Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for October 2012

Gutted, fed up and disheartened

Well ESA Tribunal was today and the result was I am cabable of work starting from today! On going on to Direct Gov I am NOT entitled to any benefits as I have...

Well ESA Tribunal was today and the result was I am cabable of work starting fro...

tinkerbellquo

•11 years ago

9 Replies

Topic of the Month: October - Raynaud's Phenomenon

Raynaud’s phenomenon is a condition in which the small blood vessels in the extremities (fingers, toes, nose, ears) are over-sensitive to changes in...

Raynaud’s phenomenon is a condition in which the small blood vessels in the extr...

Paul_Howard

Partner•11 years ago

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the seasons of weather

so used to live like im a vampire stay in keep out the sun through the summer i dont get so many infedtions but my rash go barmy even get it on my toes and...

so used to live like im a vampire stay in keep out the sun through the summer i...

traceyd

•11 years ago

1 Reply

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Alder Hey, Liverpool Children's Lupus Centre

Lupus Awareness Month October was Lupus awareness month where efforts were made across the world to raise awareness of the incurable rash known as Lupus....

Lupus Awareness Month October was Lupus awareness month where efforts were ma...

Lulabelle

•11 years ago

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Please help me :o( .... is this Fibromyligia ????

The rhemy I saw in the beginning of Oct says that he thinks I have fibromyligia, when I saw him I was on a good day ... felt normal .. looked normal, no bad...

The rhemy I saw in the beginning of Oct says that he thinks I have fibromyligia,...

weather66

•11 years ago

10 Replies

Would you like the chance to have your lupus story in a magazine?

Today we have had an enquiry from a freelance journalist who is looking to write an article for a womens’ magazine. If you are female, live in the UK...

Today we have had an enquiry from a freelance journalist who is looking to write...

Paul_Howard

Partner•11 years ago

12 Replies

Fluoxetine ?

I have been taking this since last friday ( 20mg) Does anyone else take this ? and if so has it helped ? how long did it take to notice a difference ?

I have been taking this since last friday ( 20mg) Does anyone else take this ...

larissa

•11 years ago

7 Replies

Blood

Got a phone call this morning to say that the last lot of bloods I had done showed some abnormalities & that I needed another bone marrow test. Got to the...

Got a phone call this morning to say that the last lot of bloods I had done show...

alyj

•11 years ago

5 Replies

HELP! Tips on how to avoid flare ups needed.

I am having my first major flare up since being on medication. Saw GP on Thursday who told me my inflammation levels are now normal. Today I can't walk. Pain...

I am having my first major flare up since being on medication. Saw GP on Thursd...

Keepingsmiling

•11 years ago

4 Replies

October has been a pain filled month

I had my 4th cyclo on the fourth week of september and after that i have felt so poorly. been down with throat infection, mouth sores and entire body pain....

I had my 4th cyclo on the fourth week of september and after that i have felt so...

ijeasike

•11 years ago

4 Replies

Tommy's or UCH?

I'm probably going to ask my GP to change my rheumy referral from a 'lone' rheumy at Mile End Hospital to a specialist lupus unit. One that can also deal with...

I'm probably going to ask my GP to change my rheumy referral from a 'lone' rheum...

Coppernob

•11 years ago

7 Replies

Hi Everyone, I'm a new member and want to say hello...

Hi everyone, I'm newly diagnosed with CCLE of the mouth, nose and vulva and I'm currently undergoing tests for systemic Lupus. I have heard of Lupus, but like...

Hi everyone, I'm newly diagnosed with CCLE of the mouth, nose and vulva and I'm ...

curlyflowergirl

•11 years ago

7 Replies

After dental work, my teeth seem to crumble! Help!!

over the past year, anytime I've had dental work done, the tooth that was worked on breaks apart! I have lost the upper molars on both sides of my mouth! I...

over the past year, anytime I've had dental work done, the tooth that was worked...

Jonathansgirlfriend

•11 years ago

15 Replies

Can we ask for steroid injection?

My steroid tablets didn't work and made me feel terrible. Steroid injections work wonders for me. Can I just ask for one? I've tried to see my consultant...

My steroid tablets didn't work and made me feel terrible. Steroid injections w...

purple-lou

•11 years ago

10 Replies

Arnold Chiari Malformation

Hi everyone, just thought I would update from my Lupus and Cancer previous question. I've been having a really bad time lately, numerous visits to gp....

Hi everyone, just thought I would update from my Lupus and Cancer previous quest...

mummyswift

•11 years ago

1 Reply

Creepy crawlies in my neck and other stuff

Hi peeps, update on things thus far....after complaint for over 7 months I have finally had my carpal tunnel released and also a tenosynovectomy.. awaiting...

Hi peeps, update on things thus far....after complaint for over 7 months I have ...

cathbw

•11 years ago

8 Replies

Has anyone else got strands shooting out from their tearducts at what seems like 90mph. I've been told it could be mucus with a lupus twist?

Because you can't see them and others can barely feel them, I've been told that it's all in my mind. It's like being in a permanent cobweb. They don't wash off...

Because you can't see them and others can barely feel them, I've been told that ...

jayniey

•11 years ago

2 Replies

Continuous flare...

I have been in a continuous flare for weeks now. I am at the end of my tether. I'm really struggling to cope. The slightest activity leaves me with chronic...

I have been in a continuous flare for weeks now. I am at the end of my tether. ...

purple-lou

•12 years ago

4 Replies

You care about people sign up to http://epetitions.direct.gov.uk/petitions/20968 need 100k signatures urgently!. Please pass on :)

http://epetitions.direct.gov.uk/petitions/20968 please cut and past in browser if link doesnt work :) MORE INFO WHEN CLICK ON LINK AND NEEDS ALL THE SUPORT...

http://epetitions.direct.gov.uk/petitions/20968 please cut and past in browser ...

AndrewTheCarer

•12 years ago

3 Replies

What triggers your lupus?

That's something I've always been intrigued with. Everytime I get a flare up someone asks what strted it. And usually I have an answer but whether or not the...

That's something I've always been intrigued with. Everytime I get a flare up som...

artemis5

•12 years ago

5 Replies

lupus and adrenal fatigue??

Hi all,been doing some more research and am so interseted to read about adrenal fatigue,for me i reckon im absolutley in stage two of adrenal fatigue ,even my...

Hi all,been doing some more research and am so interseted to read about adrenal ...

brave

•12 years ago

8 Replies

Gone to Florida n got pneumonia !!!!!!!!!

Well , hi guys, what can I say!!, Just had a 3 holiday in Florida, sounds great eh!!!!!!! Flew wih virgin and booked premium economy. Food was crap and had...

Well , hi guys, what can I say!!, Just had a 3 holiday in Florida, sounds great...

sarahroly

•12 years ago

5 Replies

emg study

I had an EMG study last week and the computer kept flashing up 'off scale'. The man who was doing the test wouldn't say why I felt no pain in my leg or foot,...

I had an EMG study last week and the computer kept flashing up 'off scale'. The ...

luupysue

•12 years ago

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Blood

Decided to have some bloods done yesterday as I felt low & my hb levels are 6.2. They were 9 three weeks ago!!! I've been booked in to have another...

Decided to have some bloods done yesterday as I felt low & my hb levels are 6.2....

alyj

•12 years ago

7 Replies

Flare ups and/ sensitivity to light noise

Hi, I am having a flare up of symptoms at the moment and have noticed that I am very sensitive to blackground noise. It is though the noise seems to be...

Hi, I am having a flare up of symptoms at the moment and have noticed that I am ...

mstr

•12 years ago

20 Replies

Influenza (flu) vaccinations in lupus

Flu season is upon us once again so here is an article from the Spring 2012 edition of News & Views Magazine by Sue Brown, lead specialist nurse in...

Flu season is upon us once again so here is an article from the Spring 2012 edit...

Paul_Howard

Partner•12 years ago

7 Replies

Can blisters on hands be Lupus related?

First I will say I am being treated for Lupus but have no dx yet. I have had rash on both hands, palms and some on fingers, little water blisters. I have had...

First I will say I am being treated for Lupus but have no dx yet. I have had ra...

Chapter

•12 years ago

8 Replies

lupus and connective tissue pain??

Hi all,does anyone suffer the dreaded tendonitis and connective tissue pain and soreness as well as the joint issues?for me the sore tissue seems to be more...

Hi all,does anyone suffer the dreaded tendonitis and connective tissue pain and ...

brave

•12 years ago

29 Replies

SLE support groups

Hi there, It's my first blog post so I will just start from saying hello to my fellow SLE sufferers! I've had lupus symptoms for about 10 years now but...

Hi there, It's my first blog post so I will just start from saying hello to m...

artemis5

•12 years ago

17 Replies

Can we eat celery?

I know it contains psoralins which may worse the sunlight effects. Can we eat it for dinner?

I know it contains psoralins which may worse the sunlight effects. Can we eat it...

bearlw

•12 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2012

Gutted, fed up and disheartened

Topic of the Month: October - Raynaud's Phenomenon

the seasons of weather

Alder Hey, Liverpool Children's Lupus Centre

Please help me :o( .... is this Fibromyligia ????

Would you like the chance to have your lupus story in a magazine?

Fluoxetine ?

Blood

HELP! Tips on how to avoid flare ups needed.

October has been a pain filled month

Tommy's or UCH?

Hi Everyone, I'm a new member and want to say hello...

After dental work, my teeth seem to crumble! Help!!

Can we ask for steroid injection?

Arnold Chiari Malformation

Creepy crawlies in my neck and other stuff

Has anyone else got strands shooting out from their tearducts at what seems like 90mph. I've been told it could be mucus with a lupus twist?

Continuous flare...

You care about people sign up to http://epetitions.direct.gov.uk/petitions/20968 need 100k signatures urgently!. Please pass on :)

What triggers your lupus?

lupus and adrenal fatigue??

Gone to Florida n got pneumonia !!!!!!!!!

emg study

Blood

Flare ups and/ sensitivity to light noise

Influenza (flu) vaccinations in lupus

Can blisters on hands be Lupus related?

lupus and connective tissue pain??

SLE support groups

Can we eat celery?

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