Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2012

I'm Sick

I'm sick of feeling like the world's about to end, I'm sick of feeling like I'm loosing my friends, I'm being left behind, Loosing my hope and loosing my...

I'm sick of feeling like the world's about to end, I'm sick of feeling like I'm...

SLE15

•12 years ago

14 Replies

Stinging skin and back pain with maybe thoracic disc herniation

I have been suffering from skin stinging across my abdomen like a jelly fish sting - really painful, for a couple of weeks and my GP thought shingles. but it...

I have been suffering from skin stinging across my abdomen like a jelly fish sti...

bodicea

•12 years ago

5 Replies

Does the answers ever come?

Hi, I was diagnosed with Lupus but that was changed to UCTD. I am in pain everyday (ranging from mild discomfort to unbearable) I am always looking for a...

Hi, I was diagnosed with Lupus but that was changed to UCTD. I am in pain e...

mookiem

•12 years ago

15 Replies

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Blood

Not long to wait now till I get my bone marrow results. Just had my blood results back following my 3rd blood transfusion, my hb is now a healthy 10.9, but...

Not long to wait now till I get my bone marrow results. Just had my blood re...

alyj

•12 years ago

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Can anyone tell me what constitutes a high anti ds dna count? Or what is a 'normal' level?I can't seem to find a definitive answer.Thanks

londonexile

•12 years ago

6 Replies

Lupus and implants

Has anyone had loosening of previously inserted and well settled implants due to lupus sle or meds for lupus? If so, did you ultimately loose the implant? I...

Has anyone had loosening of previously inserted and well settled implants due to...

Purpletop

•12 years ago

4 Replies

does any1 find the winter months harder with pains etc+the seasonal effictive disorder begins to kicks in too!!

gizzy

•12 years ago

6 Replies

Things Going on Upper Side

My Wife(30 years age) was Diaganosed with Lupus Nephriyus Class iv ,2 and a half years go , Innitially put on to Bonus IV Solution Solumedrol (3 doses Rcvd) ,...

My Wife(30 years age) was Diaganosed with Lupus Nephriyus Class iv ,2 and a half...

imran

•12 years ago

2 Replies

carers

Ive set up a group on facebook for carers where they can chat to other carers in the same situation, if you are interested in this then please send me a...

Ive set up a group on facebook for carers where they can chat to other carers i...

kathy43

•12 years ago

Be the first to reply

Booooooooooooooo

Hey everyone Just wanted to have a mini moan... Was supposed to be going to Edinburgh this weekend. It am feeling too poorly to go. I've been working 4...

Hey everyone Just wanted to have a mini moan... Was supposed to be going to E...

natal1a

•12 years ago

3 Replies

Please help me get this off the ground, I could really do with a hand.

This petition so needs a hand, please sign it, and PASS IT ON for publicity and more signatures. Patients like us, might all be able to change the culture...

This petition so needs a hand, please sign it, and PASS IT ON for publicity and ...

MaryF

•12 years ago

2 Replies

my mum is 82 and losing her appetite.she has just had a fall and is staying with me.so ive noticed how much she is not eating.this is

not just since her fall as she noticed herself the lack of fancying food .she says food has no taste at all. has anyone any ideas how to get an appetite...

not just since her fall as she noticed herself the lack of fancying food .she ...

patty1

•12 years ago

5 Replies

Dla

my daughter has sle and von wilibrands disease and can't be left on her own because she faints, she misses school because of pain in her neck and back and...

my daughter has sle and von wilibrands disease and can't be left on her own beca...

smurfette

•12 years ago

5 Replies

Dla

my daughter has sle and von wilibrands disease and can't be left on her own because she faints, she misses school because of pain in her neck and back and...

my daughter has sle and von wilibrands disease and can't be left on her own beca...

smurfette

•12 years ago

2 Replies

just been diagnosed thru my dermotologist and been referred to rhuemotologist dont know what to expect

have felf like going mad and embarressed going to my gp and hosp app and finally got diagnosis feeling scared at moment and stressed which is causing...

have felf like going mad and embarressed going to my gp and hosp app and finally...

farah1

•12 years ago

5 Replies

what pain killers shall i take?

I have really bad back pain and am just waiting for a appointment with physio (dont no what good it will do), also i am taking co codamol 30/500mg ( although i...

I have really bad back pain and am just waiting for a appointment with physio (d...

XliddybX

•12 years ago

8 Replies

Confused by blood tests!

In June I got results from my second blood tests, all of which came back negative. The tests done were; auto antibody profile (CTD), ENA, dsDNA and C3 and C4....

In June I got results from my second blood tests, all of which came back negativ...

megs_tom

•12 years ago

12 Replies

Job Centre BLUES!!

Have just come back from the job centre and felt like i have had to fight for my ESA again. Even my DLA entitlement was questioned and i fought so hard to be...

Have just come back from the job centre and felt like i have had to fight for my...

sabine

•12 years ago

7 Replies

Diagnoses and bladder incontinence

Firstly...i was diagnosed with Lupus via a routine blood test.....just a one off. tests have been clear since but i have all the symptoms of lupus.....foggy...

Firstly...i was diagnosed with Lupus via a routine blood test.....just a one off...

sharonleane

•12 years ago

5 Replies

I've become a recluse.........

I've been ill for only a short time, about 4 months. I was diagnosed early on. Over the last few days, I've realised that I actually avoid contact with people....

I've been ill for only a short time, about 4 months. I was diagnosed early on. O...

purple-lou

•12 years ago

15 Replies

Update allbeit a rushed one

Hello things are just a little bit crazy here and don't seem to show any signs of slowing down. Well things are a little shaky on the lupus front but it...

Hello things are just a little bit crazy here and don't seem to show any signs o...

tinkerbellquo

•12 years ago

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Ups and downs

Well hello all. Not been on for a while. Lots to tell you. I've had a bit of a flare but not with pain, with fatigue. So tired the past few days. Just want to...

Well hello all. Not been on for a while. Lots to tell you. I've had a bit of a f...

Clairebear

•12 years ago

3 Replies

subacute cutaneous vs. systemic lupus

To cut a long story short I was diagnosed -via letter- some months ago by a dermatologist as having subacute cutaneous lupus, (my main symptom is a...

To cut a long story short I was diagnosed -via letter- some months ago by a derm...

anjia

•12 years ago

3 Replies

Taking meds while pregnant & flare up

I've had SLE & fibro for years. Just turned 35 and having my first baby. I'm only 8 weeks. My husband & i are happy but im so worried & anxious about...

I've had SLE & fibro for years. Just turned 35 and having my first baby. I'm on...

behappy1

•12 years ago

4 Replies

Old scars and flares

Does anyone else have this strange symptom around a flare ? My old scars can become irritated , itch and some actually start to become very red and develop a...

Does anyone else have this strange symptom around a flare ? My old scars can bec...

Kirsty2510

•12 years ago

5 Replies

WHY ARE NHS DIRECT more helpful than the docs?

After 40 bouts of the runs in 8 hours decided to contact NHS direct, they were fab, discussed my lupus and said i needed to be seen by a doc as I had a temp...

After 40 bouts of the runs in 8 hours decided to contact NHS direct, they were f...

tiredmum

•12 years ago

3 Replies

Venus William has an autoimmune disease

Hi, I was interested to hear about Venus Williams and her recent diagnosis of sjogrens syndrome, an auto immune disease. Here is a link to a interview were...

Hi, I was interested to hear about Venus Williams and her recent diagnosis of s...

Faraday

•12 years ago

10 Replies

i have furry skin that comes now and again.inside my lips,i stopped eating fungi last time that worked.its back again. .

how can i get rid of it,im forever picking my lips.really does my head in

patty1

•12 years ago

5 Replies

No diagnosis either!

It seems I am not alone in suffering with the non-diagnosis, which as a Newbie is comforting to know. I landed in hospital 1.mai with numbness and no strength...

It seems I am not alone in suffering with the non-diagnosis, which as a Newbie i...

Hidden

•12 years ago

1 Reply

Would you like to have a pamper day in a spa and tell your story on a show for Channel 4? APPLICATIONS NOW CLOSED

***Thank you to everybody that contacted us with an interest in being part of the show. Applications are now closed. Those of you that applied should be...

***Thank you to everybody that contacted us with an interest in being part of th...

Paul_Howard

Partner•12 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2012

I'm Sick

Stinging skin and back pain with maybe thoracic disc herniation

Does the answers ever come?

Blood

Can anyone tell me what constitutes a high anti ds dna count? Or what is a 'normal' level?I can't seem to find a definitive answer.Thanks

Lupus and implants

does any1 find the winter months harder with pains etc+the seasonal effictive disorder begins to kicks in too!!

Things Going on Upper Side

carers

Booooooooooooooo

Please help me get this off the ground, I could really do with a hand.

my mum is 82 and losing her appetite.she has just had a fall and is staying with me.so ive noticed how much she is not eating.this is

Dla

Dla

just been diagnosed thru my dermotologist and been referred to rhuemotologist dont know what to expect

what pain killers shall i take?

Confused by blood tests!

Job Centre BLUES!!

Diagnoses and bladder incontinence

I've become a recluse.........

Update allbeit a rushed one

Ups and downs

subacute cutaneous vs. systemic lupus

Taking meds while pregnant & flare up

Old scars and flares

WHY ARE NHS DIRECT more helpful than the docs?

Venus William has an autoimmune disease

i have furry skin that comes now and again.inside my lips,i stopped eating fungi last time that worked.its back again. .

No diagnosis either!

Would you like to have a pamper day in a spa and tell your story on a show for Channel 4? APPLICATIONS NOW CLOSED

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2012

I'm Sick

Stinging skin and back pain with maybe thoracic disc herniation

Does the answers ever come?

Blood

Can anyone tell me what constitutes a high anti ds dna count? Or what is a 'normal' level?I can't seem to find a definitive answer.Thanks

Lupus and implants

does any1 find the winter months harder with pains etc+the seasonal effictive disorder begins to kicks in too!!

Things Going on Upper Side

carers

Booooooooooooooo

Please help me get this off the ground, I could really do with a hand.

my mum is 82 and losing her appetite.she has just had a fall and is staying with me.so ive noticed how much she is not eating.this is

Dla

Dla

just been diagnosed thru my dermotologist and been referred to rhuemotologist dont know what to expect

what pain killers shall i take?

Confused by blood tests!

Job Centre BLUES!!

Diagnoses and bladder incontinence

I've become a recluse.........

Update allbeit a rushed one

Ups and downs

subacute cutaneous vs. systemic lupus

Taking meds while pregnant & flare up

Old scars and flares

WHY ARE NHS DIRECT more helpful than the docs?

Venus William has an autoimmune disease

i have furry skin that comes now and again.inside my lips,i stopped eating fungi last time that worked.its back again. .

No diagnosis either!

Would you like to have a pamper day in a spa and tell your story on a show for Channel 4? ***APPLICATIONS NOW CLOSED***

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Would you like to have a pamper day in a spa and tell your story on a show for Channel 4? APPLICATIONS NOW CLOSED