Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2012

If your on Hyroxychloroquine read what i found out on Lupus UK

It has come to our attention that some lupus patients have been receiving Quinoric® instead of their usual Plaquenil® and it has caused adverse effects on...

It has come to our attention that some lupus patients have been receiving Quinor...

XliddybX

•12 years ago

20 Replies

Do I contact my consultant?

My brain fog is getting worse, very rapidly. Also, my spelling is declining fast (I'm using predictive text!). Worst of all is when I can't remember what to...

My brain fog is getting worse, very rapidly. Also, my spelling is declining fast...

purple-lou

•12 years ago

12 Replies

If I only knew then what I now know!

Oh what a disease this is!!! I just found out that my cold urticaria which I have had for the past three years is from the lupus. They think that I have had...

Oh what a disease this is!!! I just found out that my cold urticaria which I ha...

asa16

•12 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Chest infection !!! and feeling grot !!

I posted a blog a couple of weeks ago about having a cough cold virus, went back to Drs last week and told I had a chest infection, more antibiotica and...

I posted a blog a couple of weeks ago about having a cough cold virus, went ba...

lupydragon

•12 years ago

2 Replies

Has anyone heard of 'Fishing syndrome' in connection with lupus please? I'm at my wits end with this. I was originally told fisheye - wrong

As per my original question, it causes transparent, ultra-fine, lightweight sticky strands (cobweb like) to run constantly from the eyes. You can't break them,...

As per my original question, it causes transparent, ultra-fine, lightweight stic...

jayniey

•12 years ago

2 Replies

So Down in the dumps right now :o(

Hi All I went to the doctors this morning to get the results of my ANA test, and they have come back negative. I know I should be pleased, but I just...

Hi All I went to the doctors this morning to get the results of my ANA test...

weather66

•12 years ago

24 Replies

wheelchairs

Hi Everyone I ahve spinal stenosis as well as Lupus fibro and raynaulds I saw my rheumie on Thursday and he advised me not to have the op for the stenosis as...

Hi Everyone I ahve spinal stenosis as well as Lupus fibro and raynaulds I saw my...

jennyhe

•12 years ago

6 Replies

help with reducing steroids

Hi everyone 3 months ago I started taking hydroxychloroquine plus 10mg of Prednisone.At my last rhuemy appointment I was started on azathioprine and told to...

Hi everyone 3 months ago I started taking hydroxychloroquine plus 10mg of Pre...

LULU85

•12 years ago

13 Replies

connective tissue disease v lupus please help me to understand?

hi everyone at my last rheumy appointment I was told I had a positive antibody for connective tissue disease and was told I have symptoms of lupus but...

hi everyone at my last rheumy appointment I was told I had a positive antib...

LULU85

•12 years ago

15 Replies

Retracted eardrum?

Hello everyone, just wondering if hearing loss due to retracted eardrum was a cause of sle. Since being diagnosed, numerous other health problems have occured...

Hello everyone, just wondering if hearing loss due to retracted eardrum was a ca...

mummyswift

•12 years ago

2 Replies

People's nasty attitudes

Hey all I was just wondering what peoples attitudes are towards you and your illness. Have you found friends / family to be supportive or have you had many...

Hey all I was just wondering what peoples attitudes are towards you and your ...

natal1a

•12 years ago

22 Replies

I started out having pain in my legs and ankels now it is spreading to my fingers and the top of my feet.Just wonder if anyone is like this?

gabbygirl

•12 years ago

3 Replies

Lived with an sle diagnosis for a year and the meds,only to be told she doesnt have lupus!

Hi all,just wanted to quickly let you know,and to make you aware. of the fact that you shoyld check out your lupus docs first! My daughter wad dxd with severe...

Hi all,just wanted to quickly let you know,and to make you aware. of the fact th...

nanny4

•12 years ago

9 Replies

pain and depresstion

i have had it with tablets and keep going to the docs iam getting head achs and i try and stay in my room most off the time why

i have had it with tablets and keep going to the docs iam getting head achs an...

scottty

•12 years ago

4 Replies

Has anyone claimed on life insurance policy of any kind regarding lupus?

I have a decreasing mortgage cover policy with Zurich which has been in place for almost 10 years. I recently contacted them to see if they would pay out...

I have a decreasing mortgage cover policy with Zurich which has been in place fo...

pfoz88

•12 years ago

5 Replies

Help

My son went for a medical yesterday his second this year, his contribution based ESA runs out 15th September, conveniently, if he is kicked off can he appeal?...

My son went for a medical yesterday his second this year, his contribution based...

lkic

•12 years ago

8 Replies

Osteoneucrosis

I am 28 years old and diagnosed with SLE Lupus 2 years ago after falling unwell, and needing a blood transfusion. I have had symptoms of SLE all my life but...

I am 28 years old and diagnosed with SLE Lupus 2 years ago after falling unwell,...

AnnaMo

•12 years ago

2 Replies

My SLE e-book

Hello everyone, I designed an autobiography of my experience with SLE. There isn't many out there which talks about one's experience about this disease...

Hello everyone, I designed an autobiography of my experience with SLE. There...

rara12345

•12 years ago

Be the first to reply

Has anyone had treatment/discussion/diagnosis of brain involvement with lupus??

I'm asking for as much help and info as possible as i think I may have brain involvement. I suffer from terrible times of depression that come at the same...

I'm asking for as much help and info as possible as i think I may have brain inv...

BetsieBoo

•12 years ago

22 Replies

Has anyone heard of fisheye syndrome/disorder as another part of lupus?

I have dry sticky eyes that constantly discharge ultra-fine (like cobweb strands) transparent, sticky stuff. It is lots of long strands, it doesn't break, you...

I have dry sticky eyes that constantly discharge ultra-fine (like cobweb strands...

jayniey

•12 years ago

3 Replies

Is there a list anywhere of 'good' docs (as decided by patients!) where lupus / sjogrens etc is involved?

cambridge

•12 years ago

4 Replies

What questions would you ask at your 1st (suspected) lupus/sjogrens consultation? What is vital to know and what should they be telling me?

cambridge

•12 years ago

6 Replies

Tests

Back 2 the doctors again, i need 2 get. Stronger pain med and somethin 2 help me sleep better

Back 2 the doctors again, i need 2 get. Stronger pain med and somethin 2 help me...

lpatterson

•12 years ago

4 Replies

What to do about breathlessness

I have APS, possible Sjogren's and I'm also now suspecting either Lupus or Vasculitis. Over the last 3 months or so I've had far worse fatigue, terrible...

I have APS, possible Sjogren's and I'm also now suspecting either Lupus or Vascu...

Coppernob

•12 years ago

8 Replies

September's Blog Topic - Exercise

Our Topic of the Month for September is exercise. Exercise is an important way to keep you in good health but it is difficult for many lupus patients who...

Our Topic of the Month for September is exercise. Exercise is an important way t...

Paul_Howard

Partner•12 years ago

19 Replies

Help with diagnosis ?

Hi, this is my first time on here. I have a lot of symptoms of lupus and keep getting told by doctors that I have antibodies in my blood but I do not have...

Hi, this is my first time on here. I have a lot of symptoms of lupus and keep ...

joeyzoey

•12 years ago

5 Replies

Please help bring about change by signing and sharing these three

Hi there, lots of us have problems with thyroid issues, which are notoriously difficult to manage and at time diagnose, and some of us have had diabolical...

Hi there, lots of us have problems with thyroid issues, which are notoriously d...

MaryF

•12 years ago

Be the first to reply

Bruising and dislocating joints.

I have SLE, renal lupus, APS and Raynauds. Recently I have been dislocating or bruising joints after doing things such as washing my hands or cutting my nails....

I have SLE, renal lupus, APS and Raynauds. Recently I have been dislocating or b...

Alupie

•12 years ago

2 Replies

Good sun hat

Hi can anyone recommend where to get a good sun hat? My rheumy told me to wear one and cover up my face more even though i wear factor 50 at all times x

Hi can anyone recommend where to get a good sun hat? My rheumy told me to wear o...

Kay1966-7-5

•12 years ago

6 Replies

recovering from holiday

Hi to all. I just got back from turkey on saturday. had a good holiday but came back with diarrhoea. went to doctors and they gave me dioralyte! I felt like a...

Hi to all. I just got back from turkey on saturday. had a good holiday but came ...

heda123

•12 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2012

If your on Hyroxychloroquine read what i found out on Lupus UK

Do I contact my consultant?

If I only knew then what I now know!

Chest infection !!! and feeling grot !!

Has anyone heard of 'Fishing syndrome' in connection with lupus please? I'm at my wits end with this. I was originally told fisheye - wrong

So Down in the dumps right now :o(

wheelchairs

help with reducing steroids

connective tissue disease v lupus please help me to understand?

Retracted eardrum?

People's nasty attitudes

I started out having pain in my legs and ankels now it is spreading to my fingers and the top of my feet.Just wonder if anyone is like this?

Lived with an sle diagnosis for a year and the meds,only to be told she doesnt have lupus!

pain and depresstion

Has anyone claimed on life insurance policy of any kind regarding lupus?

Help

Osteoneucrosis

My SLE e-book

Has anyone had treatment/discussion/diagnosis of brain involvement with lupus??

Has anyone heard of fisheye syndrome/disorder as another part of lupus?

Is there a list anywhere of 'good' docs (as decided by patients!) where lupus / sjogrens etc is involved?

What questions would you ask at your 1st (suspected) lupus/sjogrens consultation? What is vital to know and what should they be telling me?

Tests

What to do about breathlessness

September's Blog Topic - Exercise

Help with diagnosis ?

Please help bring about change by signing and sharing these three

Bruising and dislocating joints.

Good sun hat

recovering from holiday

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive