Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,729 members • 28,088 posts

All posts for September 2012

prolapse repair-one for the ladies

i have front and rear prolapse-only stage 1. the gyne wants to operate. initially she said she would do it under a spinal and was only doing bladder. when i...

i have front and rear prolapse-only stage 1. the gyne wants to operate. initiall...

moss

•12 years ago

1 Reply

I thought I'd share with you where I am up to with Lupus and my treatment.

As you know I found the steroids were not for me (see previous blog where I explain how they made me want to take my own life!), the previous year I had tried...

As you know I found the steroids were not for me (see previous blog where I expl...

Maya23

•12 years ago

9 Replies

How to write a letter appealing against a incapacity decision

Dark

•12 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Am having a major flare as i had 2 stop taking Hydroxachloriquine a few months ago & nothing is helping?

The docs believe that the treatment was affecting my eyes but i know its the steroids that have done that as my eyes have gt worse since my steroid dose was...

The docs believe that the treatment was affecting my eyes but i know its the ste...

Lisa78

•12 years ago

8 Replies

Normal follow up times ?

Hi, Have UCTD for some years but recently consultant says now looking more like SLE, with high levels of abnormal blood tests six months ago. Blood tests...

Hi, Have UCTD for some years but recently consultant says now looking more like...

Riverbird

•12 years ago

4 Replies

is there anyone who can advise me pleaseI was diagnosed with sle in august and i am already on a second corse of prednisalone after a flare

up when coming off the first course, im also on plaquinal......i was wondering if anyone else has a salty taste in their mouths all the time, everything tastes...

up when coming off the first course, im also on plaquinal......i was wondering i...

auntyp

•12 years ago

4 Replies

Bupa

Well I had my blood repeated a couple of weeks back now and have been awaiting an appointment through to discuss the results with my rhuemie. I have just rang...

Well I had my blood repeated a couple of weeks back now and have been awaiting a...

megs_tom

•12 years ago

6 Replies

Sorry should have said I am receiving a company pension, could I be entitled to disability allowance with SLE

Raynauds SS and SLE

Niokke

•12 years ago

5 Replies

Can I get disability allowance as an early retired company pension? I'm 58 years old

Niokke

•12 years ago

2 Replies

I am gaining weight and have tried exercise and eating healthy, but cannot win. Anyone out there plse help. To me Lupus is so unpredictable.

Pipido36

•12 years ago

20 Replies

Fund Raising for Lupus UK

My mum has organised a fund raising day for Lupus UK, this is happening on the 29th September in Crawley West Sussex at the Horticultural Hall next to the...

My mum has organised a fund raising day for Lupus UK, this is happening on the 2...

lupydragon

•12 years ago

2 Replies

Possible panic attack??

Well I had a very funny turn last night. I had been to the shops around dinner time and noticed a pain in my right shoulder. This steadily got worse as the day...

Well I had a very funny turn last night. I had been to the shops around dinner t...

megs_tom

•12 years ago

12 Replies

sick and tired of esa

after my fight with esa it has left me with panick attacks scared to go out and answer my phone and my door have thought about ending my life got tablets from...

after my fight with esa it has left me with panick attacks scared to go out and ...

rusty

•12 years ago

9 Replies

Re methortrexate and emotions

I have been on methortrexateI for 7 weeks hit some stress and finding it hard to control my emotions the nurse says I need to avoid stress. That is very well...

I have been on methortrexateI for 7 weeks hit some stress and finding it hard to...

witch2

•12 years ago

4 Replies

stressed scared nobody to talk to...

I've had lupus for five years now + luckily only ever had 1"big"flare up I've had bits n bobs here and there but nothing like what I'm experiencing...

I've had lupus for five years now + luckily only ever had 1"big"flare up I've ha...

X-Jojom-X

•12 years ago

17 Replies

my daughter is struggling

my daughter has sle and von willibrands disease and shes 16. shes become so emotional and finding things hard to deal with, shes finding school really...

my daughter has sle and von willibrands disease and shes 16. shes become so emot...

smurfette

•12 years ago

4 Replies

Do You have any suggestion about how I can deal with my employer ?

I am confused and I am a bit lost... I am working over 6 years in a private, reputable school. When I started the job I told my employer about my health...

I am confused and I am a bit lost... I am working over 6 years in a private, rep...

ewela

•12 years ago

5 Replies

Finally after you have, you haven't scenarios It has been confirmed that I have MCTD.

Anyone have any suggestions as to what meds I should be taking? Many thanks

Tinalou

•12 years ago

9 Replies

Pilates, swimming and omega 3

Hi all, hope this finds you all as well as can be! I had an appointment with my gp yesterday to review the tablets I am taking. She was saying to me how it...

Hi all, hope this finds you all as well as can be! I had an appointment with ...

megs_tom

•12 years ago

21 Replies

People's view on SLE

Hi, I was diagnosed with SLE approx 7 years ago. As the years have gone by it has got worse. The one thing I find really hard about this disease is that you...

Hi, I was diagnosed with SLE approx 7 years ago. As the years have gone by it h...

sarahroly

•12 years ago

32 Replies

i have lupus SLE and my nethew as autism is this a link.And is any 1 in the same situion at all.

joshsammy

•12 years ago

16 Replies

dose any 1 take mepacrine 100mg tab twice a week if so what side affects do you get .

joshsammy

•12 years ago

4 Replies

Are you sensitive to Energy-Saving Light Bulbs and live in Wales?

***Applications are now closed*** We have been approached today by BBC Wales who are currently working on an episode of the TV show, X-Ray. The show...

***Applications are now closed*** We have been approached today by BBC Wales ...

Paul_Howard

Partner•12 years ago

1 Reply

Just moved, stressed and exhausted, no GP yet, need advice.

Hi All I have just move to Manchester – the past two weeks have been really stressful and EXHAUSTING – and I’m a wreck. I haven’t registered with a GP yet...

Hi All I have just move to Manchester – the past two weeks have been really s...

SRamkin

•12 years ago

2 Replies

7 water infections in 3 months. Is this common?

I'm constantly suffering with painful water infections. As soon as one has cleared up, I get another one. I have never suffered from them before I had lupus....

I'm constantly suffering with painful water infections. As soon as one has clear...

purple-lou

•12 years ago

8 Replies

enlarged colon

I have just had double ballon colonoscopy and i have 60-70% enlarged colon and inflammation areas on the inside wall of the colon- i wondered if anyone else...

I have just had double ballon colonoscopy and i have 60-70% enlarged colon and i...

NiksB

•12 years ago

5 Replies

What dose steroids do you manage on whilst taking mycophenolate?

Evening all, I have come to the conclusion that I need to take a minimum 20mg prednisilone to feel human. A couple of months ago I started...

Evening all, I have come to the conclusion that I need to take a minimum 20...

tiredmum

•12 years ago

9 Replies

Could i live without steroids?

I have been on prednisolone for 32 years. My rheumy has been posted to Singapore, and i met my new Rheumy a few weeks back. I have been on 6mg of steroids for...

I have been on prednisolone for 32 years. My rheumy has been posted to Singapore...

caz59

•12 years ago

13 Replies

Does anyone else have SLE and Type 1 diabetes?- struggling big time!

Hi! I am just wondering if anyone else has SLE and Type 1 diabetes and if so, how do you cope with both? I'm 27 and have SLE (been diagnosed 1 yr, mostly...

Hi! I am just wondering if anyone else has SLE and Type 1 diabetes and if so,...

heidieidi

•12 years ago

6 Replies

Creepy scalp

Does anyone get what I could call a 'creepy scalp'? It's like there's an insect crawling through my hair in just one small area of my head. Or like that...

Does anyone get what I could call a 'creepy scalp'? It's like there's an insect...

Coppernob

•12 years ago

20 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2012

prolapse repair-one for the ladies

I thought I'd share with you where I am up to with Lupus and my treatment.

How to write a letter appealing against a incapacity decision

Am having a major flare as i had 2 stop taking Hydroxachloriquine a few months ago & nothing is helping?

Normal follow up times ?

is there anyone who can advise me pleaseI was diagnosed with sle in august and i am already on a second corse of prednisalone after a flare

Bupa

Sorry should have said I am receiving a company pension, could I be entitled to disability allowance with SLE

Can I get disability allowance as an early retired company pension? I'm 58 years old

I am gaining weight and have tried exercise and eating healthy, but cannot win. Anyone out there plse help. To me Lupus is so unpredictable.

Fund Raising for Lupus UK

Possible panic attack??

sick and tired of esa

Re methortrexate and emotions

stressed scared nobody to talk to...

my daughter is struggling

Do You have any suggestion about how I can deal with my employer ?

Finally after you have, you haven't scenarios It has been confirmed that I have MCTD.

Pilates, swimming and omega 3

People's view on SLE

i have lupus SLE and my nethew as autism is this a link.And is any 1 in the same situion at all.

dose any 1 take mepacrine 100mg tab twice a week if so what side affects do you get .

Are you sensitive to Energy-Saving Light Bulbs and live in Wales?

Just moved, stressed and exhausted, no GP yet, need advice.

7 water infections in 3 months. Is this common?

enlarged colon

What dose steroids do you manage on whilst taking mycophenolate?

Could i live without steroids?

Does anyone else have SLE and Type 1 diabetes?- struggling big time!

Creepy scalp

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