Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,729 members • 28,088 posts

All posts for April 2013

new horizons..

well guys quite a lot has happened since my last post. Since my upgrade of painkillers to codipar (15/500) cocodamol my pain has plateued so im in pain all the...

well guys quite a lot has happened since my last post. Since my upgrade of paink...

scoobydoo1

•11 years ago

7 Replies

Turned down for ESA please I need advice

I had a call this morning saying they aren't even going to pay my stamp now as from today. The woman said they looked at my claim and say yes I am unwell but...

I had a call this morning saying they aren't even going to pay my stamp now as f...

luupysue

•11 years ago

7 Replies

feeling dizzy!

Does anyone else suffer from dizzyness on looking up and down or bending down?? This seems to be getting worse for me and is making me feel sick....also does...

Does anyone else suffer from dizzyness on looking up and down or bending down?? ...

bam1993

•11 years ago

5 Replies

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Aps, raynards and fibro. Any suggestions.

Hi all, just a quick question. Over the last week my hands, feet and ankles keep swelling up. My hands in particular I am unable to grasp as fingers don't...

Hi all, just a quick question. Over the last week my hands, feet and ankles keep...

happyfeet

•11 years ago

3 Replies

Severe low Vitamin D ?

Thanks to everyone for my advice on doctors visit its helped massively . Good news , I have been referred to rhuemy,how long I have to wait I'm...

Thanks to everyone for my advice on doctors visit its helped massively . Good ne...

Lupdaloop

•11 years ago

3 Replies

work!!!

Having a bad day!! When I returned to work last year they made me do a risk assessment with HR and management, the first point they covered was that I...

Having a bad day!! When I returned to work last year they made me do a risk...

Dumpypug

•11 years ago

12 Replies

Sudden involuntary intake of breath.

Hi, over the last few months I keep experiencing a sudden intake of breath. It doesn't last or effect my breathing, it just makes me jump when it happens, then...

Hi, over the last few months I keep experiencing a sudden intake of breath. It d...

frog

•11 years ago

35 Replies

Back Pain or Kidney Pain?

How can you tell the difference? I've had pain in my lower right of my back for just over a week now. It is sharp and comes in waves, and sometimes gets...

How can you tell the difference? I've had pain in my lower right of my back f...

JenniferZhou

•11 years ago

9 Replies

I have had lupus for 20yrs.can my retired husband claim carers allowance as I depend on him more and more Thanks.

2monkey

•11 years ago

5 Replies

if my diagnosis & treatment for SLE took years to arrive, is the prior progression of my condition at all reversible?

I'm following on sort of sideways from a ? Uzi41 just asked in the forum blogs section about having flares while diagnosed and on lupus meds What about when...

I'm following on sort of sideways from a ? Uzi41 just asked in the forum blogs s...

Barnclown

•11 years ago

12 Replies

Life's a drag

I feel sometimes when I walk I'm dragging my feet/legs also that might fall over.lost my balance other day while in shower at my daughter's her shower door...

I feel sometimes when I walk I'm dragging my feet/legs also that might fall over...

letslaugh63

•11 years ago

1 Reply

First clinical guideline on management of vitamin D deficiency

This is well worth reading...

tracynoe

•11 years ago

1 Reply

sun cream ?

I have fibro, CTD, and sjogrens and i am sensitive to the sun ( photo sensitive ?) Can i ask my GP to prescribe me suncream ? I buy a pre payment card so it...

I have fibro, CTD, and sjogrens and i am sensitive to the sun ( photo sensitive ...

larissa

•11 years ago

17 Replies

I have lupus SLE and a umbillical supra hernia. Told I need an opp

Hi all, Im new so this is all so baffling to me, I have been going back and forth a gastro specialist after i had my gallblader out 10 years ago, i started...

Hi all, Im new so this is all so baffling to me, I have been going back and fort...

willowwag

•11 years ago

3 Replies

Does the cause of feeling ill matter?

I am off work ill today... woke up with a sore throat and swollen glands with could be the start of a Lupus flare. My joints are painful and my brain fogged....

I am off work ill today... woke up with a sore throat and swollen glands with co...

DaleDiva

•11 years ago

4 Replies

Does anyone have bad speech problems and facial ptosis with flares? Please help!

Hi guys - I need help guys n girls :-/ I've just been coming out of a flare for 4 weeks despite being on pred 7.5 mg and planquenil for about 2.5 months...

Hi guys - I need help guys n girls :-/ I've just been coming out of a fla...

Jo883

•11 years ago

23 Replies

A confused Lupie

I ache, sometimes i really ache especially today my shoulders,upper arms and neck. but my question is, if my bloods keep showing low esr and normal ck...

I ache, sometimes i really ache especially today my shoulders,upper arms and nec...

Hidden

•11 years ago

16 Replies

If only we knew

Hi folks just think that if we knew in advance or listened to our bodies then sh----y things wouldn't happen. Legs and knees very stiff today but like you all...

Hi folks just think that if we knew in advance or listened to our bodies then sh...

Voutton

•11 years ago

6 Replies

Antibiotics and SLE Lupus

Hi there, I have been suffering with a bad cold now for two weeks. Was wondering whether its worth getting an antibiotic??Are antibiotics effective when one...

Hi there, I have been suffering with a bad cold now for two weeks. Was wondering...

charz001

•11 years ago

8 Replies

Sun Tan Cream

Good morning all. Well the sun has finally appeared and I am already having to wear sun tan lotion. I went to grab last years bottle of factor 50 spray only to...

Good morning all. Well the sun has finally appeared and I am already having to w...

tiredmum

•11 years ago

12 Replies

Lupus flare. ..

Can you get a lupus flare when you are on your meds. ..... isn't the point of the meds to control flares......am confused....but am feeling alot better at the...

Can you get a lupus flare when you are on your meds. ..... isn't the point of th...

uzi41

•11 years ago

9 Replies

well that was a waste of bleeping time !!!

Had app today to see my local rhuemy. I went in and he had the look of uninterest written all over him ! I told him about my balance and my headaches have got...

Had app today to see my local rhuemy. I went in and he had the look of uninteres...

larissa

•11 years ago

18 Replies

Epilepsy

I went to see my gp he told me that the lupus could be the cause of me having fits there treating it as epilepsy iam 40 year old upset x

I went to see my gp he told me that the lupus could be the cause of me having fi...

scottty

•11 years ago

9 Replies

I CANT SAY I DIDNT TRY!!!! SORRY I JUST NEED TO MOAN AGAIN xx

Last week both my partner and I got a bike....I have steadily put on more and more weight both with steroids and a less busy and 'on the go' lifestyle. I used...

Last week both my partner and I got a bike....I have steadily put on more and mo...

MandieR

•11 years ago

12 Replies

Pushing myself - TOO MUCH!

Being my usual self, I've never been one to sit back and watch other people work. I like to get stuck in, and help out. And although I got a lot tired-er a lot...

Being my usual self, I've never been one to sit back and watch other people work...

E-Say

•11 years ago

17 Replies

A Good Night's Sleep

Hi All, So many in the community post about sleep issues that I thought I'd share this blog--copied, as usual, from my website. As I begin this blog, I am...

Hi All, So many in the community post about sleep issues that I thought I'd sha...

lupuswriter

•11 years ago

1 Reply

ANA "normal"

Help! I'm going to see GP in morning, ANA test normal, my symptoms ... Fatigue,hair loss,skin rash in summer,raynauds,joint pain so bad I scream in agony yet I...

Help! I'm going to see GP in morning, ANA test normal, my symptoms ... Fatigue,h...

Lupdaloop

•11 years ago

4 Replies

INSOMNIA:(((((((

Im overwhelmed at the chronic insomnia that accompanies this vile disease,the more i flare the worst the insomnia becomes ,ringing in my ears ,racing brain...

Im overwhelmed at the chronic insomnia that accompanies this vile disease,the mo...

brave

•11 years ago

10 Replies

Dysautonomia/Adrenal Exhaustion

Hi everyone ....In a pickle ;(as you know from my blogs im in a terribly long flare.Im also waiting for a short synathacen test as my endo suspects adrenal...

Hi everyone ....In a pickle ;(as you know from my blogs im in a terribly long fl...

brave

•11 years ago

18 Replies

High body temperature in the early am

I have suddenly (the last 3 years) been suffering unbearable internal body heat from around 3am until I wake up. When this is happening it causes me dry heaves...

I have suddenly (the last 3 years) been suffering unbearable internal body heat ...

Bobohead

•11 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2013

new horizons..

Turned down for ESA please I need advice

feeling dizzy!

Aps, raynards and fibro. Any suggestions.

Severe low Vitamin D ?

work!!!

Sudden involuntary intake of breath.

Back Pain or Kidney Pain?

I have had lupus for 20yrs.can my retired husband claim carers allowance as I depend on him more and more Thanks.

if my diagnosis & treatment for SLE took years to arrive, is the prior progression of my condition at all reversible?

Life's a drag

First clinical guideline on management of vitamin D deficiency

sun cream ?

I have lupus SLE and a umbillical supra hernia. Told I need an opp

Does the cause of feeling ill matter?

Does anyone have bad speech problems and facial ptosis with flares? Please help!

A confused Lupie

If only we knew

Antibiotics and SLE Lupus

Sun Tan Cream

Lupus flare. ..

well that was a waste of bleeping time !!!

Epilepsy

I CANT SAY I DIDNT TRY!!!! SORRY I JUST NEED TO MOAN AGAIN xx

Pushing myself - TOO MUCH!

A Good Night's Sleep

ANA "normal"

INSOMNIA:(((((((

Dysautonomia/Adrenal Exhaustion

High body temperature in the early am

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