Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2013

Effortless fundraising!

Got married 2 weeks ago- asked friends to donate to LupusUK instead of giving us presents & we raised over £400!!

Got married 2 weeks ago- asked friends to donate to LupusUK instead of giving us...

Sheilainacton

•11 years ago

14 Replies

Diagnosis of lupus but feel completely fobbed off by my rheumy!!

Sorry this is going to be a long post but I just need to vent! I was referred to ENT by my GP due to swollen eyes/face every day ENT ran tests and started me...

Sorry this is going to be a long post but I just need to vent! I was referred t...

Medievalgirl

•11 years ago

12 Replies

hi lipid count

Hi , I have been told that I have lipid count tyrglyecerate was 3 times over the danger level, and I now have to see a heart specialist . I have had crushing...

Hi , I have been told that I have lipid count tyrglyecerate was 3 times over the...

JJKANE

•11 years ago

5 Replies

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Brusing pain but not sign of bruise??

Hi all I am on a 6 week course of Prednisolone lowering my dose each week. I am on week 2 now last week I was on 15mg this week 10mg! As soon I went onto 10mg...

Hi all I am on a 6 week course of Prednisolone lowering my dose each week. I am...

AnnieKhan

•11 years ago

7 Replies

Paralysed tongue after chemo,this one has the medical experts baffled.

Hi first of all sorry this may be long.I have been having rituximab and Cyclophosamide every six months for the last seven years.Never had any problems up...

Hi first of all sorry this may be long.I have been having rituximab and Cyclopho...

mum-two

•11 years ago

3 Replies

SLE itching, restlessness & insomnia

I experienced my first attack of lupus a year ago, now looking back all the symptoms had been there for years but until I became unable to barely move and...

I experienced my first attack of lupus a year ago, now looking back all the symp...

ashleigh30

•11 years ago

8 Replies

can anyone help, im back on the steroids again as not been right for months just dontl like them. is anyone on them

is it worth being on a very low dose all the time im fed up feeling crap most days, sorry for the moan feeling sorry for my self lol.

is it worth being on a very low dose all the time im fed up feeling crap most da...

lainylooloo

•11 years ago

5 Replies

Hi, any advice welcome, I suffer from Discoid Lupus, I'm on Mepacrine, recently the butterfly rash as flared up, any suggestions?

Recent Dermatology appointment suggested I use Cutivate followed by Protopic! I dont feel happy about these :(

Recent Dermatology appointment suggested I use Cutivate followed by Protopic! I ...

Silverlady51

•11 years ago

5 Replies

Has anyone gone into major flare - literally too painful to move - after becoming ill?

On Monday A&E diagnosed pleurisy (breathing inc. painful, like tight band round chest, and felt like being stabbed in back through to front with huge spear)...

On Monday A&E diagnosed pleurisy (breathing inc. painful, like tight band round ...

Carcrashgal

•11 years ago

3 Replies

Does anyone suffer from prickly heat

Is prickly heat part of the sle symptoms as I get it almost everyday it seems to be worse when I have anxiety I have had sle for ten years

Is prickly heat part of the sle symptoms as I get it almost everyday it seems t...

Bats49

•11 years ago

4 Replies

Does anyone ever experienced a very intense pain in the kidney area after taking azathioprine ?

Achilleas

•11 years ago

11 Replies

Does anyone else experience this?

Hello guys. I have been diagnosed with sle a few months back. Today I have been feeling terribly sick bloated stomach and I have a greasy feeling in my mouth...

Hello guys. I have been diagnosed with sle a few months back. Today I have been ...

blondie22

•11 years ago

14 Replies

Does anyone get painful calves and feet at night. So bad tonight I can't sleep. !!

Think it may be restless leg syndrome? Wondering why I forgot to mention this last rheumy visit ... It's driving me bonkers. Luckily no work tomorrow.

Think it may be restless leg syndrome? Wondering why I forgot to mention this l...

Sjink

•11 years ago

17 Replies

Thyroid cancer!

Just been dx today with thyroid cancer. Came as a shock although I knew deep down something was wrong. Expected Doc to say lymphoma because I have lupus and...

Just been dx today with thyroid cancer. Came as a shock although I knew deep dow...

Scoobydoo

•11 years ago

30 Replies

I have received a questionnaire to fill in for ATOS..

I feel sick and just want it all to go away. I am thinking about going to GP to explain how anxious etc I feel..try to avoid going as don't feel any good ever...

I feel sick and just want it all to go away. I am thinking about going to GP to ...

jamg3916

•11 years ago

7 Replies

seen Rhumatologist for first time, wasn't expecting this...

I went for my first appointmet with my rhumatologist, and she told me i had to have several bloods to be taken again, and advised me that i may very well have...

I went for my first appointmet with my rhumatologist, and she told me i had to h...

charley07

•11 years ago

5 Replies

Hi has anyone with lupus felt really ill or fainted when exposed to fluorescent lights. This happened to me a few days ago and was alarming.

moondance

•11 years ago

10 Replies

Sun Sensitivity

I seem to have a real problem with sun exposure..This is now the third time it has happened. I plaster on factor 50, wear a sunhat and everything except my...

I seem to have a real problem with sun exposure..This is now the third time it ...

Hidden

•11 years ago

18 Replies

Hi my name is suki I was diagnosed with sle a year ago, i work 2 part time jobs is it worth applying for pip i have a app wk to fill in form

jeevan05

•11 years ago

2 Replies

Should I expect to receive an outcome following my ATOS assessment? Had one back in May but have heard nothing...

Dove

•11 years ago

2 Replies

How do we know how long our ESA will get paid for?

I was put on this in 2010 and sent to Working Links via the job centre. I know my time with Working Links is up at the beginning of Nov this year but does this...

I was put on this in 2010 and sent to Working Links via the job centre. I know m...

Dove

•11 years ago

9 Replies

What's the difference between quinoric and hydorchloroquine sulphate 200mg??

I've been on quinoric for the last 5 months and I seem to be getting on ok with it. Picked up my new prescription today and have been given a plain box of...

I've been on quinoric for the last 5 months and I seem to be getting on ok with ...

Belee

•11 years ago

13 Replies

I've had my letter confirming I'm going from IB to ESA WRAG from 19/10, however, it says they will only pay until 29/11 ?

I have not had a medical, they have not asked for any Fit/Sick Notes and I've had no Job centre work based interview. Does anybody know why it is only for 6...

I have not had a medical, they have not asked for any Fit/Sick Notes and I've ha...

SickNotWorkShy

•11 years ago

6 Replies

RITUXIMAB .HELP

I am waiting for my appointment to have this for the first time. I have SLE and have had it for 30years or so. Nothing seems to keep it under control, I have...

I am waiting for my appointment to have this for the first time. I have SLE and ...

Helsbels

•11 years ago

12 Replies

I have been of work for 14 week been in for a couple wallfare meetings, trying to go back part time can work make me go bk full time thanks.

waiting to here if my employer will let me go back partime if not i think i will have to leave, does anyone know if i can go on sickpay thans for my replies x

waiting to here if my employer will let me go back partime if not i think i will...

lainylooloo

•11 years ago

3 Replies

Is anyone using low dose naltrexone?

Hello. I'm new to the Community. I was originally diagnosed with M.E. but have now been told that I have atypical Lupus with secondary Hughes Syndrome. My...

Hello. I'm new to the Community. I was originally diagnosed with M.E. but have...

MrsMouseSJ

•11 years ago

4 Replies

Are you in Herts, Beds & Bucks? Would you like to do an interview about lupus on BBC radio?

We've just been approached by BBC Three Counties Radio. They would like to do a feature on lupus on this Sunday’s show and are looking for people to interview...

We've just been approached by BBC Three Counties Radio. They would like to do a ...

Paul_Howard

Partner•11 years ago

4 Replies

Embarrassed but have to ask. Does anyone with SLE have urinary incontinence problems??

esky

•11 years ago

15 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2013

Effortless fundraising!

Diagnosis of lupus but feel completely fobbed off by my rheumy!!

hi lipid count

Brusing pain but not sign of bruise??

Paralysed tongue after chemo,this one has the medical experts baffled.

SLE itching, restlessness & insomnia

can anyone help, im back on the steroids again as not been right for months just dontl like them. is anyone on them

Hi, any advice welcome, I suffer from Discoid Lupus, I'm on Mepacrine, recently the butterfly rash as flared up, any suggestions?

Has anyone gone into major flare - literally too painful to move - after becoming ill?

Does anyone suffer from prickly heat

Does anyone ever experienced a very intense pain in the kidney area after taking azathioprine ?

Does anyone else experience this?

Does anyone get painful calves and feet at night. So bad tonight I can't sleep. !!

Thyroid cancer!

I have received a questionnaire to fill in for ATOS..

seen Rhumatologist for first time, wasn't expecting this...

Hi has anyone with lupus felt really ill or fainted when exposed to fluorescent lights. This happened to me a few days ago and was alarming.

Sun Sensitivity

Hi my name is suki I was diagnosed with sle a year ago, i work 2 part time jobs is it worth applying for pip i have a app wk to fill in form

Should I expect to receive an outcome following my ATOS assessment? Had one back in May but have heard nothing...

How do we know how long our ESA will get paid for?

What's the difference between quinoric and hydorchloroquine sulphate 200mg??

I've had my letter confirming I'm going from IB to ESA WRAG from 19/10, however, it says they will only pay until 29/11 ?

RITUXIMAB .HELP

I have been of work for 14 week been in for a couple wallfare meetings, trying to go back part time can work make me go bk full time thanks.

Is anyone using low dose naltrexone?

Are you in Herts, Beds & Bucks? Would you like to do an interview about lupus on BBC radio?

Embarrassed but have to ask. Does anyone with SLE have urinary incontinence problems??

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