Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2012

confused. GP will not refer me to rheumy because of negative Ana

hi my name is Tracy and i am 30yrs old a few weeks ago i asked my GP about lupus .he said its hard to diagnose and does not always show up on Ana and...

hi my name is Tracy and i am 30yrs old a few weeks ago i asked my GP abou...

Hidden

•12 years ago

13 Replies

Desperate for advice...

I am so confused. I don't know if I'm depressed or just going through the grieving process due to recently being diagnosed. I feel so lonely. I feel lost. I...

I am so confused. I don't know if I'm depressed or just going through the grie...

purple-lou

•12 years ago

24 Replies

Eye problems

Hi everyone, I've recently started having strange eye problems including blurred vision (like I have a pice of thin film stuck on the eye), light...

Hi everyone, I've recently started having strange eye problems including blu...

artemis5

•12 years ago

3 Replies

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bronchoscopy

Hi all not been on for a while hope everyone ok,on Monday i had ct scan and on Wednesday this week was sent for a bronchos copy unfortunately they could not...

Hi all not been on for a while hope everyone ok,on Monday i had ct scan and on ...

lornadoon

•12 years ago

5 Replies

Helllpppppp?

Hey, I was diagnosed with lupus profundus when I was 8 years old and I'm now 19 I have it on my face & arms and have been on all sorts of medication but only...

Hey, I was diagnosed with lupus profundus when I was 8 years old and I'm now 19 ...

tiernan

•12 years ago

1 Reply

Lupus + Dyslexia/Irlems

Hi I was diagnoses with dyslexia last year at 38 as I started uni and was assessed. I am not sure if there is any evidence that the Lupus affects the brain to...

Hi I was diagnoses with dyslexia last year at 38 as I started uni and was assess...

womble73

•12 years ago

5 Replies

unsure of flu vaccination????

Hi all,i have had flu jabs in the past ,before lupus was diagnosed ,and always reacted really bad to them ,so havent had one since,however , as i now have a...

Hi all,i have had flu jabs in the past ,before lupus was diagnosed ,and always r...

brave

•12 years ago

9 Replies

Prednisolone withdrawal symptoms

I'm trying to come off Prednisolone, I'm at 7.5mg at the moment, down from 10mg. For the past two days I've been having serious headaches, mainly around my...

I'm trying to come off Prednisolone, I'm at 7.5mg at the moment, down from 10mg....

Purpletop

•12 years ago

17 Replies

Sciatica

Can anybody advise if they suffer from the above,if so can it be connected to Lupus ? Going to g.p. tomorrow to have it checked out again. I was there last...

Can anybody advise if they suffer from the above,if so can it be connected to L...

Loopy-loo

•12 years ago

10 Replies

November's Blog Topic - Forgetfulness (Brain Fog)

The Topic of the Month for November is Forgetfulness (Brain Fog). Brain fog is a symptom that many lupus patients experience and can include short term memory...

The Topic of the Month for November is Forgetfulness (Brain Fog). Brain fog is a...

Paul_Howard

Partner•12 years ago

27 Replies

Disrupted sleep

My sleep pattern has become an absolute nightmare,i seem to wake up every hour right through the night,i am so tired,i have tried not to catch up on sleep in...

My sleep pattern has become an absolute nightmare,i seem to wake up every hour r...

katknapp

•12 years ago

11 Replies

Flu vaccine

If like me , you take tablets that suppress the imune system, do you get a flu jab from the GP !!??

If like me , you take tablets that suppress the imune system, do you get a flu j...

larissa

•12 years ago

10 Replies

Help Needed - Your experience in the workplace

Hi everyone, I'm currently producing two guides. One aimed at lupus patients that want to/ are able to work and one aimed at employers. I need your help if...

Hi everyone, I'm currently producing two guides. One aimed at lupus patients ...

Paul_Howard

Partner•12 years ago

27 Replies

Fed up now aaargh

Hey gang Hope everyone is well. Just thought I'd have a little rant as I'm feeling thoroughly fed up. I've been feeling ill for nearly a year now and I'm...

Hey gang Hope everyone is well. Just thought I'd have a little rant as I'm fe...

natal1a

•12 years ago

9 Replies

Hypersensitivity and heightened sense of smell

I am hypersensitive to touch noise lights etc but my sense of smell is astounding, my friends call me a blood hound. Wanted to know if this was part and parcel...

I am hypersensitive to touch noise lights etc but my sense of smell is astoundin...

LottaTee

•12 years ago

8 Replies

Change in medication/flare or something else?

Hi everyone. I'm 25 with sle, aps and perniues anaemia. I take planquenil 400mg Daily, however pharmacist changed it to quenoric within the last week. For the...

Hi everyone. I'm 25 with sle, aps and perniues anaemia. I take planquenil 400mg...

Hayz24

•12 years ago

3 Replies

London Lupus Centre ( London Bridge Hospital )

Has anybody attended the above hospital as a private patient and been seen by Mr Andrews. Thanks in advance.

Has anybody attended the above hospital as a private patient and been seen by Mr...

Loopy-loo

•12 years ago

11 Replies

??lupus arthirius

i finally sent back to see gp after finger x ray was normal but still having stiffness and pain. he could see it was swollen but because i am already on...

i finally sent back to see gp after finger x ray was normal but still having sti...

moss

•12 years ago

2 Replies

Athletes foot??

Ive been getting what I think is athletes foot on and off for a couple of months now. I'm not sure it is athletes foot as I have it in the past and it was...

Ive been getting what I think is athletes foot on and off for a couple of months...

megs_tom

•12 years ago

9 Replies

How To Cope With Scottish Midges??

I cover myself up when out in the garden cutting the grass I had jeans on a thick jumper and thick jacket as it was cool YET I still got bitten by those...

I cover myself up when out in the garden cutting the grass I had jeans on a thic...

astralla

•12 years ago

5 Replies

Hi,any lupis living in or near Billericay?

Currently in Switzerland and feeling homesick! How is the medical care back home? Any info would be much appreciated, thanks. Wishing you all an easy day. xx

Currently in Switzerland and feeling homesick! How is the medical care back home...

Hidden

•12 years ago

1 Reply

Just wondering if anyone else always ends up ill after a night out?

Everytime I go out I end up ill for the following week may just be a cold sometimes it ends up with a lupus flare. Everyone who knows me when I mention a night...

Everytime I go out I end up ill for the following week may just be a cold someti...

Hhsegibs

•12 years ago

10 Replies

DLA unsuccessfull RANT!! :-(

I applied for DLA in March 2011, I had a 'no' reply in June 2011, it finally went to a tribunal hearing at end of October 2012!!! Which has been unsuccesful...

I applied for DLA in March 2011, I had a 'no' reply in June 2011, it finally wen...

heatherx

•12 years ago

18 Replies

Does anyone think they know what brought lupus on or roughly when it all started before diagnosis.

luupysue

•12 years ago

38 Replies

Fish Oil - Any suggestions

This is my second question today - can't sleep. Just wondering if anyone can recommend a good fish oil supplement. I have been on steriods for years and my...

This is my second question today - can't sleep. Just wondering if anyone can re...

behappy1

•12 years ago

3 Replies

Neck Cracking and popping Problems

Does anyone suffer from continual neck pain and cracking / popping? Is this lupus, or general arthritis? Any suggestions on what helps x

Does anyone suffer from continual neck pain and cracking / popping? Is this lupu...

behappy1

•12 years ago

17 Replies

Livedo reticular is and lupus

Does anyone suffer from livedo reticularis and if so, is there any specific treatment you've been put on for it? I've just noticed mottled appearance on my...

Does anyone suffer from livedo reticularis and if so, is there any specific trea...

Purpletop

•12 years ago

14 Replies

I have SLE and a lupus like condition , plus Raynauds, arthuritus, fibromialgia, chronic fatigue how much more can i be diagnoised with?

Did it take others years to be diagnosed? why does it take so long? we spend many years feeling ill and once we get a diagnoises we are basically told when we...

Did it take others years to be diagnosed? why does it take so long? we spend man...

tez281964

•12 years ago

22 Replies

Hi,i,ve set up a facebook group for carers/caregivers if anyone is interested.

https://www.facebook.com/groups/icwe0411/

catb18

•12 years ago

1 Reply

DLA Renewel

Hi have just read a question on DLA renewel, i am up for renewel in April 2013, i had to appeal for my DLA 3 years ago, i succeeded in getting high rate...

Hi have just read a question on DLA renewel, i am up for renewel in April 2013, ...

caz59

•12 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2012

confused. GP will not refer me to rheumy because of negative Ana

Desperate for advice...

Eye problems

bronchoscopy

Helllpppppp?

Lupus + Dyslexia/Irlems

unsure of flu vaccination????

Prednisolone withdrawal symptoms

Sciatica

November's Blog Topic - Forgetfulness (Brain Fog)

Disrupted sleep

Flu vaccine

Help Needed - Your experience in the workplace

Fed up now aaargh

Hypersensitivity and heightened sense of smell

Change in medication/flare or something else?

London Lupus Centre ( London Bridge Hospital )

??lupus arthirius

Athletes foot??

How To Cope With Scottish Midges??

Hi,any lupis living in or near Billericay?

Just wondering if anyone else always ends up ill after a night out?

DLA unsuccessfull RANT!! :-(

Does anyone think they know what brought lupus on or roughly when it all started before diagnosis.

Fish Oil - Any suggestions

Neck Cracking and popping Problems

Livedo reticular is and lupus

I have SLE and a lupus like condition , plus Raynauds, arthuritus, fibromialgia, chronic fatigue how much more can i be diagnoised with?

Hi,i,ve set up a facebook group for carers/caregivers if anyone is interested.

DLA Renewel

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