Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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All posts for July 2013

Anybody know any reasons for flare ups? My doctor said it could be to do with stress?

I have been having some family issues lately and my rash has come up on my thighs and a little on my elbow. I asked my doctor about it and she said it could be...

I have been having some family issues lately and my rash has come up on my thigh...

jessicaemily

•11 years ago

5 Replies

Hi, last night I had a lupus flare up, started with my fingers hurting in pain and then swelling in my knuckle? Is this classed as a flare?

Classed as a flare if so best way to deal with is? Physically and emotionally

Mainshah

•11 years ago

15 Replies

Intolerance of heat, MMF and Steroids

Hi guys, I posted on here a few days ago about me not being able to tolerate the heat and some of you kindly come back and said that you suffered from the...

Hi guys, I posted on here a few days ago about me not being able to tolerate th...

tiredmum

•11 years ago

9 Replies

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July's Guest Blog - Cheryl Marcus (Founder of LUPUS UK)

To mark this month's release of the 100th Issue of News & Views magazine, our guest article if from Cheryl Marcus, founder of LUPUS UK, on the origins of...

To mark this month's release of the 100th Issue of News & Views magazine, our g...

Paul_Howard

Partner•11 years ago

1 Reply

acupuncture

I had acupuncture on my lower back yesterday and am in a lot of pain today has anyone else had this done and did you feel the same. Does it improve?xxxx

I had acupuncture on my lower back yesterday and am in a lot of pain today has a...

lillyanne

•11 years ago

5 Replies

Independent Photographer Interested in Light Sensitivity for an Exhibition

We have been contacted by a teacher of photography and independent photographer who has been intrigued by the photosensitive condition since watching a TV...

We have been contacted by a teacher of photography and independent photographer ...

Paul_Howard

Partner•11 years ago

4 Replies

Chest tightness

I was wondering if many of you suffered from tightness in your chest and an inability to breathe properly? especially in the night... and if you have other...

I was wondering if many of you suffered from tightness in your chest and an inab...

chrisj

•11 years ago

12 Replies

Hospital Farce

I have been on this site for some time but haven't posted in a while. Just felt I needed to share my latest experience with you. Three weeks ago, I was blue...

I have been on this site for some time but haven't posted in a while. Just felt ...

Sue2803

•11 years ago

8 Replies

Hi when is the next support group in Glasgow again ?is it still first fri of the month thanx

michellew

•11 years ago

6 Replies

Hi, I'm new to this site and was wondering if there is a iPhone app for this? Thanks lesley

Lesley-chard

•11 years ago

3 Replies

I have pain in my legs, shins are tender to touch and the calf muscles are painful. Walking is so difficult as my legs feel so weak.

Anyone else had this problem please.

river

•11 years ago

9 Replies

I've just come back from a week in Spain, as you can imagine it was very hot! I made sure I kept out of the sun as much as, is practical,

But found my ankles/ legs swelling ( this is normal for me) with a bright red rash that is intensely itchy. Skin is also now beginning to crack and infected...

But found my ankles/ legs swelling ( this is normal for me) with a bright red ra...

Chris21

•11 years ago

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Lumbar Puncture after effects

I have had the headache from hell 4 days after the Lumbar Puncture. I have been resting for 4 days and this morning got a slight reprieve. I put some washing...

I have had the headache from hell 4 days after the Lumbar Puncture. I have been ...

kb281

•11 years ago

11 Replies

silly me

well cant believe what i done went out for me sisters birthday had a few drinks and i mean a few how am going to suffer lol but just wanted to be some one else...

well cant believe what i done went out for me sisters birthday had a few drinks ...

angieskye

•11 years ago

5 Replies

Drug confusion over earlier class 2 recall Re http://www.mhra.gov.uk/PrintPreview/DrugALertSP/CON296418

http://www.mhra.gov.uk/PrintPreview/DrugALertSP/CON296418 First line reads of the article reads..... All unexpired stock of the above products is being...

http://www.mhra.gov.uk/PrintPreview/DrugALertSP/CON296418 First line reads of t...

overnighthearingloss

•11 years ago

1 Reply

Hope someone out there can offer some light at the end of my tunnel. I have come off hydroxychloroquine due to severe vertigo.

Have had total hip replacement with bone grafts made complicated by lupus and now my blood results on my liver are bad so cannot start on azathioprine. Has...

Have had total hip replacement with bone grafts made complicated by lupus and no...

janann

•11 years ago

8 Replies

Could it be anything else?

I have suspected I have lupus for quite sometime my symptoms seem to be text book including muscle pain, fatigue, rashes, swellings, headaches, heartburn, hair...

I have suspected I have lupus for quite sometime my symptoms seem to be text boo...

kim66

•11 years ago

4 Replies

MMF side effects - getting me down so much thinking about stopping them

I have been taking MMF for just over a year now.I increased them gradually and they really did help with my Lupus symptoms. However as I have posted before...

I have been taking MMF for just over a year now.I increased them gradually and t...

tiredmum

•11 years ago

5 Replies

Posts v Questions

I know it is confusing the way the site has been re-arranged and re-labelled, I'm not usually shy with technology but I'm still struggling until I get used to...

I know it is confusing the way the site has been re-arranged and re-labelled, I'...

Purpletop

•11 years ago

6 Replies

confused-what to do

I am totally confused by the new HU.why change something that was ok.i saw my dr today fro blood tests results and to view new meds.he said (just as I knew...

I am totally confused by the new HU.why change something that was ok.i saw my ...

anbuma

•11 years ago

7 Replies

Sweats

Hi all, over the last week or so I have been suffering from excess sweating! I thought last week it was just the weather but had a meeting at work - in prep...

Hi all, over the last week or so I have been suffering from excess sweating! I t...

Manolo33

•11 years ago

19 Replies

still uncertain

at drs appt this morning to review meds he didnt ask about them so told him I felt better on them.said I had sore throat,voice croaky and choking on food said...

at drs appt this morning to review meds he didnt ask about them so told him I fe...

anbuma

•11 years ago

16 Replies

For those of you who have managed to continue working with lupus, what would you say is the main benefit to you?

I'd like to use one or two answers in a LUPUS UK publication, so please specify if you're happy for this.

I'd like to use one or two answers in a LUPUS UK publication, so please specify ...

Paul_Howard

Partner•11 years ago

15 Replies

Urine tests

Does anyone else have this problem? I suffer quite a bit with right side pain and each time it flares I get a urine sample tested. The results always the same...

Does anyone else have this problem? I suffer quite a bit with right side pain an...

eejit

•11 years ago

9 Replies

Hospital Check uppp.

So today i had a hospital check up in Liverpool. It's such a nice place. I had 25ml of blood taken and everything (So they have said) is fine. Just have to...

So today i had a hospital check up in Liverpool. It's such a nice place. I had 2...

jessicaemily

•11 years ago

1 Reply

Anyone in newcastle uk want to start a group to meet up or does one exist already doesn't have to be newcastle anywhere in the north east

Hi I have posted before but would love to start a lupus group in the north east or attend one if it already exists I have found this site really helpful and...

Hi I have posted before but would love to start a lupus group in the north east ...

Zoezoe752

•11 years ago

5 Replies

More muscle pain than joint pain - is this normal

Hi I was diagnosed with lupus last June after years and years of symptoms! I also have Hashitmotos too. After years of thinking I was just a 'bit s***' and a...

Hi I was diagnosed with lupus last June after years and years of symptoms! I als...

Zoeblu

•11 years ago

8 Replies

Where have all my previous blog posts gone?

I've just returned to this site after the changes had been made and I can't find any of my old blog posts. Any tips anyone? I was hoping to refer back to some...

I've just returned to this site after the changes had been made and I can't find...

Maya23

•11 years ago

6 Replies

NICE decision on Belimumab

Here is our statement following the latest decision by NICE on the use of Belimumab in the treatment of lupus;......

Here is our statement following the latest decision by NICE on the use of Belimu...

Paul_Howard

Partner•11 years ago

6 Replies

lupus symptoms

what symptoms of lupus does everyone have.i believe I have lupus from symptoms but searched fro "symptoms of lupus" and there were so many sites saying...

what symptoms of lupus does everyone have.i believe I have lupus from symptoms b...

anbuma

•11 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2013

Anybody know any reasons for flare ups? My doctor said it could be to do with stress?

Hi, last night I had a lupus flare up, started with my fingers hurting in pain and then swelling in my knuckle? Is this classed as a flare?

Intolerance of heat, MMF and Steroids

July's Guest Blog - Cheryl Marcus (Founder of LUPUS UK)

acupuncture

Independent Photographer Interested in Light Sensitivity for an Exhibition

Chest tightness

Hospital Farce

Hi when is the next support group in Glasgow again ?is it still first fri of the month thanx

Hi, I'm new to this site and was wondering if there is a iPhone app for this? Thanks lesley

I have pain in my legs, shins are tender to touch and the calf muscles are painful. Walking is so difficult as my legs feel so weak.

I've just come back from a week in Spain, as you can imagine it was very hot! I made sure I kept out of the sun as much as, is practical,

Lumbar Puncture after effects

silly me

Drug confusion over earlier class 2 recall Re http://www.mhra.gov.uk/PrintPreview/DrugALertSP/CON296418

Hope someone out there can offer some light at the end of my tunnel. I have come off hydroxychloroquine due to severe vertigo.

Could it be anything else?

MMF side effects - getting me down so much thinking about stopping them

Posts v Questions

confused-what to do

Sweats

still uncertain

For those of you who have managed to continue working with lupus, what would you say is the main benefit to you?

Urine tests

Hospital Check uppp.

Anyone in newcastle uk want to start a group to meet up or does one exist already doesn't have to be newcastle anywhere in the north east

More muscle pain than joint pain - is this normal

Where have all my previous blog posts gone?

NICE decision on Belimumab

lupus symptoms

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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