Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2014

January's Blog - Lisa's Journey to Diagnosis

Hi everyone. This month's blog has been written by Lisa about her experiences in getting diagnosed with lupus. We'd like to say a big thank you to Lisa for...

Hi everyone. This month's blog has been written by Lisa about her experiences in...

Paul_Howard

Partner•10 years ago

14 Replies

Update on work

Well guys I decided I just couldn't do it, I didn't start my new job :( I don't know whether I did the right thing or not, I do feel really sad I know that. I...

Well guys I decided I just couldn't do it, I didn't start my new job :( I don't ...

zebedee01

•10 years ago

15 Replies

Sjrogens lip biopsey

Hi, i had my sjrogens lip biopsey on tuesday and am still in bed recovering. I was v sick after anesthetic and got an anti sickness iv. I had an antibiotic iv...

Hi, i had my sjrogens lip biopsey on tuesday and am still in bed recovering. I w...

lollalettuce

•10 years ago

6 Replies

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Blood tests - what do they look for

Hi, I know it's not long since I posted to say my GP confirmed my bloods were negative and there was nothing more he could do...but I've just been sent a...

Hi, I know it's not long since I posted to say my GP confirmed my bloods were ne...

Hidden

•10 years ago

4 Replies

Dry mouth and throat....

I have for the last several months been suffering sever dry mouth to the extent i cant swallow or eat anything wen its at it worse,this doesnt last all day but...

I have for the last several months been suffering sever dry mouth to the extent ...

mojo

•10 years ago

10 Replies

Can Lupus symptoms change?

When initially diagnosed in 1999 I had an overlap with Discoid Lupus and 'mild' Systemic Lupus - (I was practically unable to walk but had no organ...

When initially diagnosed in 1999 I had an overlap with Discoid Lupus and 'mild' ...

LynnyJ

•10 years ago

5 Replies

Have you been told you have MILD !!!! Lupus ????

I have only been on this site for a few months, but the amount of times I read, mild lupus, is never relative to a sufferers opinion. I also have mild lupus...

I have only been on this site for a few months, but the amount of times I read, ...

Hidden

•10 years ago

28 Replies

My mouth and Lips

Does anyone suffer really sore lips? My top lip has 2 deep cuts going through them. Its really painful I seem to always have skin peeling off the inside of my...

Does anyone suffer really sore lips? My top lip has 2 deep cuts going through th...

GillsM

•10 years ago

7 Replies

Steroid reduction

Hi all What, if any, syptoms showed up when reducing steroids? And how long before things stabilised? Reduced from 12.5 to 10 after 18 months. Feeling really...

Hi all What, if any, syptoms showed up when reducing steroids? And how long bef...

Hidden

•10 years ago

4 Replies

My mouth and Lips

Does anyone suffer really sore lips? My top lip has 2 deep cuts going through them. Its really painful I seem to always have skin peeling off the inside of my...

Does anyone suffer really sore lips? My top lip has 2 deep cuts going through th...

GillsM

•10 years ago

2 Replies

Saying Hi

New here, thanks for the add, I have no real idea what is wrong with me, other than food makes me ill and Dr's have no interest in helping me other than more...

New here, thanks for the add, I have no real idea what is wrong with me, other t...

Jay627

•10 years ago

6 Replies

Hi all. I have been seeing a rheumatologist for some time now & she has given me steroids injections including injections straight into my

hand. Today I go & I get seen by another consultant (but in the same team). He was completely dismissive, refused me injections saying that you should never be...

hand. Today I go & I get seen by another consultant (but in the same team). He w...

dawsden

•10 years ago

6 Replies

Be part of a brand new TV show

I've just had a call from Optomen TV who are currently working on a brand new show for Discovery TLC Channel. The show will explore different medical...

I've just had a call from Optomen TV who are currently working on a brand new sh...

Paul_Howard

Partner•10 years ago

13 Replies

Does anyone have problems with chlorine in the swimming pool?

hello fellow loopies. I am doing really well now that I understand my condition and try to work within its limitations. I have just taken up swimming again...

hello fellow loopies. I am doing really well now that I understand my condition...

Fitchick1

•10 years ago

13 Replies

Negative Anca, normal antibeta 2 glycoprotein and started with seizures

Hi folks not sure what I'm looking for to be honest but wanted to put a post on here. Have been told over the years I have vasculitis, lupus and APS, I'm also...

Hi folks not sure what I'm looking for to be honest but wanted to put a post on ...

annie330

•10 years ago

3 Replies

Awful palpitations! Does anyone else suffer from this?

Hi guy's, Just wanting a bit of advice AGAIN sorry. I've suffered from palpitations in the past which I took beta blockers for and they controlled it how ever...

Hi guy's, Just wanting a bit of advice AGAIN sorry. I've suffered from palpitat...

sezzie

•10 years ago

20 Replies

Hello again

Hi guys. Not been on for a while. Haven't been too bad over the past few months but hay ho a flare has started. Pain in my joints. Ouch. Been to my docs who...

Hi guys. Not been on for a while. Haven't been too bad over the past few months ...

Clairebear

•10 years ago

5 Replies

Lupus Myositis

Just been told by my Rheumatologists that I have Lupus Myositis and I will need to have a muscle biopsy on Friday and some other tests, then its back on the...

Just been told by my Rheumatologists that I have Lupus Myositis and I will need ...

wotshernameagain

•10 years ago

3 Replies

Lupus, or APS "only"?

I have just got back the results from the range of blood tests ordered at St Thomas' but still have a month to wait before I am back to see the doctor. APS...

I have just got back the results from the range of blood tests ordered at St Tho...

Bonnie39

•10 years ago

2 Replies

I have recently been diagnosed with SLE Lupus

I'm 20 and was diagnosed in October 2013. The last few months have definitely been a struggle! I have been having problems sleeping, even though I feel...

I'm 20 and was diagnosed in October 2013. The last few months have definitely be...

Jasmin12

•10 years ago

17 Replies

Has anybody been diagnosed with Bronchiectasis?

Hi was just wondering if anybody has been diagnosed with Bronchiectasis.I have been having problems with a terrible cough that produces lots of mucus,this has...

Hi was just wondering if anybody has been diagnosed with Bronchiectasis.I have b...

mum-two

•10 years ago

4 Replies

Work??

I don't know what to do, I feel so down :( I was feeling so much better a couple of months ago and my rheumatologist said I could reduce meds! I was so happy...

I don't know what to do, I feel so down :( I was feeling so much better a couple...

zebedee01

•10 years ago

24 Replies

LDN a cheap and viable patient option for autoimmune disease

Such a shame that it is so hard to get hold of and considering how effective it is, the public are being kept away from it, probably because it is cheap and...

Such a shame that it is so hard to get hold of and considering how effective it ...

MaryF

•10 years ago

31 Replies

my skin rashes

skin rashes on hands tell me this isn't lupus??

anbuma

•10 years ago

4 Replies

Lupus or not?

I have been in and out of the doctors with one first telling me he was sure it was lupus, then the blood tests coming back negative. Others have believed its...

I have been in and out of the doctors with one first telling me he was sure it w...

louyoung92

•10 years ago

9 Replies

Random question but for anyone who has any degenerative joint problems alongside their Lupus....

I need to find a really good hip surgeon in the North West. I only moved from the Midlands in the summer after bilateral hip arthroscopies in July (one of the...

I need to find a really good hip surgeon in the North West. I only moved from th...

Hidden

•10 years ago

8 Replies

Any body with serositis with their lupus, like me.

Is there anyone here that suffers serousitis with their lupus sle, serositis inflamation of the, heart, lungs, abdomen and lining of the abdomen. Not alot of...

Is there anyone here that suffers serousitis with their lupus sle, serositis inf...

willowwag

•10 years ago

8 Replies

Recently Diagnosed with SLE and looking for help.

Hi I have just very recently been diagnosed with SLE. It has been a bit of lengthy process to get to this point after a few years of several doctor trips...

Hi I have just very recently been diagnosed with SLE. It has been a bit of len...

GillsM

•10 years ago

12 Replies

Hi all, ive just been to my Rheumy, he has given me a steroid injection hoping it will give me some relief. Anyone else found they help?

Newloop

•10 years ago

16 Replies

PATCHES FOR PAIN MEDICATION any advice or experience please

I have had to come off NSAID's following a serious bleed, and my gp has suggested dihydrocodeine, max 360mg a day together with sachets of stuff to be taken...

I have had to come off NSAID's following a serious bleed, and my gp has suggeste...

KathinAyrshire

•10 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2014

January's Blog - Lisa's Journey to Diagnosis

Update on work

Sjrogens lip biopsey

Blood tests - what do they look for

Dry mouth and throat....

Can Lupus symptoms change?

Have you been told you have MILD !!!! Lupus ????

My mouth and Lips

Steroid reduction

My mouth and Lips

Saying Hi

Hi all. I have been seeing a rheumatologist for some time now & she has given me steroids injections including injections straight into my

Be part of a brand new TV show

Does anyone have problems with chlorine in the swimming pool?

Negative Anca, normal antibeta 2 glycoprotein and started with seizures

Awful palpitations! Does anyone else suffer from this?

Hello again

Lupus Myositis

Lupus, or APS "only"?

I have recently been diagnosed with SLE Lupus

Has anybody been diagnosed with Bronchiectasis?

Work??

LDN a cheap and viable patient option for autoimmune disease

my skin rashes

Lupus or not?

Random question but for anyone who has any degenerative joint problems alongside their Lupus....

Any body with serositis with their lupus, like me.

Recently Diagnosed with SLE and looking for help.

Hi all, ive just been to my Rheumy, he has given me a steroid injection hoping it will give me some relief. Anyone else found they help?

PATCHES FOR PAIN MEDICATION any advice or experience please

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