Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,717 members • 28,083 posts

All posts for September 2013

First lupus clinic visit, what to expect?

Hi all. I have a baffling range of symptoms over the past three years. Lots of tiredness, joint pain, arthritis, infections and a climbing positive ANA. I saw...

Hi all. I have a baffling range of symptoms over the past three years. Lots of t...

Jenny1

•11 years ago

11 Replies

diagnosed with LUPUS in 2000,wife gone in 2001,house gone later that year,minor stroke,heart attack ,broken back,loss of vision in one eye,

tired forever,buckets of pills,visits to doctors and so many arguments with DWP trying to get some help,Is there any point in trying anymore!!!!!!!!

tired forever,buckets of pills,visits to doctors and so many arguments with DWP ...

jeff61

•11 years ago

15 Replies

PIP claim questions!

Hiya guys I know a few people have asked about PIP. But I have a few questions if you don't mind. I am considering to apply but I am not sure if they would...

Hiya guys I know a few people have asked about PIP. But I have a few questions ...

AnnieKhan

•11 years ago

10 Replies

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Feeling a bit lost...,

Hi guys n gals, There are so many times I would like to post but don't because because I don't have a definitive diagnosis. Diagnosis is sero negative...

Hi guys n gals, There are so many times I would like to post but don't because ...

Jo883

•11 years ago

14 Replies

Tattoo, a good idea when on immuno suppressants?

Hi, I've wanted a tattoo for some time, but my partner worries as I'm on immuno suppressants along with the usual steroids, hydroxy, pain relief etc. Any...

Hi, I've wanted a tattoo for some time, but my partner worries as I'm on immuno ...

Slowmo

•11 years ago

6 Replies

Flu jab

Always had a flu jab (COPD) . Could it cause me any problems now? Experiences please. Thanks

Always had a flu jab (COPD) . Could it cause me any problems now? Experiences pl...

Hidden

•11 years ago

19 Replies

Teesside Lupus Support Group Meeting on the 12th October 2013

Hi all Teesside Lupus Support Group is meeting on the 12th October starting at 12.30. Anyone interested is welcome. Come and lets share our experiences and...

Hi all Teesside Lupus Support Group is meeting on the 12th October starting at ...

Pipido36

•11 years ago

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Bad sinus's

Hey everyone. Just wondering if anyone suffers with inflammed blocked sinus's? Feels like an infection but constant. My nose is always dry and my consultant...

Hey everyone. Just wondering if anyone suffers with inflammed blocked sinus's? F...

joannebond360

•11 years ago

55 Replies

Can anybody tell me, can you die of lupus and at what age does most of patiants die??

Shireenm

•11 years ago

35 Replies

Through experience and Investigation I have found that COPD sufferers have a very high risk of heart failure.

This will probably get us before the lungs give in, are there any ways to help protect the heart other that the inhalers?

This will probably get us before the lungs give in, are there any ways to help p...

Kad21

•11 years ago

4 Replies

Any help with finding a lupus specialist in South Wales Please (I'm in Bridgend)

Hi I am in a living nightmare at the moment and I really need a doctors help with knowledge of lupus as after plenty of research and it actually being...

Hi I am in a living nightmare at the moment and I really need a doctors help wit...

welshie2010

•11 years ago

5 Replies

20 Simple Ways You Could Help Spread Awareness and/or Raise Funds for Lupus Awareness Month

Lupus Awareness Month starts next week (October 1st). Here are a few simple ways that you can help to raise awareness or funds and help make this awareness...

Lupus Awareness Month starts next week (October 1st). Here are a few simple ways...

Paul_Howard

Partner•11 years ago

8 Replies

hospital appointments

hi everyone, just wanted to vent my anger and frustration as my last lupus apt was in march, since then ive had a nasty long flare which started march and is...

hi everyone, just wanted to vent my anger and frustration as my last lupus apt ...

caninecrazy

•11 years ago

9 Replies

If i have been off for long term sick, does my work have to accommodate me when i go back to work?

lainylooloo

•11 years ago

6 Replies

'It's not lupus' (couldn't resist!), now ?CTD. How do I tell my employers who have bent over backwards for my lupus problems?!

I was given a diagnosis of lupus approx 2 years ago. Initially I was under the care of an immunologist, then as things progressed I was referred to...

I was given a diagnosis of lupus approx 2 years ago. Initially I was under the c...

Petey

•11 years ago

14 Replies

Would you be willing to share your story for lupus awareness?

October is Lupus Awareness Month and we have started receiving enquiries from the press asking for case studies of people with lupus. If you have a lupus...

October is Lupus Awareness Month and we have started receiving enquiries from th...

Paul_Howard

Partner•11 years ago

5 Replies

Please help Strathclyde Lupus Group win some funding!

The Strathclyde Lupus Group are up for a Bank of Scotland Community Fund award. Vote for us at www.bankofscotland.co.uk/communityfund Or Text VOTE LZQA to...

The Strathclyde Lupus Group are up for a Bank of Scotland Community Fund award....

Paul_Howard

Partner•11 years ago

4 Replies

Is anyone taking adalat retard 10mg? And if so have you had any side affects?

My rhuma give me these to open my blood vessels? Due to very poor circulation, Iv realised I feel sick with them and also my feet go very red like little blood...

My rhuma give me these to open my blood vessels? Due to very poor circulation, I...

Mainshah

•11 years ago

7 Replies

B##ing session

A few of my colleagues have the flu Coughing around the office and complaining about their aches and pains, how tired they are bah! Hello I feel how you feel...

A few of my colleagues have the flu Coughing around the office and complaining...

wotshernameagain

•11 years ago

13 Replies

Is methotrexate all its cracked up to be?

Hey guys After 6 months of GP/hospital visits, tests, weight gain from steroids and all that jazz My rhumey has finally allowed me to go on methotrexate...

Hey guys After 6 months of GP/hospital visits, tests, weight gain from steroid...

wotshernameagain

•11 years ago

6 Replies

life insurance

hi can anyone tell me how much more money I would have to pay to amend my insurance ie include lupus. only have a standard plan. how much would a new one cost...

hi can anyone tell me how much more money I would have to pay to amend my insura...

tracyxx

•11 years ago

5 Replies

Taking Tramadol. Bad side effects, but helps with the pain.

Hi all, back again. About a week ago I was having pain under my left rib, it was very excruciating and caused me to breath funny and has made me cry. So I...

Hi all, back again. About a week ago I was having pain under my left rib, it wa...

Eatpower

•11 years ago

8 Replies

Argh! Lupoid/Blonde Moment Or Is every1 else getting confused by this new layout?

Hiya fellow lupoids! Just 2 let everybody know, yes, I am still hanging around making a nuisance of myself & generally challenging ( ok, arguing with ;) ) my...

Hiya fellow lupoids! Just 2 let everybody know, yes, I am still hanging around m...

Sher78

•11 years ago

13 Replies

can I apply for DLA

I have had lupus for over 30 years and never claimed anything, worked full time until two years ago, and I know I was very lucky to be able to do so. However,...

I have had lupus for over 30 years and never claimed anything, worked full time ...

juneybells

•11 years ago

23 Replies

Any Lupus support group in Reading Berkshire?

Hi all Just wondering if there is any Lupus support group in Reading or around the Berkshire area? Thanks Annie

Hi all Just wondering if there is any Lupus support group in Reading or around ...

AnnieKhan

•11 years ago

2 Replies

Just diagnosed

hi guys. This is all new to me. I was diagnosed with SLE last week. Trying to get my head around it all

hi guys. This is all new to me. I was diagnosed with SLE last week. Trying to g...

dglet

•11 years ago

17 Replies

Methotrexate or azathioprine?

Hi All, I was diagnosed with sle in february & started on plaquenil, prednisone & tramadol for knee pain. When I last saw my rhuemy he said I have arthritis...

Hi All, I was diagnosed with sle in february & started on plaquenil, prednisone ...

sezzie

•11 years ago

31 Replies

Neck lymph node biopsy

Went to have a swollen lymph node In my neck checked on Thursday at ent. Have had it at least a year but another doc dismissed it without really checking so...

Went to have a swollen lymph node In my neck checked on Thursday at ent. Have ha...

Scoobydoo

•11 years ago

3 Replies

Unpredictable Days of LUPUS

Hi all Friday was my birthday the 20th of sept. i had a miraculous day. i was able to go to church in the morning, make a huge breakfast, had a lye down, watch...

Hi all Friday was my birthday the 20th of sept. i had a miraculous day. i was ab...

ijeasike

•11 years ago

9 Replies

Does/Has anyone else suffered from sporadic chest pains?

I have been suffering from random sharp sporadic chest pains in the middle of mychesg and often to the side near the middle of the rib cage. They are very...

I have been suffering from random sharp sporadic chest pains in the middle of my...

rooks1984

•11 years ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2013

First lupus clinic visit, what to expect?

diagnosed with LUPUS in 2000,wife gone in 2001,house gone later that year,minor stroke,heart attack ,broken back,loss of vision in one eye,

PIP claim questions!

Feeling a bit lost...,

Tattoo, a good idea when on immuno suppressants?

Flu jab

Teesside Lupus Support Group Meeting on the 12th October 2013

Bad sinus's

Can anybody tell me, can you die of lupus and at what age does most of patiants die??

Through experience and Investigation I have found that COPD sufferers have a very high risk of heart failure.

Any help with finding a lupus specialist in South Wales Please (I'm in Bridgend)

20 Simple Ways You Could Help Spread Awareness and/or Raise Funds for Lupus Awareness Month

hospital appointments

If i have been off for long term sick, does my work have to accommodate me when i go back to work?

'It's not lupus' (couldn't resist!), now ?CTD. How do I tell my employers who have bent over backwards for my lupus problems?!

Would you be willing to share your story for lupus awareness?

Please help Strathclyde Lupus Group win some funding!

Is anyone taking adalat retard 10mg? And if so have you had any side affects?

B##ing session

Is methotrexate all its cracked up to be?

life insurance

Taking Tramadol. Bad side effects, but helps with the pain.

Argh! Lupoid/Blonde Moment Or Is every1 else getting confused by this new layout?

can I apply for DLA

Any Lupus support group in Reading Berkshire?

Just diagnosed

Methotrexate or azathioprine?

Neck lymph node biopsy

Unpredictable Days of LUPUS

Does/Has anyone else suffered from sporadic chest pains?

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