Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,195 posts

All posts for July 2012

? Memory problems, Dizziness

I have both of these symptoms and was diagnosed with Hughes syndrome, its on healthunlocked maybe worth taking a look Good luck Karen

I have both of these symptoms and was diagnosed with Hughes syndrome, its on hea...

daisyd

•12 years ago

2 Replies

Abdo pain and shortness of breath

Hey guys I'm sure I am in a flare at the moment with extreme tiredness, joint pains, headache and swollen glands however over the past few hours I have...

Hey guys I'm sure I am in a flare at the moment with extreme tiredness, joint pa...

Hayz24

•12 years ago

2 Replies

vertigo?

Does anyone else get a weird sensation sometimes when walking along or even when sitting? It feels like I can't keep my head up straight without feeling...

Does anyone else get a weird sensation sometimes when walking along or even when...

natal1a

•12 years ago

10 Replies

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How do we cope?

Well I've taken advice from my ten year old nephew... "It must be so hard living with lupus, don't you just want to cry all the time?" Yes I do, but scared...

Well I've taken advice from my ten year old nephew... "It must be so hard livin...

Hidden

•12 years ago

8 Replies

I have systemic Lupus. Has anyone justed stopped going to the doctor?

I have SLE. over 4 years diagnosed! I did a whole year of high doses of steroids and plaquiel. And I ended up on a vent. I had steroid phycosis. My bood work...

I have SLE. over 4 years diagnosed! I did a whole year of high doses of steroids...

krisdy

•12 years ago

20 Replies

Bothered about looks

I was a size 12 but now i am size 18 and my size goes up and down becos of my swellings and water retention. it is really annoying cos it not fat it just...

I was a size 12 but now i am size 18 and my size goes up and down becos of my sw...

ijeasike

•12 years ago

29 Replies

Can anyone give me some advise??

I have been told last week that I have boarderline Lupus. They didn't really give me much advise just said it varies in person to person. What does this mean...

I have been told last week that I have boarderline Lupus. They didn't really giv...

MJLS

•12 years ago

4 Replies

Just wondering.....

I often get a ringing sound in my ears, it is not loud or particularly annoying but I have had it for years I was wondering if anyone else experiences the same?

I often get a ringing sound in my ears, it is not loud or particularly annoying ...

gertie

•12 years ago

7 Replies

This may sound odd!

There are time when (subconsciously) my brain tells my hand to use a grabbing motion when I want to pick something up but my fingers go straight instead of a...

There are time when (subconsciously) my brain tells my hand to use a grabbing mo...

gertie

•12 years ago

2 Replies

Lower back

Has any body else experienced lower back with urnie problems

lpatterson

•12 years ago

12 Replies

lots of medications and blood tests

I have just been diagnoised with lupus nephritis. it has been a roller coaster ride (loads of medication) i just started my first dose of cyclophosphomide and...

I have just been diagnoised with lupus nephritis. it has been a roller coaster r...

ijeasike

•12 years ago

7 Replies

Blood/Haemotology

At last my HB level has risen to 10.5, after having a 3 unit blood transfusion. But my platlets are still low! I have been referred to the Haemotology Clinic...

At last my HB level has risen to 10.5, after having a 3 unit blood transfusion. ...

alyj

•12 years ago

6 Replies

Financial help ?

my daughter has recently diagnoised with SLE and Nephitis stage 4. Due to her being a minor and having to be present at all hospital appointments, I am...

my daughter has recently diagnoised with SLE and Nephitis stage 4. Due to ...

MiaMunch

•12 years ago

9 Replies

Finding it difficult to cope :-(

Hey am new on here- have been reading posts for a while but first time posting. I got finally diagnosed with lupus in feb this year after 2 years Of being...

Hey am new on here- have been reading posts for a while but first time posting. ...

Hayz24

•12 years ago

8 Replies

Anyone else who has lupus nephritis have constant micro blood in urine even after a year of treatment? protein reduced but not blood

poodlegal

•12 years ago

11 Replies

i need help i not got loups but my sister did she past away.she was 49.i very hard for me i cant get on w my life

mame

•12 years ago

4 Replies

Borderline SLE during pregnancy now in remission

Hi there....i have been hovering for some time now, so apology's im diving straight in with a question! I was diagnosed with Lupus SLE in August 2006, sadly i...

Hi there....i have been hovering for some time now, so apology's im diving strai...

Angelmumma

•12 years ago

2 Replies

flare?

hi i was very sick the other day and started to get a tempreture. any advice

tracyxx

•12 years ago

3 Replies

Has anyone who drives mentioned lupus/fibro to DVLA?

Someone mentioned you should let the DVLA know/car insurance if you have lupus/fibro. Is this something we should do?

Someone mentioned you should let the DVLA know/car insurance if you have lupus/f...

loopy-lou

•12 years ago

10 Replies

Nerve blocks

I have just had my second nerve block to help with my Fibro/Lupus. They really do make living these these conditions more tolerable. As anyone had these for a...

I have just had my second nerve block to help with my Fibro/Lupus. They really d...

Alexandria

•12 years ago

6 Replies

Mosquito bites

Before I was diagnosed I was always getting bitten by Mosquitos and horse flies. Now that my lupus is flaring again they are back with a vengeance. Does anyone...

Before I was diagnosed I was always getting bitten by Mosquitos and horse flies....

Alupie

•12 years ago

14 Replies

Help! Can't get esa or job??

Hi, I have SLE, sjorgrens, fibromyalgia and autoimmune hepatitis. I get full mobility dla and medium care. I was turned down for esa as my husband works and...

Hi, I have SLE, sjorgrens, fibromyalgia and autoimmune hepatitis. I get full mob...

Cobbers

•12 years ago

6 Replies

Has anyone had experience of having to come off aspirin because of stomach damage?

Hi, I have SLE, Sjogrens, APs and hypermobility syndrome, which have combined to damage my joints and GI tract amongst other things. I have severe gastritis,...

Hi, I have SLE, Sjogrens, APs and hypermobility syndrome, which have combined to...

juliapulia

•12 years ago

6 Replies

can you have dle with sle symtoms even if your sle test shows nothing? o have I lost the plot! thanks

nelly27

•12 years ago

6 Replies

Heavy eyelids

Sometimes my eyelids feel so heavy, and my forehead feels like its hanging over my eyebrows! I have also noticed that on occadions in photographs, one eye...

Sometimes my eyelids feel so heavy, and my forehead feels like its hanging over ...

Angelcake

•12 years ago

11 Replies

ANAs jumping around?

Hi, my ANA has been 1:2560 in six blood tests. Now the latest showed it to be just 1:640. Is it possible that the ANA can jump around like this?

Hi, my ANA has been 1:2560 in six blood tests. Now the latest showed it to ...

Schnulke

•12 years ago

5 Replies

blood results have change

have discoid lupus and see a skin specialist but my blood levels have changed and so now being referred to reumatology and info would be helpful little bit...

have discoid lupus and see a skin specialist but my blood levels have changed an...

chelle38

•12 years ago

3 Replies

'Mild' Lupus ?

My rheumy says I have 'mild' lupus but is not as yet prepaired to write it on my notes fully as he says even though it is a small world it has a big meaning....

My rheumy says I have 'mild' lupus but is not as yet prepaired to write it on my...

tillyanna

•12 years ago

13 Replies

Pleuritic pain?

I've had several big infections during the past year. All treated aggressively with oral antibiotics (UTIs and osteomyelitis & sinusitis and cellulitis). My...

I've had several big infections during the past year. All treated aggressively ...

Barnclown

•12 years ago

4 Replies

hip symptoms

can anyone tell me who suffers from hip pain what symptoms they get. lately i have been feeling sore and stiff when i walk a lot, which i know is a commom...

can anyone tell me who suffers from hip pain what symptoms they get. lately i ha...

Hidden

•12 years ago

21 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2012

? Memory problems, Dizziness

Abdo pain and shortness of breath

vertigo?

How do we cope?

I have systemic Lupus. Has anyone justed stopped going to the doctor?

Bothered about looks

Can anyone give me some advise??

Just wondering.....

This may sound odd!

Lower back

lots of medications and blood tests

Blood/Haemotology

Financial help ?

Finding it difficult to cope :-(

Anyone else who has lupus nephritis have constant micro blood in urine even after a year of treatment? protein reduced but not blood

i need help i not got loups but my sister did she past away.she was 49.i very hard for me i cant get on w my life

Borderline SLE during pregnancy now in remission

flare?

Has anyone who drives mentioned lupus/fibro to DVLA?

Nerve blocks

Mosquito bites

Help! Can't get esa or job??

Has anyone had experience of having to come off aspirin because of stomach damage?

can you have dle with sle symtoms even if your sle test shows nothing? o have I lost the plot! thanks

Heavy eyelids

ANAs jumping around?

blood results have change

'Mild' Lupus ?

Pleuritic pain?

hip symptoms

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