Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for October 2013

I was prescribed chloroquine for 23 years and as a result am now sight impaired, has anybody else got experience or know of someone who has.

maalidog

•11 years ago

14 Replies

Book to read

I have just finished reading TALKING ABOUT LUPUS and have to recommend it as a must read. It is all very easy to understand and there is such a lot of...

I have just finished reading TALKING ABOUT LUPUS and have to recommend it as a m...

Hidden

•11 years ago

3 Replies

Hey guys I read my recent letter from my rheumy to my GP and it said that I have Connective Tissue Disease Super confused because I have

Sorry guys I was confused as my Rhumey never discussed the diagnosis with me so I dont really understand what Connective Tissue Disease is

Sorry guys I was confused as my Rhumey never discussed the diagnosis with me s...

wotshernameagain

•11 years ago

3 Replies

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Lock Jaw

Does anybody else have problems with their jaw locking ? It can lockup for days then ease and just ache.. This has been coming and going for a few months now....

Does anybody else have problems with their jaw locking ? It can lockup for days ...

Donnygirl

•11 years ago

8 Replies

Anaemia and B12 shots.

I have had a call from my doc to say that I need a series of B12 shots because I have anaemia. It seems my liver has been affected by my SLE. Has anyone any...

I have had a call from my doc to say that I need a series of B12 shots because I...

Hidden

•11 years ago

6 Replies

can anyone give me a diagnose of head pressure, pins and needles all over mainly right side, burning tongue syndrome and left thigh cold sen

can anyone give me a diagnose of head pressure, pins and needles all over mainly right side, burning tongue syndrome and left thigh cold sensation, Those...

can anyone give me a diagnose of head pressure, pins and needles all over mainly...

Honesty1999

•11 years ago

12 Replies

going to see the works ocupation nurse monday ,has anybody been to see one, what sort of questions will they ask, thanks for your help x

lainylooloo

•11 years ago

4 Replies

Gabbapentin/ neurontin

Just wondering if anyone suffered side effects taking this, if so did they last or wear off? I've just had my dose increased from 100mg 3 times to 200mg x3 a...

Just wondering if anyone suffered side effects taking this, if so did they last ...

Jo883

•11 years ago

20 Replies

Fevers and Chills

been having these for over 3 weeks. One minute I'm covered in sweat, then freezing for hours, Then it starts over. No fever over 2/10 degree, if any. Is...

been having these for over 3 weeks. One minute I'm covered in sweat, then free...

USAhousewife

•11 years ago

15 Replies

I have SLE and RA I've opted for the mirena coil as a form of contraception and keen to hear if this has affected others ; good or bad

Crobb68

•11 years ago

7 Replies

is this lupus not fibro?plus other problems

had fibro then 2 years ago when it was just joints and muscles that were affected ,things got worse,and now I have pain spread from my head to my pelvis.i have...

had fibro then 2 years ago when it was just joints and muscles that were affecte...

anbuma

•11 years ago

4 Replies

Pain in my rib cage area?

Hi guys , iv bin getting a really bad pain in my rib cage/ lungs area it cums and goes when it pleases I had it last week ad it later 3,days and nw iv got it...

Hi guys , iv bin getting a really bad pain in my rib cage/ lungs area it cums ...

Mainshah

•11 years ago

23 Replies

During the last 6 months my fingernails have gone from being normal to full of vertical ridges. Some nails are worse than others has anyone

else got experience of this any ideas on causes. Thank you

annie330

•11 years ago

9 Replies

Introducing Hayley

Hi everyone, I just wanted to introduce our newest member of staff here at LUPUS UK National Office, Hayley. Hayley started with us last week and will be...

Hi everyone, I just wanted to introduce our newest member of staff here at LUPU...

Paul_Howard

Partner•11 years ago

11 Replies

Horrible mouth ulcers from methotrexate

Hi, had my third injection of methotrexate this week. I have really painful mouth ulcers, does anyone know any remedies that work? Does this side effect wear...

Hi, had my third injection of methotrexate this week. I have really painful mout...

joannebond360

•11 years ago

6 Replies

Photos of our symptoms

I have started taking pictures of proof to show doctors as the symptoms don't always come at the same time. Just thought it would be good if we could upload...

I have started taking pictures of proof to show doctors as the symptoms don't al...

Lupdaloop

•11 years ago

8 Replies

Black line down nails?

Just randomly looked up on net, on NHS it's saying can be connected with Lupus? Any one else have this?

Just randomly looked up on net, on NHS it's saying can be connected with Lupus? ...

Lupdaloop

•11 years ago

11 Replies

Lupus coagulant? Prednisolone? Confused and let down?

Ive just been to hospital as my husband had to call ambulance I was in so much pain I was having severe thought of suicide, not surprising when I've suffered...

Ive just been to hospital as my husband had to call ambulance I was in so much p...

Lupdaloop

•11 years ago

8 Replies

Do you use support bands?

Hi Just wondering if anyone uses support bands for painful joints and muscles! I do especially on my hands as they hurt so bad but now also my elbows and...

Hi Just wondering if anyone uses support bands for painful joints and muscles! ...

AnnieKhan

•11 years ago

1 Reply

Rhuematology update

hi guys. I got diagnosed with lupus SLE 5 months ago now. Just an update on my rhuemy Appointment. At my last appointment my rhuemy toled me to let him know if...

hi guys. I got diagnosed with lupus SLE 5 months ago now. Just an update on my r...

blondie22

•11 years ago

2 Replies

Discoid Lupus Erythematosus/ ... diagnosed after a biopsy and have SLE symptoms, Dr now has signed me "Unfit to Work" and had to claim ESA

Im worried I will be turned down for ESA as my symptoms are still under investigation and had no choice but to claim ESA. My first symptom was fatigue and pain...

Im worried I will be turned down for ESA as my symptoms are still under investig...

Elle-26

•11 years ago

8 Replies

Does anybody else have problems with their primary healthcare. GP/Pharmacist and repeat prescriptions?

I am really not kidding when I say this. I am on quite an extensive list of meds but by and large they are repeats, most of which are supposed to be re-issued...

I am really not kidding when I say this. I am on quite an extensive list of med...

overnighthearingloss

•11 years ago

8 Replies

September's Guest Blog - Brenda Ryder (Member of the Eclipse Support Group)

I apologise for the delay in posting September's guest blog article. Lupus Awareness Month is now in full swing and National Office is buzzing with even...

I apologise for the delay in posting September's guest blog article. Lupus Aware...

Paul_Howard

Partner•11 years ago

2 Replies

Lupus etc

Does anyone know if its possible to have a combination of PMR /GCA with Lupus ? steph

Does anyone know if its possible to have a combination of PMR /GCA with Lupus ? ...

steph1

•11 years ago

2 Replies

Went to hospital and they made me feel like i was wasting their time.

Had chronic fatigue for 2 weeks, Saw the Rhumy, (he said well we need to see you eat fresh veg and more exercise! Yes, I am a size 20, but have cut injections...

Had chronic fatigue for 2 weeks, Saw the Rhumy, (he said well we need to see you...

denisep

•11 years ago

7 Replies

Flu jab?

Anyone with SLE have the flu jab? I had it the first time last year through work and two weeks later couldn't move don't get me wrong don't think the flu jab...

Anyone with SLE have the flu jab? I had it the first time last year through work...

ashleigh30

•11 years ago

19 Replies

Did anyone listen to the BBC radio program about Lupus?

I thought it was great. I learned a lot of things about Lupus I didn't already know. Here's the link for anyone who missed it:...

I thought it was great. I learned a lot of things about Lupus I didn't already ...

Maya23

•11 years ago

12 Replies

Slurred speech

Hi all I am currently on 30mg of pred and taking MMF. Reducing steroids down and now seem to get slurred speech towards end of day Anyone get this?

Hi all I am currently on 30mg of pred and taking MMF. Reducing steroids down and...

Heights69

•11 years ago

8 Replies

prednisolone (steroids)

Hi everyone iv bin on steroids for 5 months now and iv realised I keep getting a thrush? Thrush as in down below Has anyone else experienced this? And hw...

Hi everyone iv bin on steroids for 5 months now and iv realised I keep getting a...

Mainshah

•11 years ago

4 Replies

Slurred speech

Hi all Currently tapering down my pred- down to 30 from 60. Also on MMF. I am feeling a lot better but at around 6pm before pred my speech goes slurred! Anyone...

Hi all Currently tapering down my pred- down to 30 from 60. Also on MMF. I am fe...

Heights69

•11 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2013

I was prescribed chloroquine for 23 years and as a result am now sight impaired, has anybody else got experience or know of someone who has.

Book to read

Hey guys I read my recent letter from my rheumy to my GP and it said that I have Connective Tissue Disease Super confused because I have

Lock Jaw

Anaemia and B12 shots.

can anyone give me a diagnose of head pressure, pins and needles all over mainly right side, burning tongue syndrome and left thigh cold sen

going to see the works ocupation nurse monday ,has anybody been to see one, what sort of questions will they ask, thanks for your help x

Gabbapentin/ neurontin

Fevers and Chills

I have SLE and RA I've opted for the mirena coil as a form of contraception and keen to hear if this has affected others ; good or bad

is this lupus not fibro?plus other problems

Pain in my rib cage area?

During the last 6 months my fingernails have gone from being normal to full of vertical ridges. Some nails are worse than others has anyone

Introducing Hayley

Horrible mouth ulcers from methotrexate

Photos of our symptoms

Black line down nails?

Lupus coagulant? Prednisolone? Confused and let down?

Do you use support bands?

Rhuematology update

Discoid Lupus Erythematosus/ ... diagnosed after a biopsy and have SLE symptoms, Dr now has signed me "Unfit to Work" and had to claim ESA

Does anybody else have problems with their primary healthcare. GP/Pharmacist and repeat prescriptions?

September's Guest Blog - Brenda Ryder (Member of the Eclipse Support Group)

Lupus etc

Went to hospital and they made me feel like i was wasting their time.

Flu jab?

Did anyone listen to the BBC radio program about Lupus?

Slurred speech

prednisolone (steroids)

Slurred speech

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