Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,073 posts

All posts for November 2012

ANA positive. ENA positive showing PCNA, dsDNA, SM, Scl 70, Jo 1 + couple of others... Lupus? I also have IIH and psuedopappiladaema

browneyes2012

•11 years ago

3 Replies

Flare !

With Lupus , if you have a flare , what do you do to limit the damage ? do you need to go to the docs to get something else ? At the mo i have been diagnosed...

With Lupus , if you have a flare , what do you do to limit the damage ? do you n...

larissa

•11 years ago

5 Replies

Can't be bothered about the weight

It is becoming so annoying! My weight is driving me crazy. I look like a fattened cow (lol). I try to loose it but it is impossible. I really do not exercise...

It is becoming so annoying! My weight is driving me crazy. I look like a fatten...

ijeasike

•11 years ago

30 Replies

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Job going down the pan!

I am off work again, having gone back part time since September. I am a teacher. I had loads of time of last year, school were very good, but after 6 months I...

I am off work again, having gone back part time since September. I am a teacher....

jamg3916

•11 years ago

5 Replies

Hi all , I first became ill about 8 - 10 years ago with all the simptons of that pointed to Lupus , rash ,itching ,

pluracy,sunlight exposure ,ect ,the worst i think being fatiqued and aching bones during a flare but all blood test i have had ,so far are in normal range !!!...

pluracy,sunlight exposure ,ect ,the worst i think being fatiqued and aching bone...

lellydee

•11 years ago

3 Replies

Nausea?

Anyone suffering from bouts of nausea with SLE? The past two days I've been dizzy and short of breath but now I'm nauseous to top it up. I haven't changed...

Anyone suffering from bouts of nausea with SLE? The past two days I've been diz...

Purpletop

•11 years ago

11 Replies

Genital dermatitis

Hi All, Over 2 years ago I had a bad bout of genital dermatitis which cleared up very quickly after using betnovate. I've been a bit stressed recently...

Hi All, Over 2 years ago I had a bad bout of genital dermatitis which cleared...

Corrosion

•11 years ago

3 Replies

Feel like i am being poisioned

Hi all,well i have mentioned this before ,but things are worse than ever.Does anyone out there feel as if they are actually being poisioned,my glands kill ,my...

Hi all,well i have mentioned this before ,but things are worse than ever.Does an...

brave

•11 years ago

11 Replies

fibromyalgia and lupus

hi ive been reading alot on the site. i was diagnosed with lupus 31 years ago and was wondering what fibromyalgia is and what are the symptoms? This word seems...

hi ive been reading alot on the site. i was diagnosed with lupus 31 years ago an...

caz59

•11 years ago

4 Replies

Advice please - I dont understand diagnosis or lack of ....

Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred...

Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the...

LULU85

•11 years ago

3 Replies

Lupus Diet information

Hi everyone, There seems to be quite a few of us for whom taking some of the medication is difficult or unwanted (for a variety of reasons) and there have...

Hi everyone, There seems to be quite a few of us for whom taking some of the me...

Riverbird

•11 years ago

8 Replies

Stressful Weekend

Hi all I had a stressful weekend babysitting my 19mth old grandchild she was unwell and I got very little sleep also I was very worried about her. Thankfuly a...

Hi all I had a stressful weekend babysitting my 19mth old grandchild she was unw...

copdber

•11 years ago

1 Reply

Lupus and Fibromyalgia

I was diagnosed with Lupus a year ago though prob had it for at least 10yrs, my nan also had SLe, Monday saw my consultant and he told me I also have...

I was diagnosed with Lupus a year ago though prob had it for at least 10yrs, my ...

natzway

•11 years ago

8 Replies

they just dont understand, im not thick!

hello everyone, im having trouble recently at work (mainly), i was a twilight manager before i became very poorly in 2005 with lupus and P.T.Grief ; i almost...

hello everyone, im having trouble recently at work (mainly), i was a twilight ma...

caninecrazy

•11 years ago

6 Replies

Need statistics for fatigue?

When being considered for ill,health early retirement this week, the assessor concluded that I suffer from 'fatigue', he blatantly ignored the myriad of other...

When being considered for ill,health early retirement this week, the assessor co...

Slowmo

•11 years ago

7 Replies

Don't get it

Wrote blog earlier saying that the DWP had decided that I was fit for work and I was worried about my DLAi had a letter this morning granting me high rate...

Wrote blog earlier saying that the DWP had decided that I was fit for work and I...

ebril

•11 years ago

11 Replies

My son is so unwell and we need help

My son was diagnosed with myocarditis and then pericarditis in July this year. He was lethargic for a while before this happened and has had joint pains for...

My son was diagnosed with myocarditis and then pericarditis in July this year. ...

Emma73

•11 years ago

5 Replies

Is lupus difficult to diagnose, I seem to have most of the symptoms?

woodbon

•11 years ago

5 Replies

active lupus and pregnancy

really sorry to post on here but i could really use advice , i was in remission 2 years an had a flare up this year and everything seems to be going wrong, my...

really sorry to post on here but i could really use advice , i was in remission ...

tanya2k458

•11 years ago

10 Replies

apologies 4 spelling!has anyone heard of the benefits of aloe Vera? I am thinking of giving it a try. Apparently it lupus sufferers.

talula

•11 years ago

3 Replies

Is anyone on anti TNF drugs for Lupus, if so, how much of a difference has this made to your life? Is it worth a fight to be given this?

MarthaJane

•11 years ago

2 Replies

Problems with Azathioprine

I was put on Azathioprine in August after having a bad reaction to the Hydroxychloroquine i was originally prescribed. This morning (approx 3 months later) i...

I was put on Azathioprine in August after having a bad reaction to the Hydroxych...

mainlyconfused

•11 years ago

4 Replies

Numbness in my fingertips

In the past few days I have started having numbness in my fingertips in both hands--just the middle three fingers and only the tips of the fingers above the...

In the past few days I have started having numbness in my fingertips in both han...

ShannonB

•11 years ago

7 Replies

Clairebear update

Hi all. Haven't been on for a while. I'm doing ok at the mo. Been a tough few months but I'm starting to come to terms with a lot of things. Well you got to...

Hi all. Haven't been on for a while. I'm doing ok at the mo. Been a tough few mo...

Clairebear

•11 years ago

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Unbelievable!

I gave in and went to the docs today as I can't stand the pain in my ribs any longer. I saw the same G.P who I saw the last time I went to the docs 6mnths ago....

I gave in and went to the docs today as I can't stand the pain in my ribs any lo...

Angelcake

•11 years ago

22 Replies

Endometriosis

Has anyone had any feedback on how Endometriosis and Lupus are connected? Have read that there is some thought that Endo is autoimmune.

Has anyone had any feedback on how Endometriosis and Lupus are connected? Have ...

Chapter

•11 years ago

6 Replies

Grapefruit and Pills Mix Warning - Relevant to many lupus patients

"Doctors have warned of a "lack of knowledge" about the dangers of mixing some medications with grapefruit. The fruit can cause overdoses of some drugs...

"Doctors have warned of a "lack of knowledge" about the dangers of mixing some m...

Paul_Howard

Partner•11 years ago

3 Replies

Headache

thought i would pass this on to you I hope it comes out O/k

janiceray

•11 years ago

4 Replies

Been referred to Neurology

Hi everyone. Well I've just seen my consultant today and explained to him why steroids didn't agree with me (he was shocked by my near-death experience -when...

Hi everyone. Well I've just seen my consultant today and explained to him why s...

Maya23

•11 years ago

13 Replies

I'm taking 400mg of plaquenil and 100mg of Imuran and in a flair anyone else taking these drugs and still going into flairs.

copdber

•11 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2012

ANA positive. ENA positive showing PCNA, dsDNA, SM, Scl 70, Jo 1 + couple of others... Lupus? I also have IIH and psuedopappiladaema

Flare !

Can't be bothered about the weight

Job going down the pan!

Hi all , I first became ill about 8 - 10 years ago with all the simptons of that pointed to Lupus , rash ,itching ,

Nausea?

Genital dermatitis

Feel like i am being poisioned

fibromyalgia and lupus

Advice please - I dont understand diagnosis or lack of ....

Lupus Diet information

Stressful Weekend

Lupus and Fibromyalgia

they just dont understand, im not thick!

Need statistics for fatigue?

Don't get it

My son is so unwell and we need help

Is lupus difficult to diagnose, I seem to have most of the symptoms?

active lupus and pregnancy

apologies 4 spelling!has anyone heard of the benefits of aloe Vera? I am thinking of giving it a try. Apparently it lupus sufferers.

Is anyone on anti TNF drugs for Lupus, if so, how much of a difference has this made to your life? Is it worth a fight to be given this?

Problems with Azathioprine

Numbness in my fingertips

Clairebear update

Unbelievable!

Endometriosis

Grapefruit and Pills Mix Warning - Relevant to many lupus patients

Headache

Been referred to Neurology

I'm taking 400mg of plaquenil and 100mg of Imuran and in a flair anyone else taking these drugs and still going into flairs.

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