Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2013

Taking time off for doctors appointments

Despite my HR manager contacting my GP to get info about my illness in which he stated my medication needs to be monitored I am still getting flack about...

Despite my HR manager contacting my GP to get info about my illness in which he ...

wotshernameagain

•11 years ago

7 Replies

Pain in right shoulder blade (scapula) and right side of the rib cage under the armpit. Cure?

Five days ago while playing basketball i was hit with and elbow under my right scapula, while my right arm was extended. After two days, pain started appearing...

Five days ago while playing basketball i was hit with and elbow under my right s...

Taurus81

•11 years ago

1 Reply

Discovered today from my doc thati now have plantar faceitus,

Anyone else have this and is it another symptom of lupus? have to see a podiatrist and get special insoles made and worse!! I have to wear sensible shoes all...

Anyone else have this and is it another symptom of lupus? have to see a podiatri...

crankyme

•11 years ago

8 Replies

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Can I still have my flu jab I have sle

Les2051

•11 years ago

8 Replies

Methotrexate and tiredness

I have been in methotrexate for 5 weeks now. I am having injections 7.5 mg as the tablets made me feel so sick. It is making me so tired! Feel like I have...

I have been in methotrexate for 5 weeks now. I am having injections 7.5 mg as t...

joannebond360

•11 years ago

17 Replies

Meeting with HR

This afternoon i have a meeting with my Manager and the HR manager to discuss my condition and how they can help me... No idea what to say to that

This afternoon i have a meeting with my Manager and the HR manager to discuss my...

wotshernameagain

•11 years ago

8 Replies

Kidneys

Hi, has anyone else had problems with their kidneys, I have cyst in kidney which has changed to having calcium in it. I am awaiting results of CT Scan which...

Hi, has anyone else had problems with their kidneys, I have cyst in kidney which...

madyorkie

•11 years ago

4 Replies

I have been diagnosed with dle borderline sle main problem started with rash and scalp leading to hair loss have now been on hydroxy chloro

For a year recently my right arm knee and hand have aching really bad my consultant reluctant to refer to rheumy as only one side any ideas advice

For a year recently my right arm knee and hand have aching really bad my consult...

malteaser

•11 years ago

2 Replies

Mouth ulcers

I know they are a part of this all, but mine are so random, different shapes, colours, come and go....does anyone know of anything to make them go away or at...

I know they are a part of this all, but mine are so random, different shapes, co...

Hidden

•11 years ago

9 Replies

Help needed please... Esa Claim or JSA?

Hi ...Ive just received a reminder for another doctors "fit" note or letter. My ESA50 is meant to be in by the 13th November but my first rheumatologist...

Hi ...Ive just received a reminder for another doctors "fit" note or letter. My ...

Elle-26

•11 years ago

6 Replies

Since last week I have been getting rapid heartbeat,its almost like being on a rollercoaster. Has anyone else experiencing the symptoms.

I thought maybe im now getting panic attacks, I was diagnosed with lupus this year in may, im 39 I think maybe need to pace myself,just not use to slowing...

I thought maybe im now getting panic attacks, I was diagnosed with lupus this ye...

jeevan05

•11 years ago

10 Replies

Having sharp stabbing pains at the back of my head. Has anyone else had this?

Had horrendous pain from costochondritis for over a week and then it suddenly disappeared for four days but this morning it's returned :( and also started...

Had horrendous pain from costochondritis for over a week and then it suddenly di...

Belee

•11 years ago

8 Replies

We're looking for somebody with lupus in Eastbourne for a press interview APPLICATIONS NOW CLOSED

***We've now found somebody for the interview. Thank you.*** We've just been contacted by the Eastbourne Herald who are looking to do an article for...

***We've now found somebody for the interview. Thank you.*** We've just been co...

Paul_Howard

Partner•11 years ago

Be the first to reply

Prof Graham Huges

Hi I have had an email from prof Graham Huges of the London lupus centre saying he would like to see me ... Does anyone know how much it costs to see him or...

Hi I have had an email from prof Graham Huges of the London lupus centre saying ...

JJKANE

•11 years ago

13 Replies

I had a compression fracture of my T12 vertebrae at the end of August and do not feel as if it is getting better. Anyone had similar probs?

At my review 2 weeks ago, I was told that I would need to wear the brace 24/7 for "at least another 6 weeks". I'm taking Oramorph for the pain but it doesn't...

At my review 2 weeks ago, I was told that I would need to wear the brace 24/7 fo...

Rockhopper

•11 years ago

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Sharp pulsating lower back pain... has anyone suffered from this?

It started this morning and has got worse, ive taken my pain killers but they are not helping.. Sounds weird but its like Im hyper in my movements and can not...

It started this morning and has got worse, ive taken my pain killers but they ar...

Elle-26

•11 years ago

7 Replies

Air escaping from eye socket when blowing my nose

I dont know where exactly is the best place to post this, but I am looking for information from anyone else who may have experienced something similar or who...

I dont know where exactly is the best place to post this, but I am looking for i...

overnighthearingloss

•11 years ago

19 Replies

I already filled PIP application form and sent it on 5/8/2013 and I did received any result yet, How many days do it need to wait for reply

raghad

•11 years ago

5 Replies

sjogrens

I have just searched this as I read somewhere that bruising around the eyes is a symptom of this.the websites looked at make no reference to bruising. does...

I have just searched this as I read somewhere that bruising around the eyes is a...

anbuma

•11 years ago

10 Replies

Positive thoughts of what to do on not so good days

Being lupy loo on a daily bucket load of drugs I have good days when I can almost call myself normal and not so good days when I have to respect my condition...

Being lupy loo on a daily bucket load of drugs I have good days when I can almos...

Fitchick1

•11 years ago

13 Replies

Is tapering my steroids making me like this?

I don't want to be selfish as im in the best of health my lupus is in remission so loving the results trying to tame steroids down 1mg every month but am...

I don't want to be selfish as im in the best of health my lupus is in remission ...

Danielle2419

•11 years ago

11 Replies

Seriously Fed Up :*(

I think I have finally got to the point where I am completely 100% over Everything!!!!!! Although I was really against the idea of anti-depressants. I think...

I think I have finally got to the point where I am completely 100% over Everythi...

chucch

•11 years ago

5 Replies

Pleurisy????

Hi guys so last week I was suffering from a rib cage/lung pain went to the docs ad she said I have pleurisy and she give me antibiotics, 2 nights ago the pain...

Hi guys so last week I was suffering from a rib cage/lung pain went to the docs ...

Mainshah

•11 years ago

15 Replies

Recently I have been getting a rash like acne only on my face. My Doctors do not think it is related to Lupus but some food. Anyone can help

TriggerHappy

•11 years ago

7 Replies

I recently been having a terrible rash on my face. My Doctors do not think it is related to my lupus. Anyone with same problem?

TriggerHappy

•11 years ago

Be the first to reply

Elevated ALT and rash

Hi all, my ALT levels are indicating a problem with my liver. My consultant took me off azathioprine and increased my steroids (I was almost off them) 4 weeks...

Hi all, my ALT levels are indicating a problem with my liver. My consultant took...

mainlyconfused

•11 years ago

5 Replies

Itchy red spots on forearms? I have been given different names for the rash by all my doctors

Mine are very red an splotchy, usually are flat but sometimes are slightly raised. When mine start to heal after about three weeks the pigment turns brown,...

Mine are very red an splotchy, usually are flat but sometimes are slightly raise...

caitiechel

•11 years ago

1 Reply

Feeling a bit fed up

Hello all. I have been on Hydroxy since June. I have days where I am convinced it is working. I feel alert, happy and able to complete all I need to do. I fit...

Hello all. I have been on Hydroxy since June. I have days where I am convinced i...

Hidden

•11 years ago

17 Replies

Hi Guys, hope your all OK today. I have got my first appointments coming up with my dermatologist and rheumatologist.

I am not sure what questions I should be asking them. Can you please help me with suggestions. Thank you :-) x

I am not sure what questions I should be asking them. Can you please help me wit...

dglet

•11 years ago

2 Replies

Hey ladies and gents,with mild lupus, how often is your rhumetologist suppose to check your blood? I was diagnosed end of June..on plaquenil

i was only checked in june and first blood tests.(with Rheumetologist)..saw him september..he said nothing...my gp thought it weird no more blood tests...when...

i was only checked in june and first blood tests.(with Rheumetologist)..saw him ...

dgleds

•11 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2013

Taking time off for doctors appointments

Pain in right shoulder blade (scapula) and right side of the rib cage under the armpit. Cure?

Discovered today from my doc thati now have plantar faceitus,

Can I still have my flu jab I have sle

Methotrexate and tiredness

Meeting with HR

Kidneys

I have been diagnosed with dle borderline sle main problem started with rash and scalp leading to hair loss have now been on hydroxy chloro

Mouth ulcers

Help needed please... Esa Claim or JSA?

Since last week I have been getting rapid heartbeat,its almost like being on a rollercoaster. Has anyone else experiencing the symptoms.

Having sharp stabbing pains at the back of my head. Has anyone else had this?

We're looking for somebody with lupus in Eastbourne for a press interview APPLICATIONS NOW CLOSED

Prof Graham Huges

I had a compression fracture of my T12 vertebrae at the end of August and do not feel as if it is getting better. Anyone had similar probs?

Sharp pulsating lower back pain... has anyone suffered from this?

Air escaping from eye socket when blowing my nose

I already filled PIP application form and sent it on 5/8/2013 and I did received any result yet, How many days do it need to wait for reply

sjogrens

Positive thoughts of what to do on not so good days

Is tapering my steroids making me like this?

Seriously Fed Up :*(

Pleurisy????

Recently I have been getting a rash like acne only on my face. My Doctors do not think it is related to Lupus but some food. Anyone can help

I recently been having a terrible rash on my face. My Doctors do not think it is related to my lupus. Anyone with same problem?

Elevated ALT and rash

Itchy red spots on forearms? I have been given different names for the rash by all my doctors

Feeling a bit fed up

Hi Guys, hope your all OK today. I have got my first appointments coming up with my dermatologist and rheumatologist.

Hey ladies and gents,with mild lupus, how often is your rhumetologist suppose to check your blood? I was diagnosed end of June..on plaquenil

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2013

Taking time off for doctors appointments

Pain in right shoulder blade (scapula) and right side of the rib cage under the armpit. Cure?

Discovered today from my doc thati now have plantar faceitus,

Can I still have my flu jab I have sle

Methotrexate and tiredness

Meeting with HR

Kidneys

I have been diagnosed with dle borderline sle main problem started with rash and scalp leading to hair loss have now been on hydroxy chloro

Mouth ulcers

Help needed please... Esa Claim or JSA?

Since last week I have been getting rapid heartbeat,its almost like being on a rollercoaster. Has anyone else experiencing the symptoms.

Having sharp stabbing pains at the back of my head. Has anyone else had this?

We're looking for somebody with lupus in Eastbourne for a press interview ***APPLICATIONS NOW CLOSED***

Prof Graham Huges

I had a compression fracture of my T12 vertebrae at the end of August and do not feel as if it is getting better. Anyone had similar probs?

Sharp pulsating lower back pain... has anyone suffered from this?

Air escaping from eye socket when blowing my nose

I already filled PIP application form and sent it on 5/8/2013 and I did received any result yet, How many days do it need to wait for reply

sjogrens

Positive thoughts of what to do on not so good days

Is tapering my steroids making me like this?

Seriously Fed Up :*(

Pleurisy????

Recently I have been getting a rash like acne only on my face. My Doctors do not think it is related to Lupus but some food. Anyone can help

I recently been having a terrible rash on my face. My Doctors do not think it is related to my lupus. Anyone with same problem?

Elevated ALT and rash

Itchy red spots on forearms? I have been given different names for the rash by all my doctors

Feeling a bit fed up

Hi Guys, hope your all OK today. I have got my first appointments coming up with my dermatologist and rheumatologist.

Hey ladies and gents,with mild lupus, how often is your rhumetologist suppose to check your blood? I was diagnosed end of June..on plaquenil

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

We're looking for somebody with lupus in Eastbourne for a press interview APPLICATIONS NOW CLOSED