Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,597 members28,006 posts

All posts for April 2013

Anybody else been taken off Hydroxy.

Saw my Rheumy today and as I have been on Hydroxy for 13 years he told me to sto...
pirate-yaker profile image

Anger/emotional side of lupus

Hi guys I'm struggling at the moment and don't really know what to do so thou...
Loopylooby profile image

subcutaneous Lupas? Anyone else out there?

this is the first time ive posted on this site, ive replied to a few posts tho, ...
yolandon profile image
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Rib Pain

It started just this morning i took the usual medication and a painkiller just f...
Danielle2419 profile image

April's Guest Blog - LUPUS UK London Marathon Runners

Earlier this month 54 runners took to the streets of London to run the Virgin Lo...
Paul_Howard profile image
Partner

Woke up with only one spoon today what's it to be ....

After getting up at 10.30 after sleeping for 12 hours I still only woke with one...
Rhodes62 profile image

Uncontrolable shakes??

Hi everyone I'm having a bit of a flare at the moment which is bad enou...
Dumpypug profile image

Diagnosis? Easy? Difficult?

Since menopause two years ago I have experienced increasing fatigue, aches in te...
Catlady56 profile image

Jessner's Lymphocytic Infiltration

After 15 years of having my rash peered at by various Dermatologists and having ...
FunkyMumma profile image

Do other Lupies find they take longer to get over things than they used to?

Do other Lupies find they take longer to get over things than they used to? I ha...
Chicklette profile image

reducing hours at work but they unhappy about set shifts. any ideas

i have worked for nhs for 13 yrs but have moved from an acute hospital to commun...
willow24 profile image

Lupus awareness/fundraising evening

Five days till our Lupus fundraising awareness evening!!! SAT 4th MAY (this sat)...
lupienat profile image

Am I right in thinking its proff Hughes at st Thomas Hospital, London Bridge that specialise's in Lupus and connective tissue disease?

From what I gather most of you have been to see this guy and I'm just wondering ...
Jo883 profile image

DLA

Im going round in circles with this DLA i applied last year june 28th 2012 and h...
Danielle2419 profile image

Blood test results?

Got copy of letter to my Gp after Rheumie visit 2 weeks ago. Results are ANA...
Gymbabe profile image

Has anyone been able to return to work and a "normal" life after diagnosis?

Morning all, I was just wondering whether after being ill for so long any of you...
tiredmum profile image

great afternoon yesterday at the Cambridgeshire Lupus Group AGM

It was terrific to see so many of us there for the AGM, greeted by our fab chair...
Barnclown profile image

Fundraising

Can anyone help me??? I have some guys I know who want to do a charity run, I ha...
emmalewy profile image

does anyone know if you reduce hydrox ie go from 400 aday to 200 with the side effects ease up ?

kittykat68 profile image

Has anyone seen Dr Pauline Ho in manchester?

I am due to see her in a couple of weeks and would be interested if anyone else ...
tjperfick profile image

Success!

A month back I asked a question about telling a new partner about Lupus. Anyway ...
DaleDiva profile image

red itchy face

went out with no sun cream on last sunday and since then had a red itcy rash on ...
xangx profile image

Haven't been diagnosed yet and need advice

My GP is referring me to a rhuematologist mid may appointment. 5 years ago I ha...
Carolha profile image

any reccomendations ?

Can anyone reccomend a good rheumy in Brighton / sussex county hospital ? I plan...
larissa profile image

World Lupus Day (May 10th) – 10 ways you can get involved!

World Lupus Day (May 10th) – How you can get involved! World Lupus Day is now...
Paul_Howard profile image
Partner

holiday insurance???

hi everyone,im going to majorca in may,first time abroad since dx 2 years ago,ca...
poodlegal profile image

Lupus lung?

So i went yo see the respitory specialist yesturday as i keep taking deep snorti...
danie profile image

Sex and lupus

Pls my fellow Lupies in relationships, how do u cope with the bodily pain after ...
ijeasike profile image

Jimmy,s yest'day for MRI, Another hosp today for Rheumy follow up... Help or suggestions pleased - I'm scared stiff... Adamine x

They now say Sjogrens syndrom is somwhere in the mix. Had the Schimmer test whi...
Adamine profile image

rheumy says i dont need to see him no more????

hi all my 2nd rheumy states i do not need to see him any more, after he wrote in...
kittykat68 profile image