Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,828 members • 28,165 posts

All posts for November 2013

Will steroids affect my blood readings

I saw my rheumy yesterday. She confirmed I have FM, however she said my lupus test was negative this time and my ANA Was only slightly raised so she has...

I saw my rheumy yesterday. She confirmed I have FM, however she said my lupus te...

Lesi

•11 years ago

7 Replies

Pregnant and have Lupus

Hi everyone im currently 21 weeks pregnant and just after other peoples experiences of how their Lupus was after the baby was born? This is not meant to...

Hi everyone im currently 21 weeks pregnant and just after other peoples experien...

LULU85

•11 years ago

9 Replies

ON HOUSE ARREST

this weather is treating me badly. i cant go outside without getting my fingers painful and blue. my entire body is buried in pain, exhaustion and fatigue. had...

this weather is treating me badly. i cant go outside without getting my fingers ...

ijeasike

•11 years ago

11 Replies

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Diet & Lupus

Hi all Has anyone found cutting out any particular foods (ie red meat or dairy) had helped ? I've been reading quiet a bit but thought I would ask the people...

Hi all Has anyone found cutting out any particular foods (ie red meat or dairy) ...

Newloop

•11 years ago

26 Replies

Help! My little girl is ill again.

My 8 year old daughter was poorly a few months ago. She couldn't walk because of severe pain in her hips. She suffered with terrible fatigue too. She was...

My 8 year old daughter was poorly a few months ago. She couldn't walk because o...

purple-lou

•11 years ago

8 Replies

Has anyone had enlarged red blood cells and/or vitamin B12 deficiency?

Had a routine blood test to establish baseline bloods prior to starting on Mycophenolate (I have a recent diagnosis of SLE overlapping with MCTD) and my GP...

Had a routine blood test to establish baseline bloods prior to starting on Mycop...

tcogb

•11 years ago

12 Replies

Reclaim ESA while awaiting an appeal

Below is a block of text I have copied and pasted from a Guardian article. I haven't verified its accuracy - but since I often see posts from people who are in...

Below is a block of text I have copied and pasted from a Guardian article. I hav...

Hidden

•11 years ago

3 Replies

plaquinil.?.hydrochloroquine ...dry skin ?

if you take above drug..are u wrinkling faster? my face skin is drying out quicker..i swear it is.

if you take above drug..are u wrinkling faster? my face skin is drying out quick...

dgleds

•11 years ago

17 Replies

First lupus related appointment tomorrow - top tips please!

Bloods to find cause of early stroke, persistent migraine and neuropathic pain in June showed evidence of lupus and APS. Bloods repeated after 3 months showed...

Bloods to find cause of early stroke, persistent migraine and neuropathic pain i...

Bonnie39

•11 years ago

5 Replies

Has anybody experienced side effects of hydroxychloroquine? Rashes in particular

I was diagnosed with overlapping connective tissue disease about a month ago now (SLE, Sjogrens & MCTD) and was prescribed hydroxychloroquine and prednisolone....

I was diagnosed with overlapping connective tissue disease about a month ago now...

gem1403

•11 years ago

7 Replies

Most hated lupus challenges (asked by a crazy Lupus warrior) and how to cope with them

Good morning/afternoon everybody. Hope you are coping reasonably well today. I know this sounds potty, but I have my "preferred" problems with this annoying...

Good morning/afternoon everybody. Hope you are coping reasonably well today. I k...

Hidden

•11 years ago

9 Replies

Hair wigs advice please x

Hi everyone I just wanted to ask if anyone has any experience with wigs. My hair keep coming out in handfuls and has gone from very very thick to bleakly...

Hi everyone I just wanted to ask if anyone has any experience with wigs. My hai...

esky

•11 years ago

9 Replies

Do i have to wear a medical id bracelet etc because i have Lupus.

Hello everybody. I hope your all doing well, or as well as can be expected with horrible Lupus. Just a quick question really. Can anybody tell me if people...

Hello everybody. I hope your all doing well, or as well as can be expected with ...

paula36

•11 years ago

5 Replies

Flu jab

Hi all hope you're all coping well. Well went for flu jab today and the nurse made me laugh. Asked me why I was on my medication? I thought, you've got my file...

Hi all hope you're all coping well. Well went for flu jab today and the nurse ma...

Clairebear

•11 years ago

6 Replies

has anyone tried acupunture totreat lupus

paulmcl

•11 years ago

20 Replies

I am waiting for funding for this drug, Rituximab

My rheumy consultant has been trying for months now to get the funding for this drug (Rituximab). He has appealed three times now without success, so I was...

My rheumy consultant has been trying for months now to get the funding for this ...

Maureenpearl

•11 years ago

6 Replies

Anyone else suffer from rib pain? I get it quite alot recently and I'm starting to worry about it :/ its a sharp pain in my right side

Usualy accompanied by my right shoulder blade hurting and then it spreads to my entire upper back and right round my ribs

Usualy accompanied by my right shoulder blade hurting and then it spreads to my ...

Hidden

•11 years ago

18 Replies

Down in the dumps!!!!

Hi my lovely friends. Not posted on here for a while I feel like I'm down in the dumps so emotional, depressed and fed up. Don't think anything is working for...

Hi my lovely friends. Not posted on here for a while I feel like I'm down in the...

AnnieKhan

•11 years ago

5 Replies

071964.

Had lupus 6 years now and every symptom going.

o71264

•11 years ago

2 Replies

LUPUS support groups in Northern Ireland?

Hi all. I was wondering if anyone knew of any lupus support groups in the Belfast/N Ireland area? This site is great but it would be great yo speak to some...

Hi all. I was wondering if anyone knew of any lupus support groups in the Belfas...

Shazzymartin

•11 years ago

5 Replies

Does anyone take fluoxetine for raynauds and does it help at all?

Hi, I was previously taking nifedipine for my raynauds but had to come off that as my blood pressure was too low and it caused dizziness. My rheumy today...

Hi, I was previously taking nifedipine for my raynauds but had to come off that ...

Belee

•11 years ago

16 Replies

swollen and darkened finger tips and toe tips

Hi all has anyone reacted to rheutoximab. i finished my infusion 2 weeks ago. 3 days ago i noticed that one of my finger tip is darkening, then yesterday i...

Hi all has anyone reacted to rheutoximab. i finished my infusion 2 weeks ago. 3...

ijeasike

•11 years ago

10 Replies

Can a raynauds patient develop lupus?

I've suffered with raynauds for about 10 years (I'm 55 year old female) & I'm being tested for thyroid involvement. I've recently developed a red, painful rash...

I've suffered with raynauds for about 10 years (I'm 55 year old female) & I'm be...

shyanne

•11 years ago

9 Replies

Doctors cannot diagnose me (Pericarditis - Costocondritis - Pleurisy)

Hi all I was diagnosed with Lupus last December due to severe chest pain and I was admitted to the hospital soon after. My doctors never really told me what I...

Hi all I was diagnosed with Lupus last December due to severe chest pain and I w...

N1994

•11 years ago

15 Replies

Dizziness

Totally understand were everyone is coming from, I have had this vertigo since last December!! its gotten a lot better but I do get really pissed of with it at...

Totally understand were everyone is coming from, I have had this vertigo since l...

AJ123456

•11 years ago

2 Replies

Completely fed up taking steroids for wegeners, have to take sleeping pill. MMF intake seems to require drinking lot of water.

Mentally worst affected. Restlessness and lack of coordination of ideas. Hope this too will pass.

Mentally worst affected. Restlessness and lack of coordination of ideas. Hope th...

amita_valmiki

•11 years ago

3 Replies

Hello all, does anyone have Lupus Panniculitis?

Lov_byrd

•11 years ago

Be the first to reply

advice please

morning everyone, on Friday I had my first ever flu jab, on Friday I hada small red lump where injection was; thought nothing of it. Saturday its a bit lumpy...

morning everyone, on Friday I had my first ever flu jab, on Friday I hada small...

caninecrazy

•11 years ago

5 Replies

working with SLE

i've had SLE for two years and each day is a struggle."You name it i've got it" I have had to sign on for job seekers for the first time ( im 48 years old)...

i've had SLE for two years and each day is a struggle."You name it i've got it" ...

louloubabalou

•11 years ago

3 Replies

how to manage premenstrual symptoms in lupus nephritis

i'm on treatment with prednisolone,chloroquine and immunosuppressents for 8 months, but now i'm suffering out of terrible premenstrual symptoms,joint pains and...

i'm on treatment with prednisolone,chloroquine and immunosuppressents for 8 mont...

nica

•11 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2013

Will steroids affect my blood readings

Pregnant and have Lupus

ON HOUSE ARREST

Diet & Lupus

Help! My little girl is ill again.

Has anyone had enlarged red blood cells and/or vitamin B12 deficiency?

Reclaim ESA while awaiting an appeal

plaquinil.?.hydrochloroquine ...dry skin ?

First lupus related appointment tomorrow - top tips please!

Has anybody experienced side effects of hydroxychloroquine? Rashes in particular

Most hated lupus challenges (asked by a crazy Lupus warrior) and how to cope with them

Hair wigs advice please x

Do i have to wear a medical id bracelet etc because i have Lupus.

Flu jab

has anyone tried acupunture totreat lupus

I am waiting for funding for this drug, Rituximab

Anyone else suffer from rib pain? I get it quite alot recently and I'm starting to worry about it :/ its a sharp pain in my right side

Down in the dumps!!!!

071964.

LUPUS support groups in Northern Ireland?

Does anyone take fluoxetine for raynauds and does it help at all?

swollen and darkened finger tips and toe tips

Can a raynauds patient develop lupus?

Doctors cannot diagnose me (Pericarditis - Costocondritis - Pleurisy)

Dizziness

Completely fed up taking steroids for wegeners, have to take sleeping pill. MMF intake seems to require drinking lot of water.

Hello all, does anyone have Lupus Panniculitis?

advice please

working with SLE

how to manage premenstrual symptoms in lupus nephritis

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