rash on...

anbuma

•10 years ago

9 Replies

Drug Allergies!

Since being diagnosed with Lupus I have developed soooo many allergies to drugs, it's now becoming a worry. I'm allergic to most types of antibiotic, different...

Since being diagnosed with Lupus I have developed soooo many allergies to drugs,...

Kate-L

•10 years ago

8 Replies

Does anyone have autoimmune hepatitis as well as lupus?

I have recently been diagnosed with lupus and already have autoimmune hepatitis (AIH) and wonder if there are others of you who have both disorders? It might...

I have recently been diagnosed with lupus and already have autoimmune hepatitis ...

Hidden

•10 years ago

7 Replies

Aching after swimming - should I go again soon?

Hi, went for a swim with my sisters yesterday, loved it, had a gentle swim, did a few lengths and walked up and down pool to loosen up, also had a sauna, steam...

Hi, went for a swim with my sisters yesterday, loved it, had a gentle swim, did ...

Slowmo

•10 years ago

10 Replies

South manchester groups?

Morning! I just wondered if there were any lupus groups within the south manchester area- does anyone know? Thanks Sian xxxx

Morning! I just wondered if there were any lupus groups within the south manches...

Sianied

•10 years ago

2 Replies

ANY PROBLEMS SLEEPING

I have been diagnosed with SLE, Discoid, Reynauds and Sjorgens. I am currently taking 200mg Azathioprine, 2000 paracetamol plus Gabapentin plus other pain...

I have been diagnosed with SLE, Discoid, Reynauds and Sjorgens. I am currently ...

KathinAyrshire

•10 years ago

40 Replies

side effects

over the years of having lupus I have been offered an array of meds, all come with risks of side effects ; anything from neasea, dizziness, more pain, hair...

over the years of having lupus I have been offered an array of meds, all come wi...

caninecrazy

•10 years ago

16 Replies

prescriptions

what can i do for not to pay my prescriptions?

claradias

•10 years ago

7 Replies

New member introduction

Good afternoon. I have recently been diagnosed with lupus and already have autoimmune hepatitis. I also have suspected Sjogren's syndrome although anti Ro...

Good afternoon. I have recently been diagnosed with lupus and already have auto...

Hidden

•10 years ago

9 Replies

Newly Diagnosed

Ive just been diagnosed with mild Lupus! Im currently feeling confused! Ive been in a lot of pain for 2yrs!! The consultant was very matter of fact! He...

Ive just been diagnosed with mild Lupus! Im currently feeling confused! Ive been...

Vonnie80

•10 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2014

How did you explain your condition to your young children?

Hi all. Can anyone give me advice on travel insurance. I would like to see my little granddaughter in Switzerland on her 5th birthday.

Shaking and trembling, hurts to the point of crying

Does anyone have trouble sleeping on mycophenolate?

hi everyone, got up today with the start of a rash on my face, Just a few very small weeping spots. what can i use?

We want your stories for our blog!

Does anyone know what high c3 levels mean?

Rhuematology update good news

Nhs complaints

Does anyone have a problem with their Primary Care Trust refusing to prescribe medication ordered by the consultant? What is the solution?

Colchicine and pregnancy advice please ;)

Typs for keeping warm

Steroids

Roof of mouth itches like crazy!

SLE and terrible itching after shower!

I live in Australia. Anyone experiencing increased photosensitivity symptoms with their Lupus-sores from scratching itchy tingling skin?

PIP news and its actually good

BUCKET LIST

Anyone having problems taking Alendronate (Alendronic Acid) for osteoporosis as a result of taking steroids for 14 years?

hi can anyone tell me how to go about private opinion andhow much it will cost thx

lupus or not

Drug Allergies!

Does anyone have autoimmune hepatitis as well as lupus?

Aching after swimming - should I go again soon?

South manchester groups?

ANY PROBLEMS SLEEPING

side effects

prescriptions

New member introduction

Newly Diagnosed

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