Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2013

Anyone with kidney involvement and APS and CNS involvement???

I feel like I don't meet many lupus people who have nephritis and antiphospholipid syndrome. I have had lupus for 20 years, aps for 17 years and just recently...

I feel like I don't meet many lupus people who have nephritis and antiphospholip...

Reinke

•10 years ago

4 Replies

Flare ups, anxiety and depression

Deep down I know the answer to this but just after a bit of reassurance and to see how many of you feel the same. One of the first signs of a flare for me is...

Deep down I know the answer to this but just after a bit of reassurance and to s...

joannebond360

•10 years ago

31 Replies

Help please advice needed

I have just been told the severe pain in my heel im feeling is planter facilitus, i was given crutches and told it can take up to 8 to 12 weeks hopefully to...

I have just been told the severe pain in my heel im feeling is planter facilitus...

willowwag

•10 years ago

3 Replies

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Off work feeling guilty

Hey Just wondering what you all feel about taking time off work. I started a new job a couple of months ago... Full time, Monday to Friday 9 to 5.30. I don't...

Hey Just wondering what you all feel about taking time off work. I started a ne...

natal1a

•10 years ago

12 Replies

Going from full time teacher to disability.... Having a very hard time losing my career which I only did for 9 years. Anyone relate?

Reinke

•10 years ago

8 Replies

Hip and Knee Pain

Has anyone had hip pain also pain to the back of the knee that is worse at night ?I had an x-ray of my knee about a year ago and was told I had degeneration of...

Has anyone had hip pain also pain to the back of the knee that is worse at night...

charlie007

•10 years ago

7 Replies

Throat problems & vocal nodes

Hi everyone, has anyone had recurring tonsillitis since having lupus/mctd? The last year has been terrible I have had 8 bouts of tonsillitis ( and 8 lots of...

Hi everyone, has anyone had recurring tonsillitis since having lupus/mctd? The l...

Sianied

•10 years ago

3 Replies

Constant bloating feeling?

Has anyone had a constant bloating feeling, whenever eating anything. I do not indulge in food and I am only on hydroxycloriquine. The weird thing is that...

Has anyone had a constant bloating feeling, whenever eating anything. I do not i...

minniish

•10 years ago

44 Replies

Very worried thyroid wacko..mild lupus...odd stuff on tests...neck/shoulders hurt...SCARED...node etc

Now im getting real worried..Ive been hypothyroid for 16 years...meds kept it steady pretty well.....Im almost 57 few days here my birthday....I menopaused at...

Now im getting real worried..Ive been hypothyroid for 16 years...meds kept it st...

dgleds

•10 years ago

6 Replies

I had a flare following the flu jab this year. Has this happened to anyone else?

I had been really well until the jab after which I suffered joint pains , nausea, fatigue, hot flushes, dry eyes and an episode of severe lower abdominal pain...

I had been really well until the jab after which I suffered joint pains , nausea...

Maglupus

•10 years ago

8 Replies

At a loss now

To cut a long story short! This year I have suffered and still suffering with ulcerated chilblains on my feet like big creators and lots of sores, everywhere...

To cut a long story short! This year I have suffered and still suffering with ul...

sezrill

•10 years ago

2 Replies

Numbness/Panic attacks?

I have been waking up with odd symptoms. I wake in a panic, and then do not feel any of my normal aches and pains... The symptoms are very strange, almost...

I have been waking up with odd symptoms. I wake in a panic, and then do not feel...

jakenney

•10 years ago

8 Replies

Has any one else experienced allergic reaction to certain foods, that you were able to eat before..

Lately I keep having allergic reactions to to foods I use to eat before..for example I ate blue berries today and my mouth swelled up..anybodey else experience...

Lately I keep having allergic reactions to to foods I use to eat before..for exa...

jeevan05

•10 years ago

10 Replies

Volunteers Needed!

Hello HealthUnlockers! We are looking for members of the community to help test a few new features that are under development. We would need 30 minutes of...

Hello HealthUnlockers! We are looking for members of the community to help tes...

HealthUnlocked

HealthUnlocked•10 years ago

1 Reply

Steroid Infusions - Helpful?

Hi, My wife has a number of auto-immune problems (colitis/crones, thyroid, arthritis, graves, etc), although not diagnosed as lupus. She's having a steroid...

Hi, My wife has a number of auto-immune problems (colitis/crones, thyroid, arthr...

martinofclanfield

•10 years ago

1 Reply

Lobby the houses of parliament

I would like to ask Paul Howard, does anyone from Lupus UK lobby parliament on the behalf of Lupus UK? Also, I know that the womens institute take on...

I would like to ask Paul Howard, does anyone from Lupus UK lobby parliament on t...

Carolha

•10 years ago

15 Replies

I'm finding it impossible to cope with my daughter's school.

I have lupus. My daughter hasn't and I hope it's OK to ask this. She is very poorly. She struggles to walk because of severe pain. She is exhausted. So many...

I have lupus. My daughter hasn't and I hope it's OK to ask this. She is very p...

purple-lou

•10 years ago

21 Replies

Financial Advice in Nottingham

Disability Direct has recently teamed up with Scope and Capital One to train local people on three key areas that are likely to affect disabled people and...

Disability Direct has recently teamed up with Scope and Capital One to train loc...

Paul_Howard

Partner•10 years ago

1 Reply

I feel so at a loss and alone. I have been persevering for the past 2 years trying to get the health system to understand.

I used to work but have been unable to do so for the last 6 years. Incapacity benefit has been taken off of me even though I can't even do some the most basic...

I used to work but have been unable to do so for the last 6 years. Incapacity be...

jengrian

•10 years ago

8 Replies

anyone having burning right lower abdominal pain which has progressed to upper abdomen while on treatment for lupus?

i'm on treatment for lupus almost for a year.it's almost 2 weeks i'm having severe right lower abdominal pain,its kind of burning and feel like a fullness in...

i'm on treatment for lupus almost for a year.it's almost 2 weeks i'm having seve...

nica

•10 years ago

4 Replies

Has anyone else been diagnosed with Piriformis Syndrome? It's an unusAl form of sciatica caused by muscle inflammation .Any helpful tips?

misty14

•10 years ago

7 Replies

Disabled dispensation for airplane luggage. How do I get this?

I went abroad in September to a hot country. Knowing that the sun can flare my lupus, I made sure to pack sensible clothing to cover me completely.( gone are...

I went abroad in September to a hot country. Knowing that the sun can flare my l...

Hidden

•10 years ago

18 Replies

whats happening please?

hello fellow luppies, as you guys know us luppies have slurred speech and difficulty focusing, mine is usually towards the end of each day or all day during a...

hello fellow luppies, as you guys know us luppies have slurred speech and diffi...

caninecrazy

•10 years ago

9 Replies

MCTD Fatigue

Hi everyone! My last post cut off most of the writing, so I am hoping this one works!! Anyway I am a 30 year old woman and was diagnosed with MCTD 3 years ago...

Hi everyone! My last post cut off most of the writing, so I am hoping this one w...

Sianied

•10 years ago

6 Replies

MCTD

Hi everyone, I have just joined this site and I have already found reading the posts really helpful

Hi everyone, I have just joined this site and I have already found reading the p...

Sianied

•10 years ago

2 Replies

Does anyone else get joint/muscle pain more in one side of the body or one particular joint or limb?

I get pain more frequently in my right hip & leg than other joints& limbs. Also have swollen glands only on right side. Generally have more problems on right...

I get pain more frequently in my right hip & leg than other joints& limbs. Also ...

timmysmom

•10 years ago

20 Replies

I am a person who likes to travel a lot.but after getting diagnosed with Lupus no travel..give some tips..how u all manage daily activities

Manju-Manu

•10 years ago

6 Replies

am 26 yrs.married suffering from SLE since 2011..Want to conceive but afraid whether the disease will flare up or my baby will be affected?

Sine 2011 am on Prednisolone, Tacrolimus,HCQS,Folic acid,vitamin suppliments,Metformin tablets..will this affect my pregnancy???Please help me out..All my...

Sine 2011 am on Prednisolone, Tacrolimus,HCQS,Folic acid,vitamin suppliments,Met...

Manju-Manu

•10 years ago

4 Replies

lupus

last night I read in the lupus information i have from lupus uk that my symptoms are of lupus.the puffiness I have had above my eyes for the last 1.5 years +...

last night I read in the lupus information i have from lupus uk that my symptoms...

anbuma

•10 years ago

Be the first to reply

Imposter, hydrochondriac and mentally unstable........

Hi all, Sorry to burden you all, I'm angry, hurt and so so confused..... Had a Pain Clinic appointment to day......I have osteo and inflammatory arthritis,...

Hi all, Sorry to burden you all, I'm angry, hurt and so so confused..... Had a...

lizzidrippin

•10 years ago

24 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2013

Anyone with kidney involvement and APS and CNS involvement???

Flare ups, anxiety and depression

Help please advice needed

Off work feeling guilty

Going from full time teacher to disability.... Having a very hard time losing my career which I only did for 9 years. Anyone relate?

Hip and Knee Pain

Throat problems & vocal nodes

Constant bloating feeling?

Very worried thyroid wacko..mild lupus...odd stuff on tests...neck/shoulders hurt...SCARED...node etc

I had a flare following the flu jab this year. Has this happened to anyone else?

At a loss now

Numbness/Panic attacks?

Has any one else experienced allergic reaction to certain foods, that you were able to eat before..

Volunteers Needed!

Steroid Infusions - Helpful?

Lobby the houses of parliament

I'm finding it impossible to cope with my daughter's school.

Financial Advice in Nottingham

I feel so at a loss and alone. I have been persevering for the past 2 years trying to get the health system to understand.

anyone having burning right lower abdominal pain which has progressed to upper abdomen while on treatment for lupus?

Has anyone else been diagnosed with Piriformis Syndrome? It's an unusAl form of sciatica caused by muscle inflammation .Any helpful tips?

Disabled dispensation for airplane luggage. How do I get this?

whats happening please?

MCTD Fatigue

MCTD

Does anyone else get joint/muscle pain more in one side of the body or one particular joint or limb?

I am a person who likes to travel a lot.but after getting diagnosed with Lupus no travel..give some tips..how u all manage daily activities

am 26 yrs.married suffering from SLE since 2011..Want to conceive but afraid whether the disease will flare up or my baby will be affected?

lupus

Imposter, hydrochondriac and mentally unstable........

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