Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,729 members • 28,088 posts

All posts for December 2013

dermatomyositis is it related to lupus?

Hello folks, not been on here for a while as I've been very ill, had gallbladder removed which went terribly wrong, if you remember me reporting that. Last...

Hello folks, not been on here for a while as I've been very ill, had gallbladder...

•10 years ago

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November's Guest Blog - Rekha Patel (Changing Faces)

This month's guest blogger is from Rekha Patel who works for the fantastic organisation, Changing Faces. She's taken the time to write a bit about the...

This month's guest blogger is from Rekha Patel who works for the fantastic organ...

Partner•10 years ago

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Headaches

Hi all, Just want to vent a little. I had a massive headache which came on in April. I was sick for the first couple of days of it and felt disorientated....

Hi all, Just want to vent a little. I had a massive headache which came on in ...

•10 years ago

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Anyone tried sterols & sterolins (e.g. "Moducare")?

They say sterols and sterolins help to regulate immune function and good for lupus. I'm intrigued but a bit scared... Any inputs will be highly appreciated....

They say sterols and sterolins help to regulate immune function and good for lup...

•10 years ago

My question is has anyone noticed a connection with hormones?

Yesterday I was really hormonal and I was in agony, didn't sleep well with the pain and took extra tramadol during night even though at night I take 100mg slow...

Yesterday I was really hormonal and I was in agony, didn't sleep well with the p...

•10 years ago

Can anyone with PSP help me please. I have just found out that my auntie who i am so close to has PSP and i am confussed to be honest

She used to be such a very strong women but she is now becoming a shell of the woman she used to be and it is heartbreaking. Can someone explain what PSP about...

She used to be such a very strong women but she is now becoming a shell of the w...

sarahsolomon1957

•10 years ago

Does the doctors lab carry out exactly the same test as my dermatologist did for antiphospholipid antibodies with the same diagnostic levels

•10 years ago

Teeth

Has anybody noticed their teeth just falling apart with lupus? Of after any dental work done getting infection and needing antibiotics ? I look after my teeth...

Has anybody noticed their teeth just falling apart with lupus? Of after any dent...

•10 years ago

for beckybooboo

Hi bbb I have just read your post about the dla appeal and just felt I had to write. It is totally unacceptable for anybody to abuse their power in that way...

Hi bbb I have just read your post about the dla appeal and just felt I had to w...

•10 years ago

lupus and sciatica

I am really suffering with a very long bout of sciatica for several months. it has become sooo bad. burning feet and legs,cramps. shooting pains and pins and...

I am really suffering with a very long bout of sciatica for several months. it h...

•10 years ago

Strange sweet taste for 6 months.

I have for the last 6 mths been getting a sweet taste in my mouth. It is getting worse feeling sick with it. I have SLE,FIBRO AND SS. I have had 3TIA had have...

I have for the last 6 mths been getting a sweet taste in my mouth. It is getting...

•10 years ago

Had my rhumy app today, and started my steriod injections

3 monthly app today with my wounderfull consultant....shes amazing fair play we went through all my dates of sickness and pain with my lupus as my sle is now...

3 monthly app today with my wounderfull consultant....shes amazing fair play we ...

•10 years ago

Hi can anyone recommend a Dr or someone who knows about Lupus n Somerset, I live near Weston-Super-Mare.

•10 years ago

Humiliation at DLA appeal............................................. Now i'm going to complain - no one should be spoken down to..........

I attended my dla appeal last friday and came away an absolute nervous wreck, in complete shock at the way I was spoken to, spent the afternoon in tears - Now...

I attended my dla appeal last friday and came away an absolute nervous wreck, in...

•10 years ago

the battle never ends........

hello luppy buddies, im having a moan as im exhausted from fighting for help. I usually see my rhuemmy every 6 months, sometimes this changes to a 9 month apt...

hello luppy buddies, im having a moan as im exhausted from fighting for help. I...

•10 years ago

Why am I not able to remember what things are, the names of them, and when I talk to someone, I can't think of the right words, stomach pain

So much stomach pain, and the joint pain and, I can just go on and on, so much I am going through and I have no dr or insurance, and I just want a friend who's...

So much stomach pain, and the joint pain and, I can just go on and on, so much I...

•10 years ago

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