Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2013

Sunlight and fluorescent lighting, does anyone else get dizzy immediately?

Hi All I read this site alot because although I have Sjogrens and systemic vasculitis I have many lupus symptoms too and have divided my specialists whether...

Hi All I read this site alot because although I have Sjogrens and systemic vasc...

Galaxy2

•11 years ago

8 Replies

confused over whether to make a fuss or not.

I posted earlier this week about feeling breathless. went to the doctors yesterday, lungs and cheste were clear, but heart is beating fast but...

I posted earlier this week about feeling breathless. went to the doctors yesterd...

tjperfick

•11 years ago

6 Replies

Outpatient face to face being replaced by telephone consultation

I have had a bit of a shock, my next scheduled Rhuematology appointment has been replaced with a telephone consultation. Anyone else have this happen. I am...

I have had a bit of a shock, my next scheduled Rhuematology appointment has been...

LupusKaren

•11 years ago

4 Replies

Want to take advantage of all our features? Just log in!

hi iv got my first appointment at the haematol clinic monday whot should i expect? just getting myself a bit worked up not nowing

donnadragon1

•11 years ago

2 Replies

ZIMMER with wheels and seat.

My hubby bought me a Zimmer frame with wheel for my 66th bithday last month - not my ideal gift !, but he knew just how much I missed going for a walk round a...

My hubby bought me a Zimmer frame with wheel for my 66th bithday last month - no...

hazelHollingsworth

•11 years ago

8 Replies

Ideal NHS care for lupus

This links to the NHS Choices website and gives a really great description of how lupus should be investigated, diagnosed, treated and monitored. You just...

This links to the NHS Choices website and gives a really great description of ho...

marypw

•11 years ago

7 Replies

Important changes coming to the LUPUS UK HealthUnlocked community

Hi everyone. I just wanted to take a quick moment to let you know about some big changes to this community which will be coming next week and any disruptions...

Hi everyone. I just wanted to take a quick moment to let you know about some big...

Paul_Howard

Partner•11 years ago

4 Replies

Panic attacks out of nowhere..

Nothing connected to Lupus this but I have been told before that I get panic attacks. Have often felt it was not always anxiety over the years that really was...

Nothing connected to Lupus this but I have been told before that I get panic att...

trueman

•11 years ago

6 Replies

New Symptoms

Hi Guys New to this blogging forum but im am hoping that it can keep me sane and perhaps sharing my experiences can help someone else. Despite going to...

Hi Guys New to this blogging forum but im am hoping that it can keep me sane...

wotshernameagain

•11 years ago

3 Replies

Feel let down by the NHS

Hi everyone sorry to come on here and moan as I know you all have your own problems and many will be worse than mine!!! Basically my story is this; 6 months...

Hi everyone sorry to come on here and moan as I know you all have your own probl...

Samantha817

•11 years ago

8 Replies

Inspiration for my lunch

What're you all having today? For the past two days, I have had wholemeal krisprolls, topped with philadelphia, parma ham and tomatoes. Today, I am stuck....

What're you all having today? For the past two days, I have had wholemeal krisp...

chrissiij

•11 years ago

8 Replies

diagnosed too easy...hmmm

i feel i was diagnosed too easy with lupus... I am hypothyroid since 1998.. been 3 years menopaused..that threw thyroid further crazy... then...

i feel i was diagnosed too easy with lupus... I am hypothyroid since 1998.. be...

dgleds

•11 years ago

17 Replies

Cyst update !

My bloods came back normal (relief) but am going to have the cyst removed ,along with my right ovary. The consultant said my ovary is very stretched ? ....

My bloods came back normal (relief) but am going to have the cyst removed ,along...

larissa

•11 years ago

6 Replies

Just got back from ruematology.

Went quite well the doctor actually listened to what i had to say and understood what I am going through. Took lots of blood samples and urine sample for...

Went quite well the doctor actually listened to what i had to say and understoo...

crankyme

•11 years ago

6 Replies

Midges + tasty blood = CANKLES!

I have just returned from 2 weeks in China, where the local mosquitos viewed me as a rather tasty entree. I got a few nasty bites, which have become rather...

I have just returned from 2 weeks in China, where the local mosquitos viewed me ...

chrissiij

•11 years ago

9 Replies

First Rheumy app, how long for results?

Went to see the rheumatologist on the 24th June for the first time. I gave her a list of all my symptoms, family history, etc. She did a thorough examination...

Went to see the rheumatologist on the 24th June for the first time. I gave her a...

Whatamess2

•11 years ago

2 Replies

Does anyone have Pulmonary Fibrosis with Lupus?I've been diagnosed approx 2 years and no significant changes as yet

but obviously realise it can suddenly move into 2nd stage quickly.Just wondering how others cope with the uncertainty.I'm ashamed to say I'm feeling a little...

but obviously realise it can suddenly move into 2nd stage quickly.Just wondering...

midlifecrisis1

•11 years ago

10 Replies

Go a date to see Rheumatology nurse, what to expect?

Just rang the Rheumatology secretary and the got a reply from eye clinic yesterday! Any how they have no objects to me going on Hydroxy. I now have a date to...

Just rang the Rheumatology secretary and the got a reply from eye clinic yesterd...

Gymbabe

•11 years ago

4 Replies

Want to say thank you and I'm grateful.

I recently posted a question, as I often do when things get bad. I'd like to say a big thank you to everyone out there who replied and try to help. I often...

I recently posted a question, as I often do when things get bad. I'd like to say...

BetsieBoo

•11 years ago

4 Replies

Sleeping or not sleeping!

I either sleep two to three days straight or nothing! I do the whole sleep hygiene thing, same time each night, nice fresh bedding, no caffeine products before...

I either sleep two to three days straight or nothing! I do the whole sleep hygie...

eejit

•11 years ago

12 Replies

thoughts...

In a life prior to this illness trying to take over my life, I used to be a volunteer, something which I had done from being around 17 firstly with the red...

In a life prior to this illness trying to take over my life, I used to be a volu...

scoobydoo1

•11 years ago

5 Replies

DLA update

As some of you will remember I last wrote a post in Febuary about my wife being investigated & DLA being suspended ! The upshot is that the investigator (whome...

As some of you will remember I last wrote a post in Febuary about my wife being ...

silverback

•11 years ago

15 Replies

Not sure about taking another prescription drug, but want to feel normal again

Going to ring the Rheumie secretary again to chase up the eye clinic to see if I can have Hydroxy, but then I look at other drugs I am already taking, bladder...

Going to ring the Rheumie secretary again to chase up the eye clinic to see if I...

Gymbabe

•11 years ago

5 Replies

Pain rating 10 out of 10 but on the plus side see reumatologist tomorrow for the first time.

Had a realy bad day yesterday with pains in my ankles knees and back and feeling rough all day then when I went to bed to rest it got a lot worse radiating up...

Had a realy bad day yesterday with pains in my ankles knees and back and feeling...

crankyme

•11 years ago

3 Replies

Is MCTD covered by the Equaity Act?

I am one of many having a change to my lupus label. My most recent appointment with a new rheumatologist at a new hospital, has resulted in her querying MCTD...

I am one of many having a change to my lupus label. My most recent appointment w...

Petey

•11 years ago

6 Replies

Sun this weekend..

So we are forecast a pretty nice weekend here in the UK which is fab for my little ones. Get the paddling pool out and ice lollies on the go. But I was...

So we are forecast a pretty nice weekend here in the UK which is fab for my litt...

trueman

•11 years ago

10 Replies

Class 4 Lupus Nephritis - Similar experiences anyone?

Hi all, I am a 28yr old female who has was diagnosed with Lupus Nephritis (class 4) about a month ago. I wont lie it hasnt been an easy ride both physically...

Hi all, I am a 28yr old female who has was diagnosed with Lupus Nephritis (cl...

rooks1984

•11 years ago

8 Replies

Fellow lupies it would be great to meet while raising funds. :-)

I am holding a fundraising BBQ for LupusUK on 14th July at 2.30 at The Dukes Head in Crayford High Street. there will be a raffle fun and games, music and...

I am holding a fundraising BBQ for LupusUK on 14th July at 2.30 at The Dukes Hea...

madmagz

•11 years ago

7 Replies

Anyone being bitten by British midges-reaction is awful,have to take piriton-is this lupus?

I have lupus and fibromyalgia and this is a new symptom-always been bitten abroad but never this bad over here!!

I have lupus and fibromyalgia and this is a new symptom-always been bitten abroa...

senorascully

•11 years ago

12 Replies

breathlessness

does anybody else here get out of breath? Ath the moment its worse whilst resting and also after things like having a drink and chatting. Any suggestions?...

does anybody else here get out of breath? Ath the moment its worse whilst restin...

tjperfick

•11 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2013

Sunlight and fluorescent lighting, does anyone else get dizzy immediately?

confused over whether to make a fuss or not.

Outpatient face to face being replaced by telephone consultation

hi iv got my first appointment at the haematol clinic monday whot should i expect? just getting myself a bit worked up not nowing

ZIMMER with wheels and seat.

Ideal NHS care for lupus

Important changes coming to the LUPUS UK HealthUnlocked community

Panic attacks out of nowhere..

New Symptoms

Feel let down by the NHS

Inspiration for my lunch

diagnosed too easy...hmmm

Cyst update !

Just got back from ruematology.

Midges + tasty blood = CANKLES!

First Rheumy app, how long for results?

Does anyone have Pulmonary Fibrosis with Lupus?I've been diagnosed approx 2 years and no significant changes as yet

Go a date to see Rheumatology nurse, what to expect?

Want to say thank you and I'm grateful.

Sleeping or not sleeping!

thoughts...

DLA update

Not sure about taking another prescription drug, but want to feel normal again

Pain rating 10 out of 10 but on the plus side see reumatologist tomorrow for the first time.

Is MCTD covered by the Equaity Act?

Sun this weekend..

Class 4 Lupus Nephritis - Similar experiences anyone?

Fellow lupies it would be great to meet while raising funds. :-)

Anyone being bitten by British midges-reaction is awful,have to take piriton-is this lupus?

breathlessness

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