Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,821 members • 28,159 posts

All posts for July 2013

Feeling patronised

As some of you may know from previous posts/questions that I recently saw the rheumatology doctor. He ordered a load more tests and offered the 'diagnosis' of...

As some of you may know from previous posts/questions that I recently saw the rh...

Hidden

•11 years ago

9 Replies

Loving the new site!

Wow, love this site, it's very user friendly - well done to all concerned.

Slowmo

•11 years ago

3 Replies

to juice or not to juice ?

Any one do juicing ? What benefits do you get ? I am hoping that it will make a difference to my symptoms especially energy wise ? x

Any one do juicing ? What benefits do you get ? I am hoping that it will make a ...

larissa

•11 years ago

6 Replies

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Wet sensation on lower leg

Hi everyone For the past two days I have had the strangest sensation on my lower right leg. It feels like my leg is wet but when you touch my leg its dry....

Hi everyone For the past two days I have had the strangest sensation on my lo...

LULU85

•11 years ago

7 Replies

DIAGNOSIS!!!!!!!!!!!!!!!

after 16 years of being ill I finally have a diagnosis, I don't have Lupus, I have M.E/cfs. I cant tell you, wait hang on you already know what relief it is...

after 16 years of being ill I finally have a diagnosis, I don't have Lupus, I ha...

scoobydoo1

•11 years ago

1 Reply

London Meet - 17th August

Hi all, Anyone interested in a London meet on 17th August? If so, send me a message and I'll add you to the private thread. Thanks! Christine

Hi all, Anyone interested in a London meet on 17th August? If so, send me a ...

chrissiij

•11 years ago

3 Replies

Adverse reaction to Hydroxychloroquine

Got a diagnosis of SLE overlapping with MCTD 2 months ago. Was feeling loads better after an initial 25mg of Pred tapering to 5mg over about a month and about...

Got a diagnosis of SLE overlapping with MCTD 2 months ago. Was feeling loads bet...

tcogb

•11 years ago

1 Reply

hydroyxchloroquine

if stopped how soon do you see an effect?

scoobydoo1

•11 years ago

4 Replies

Does anyone else have tingling along their top lip, just on right side

I have Lupus and Fibromyalgia. In the last couple of weeks I have a tingling on my top lip, a bit like having an injection at dentist. It goes from outer right...

I have Lupus and Fibromyalgia. In the last couple of weeks I have a tingling on ...

JacquieCD

•11 years ago

1 Reply

Delay in new platform

As you can probably tell, we are not currently using the new HealthUnlocked platform. There has been a delay, but the team are working on it. Feel free to use...

As you can probably tell, we are not currently using the new HealthUnlocked plat...

Paul_Howard

Partner•11 years ago

2 Replies

Hydroxychioroquine Sulphate

Hello ive been to Rheumy Clinic this morning and have now been put on Hydroxychioroquine Sulphate 200mg , does anyone what these tablet are ment to do for us...

Hello ive been to Rheumy Clinic this morning and have now been put on Hydroxychi...

steph1

•11 years ago

2 Replies

Resuvastatin ( Cresta) Once a week???

Hello People I have mega Cholesterol and Triglycerides, both hit the 11's recently. In the last decade I have been tried on 4 different Statins, but...

Hello People I have mega Cholesterol and Triglycerides, both hit the 11's rec...

Thaddeus

•11 years ago

4 Replies

One thing after another..

I'm sorry if I am moaning again. And it is quite a trivial moan compared to a lot of what people go through. But here comes my moan.. Today was quite a good...

I'm sorry if I am moaning again. And it is quite a trivial moan compared to a lo...

trueman

•11 years ago

1 Reply

Warfarin

Help bit of a problem on Friday my inr was 8.8 and today it's saying 1.6 and have to take 8mg and claxten injection the only prob I have I heard the nurse say...

Help bit of a problem on Friday my inr was 8.8 and today it's saying 1.6 and hav...

lennox

•11 years ago

3 Replies

Other professions do they really understand ?

I am a single parent and struggling with lupus. I no longer work and have a 15 year old daughter living at home. She is so wonderful and understands my illness...

I am a single parent and struggling with lupus. I no longer work and have a 15 y...

Donnygirl

•11 years ago

5 Replies

Pregabalin

Hi Guys, Just been prescribed Pregabalin to help with ongoing neuro symptoms and chronic headaches. Has anybody had experience with this medication . Hope...

Hi Guys, Just been prescribed Pregabalin to help with ongoing neuro symptoms a...

brave

•11 years ago

Be the first to reply

oh happy days....

ha ha watching house on tv and it only took 35 minutes to come up with lupus :P the sun is out, pain in joints gone up but the brain fog is dissipating and my...

ha ha watching house on tv and it only took 35 minutes to come up with lupus :P ...

scoobydoo1

•11 years ago

4 Replies

After being a Lupus & Sjogren's patient for 14 yrs at St. Thomas they are discharging me?!

I cannot for the life of me understand why? Mind you the consultant I saw said that seeing I had a rheumy at my local hosp I would be o.k with him. She said...

I cannot for the life of me understand why? Mind you the consultant I saw said t...

goldengirl101

•11 years ago

20 Replies

What a kerfuffle to get an mri scan!!

Ok, This is an on-going problem with me suffering severe back pain, severely reduced mobility and a rheumatologist who doesn't seem interested! I phoned said...

Ok, This is an on-going problem with me suffering severe back pain, severely red...

lillyanne

•11 years ago

4 Replies

pregnancy and lupus drugs

Hi everyone Im interested to hear of people who have had babies whilst having lupus. Did you stay on medication and did it have any effects on baby? Or...

Hi everyone Im interested to hear of people who have had babies whilst havi...

LULU85

•11 years ago

5 Replies

Cambridgeshire group meeting in Peterborough Sat 13th July

Cambridgeshire Lupus Group have an informal 'coffee and chat' get together for people with lupus and their families and friends this Saturday in Peterborough....

Cambridgeshire Lupus Group have an informal 'coffee and chat' get together for p...

Paul_Howard

Partner•11 years ago

2 Replies

Going to Lupus meetings in your area.

Hiya, I just wanted to say how helpful meeting up with others is, I attended a group meeting with the South Wales Lupus group last week and came away with so...

Hiya, I just wanted to say how helpful meeting up with others is, I attended a...

Slowmo

•11 years ago

5 Replies

blood in urine

I was originally diagnosed with inflammatory arthritis and fibro.. but my regular urine checks always showed blood and once protein!!. thought this was side...

I was originally diagnosed with inflammatory arthritis and fibro.. but my regula...

summer32

•11 years ago

3 Replies

Dear all lupus sufferers

Can you close your fingers to palm/ fist in the morning??. Im query lupus now from original diagnosis of inflammatory arthritis, do you have high fatigue...

Can you close your fingers to palm/ fist in the morning??. Im query lupus now f...

summer32

•11 years ago

6 Replies

help need to know what to do

hi all hope all is well just a q had lupus for 4 years now started off with dermotogist who put me on 150mg aza folic acid nifidpine steriods10mg ompersole...

hi all hope all is well just a q had lupus for 4 years now started off with derm...

angieskye

•11 years ago

6 Replies

how is everyone doing in this weather with lupus

hiya just wondering how everyone is doing I know I am keeping myself indoors to stay away from sun I look white but I want to look white than hav flare up n...

hiya just wondering how everyone is doing I know I am keeping myself indoors to ...

shakylove

•11 years ago

25 Replies

Cyclophosamide experiences please?

I am due to start infusions on Tuesday. This treatment has been fast tracked, so I've had little chance to do any research & ask questions. If anyone can give...

I am due to start infusions on Tuesday. This treatment has been fast tracked, so...

roobarb

•11 years ago

24 Replies

weird throat

morning! just a quick query really, for the last few weeks as im finishing a meal my throat becomes painful and feels like its swollen almost as if I want...

morning! just a quick query really, for the last few weeks as im finishing a ...

caninecrazy

•11 years ago

6 Replies

Living with the enemy

My Name is JJ Kane, I have been living with mis diagnosed Lupus for over 30 years ( i Know that makes me sound old ) I lost both my knee caps to it after 11...

My Name is JJ Kane, I have been living with mis diagnosed Lupus for over 30 year...

JJKANE

•11 years ago

8 Replies

Oh yeah and I'm chubby now

I used to be a size 8 and now I am a size 16I don't even know this happened. Yes I do steroids! I had been trying to avoid taking steroids but after a...

I used to be a size 8 and now I am a size 16I don't even know this happened. Y...

wotshernameagain

•11 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2013

Feeling patronised

Loving the new site!

to juice or not to juice ?

Wet sensation on lower leg

DIAGNOSIS!!!!!!!!!!!!!!!

London Meet - 17th August

Adverse reaction to Hydroxychloroquine

hydroyxchloroquine

Does anyone else have tingling along their top lip, just on right side

Delay in new platform

Hydroxychioroquine Sulphate

Resuvastatin ( Cresta) Once a week???

One thing after another..

Warfarin

Other professions do they really understand ?

Pregabalin

oh happy days....

After being a Lupus & Sjogren's patient for 14 yrs at St. Thomas they are discharging me?!

What a kerfuffle to get an mri scan!!

pregnancy and lupus drugs

Cambridgeshire group meeting in Peterborough Sat 13th July

Going to Lupus meetings in your area.

blood in urine

Dear all lupus sufferers

help need to know what to do

how is everyone doing in this weather with lupus

Cyclophosamide experiences please?

weird throat

Living with the enemy

Oh yeah and I'm chubby now

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