Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2013

Hospital Appoinment

I have a hospital appointment in may the 16th but have been experience pain like hell i can feel pain at my lower left side sometimes on the lower right side...

I have a hospital appointment in may the 16th but have been experience pain like...

Danielle2419

•11 years ago

11 Replies

poo !

i have recently noticed that my poo is partialy pale ( milky ) in colour and more recently has tiny white specs running through it ! Has anyone else had this...

i have recently noticed that my poo is partialy pale ( milky ) in colour and mor...

larissa

•11 years ago

4 Replies

How Do You Cope with Raynauds?

Is there anyway to manage raynauds? I have been adversely affected this winter with chilblains to match. It doesn't have to be particularly cold for my...

Is there anyway to manage raynauds? I have been adversely affected this winter w...

Hidden

•11 years ago

12 Replies

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Has anyone experienced soreness and bleeding inside the nose. Could be related to Sjorgrens syndrome?

fishers63

•11 years ago

13 Replies

Mycophenalate

I have just started this medication begining on 250mg twice a day. Can it cause a Lupus flare up as my joints and brain fog are terrible, or is it just...

I have just started this medication begining on 250mg twice a day. Can it cause ...

DaleDiva

•11 years ago

8 Replies

Happy Easter everyone x

Hoping this finds you all in spring chick mode x

letslaugh63

•11 years ago

9 Replies

Head pains anyone? especially on the left side, often very sharp pains when I bend down

happyday

•11 years ago

6 Replies

Raynauds

I'm told raynauds is as a result of Auto-Immune, as is Lupus. I have been suffering with numb white fingers and tongue this winter for the first time, I've...

I'm told raynauds is as a result of Auto-Immune, as is Lupus. I have been suff...

Lupdaloop

•11 years ago

5 Replies

Amitriptyline ?

Anyone have any idea why my GP gave me Amitriptyline ? Not sure what they would be for? He seemed to think from my symptoms I do have Lupus,I'm having blood...

Anyone have any idea why my GP gave me Amitriptyline ? Not sure what they would ...

Lupdaloop

•11 years ago

17 Replies

Costocondroitis - does anyone else have this and get sharp pains when lying down?

I've suffered with pains in left rib area for nearly two years, x-rays, tests etc showed nothing, when I read about costo I discussed with my GP, on exam she...

I've suffered with pains in left rib area for nearly two years, x-rays, tests et...

Slowmo

•11 years ago

8 Replies

Eyes affected by hydroxi

Hi you Luppy Bunnies. Enjoy the chocolate. Am seeing(ha!) the eye doc again on Tuesday as since being diagnosed with SLE 6 months ago I am loosing my sight....

Hi you Luppy Bunnies. Enjoy the chocolate. Am seeing(ha!) the eye doc again on...

flossy1

•11 years ago

11 Replies

Stiffness

Hi I've only just joined this family but already you have made me feel welcome. I came out of hospital a few days ago having being diagnosed with pericarditis...

Hi I've only just joined this family but already you have made me feel welcome. ...

rainbow3

•11 years ago

6 Replies

Methotrixate, ciclosporin, cyclophosphamide, or sulfasalazine????

Can anyone help with the above medications? Im reluctant to go on methotrixate cos I like my wine!!!!!!!!!!! Have been on hydroxychloroquinne for 6 months but...

Can anyone help with the above medications? Im reluctant to go on methotrixate c...

beckybooboo

•11 years ago

6 Replies

Best day 4 ages

Hi all It's bin the best day 4 me in 2 weeks pains in joints and stiffness in hands is normal , But I have had my first ever attack of vertigo OMG how ill...

Hi all It's bin the best day 4 me in 2 weeks pains in joints and stiffness in h...

Les2051

•11 years ago

2 Replies

shakey/tremors

does anyone have treamours or a shakey feeling that is more pronounced when laying down? thanks, mark. ps hope all the lupies are doing ok

does anyone have treamours or a shakey feeling that is more pronounced when layi...

scoobydoo1

•11 years ago

13 Replies

High liver function tests

I've had high GGT and ALT for the past few years but my last set of tests now show high AST and APL too and slightly high ferritin too. My previous imaging...

I've had high GGT and ALT for the past few years but my last set of tests now sh...

Purpletop

•11 years ago

12 Replies

Thank you all.

Just wanted to say a big thank you to you all for making me so welcome to this great community. Your words of kindness were very much appreciated. x

Just wanted to say a big thank you to you all for making me so welcome to this g...

leo12

•11 years ago

1 Reply

Esa

Hello everyone Having tried DLA for over a year its still in the appeal stages i wanted to try for ESA can someone tell me more about it can it be alot...

Hello everyone Having tried DLA for over a year its still in the appeal stages...

Danielle2419

•11 years ago

3 Replies

Red Cheeks

My 12 year old daughter was diagnosed with SLE Lupus last July. She is on a variety of medication including myclophenolate and prednisolone (down to 5mg) and...

My 12 year old daughter was diagnosed with SLE Lupus last July. She is on a vari...

solas

•11 years ago

25 Replies

Stomach problems

Hi all. Sorry to be graphic but does anyone have stomach upset as a part of their lupus? Since I've been diagnosed I've had problems with almost ibs type...

Hi all. Sorry to be graphic but does anyone have stomach upset as a part of thei...

jennywren444

•11 years ago

11 Replies

ANOTHER illness and azathioprine

Hi everyone. I'm feeling pretty miserable. I'm on azathioprine and have got yet another rattly bad cold, sinuses blocked, coughing, gastro problems and woke...

Hi everyone. I'm feeling pretty miserable. I'm on azathioprine and have got yet ...

jennywren444

•11 years ago

4 Replies

DLA

Hi Everyone, just want to know. Can you not apply for Dla if you can walk. I can some days cant others, just depends how bad i am. I cant use my hands much...

Hi Everyone, just want to know. Can you not apply for Dla if you can walk. I can...

amandamummy

•11 years ago

6 Replies

evening or shall i say morning

hello lupies having another bad night cant sleep as im in such pain in my joints :( will be suffering tomorrow with yet no sleep again ..this damm lupus...

hello lupies having another bad night cant sleep as im in such pain in my join...

debilou

•11 years ago

5 Replies

Is there any link between a high ESR blood count and lupus.

Briagh

•11 years ago

4 Replies

My first blog!

I am so pleased that I have found this website. I have never written a blog either so this is all very new to me. It has been so interesting reading what...

I am so pleased that I have found this website. I have never written a blog eit...

T3KAO

•11 years ago

12 Replies

Can you get diagnosed with sle then again to be not diagnosed l am very dissapionted in the rheumy doctor

hi guys not been on for a few days, I went for my hospital app today it got brought forward due the severe pain and me falling recently, so I don't know if you...

hi guys not been on for a few days, I went for my hospital app today it got brou...

kgreig

•11 years ago

10 Replies

how can i help my 24 year old who got sle lupus she cant get herself motorvated she weak all the time

just dont no what i can do to help my daughter get better at the minute she has lupus in the brain and she got to have tranfussions and some times the cant do...

just dont no what i can do to help my daughter get better at the minute she has ...

pepsie

•11 years ago

7 Replies

Warm Easter wishes to you all :)

I am sitting here reading through blogs and remembering how it felt when I found this site, the relief was immense! I spent many years coping with the Lupie...

I am sitting here reading through blogs and remembering how it felt when I found...

Silvermyst

•11 years ago

2 Replies

Into hospital... Praying my body does not over-react :)

Well my lovely Eater gift this year is a trip into hospital, nothing serious thankfully, more like one of those niggling, irritating things I will be glad to...

Well my lovely Eater gift this year is a trip into hospital, nothing serious tha...

Silvermyst

•11 years ago

10 Replies

How do people cope with hair loss?

I recently started loosing my long hair - at first just little wisps here and there and then huge clumps. I had it cut short, and then today I went to the...

I recently started loosing my long hair - at first just little wisps here and th...

Rachy24

•11 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2013

Hospital Appoinment

poo !

How Do You Cope with Raynauds?

Has anyone experienced soreness and bleeding inside the nose. Could be related to Sjorgrens syndrome?

Mycophenalate

Happy Easter everyone x

Head pains anyone? especially on the left side, often very sharp pains when I bend down

Raynauds

Amitriptyline ?

Costocondroitis - does anyone else have this and get sharp pains when lying down?

Eyes affected by hydroxi

Stiffness

Methotrixate, ciclosporin, cyclophosphamide, or sulfasalazine????

Best day 4 ages

shakey/tremors

High liver function tests

Thank you all.

Esa

Red Cheeks

Stomach problems

ANOTHER illness and azathioprine

DLA

evening or shall i say morning

Is there any link between a high ESR blood count and lupus.

My first blog!

Can you get diagnosed with sle then again to be not diagnosed l am very dissapionted in the rheumy doctor

how can i help my 24 year old who got sle lupus she cant get herself motorvated she weak all the time

Warm Easter wishes to you all :)

Into hospital... Praying my body does not over-react :)

How do people cope with hair loss?

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