Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,715 members • 28,081 posts

All posts for November 2013

HELP! sudden onset of severe pain, entire abdomen, when I move slightly. E.R. Dr. gave pain med. said fluid filled mass in my pancreas.

internist said might be nerve spasms in my back. Anyone had this?

caseypalms93

•10 years ago

6 Replies

Copays how do people afford to go to Dr when needed even with insurance and medications for lupus.

I was just wondering if any one elese has promblems paying copays or getting medications when you need them and what are some things people can do to help they...

I was just wondering if any one elese has promblems paying copays or getting med...

Diane48

•10 years ago

6 Replies

DLA REFUSED!!!!!!!!!!!!!!!!!!!

beckybooboo

•10 years ago

10 Replies

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Post thyroid cancer op

Well had total thyroidectomy and lateral neck dissection 3 weeks ago. They removed 50 lymph nodes, 11 of which we're suspect and I had an 11 mm tumor on my...

Well had total thyroidectomy and lateral neck dissection 3 weeks ago. They remov...

Scoobydoo

•10 years ago

7 Replies

DISABILITY LIVING ALLOWANCE ........ My tribunal hearing.............................

I attended my dla hearing yesterday and need to rant how very intimidating it was, I hated it, very intrusive, out of the 3 on the panel the Doctor was the...

I attended my dla hearing yesterday and need to rant how very intimidating it wa...

beckybooboo

•10 years ago

15 Replies

JUST NEED TO RANT!!!!!!!!!!!!!!

I am really low...had to stop Methotrexate 2 weeks ago due really high liver readings-am still on Quinoric but have gone into a really big flare, had a blood...

I am really low...had to stop Methotrexate 2 weeks ago due really high liver rea...

bam1993

•10 years ago

18 Replies

Stress and Brain Fog

Hi All, I was wondering if anyone else suffers from a serious case of brain fog or as I call it brain attack. The past week I have been feeling like a totally...

Hi All, I was wondering if anyone else suffers from a serious case of brain fog...

cass1984

•10 years ago

15 Replies

depression in a rush

Always too anxious to get anything done, need to stop. How? But one does so very much every moment. Cannot keep up with selves!. These things detract so much...

Always too anxious to get anything done, need to stop. How? But one does so ver...

coetzeegisela

•10 years ago

7 Replies

Hi there, does anyone suffer from pale swolen itchy gums? :(

I woke up with excrutiating pain in upper abdomen last week (felt like kidney Stones, had them a few years ago) just feel a bit beaten up now. Don't know if...

I woke up with excrutiating pain in upper abdomen last week (felt like kidney St...

ftjftj63

•10 years ago

5 Replies

I have two types of lupus.. discoid and SLE. When I do get the energy to do something I pay for it later! I take plaqunil and do my best.

I hurt all the time no matter what! No one understands what I'm going through.

thekid71

•10 years ago

13 Replies

hmmm mild lupus..last few days having twinges..or little sharp stabs in my heart area..anyone?

ya have mild lupus apparently..and hypothyroid for many years..on plaquinil since june..down to 1 200mg pill..last couple days havin little jabbey pains near...

ya have mild lupus apparently..and hypothyroid for many years..on plaquinil sinc...

dgleds

•10 years ago

7 Replies

I want a baby but have lupas

I have lupas and want a baby but have bin told to see the doctor first because of the medication am on already have a 3 year old I have not took my medication...

I have lupas and want a baby but have bin told to see the doctor first because o...

emmah92

•10 years ago

15 Replies

Sheffield Lupus Group upcoming meeting :)

Just a reminder to everyone in and around the Sheffield area that it is the Sheffield Lupus Group Meeting this coming weekend, Saturday 30th November,...

Just a reminder to everyone in and around the Sheffield area that it is the Shef...

Silvermyst

•10 years ago

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what can I claim if anything.

Was retired nearly 18 years ago 2 years after I was diagnosed with lupus. So can't work and now government are saying I can. CAB benefits lady more or less...

Was retired nearly 18 years ago 2 years after I was diagnosed with lupus. So can...

gazzasoens

•10 years ago

5 Replies

Hi, i have been getting a weird prickly feeling all over the outside of my tummy.

It feels like you just finished shaving someones hair and there hair gets all over your clothes and start irritating your skin. I dont rash up either. does...

It feels like you just finished shaving someones hair and there hair gets all ov...

chrissysmith87

•10 years ago

5 Replies

Due to lupus I have very bad scarring on my scalp and losing hair, can anyone recommend a good hairdresser in East Kilbride or Hamilton who

Could recommend a style to cover the scars

Jake1001

•10 years ago

9 Replies

Rheumy recommended I consider adding mycophenolate to my other meds as lupus seems to be getting more active. Im on hydroxy and adipine,

Scared because of bad reactions to sulphasalazine and methotrexate, any advice or experiences welcome. Thanks jo

Scared because of bad reactions to sulphasalazine and methotrexate, any advice ...

jo100

•10 years ago

8 Replies

should I write another letter to my dr

after todays appointment and getting no further than being offered physio when my latest symptoms are of OC.i have another appt booked for dec 13.should i...

after todays appointment and getting no further than being offered physio when m...

anbuma

•10 years ago

1 Reply

Still having skin outbreaks, does this mean methotrexate isn't working?

Hey everyone. Been on methotrexate for 9 weeks and has made me feel much better but the last few days having sweats puffy dry eyes and an outbreak on my chest...

Hey everyone. Been on methotrexate for 9 weeks and has made me feel much better ...

joannebond360

•10 years ago

2 Replies

Pregnant and scared

Hi all I am 22 and just found out I'm pregnant I'm so scared something bad is going to happen I haven't had it confirmed by a doctor yet but had 4 positive...

Hi all I am 22 and just found out I'm pregnant I'm so scared something bad is go...

Zoezoe752

•10 years ago

12 Replies

Aspartame

Hi I am a Lupus and Fibromyalgia sufferer among other things, and a friend of mine has just sent me this info via face book I do not know if it is right or...

Hi I am a Lupus and Fibromyalgia sufferer among other things, and a friend of m...

puddleduck

•10 years ago

19 Replies

hi everyone,can anyone tell me what is a noduel on lungs? and a cyst on kidney mean?.would this be the cause of always having water infect?.

went into hospital about 9 months ago,bad chest pain, didnt no if it was heart,pe, had a ct scan,dr said i had a nodual on left lung, didnt explain what it...

went into hospital about 9 months ago,bad chest pain, didnt no if it was heart,p...

1963

•10 years ago

1 Reply

Lupus and shingles!anyone else? Iwas diagnosed with sle in2002. Im also diabetic, low thyroids,.I've had shingles for a week now.what helps.

Greeneyes09

•10 years ago

7 Replies

Lupus sle, but now lupus has added serositis to the mix also any information welcome on it.

On meds due to my lupus sle, but consultant has now informed me my lupus is also adding in serositus to the mix, shes given me abit of information about it but...

On meds due to my lupus sle, but consultant has now informed me my lupus is also...

willowwag

•10 years ago

8 Replies

I am in trouble. Have had sore stomach, as if over worked muscles for months. Now I am in bad pain when I barely move. Took pain meds.

NO HELP. what is this? What should I do? Has anyone had the problem?

caseypalms93

•10 years ago

2 Replies

Has anyone developed an aversion to food? I have not been able to eat foods that I always liked for 4 yrs. Can't stand taste or odor.

I TRY, rarely choke down a few bites. I have existed on popcorn & Glucerna for past 4 yrs. I gained 65 lbs. the fatty popcorn. I DO GET HUNGRY, still can...

I TRY, rarely choke down a few bites. I have existed on popcorn & Glucerna for...

caseypalms93

•10 years ago

4 Replies

Does anyone suffer from lots of wind and heart burn is this connected to lupus

I have been diagnosed with lupus and aps for 11years in the last couple of years I have had gastric problems along with usual lupus and aps symtoms are they...

I have been diagnosed with lupus and aps for 11years in the last couple of years...

clova

•10 years ago

7 Replies

Does anyone get so tired they sleep for weeks ? I do and get so depressed as there is no quality of life ....

JJKANE

•10 years ago

13 Replies

I am happily married with 2 beautiful children aged 18 and 21. I work 4 days a week in a job i enjoy although can become stressfull.

In 1998 after 2 years of numerous test I was finally diagnosed with SLE, Raynards Phenomenona, then TMJ, Glaucoma( luckily found early due to being checked...

In 1998 after 2 years of numerous test I was finally diagnosed with SLE, Raynar...

Hidden

•10 years ago

4 Replies

Best eye drops for dry eye?

Have sjogrens as well as lupus which I was told at my last appointment but wasn't given any advice on what to use that helps. I have tried various eye drops...

Have sjogrens as well as lupus which I was told at my last appointment but wasn'...

joannebond360

•10 years ago

20 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2013

HELP! sudden onset of severe pain, entire abdomen, when I move slightly. E.R. Dr. gave pain med. said fluid filled mass in my pancreas.

Copays how do people afford to go to Dr when needed even with insurance and medications for lupus.

DLA REFUSED!!!!!!!!!!!!!!!!!!!

Post thyroid cancer op

DISABILITY LIVING ALLOWANCE ........ My tribunal hearing.............................

JUST NEED TO RANT!!!!!!!!!!!!!!

Stress and Brain Fog

depression in a rush

Hi there, does anyone suffer from pale swolen itchy gums? :(

I have two types of lupus.. discoid and SLE. When I do get the energy to do something I pay for it later! I take plaqunil and do my best.

hmmm mild lupus..last few days having twinges..or little sharp stabs in my heart area..anyone?

I want a baby but have lupas

Sheffield Lupus Group upcoming meeting :)

what can I claim if anything.

Hi, i have been getting a weird prickly feeling all over the outside of my tummy.

Due to lupus I have very bad scarring on my scalp and losing hair, can anyone recommend a good hairdresser in East Kilbride or Hamilton who

Rheumy recommended I consider adding mycophenolate to my other meds as lupus seems to be getting more active. Im on hydroxy and adipine,

should I write another letter to my dr

Still having skin outbreaks, does this mean methotrexate isn't working?

Pregnant and scared

Aspartame

hi everyone,can anyone tell me what is a noduel on lungs? and a cyst on kidney mean?.would this be the cause of always having water infect?.

Lupus and shingles!anyone else? Iwas diagnosed with sle in2002. Im also diabetic, low thyroids,.I've had shingles for a week now.what helps.

Lupus sle, but now lupus has added serositis to the mix also any information welcome on it.

I am in trouble. Have had sore stomach, as if over worked muscles for months. Now I am in bad pain when I barely move. Took pain meds.

Has anyone developed an aversion to food? I have not been able to eat foods that I always liked for 4 yrs. Can't stand taste or odor.

Does anyone suffer from lots of wind and heart burn is this connected to lupus

Does anyone get so tired they sleep for weeks ? I do and get so depressed as there is no quality of life ....

I am happily married with 2 beautiful children aged 18 and 21. I work 4 days a week in a job i enjoy although can become stressfull.

Best eye drops for dry eye?

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