Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2013

Expert Patients Programme - An excellent free course for those of us with chronic illnesses.www.expertpatients.co.uk. Check it out!

I took the course about 3 years ago and it was great. It tries to help you to help yourself. It covers handling your illness, setting achievable goals/targets,...

I took the course about 3 years ago and it was great. It tries to help you to he...

Hidden

•11 years ago

20 Replies

Does lupus flair when you have an infection or flu?

I have a flu bug I've just finished an anti b for sinus infection but I am so tired and sleeping much more than normal. Also I'm forgetting words can't...

I have a flu bug I've just finished an anti b for sinus infection but I am so ti...

copdber

•11 years ago

27 Replies

Telling a prospective employer about Lupus or not ?? Follow up to Guildfords blog.

Just for info. might be useful for some, taken from a Disability Skills Website:- "It is illegal to give false information. Many application forms and...

Just for info. might be useful for some, taken from a Disability Skills Website:...

Riverbird

•11 years ago

2 Replies

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recommendations for a book to answer some of my questions?

I was diagnosed with Lupus and APS last May. I was told that both were mild and the APS is nothing to worry about as I'm not planning any more pregnancies!...

I was diagnosed with Lupus and APS last May. I was told that both were mild and...

crazyk

•11 years ago

4 Replies

hI, I have failed my esa assessment and asked for a reconsiderstion.

I had support letters from my GP and my specialist and they have still failed me and are sending my case to tribunal. I am very worried about this and have...

I had support letters from my GP and my specialist and they have still failed me...

maryjanet

•11 years ago

18 Replies

Well i must say that i hav dropped EVERYTHING i hav picked up today........ Will this get better or is this me for ever.... Uzi

uzi41

•11 years ago

30 Replies

Pains of work

Hiya guys and gals. Well I have been in work for 5 weeks. Some days are easy, others hell. I do enjoy it sometimes, but last weekend was the pits being run...

Hiya guys and gals. Well I have been in work for 5 weeks. Some days are easy, ot...

lowicklady55

•11 years ago

4 Replies

I was told I may have SLE in 2007,then told I dont! Years of being unwell, and now my immunologist says I may have it afterall.

I have my recent results from blood tests etc and I cant make sense of any of it so any advice would be helpful.

I have my recent results from blood tests etc and I cant make sense of any of it...

Misty007

•11 years ago

11 Replies

"Pain is real when you get other people to believe in it.........

If no one believes in it but you, your pain is (presumed to be) madness or hysteria." by Naomi Wolf, The Beauty Myth. Believe in yourselves fellow lupies,...

If no one believes in it but you, your pain is (presumed to be) madness or hyste...

Hidden

•11 years ago

25 Replies

Mouth to mouth

the inside of my mouth sheds skin this is 3rd time and just recently having ulcers.ulcers don't last long but are getting more frequent. I'm only on...

the inside of my mouth sheds skin this is 3rd time and just recently having ulce...

letslaugh63

•11 years ago

6 Replies

Pontypridd coffee meet

There is a coffee and chat day on Wednesday at the Tumble inn (Witherspoon )Pontypridd Opposite Pontypridd railway station so convenient, 11-1pm. Its also...

There is a coffee and chat day on Wednesday at the Tumble inn (Witherspoon )Pont...

janiceray

•11 years ago

Be the first to reply

Is not telling someone something the same as lying? - Food for thought.

Not telling a potential partner you have SLE? Not telling a potential employer? By not telling the truth are you lying to them or trying to...

Not telling a potential partner you have SLE? Not telling a potential employer?...

Hidden

•11 years ago

48 Replies

Sorry but bloody hell!!!!

My chest is still hurting, feet killing me my knee has swollen and keeps giving way and my hand is going into cramps about 40 to 60 a day and the pain is bad,...

My chest is still hurting, feet killing me my knee has swollen and keeps giving ...

toni66

•11 years ago

5 Replies

Dealing with nausea

I'm constantly feeling nauseous at the moment. Does anyone else experience this and how do you deal with it? Touch wood I'm pain free at the moment due to the...

I'm constantly feeling nauseous at the moment. Does anyone else experience this ...

Loopylooby

•11 years ago

11 Replies

Not a good day

Hi everyone, hope you all are having a good day. My day started really good and i went for a walk with my sister. The sun was shining and i almost felt normal....

Hi everyone, hope you all are having a good day. My day started really good and ...

amandamummy

•11 years ago

4 Replies

Lupuzor

I was just reading about this new drug for lupus based on a peptide invented by a French company. It has just started Phase III trials on a fast track - the...

I was just reading about this new drug for lupus based on a peptide invented by ...

Purpletop

•11 years ago

7 Replies

Help with Drugs

Does anyone else take Oxycontin 80mg twice a day & also Ketamine 3 times a day. Would just like to hear your views on them. X

Does anyone else take Oxycontin 80mg twice a day & also Ketamine 3 times a day. ...

stardust56

•11 years ago

7 Replies

help

i have put in for high rate of dla was told i can only get low rate off dla i have fits and in the past few months i ended up in resus as i knocked myself out...

i have put in for high rate of dla was told i can only get low rate off dla i ha...

scottty

•11 years ago

6 Replies

Newbie in need of reassurance

Hi guys I have been coming back to your blogs for the last two months after stumbling onto the site and have now signed up. I am 27 and last week was...

Hi guys I have been coming back to your blogs for the last two months after s...

Loopylooby

•11 years ago

15 Replies

Lupus flares or Adrenal Crashes????

Well its fair to say this is officially the worst point of this vile disease ,i have been having flares every week for a good few days at a time ,it comes from...

Well its fair to say this is officially the worst point of this vile disease ,i ...

brave

•11 years ago

8 Replies

What do you all know about Parkinson's? Symtoms , medication or alternative meds?

ahavasavta

•11 years ago

1 Reply

one minute its lupus next minute its not...help/advice?

hi everyone I had a frustrating rhuemy appointment last week and really looking for advice as what to think? in Feb I saw the rhuemy and they were...

hi everyone I had a frustrating rhuemy appointment last week and really looki...

LULU85

•11 years ago

10 Replies

Very confused

Recently been seen on a monthly basis by rheumy he has now told me that I may not a sle, after ten years of being on hydroxy. In. That time I've lost all the...

Recently been seen on a monthly basis by rheumy he has now told me that I may no...

medic1969

•11 years ago

6 Replies

Lost For Words!!!!!!!

Well I had my Rheumy appointment with the slightly famous (only cos I go on about him all the bloody time!) Dr. King. There I was, all prepped & ready 4 our...

Well I had my Rheumy appointment with the slightly famous (only cos I go on abou...

Sher78

•11 years ago

52 Replies

my daughter as got sle lupus and itp blood disorder

plz can anyone tell me if there are any groups were i live so my daughter can go and meet people that also have lupus which i think would help her alot as...

plz can anyone tell me if there are any groups were i live so my daughter can...

pepsie

•11 years ago

13 Replies

little victory

today I have done something I havent been able to do for nearly a year...... run. saw mike my g.p on wednesday and had my medications changed, little cocktail...

today I have done something I havent been able to do for nearly a year...... run...

scoobydoo1

•11 years ago

10 Replies

Does SLE affect your general immune system?

I was diagnosed with SLE 15 years ago and have managed my symptoms successfully since then. I'm generally in good health but over the last 6 months I seem to...

I was diagnosed with SLE 15 years ago and have managed my symptoms successfully ...

jennylee

•11 years ago

12 Replies

How to feel stupid when shopping!

Well, how embarassing, I went to the local corner shop and butchers because I knew I didn't feel up to walking around the large supermarket. Well, at the...

Well, how embarassing, I went to the local corner shop and butchers because I kn...

Slowmo

•11 years ago

18 Replies

New fella

I have been single (by choice) for years but now I have met someone and been on a date and he wants to see me again... :) So?... when is the...

I have been single (by choice) for years but now I have met someone and been on ...

DaleDiva

•11 years ago

8 Replies

why does medication work at night but not during the day time

i took my medication night time and i felt amazing back to my very old self, but when i take it in the morning like i meant to, it dont seem to make any...

i took my medication night time and i felt amazing back to my very old self, but...

jane74

•11 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2013

Expert Patients Programme - An excellent free course for those of us with chronic illnesses.www.expertpatients.co.uk. Check it out!

Does lupus flair when you have an infection or flu?

Telling a prospective employer about Lupus or not ?? Follow up to Guildfords blog.

recommendations for a book to answer some of my questions?

hI, I have failed my esa assessment and asked for a reconsiderstion.

Well i must say that i hav dropped EVERYTHING i hav picked up today........ Will this get better or is this me for ever.... Uzi

Pains of work

I was told I may have SLE in 2007,then told I dont! Years of being unwell, and now my immunologist says I may have it afterall.

"Pain is real when you get other people to believe in it.........

Mouth to mouth

Pontypridd coffee meet

Is not telling someone something the same as lying? - Food for thought.

Sorry but bloody hell!!!!

Dealing with nausea

Not a good day

Lupuzor

Help with Drugs

help

Newbie in need of reassurance

Lupus flares or Adrenal Crashes????

What do you all know about Parkinson's? Symtoms , medication or alternative meds?

one minute its lupus next minute its not...help/advice?

Very confused

Lost For Words!!!!!!!

my daughter as got sle lupus and itp blood disorder

little victory

Does SLE affect your general immune system?

How to feel stupid when shopping!

New fella

why does medication work at night but not during the day time

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