Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2013

Lupus and Endometriosis

I was diagnosed with SLE Lupus in December 2000, i have battled with the disease for years until 2011 when i managed to find a way to cope with the disease. I...

I was diagnosed with SLE Lupus in December 2000, i have battled with the disease...

Monica82

•11 years ago

8 Replies

Teesside Lupus Support Group Meeting on the 12th October 2013

Hi all Teesside Lupus Support Group is meeting on th 12th October starting at 12.30. Anyone interested is welcome. Come and lets share our experiences and...

Hi all Teesside Lupus Support Group is meeting on th 12th October starting at 1...

Pipido36

•11 years ago

2 Replies

Rhuemy Appointment!

I had a hospital appointment at st Thomas's with dr d Cruz and everything is apparently going really well to the point where im weaning of my 5mg of steroids...

I had a hospital appointment at st Thomas's with dr d Cruz and everything is ap...

Danielle2419

•11 years ago

9 Replies

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Dizzy spells

Hi all, I have had lupus 23 years so my list of complaints is huge heyho but its the dizzy spells that are doing me in every time I get up or bend over was...

Hi all, I have had lupus 23 years so my list of complaints is huge heyho but its...

garykeanu

•11 years ago

12 Replies

Need answers

hello guys. I have been diagnosed with sle but the last week I have been feeling much worse than usual my tablets are not helping as they have done. I am...

hello guys. I have been diagnosed with sle but the last week I have been feeling...

blondie22

•11 years ago

29 Replies

Complements c4 and c3? any ideas

Hi all,well today I have been very upset,dx 2 years ago,i changed meds back in feb to a safer one during pregnancy,had to wait 6 mnths to get the all clear...

Hi all,well today I have been very upset,dx 2 years ago,i changed meds back in f...

poodlegal

•11 years ago

2 Replies

Is is safe to have a massage?

My sister and I are going to a Spa break for a couple of days, I want to book a treatment but not sure if it is advisable to have a body massage, my Lupus is...

My sister and I are going to a Spa break for a couple of days, I want to book a ...

mol61

•11 years ago

10 Replies

How long will my lupus stay not active?

On 21st August I was told lupus is not active and I started get aches and pains on and off. I had blood in my urine during my appointment and since May this...

On 21st August I was told lupus is not active and I started get aches and pains ...

puneet123

•11 years ago

2 Replies

hope you feel better

Hi Annie Should also have said I'm so sorry you are feeling so 'alone'. It is hard isn't it. I hope things get better for you and send you lotsa good vibes.

Hi Annie Should also have said I'm so sorry you are feeling so 'alone'. It is h...

lynzard

•11 years ago

2 Replies

new to all this

Hi guys, been poorly for years, had various diagnoses! Had to ask for lupus blood test myself. My consultant doesn't seem interested at all. Was prescribed...

Hi guys, been poorly for years, had various diagnoses! Had to ask for lupus bloo...

lynzard

•11 years ago

1 Reply

I've stopped taking my medication

I have been on Hydroxychloroquine for the past 6 years and from 18th May 2013 I've stopped taking it. I have always hated taking medication and when I was told...

I have been on Hydroxychloroquine for the past 6 years and from 18th May 2013 I'...

anic316

•11 years ago

18 Replies

cold and wet weather

does anyone else suffer more with pain / mobility when the weather is cold and wet if so how do you cope ? steph

does anyone else suffer more with pain / mobility when the weather is cold and w...

steph1

•11 years ago

9 Replies

New to Lupus

Hi This is the first time iv posted about lupus. I was diagnosed with Sjogrens about 6 years ago and it vanished within months but recently about 3 months ago...

Hi This is the first time iv posted about lupus. I was diagnosed with Sjogrens a...

AnnieKhan

•11 years ago

12 Replies

Keratosis Pilaris anyone?

Has anyone happened to suffer with Keratosis Pilaris as well as lupus? It is like goosebumps on the skin, caused by excess keratin. Nothing can cure it,...

Has anyone happened to suffer with Keratosis Pilaris as well as lupus? It is li...

Purpletop

•11 years ago

16 Replies

Extreme tiredness!

For the past 4 weeks I am spending 3/4 days in bed sleeping not just a wee snooze but 12 to 16 hours at a time sleeping! Then struggle to get up wash then back...

For the past 4 weeks I am spending 3/4 days in bed sleeping not just a wee snooz...

eejit

•11 years ago

9 Replies

Research study looking at lupus and the Education System

A research study at Cambridge University is currently looking into the experiences of young people with lupus and the education system, in order to better...

A research study at Cambridge University is currently looking into the experienc...

Paul_Howard

Partner•11 years ago

1 Reply

Behcets and lupus

Hello does anyone have a diagnoses of Behchets diesease to add to their Lupus SLE?

Hello does anyone have a diagnoses of Behchets diesease to add to their Lupus SL...

donna

•11 years ago

16 Replies

Itching ..only at night!

The last few nights I have had dreadful sleep,as for some reason,I start to itch as soon as get into bed!It's only on my head,neck,ad upper arms?I haven't...

The last few nights I have had dreadful sleep,as for some reason,I start to itch...

Luppykate

•11 years ago

22 Replies

Knee pain

Hi all, Pretty much unable to walk without an aid since Saturday, in unbearable pain, been put on co-codamol by GP but they are having no effect, been signed...

Hi all, Pretty much unable to walk without an aid since Saturday, in unbearable ...

March2012

•11 years ago

21 Replies

Ciclosporin

Hi, just seen cons and latest drug he wants me to start is ciclosporin. Just wondering about people's experiences on it. Xx

Hi, just seen cons and latest drug he wants me to start is ciclosporin. Just won...

Hidden

•11 years ago

4 Replies

Hi everyone, help with finding a support group.

Hello I was diagnosed with Lupus and Fibro 4 years ago, I have been trying to find a support group near me to attend but have not found one any ideas, I live...

Hello I was diagnosed with Lupus and Fibro 4 years ago, I have been trying to fi...

angela28

•11 years ago

5 Replies

allergy

ive now got a few allergies which I didn't know I had , milk ,soya, wheat , dust , chocolate , fish , egg white, has anyone else got allergies since getting...

ive now got a few allergies which I didn't know I had , milk ,soya, wheat , dust...

steph1

•11 years ago

5 Replies

Has my mum got lupus?

Hi, my mum has various symptoms including, anxiety, depression, joint pain, night sweats, numb ends of fingers to name a few and i don't know if this is...

Hi, my mum has various symptoms including, anxiety, depression, joint pain, nigh...

daughter13

•11 years ago

7 Replies

Feeling Off lately

Hi all you many peoples out there. I have been feeling a bit off for about 3 weeks, not terribly sick or in a great deal of pain but just not feeling good....

Hi all you many peoples out there. I have been feeling a bit off for about 3 we...

Chapter

•11 years ago

9 Replies

Depression

Hi everyone. Getting to the point where I think I might need anti depressants for depression. I get severe bouts of it and anxiety mainly around flare ups. I...

Hi everyone. Getting to the point where I think I might need anti depressants fo...

joannebond360

•11 years ago

40 Replies

Are there any Lupus support groups in London?

anic316

•11 years ago

18 Replies

Does anyone else get brain fog as part of signs of a flare up?

I am only recently diagnosed so still getting to grips with spotting the signs..... Although, I am understanding a lot more about lupus now:) At work on...

I am only recently diagnosed so still getting to grips with spotting the signs.....

Houghton73shaw

•11 years ago

8 Replies

Thoughts/experience with Hydroxy

I started with 400mg Hydroxy 3 days ago and at the same reduced steroids from 20 to 15. I am feeling like death warmed up, sick,headache,etc. More pain is...

I started with 400mg Hydroxy 3 days ago and at the same reduced steroids from 20...

Hidden

•11 years ago

6 Replies

Neuropathic pain pays a visit (and natural remedies come to the rescue).

I've been experiencing all sorts of strange pains and sensations over the years, but more recently with this latest flare I had them all at once and all over...

I've been experiencing all sorts of strange pains and sensations over the years,...

Maya23

•11 years ago

10 Replies

PIP application -ATOS consultation required - seriously anxious

Hello everyone I am sorry to ask but I am seriously panicking as I don't know what to expect. I applied for PIP back in June. I received a letter the other...

Hello everyone I am sorry to ask but I am seriously panicking as I don't know w...

esky

•11 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2013

Lupus and Endometriosis

Teesside Lupus Support Group Meeting on the 12th October 2013

Rhuemy Appointment!

Dizzy spells

Need answers

Complements c4 and c3? any ideas

Is is safe to have a massage?

How long will my lupus stay not active?

hope you feel better

new to all this

I've stopped taking my medication

cold and wet weather

New to Lupus

Keratosis Pilaris anyone?

Extreme tiredness!

Research study looking at lupus and the Education System

Behcets and lupus

Itching ..only at night!

Knee pain

Ciclosporin

Hi everyone, help with finding a support group.

allergy

Has my mum got lupus?

Feeling Off lately

Depression

Are there any Lupus support groups in London?

Does anyone else get brain fog as part of signs of a flare up?

Thoughts/experience with Hydroxy

Neuropathic pain pays a visit (and natural remedies come to the rescue).

PIP application -ATOS consultation required - seriously anxious

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