Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2012

Hi I have just joined!

I have been on Methotrexate Injections for over a year and have just been increased. I am getting very bad side effects & really feeling unwell. Can anyone...

I have been on Methotrexate Injections for over a year and have just been increa...

lilstumps

•12 years ago

8 Replies

vision problems

i am recently diagnosed with sle, symptoms for over 3 years but originally diagnosed with RA.....I have noticed recently during a flair that i am getting...

i am recently diagnosed with sle, symptoms for over 3 years but originally diagn...

jani4063

•12 years ago

13 Replies

Are there any support groups in the North East

jani4063

•12 years ago

2 Replies

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refused esa o points awarded

i cant believe the letter today from esa saying i scored 0 points needed 15 points to get esa my medical examination was done my a nurse and when she took my...

i cant believe the letter today from esa saying i scored 0 points needed 15 poin...

charmaineholmes

•12 years ago

24 Replies

Discoid lupus !

My dr is convinced this is my diagnosis even tho my biopsy says jessners. Do anyone have any advice about the attractive rash that at the mo covers 1 half of...

My dr is convinced this is my diagnosis even tho my biopsy says jessners. Do any...

Frankie1

•12 years ago

8 Replies

Brighton support group !

Tried to book the day off work to come to the group for the first time on friday 20th ! was really looking forward to it but cant get the day off as i'm...

Tried to book the day off work to come to the group for the first time on friday...

larissa

•12 years ago

3 Replies

flare !!!??

with lupus do i need to visit my doc every time i have a flare !!!??? think i am having one at the mo so taking it easy !

with lupus do i need to visit my doc every time i have a flare !!!??? think i a...

larissa

•12 years ago

5 Replies

Mrs Lupus

Just wanted to share this with you.

janiceray

•12 years ago

20 Replies

facial rash

can anyone please tell me if or when they get the facial rash does it become very sore and burning and also very very dry. i have one at the moment and it is...

can anyone please tell me if or when they get the facial rash does it become ver...

Hidden

•12 years ago

15 Replies

does anyone get a weird metal taste in their mouth !!!???

larissa

•12 years ago

8 Replies

Great news about The National Migraine Centre

The National Migraine Centre is now live as a forum on HealthUnlocked... so for those of you who have friends and relatives with awful headaches/migraines, not...

The National Migraine Centre is now live as a forum on HealthUnlocked... so for ...

MaryF

•12 years ago

8 Replies

I have Lupus

I have been told I have pressure on right side of heart showed up after echo done now have to have ct angiogram has anyone else have info on this please?

I have been told I have pressure on right side of heart showed up after echo don...

Maur

•12 years ago

1 Reply

anti-biotics and lupus

Having had two kidney stone removal ops I now find myself with an e coli infection which ended up with me in hospital for 10 days. Have become really ill...

Having had two kidney stone removal ops I now find myself with an e coli infecti...

irenestephen

•12 years ago

11 Replies

Mycophenolate and methotrexate?

Just wondering of anyone is taking both mycophenolate and methotrexate? Mycophenolate helping kidneys but not joints so rheumy wants me to start methotrexate...

Just wondering of anyone is taking both mycophenolate and methotrexate? Mycophen...

lucyloo023

•12 years ago

1 Reply

Scleritis

Does anyone suffer from this? Just started the last few days, ouch it is uncomfortable and i thought my eye sight had changed. Jello

Does anyone suffer from this? Just started the last few days, ouch it is unco...

Jello

•12 years ago

9 Replies

toes !!!!! ouch !!!!

Woke up this morning and two toes on my foot really hurt and stiff !!!!! It reminds me of about 2 yrs ago , when for no apparent reason my foot was so bad i...

Woke up this morning and two toes on my foot really hurt and stiff !!!!! It remi...

larissa

•12 years ago

7 Replies

Photosensitivity & New Ultra Bright Headlights?

I really suffer badly from photosensitivity, wearing dark glasses all day, but these 'new' super bright headlights are causing me real problems driving, so...

I really suffer badly from photosensitivity, wearing dark glasses all day, but t...

Welshexile

•12 years ago

9 Replies

pigmanorm cream

Hi has anyone used pigmanorm cream on the face around the mouth area? IF so how good is it and how quick are the results. I have a 5 o'clock...

Hi has anyone used pigmanorm cream on the face around the mouth area? IF ...

skin1

•12 years ago

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April's Blog Topic

This month’s topic will follow on from March’s topic and ask you if and how you camouflage your rash. Are there any cosmetics you’ve found to be particularly...

This month’s topic will follow on from March’s topic and ask you if and how you ...

Paul_Howard

Partner•12 years ago

14 Replies

itching everywhere !

Thought i got away with no side affects from taking Pla........ but now keep itching all over ( been taking it a week now) anyone else experienced this ? when...

Thought i got away with no side affects from taking Pla........ but now keep itc...

larissa

•12 years ago

6 Replies

suddenly !!!!!!!

Been feeling quite good lately and today had a nice time pottering about in town and coffee with my mum , then got home, had a bit of a headache and then i...

Been feeling quite good lately and today had a nice time pottering about in town...

larissa

•12 years ago

6 Replies

plaquenil - good fr clots?

Just enquiring to know whether this medication is good for clots, as was told that it is, what experience do you have?????

Just enquiring to know whether this medication is good for clots, as was told th...

daisy11

•12 years ago

3 Replies

facebook group !!!!???

i've looked for the group Lupus is Real but it dosent come up !!!!!?????

larissa

•12 years ago

6 Replies

short term memory loss

I have recently been diagnosed with SLE, but i have noticed recently that my short term memory is dreadful, to the point were i have to write things down...

I have recently been diagnosed with SLE, but i have noticed recently that my sho...

jani4063

•12 years ago

22 Replies

fibroepithelial polyps have been found what next

in the past month i have been told I not only have connective tissue disease, raynards phase 3, inflamitory arthritis, sygreons, but now have hypothyroid, and...

in the past month i have been told I not only have connective tissue disease, ra...

luupysue

•12 years ago

1 Reply

Dermatomyositis

Hi all, Has anyone been diagnosed with dermatomyositis ? I have sle,sjorgrens, connective tissue disease and now this. it would be good to know as I...

Hi all, Has anyone been diagnosed with dermatomyositis ? I have sle,sjorgren...

Skid

•12 years ago

4 Replies

I have a constant dull ache on right side of back but its not my kidneys... what is it??

I am on hydroxychloroquine and not sure whether it is a side effect but i have had a constant dull ache on the right side of my back for at least a month now....

I am on hydroxychloroquine and not sure whether it is a side effect but i have h...

staceybelle23

•12 years ago

3 Replies

Change !!??

Whats the chances of mild Lupus changing into severe ( affecting main organs ) Lupus !!!???? I know drs can control it , but to what degree !!!!??? can they...

Whats the chances of mild Lupus changing into severe ( affecting main organs ) L...

larissa

•12 years ago

12 Replies

mild Lupus

my rhuemy thinks i prob have mild Lupus ! None of my organs are affected so i cant understand why he said SLE !!!???? my dry mouth may be to do with Lupus and...

my rhuemy thinks i prob have mild Lupus ! None of my organs are affected so i ca...

larissa

•12 years ago

3 Replies

Plaquenil !

Was wondering when is the soonest anyone noticed improvements after taking this !!!!???

Was wondering when is the soonest anyone noticed improvements after taking this ...

larissa

•12 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2012

Hi I have just joined!

vision problems

Are there any support groups in the North East

refused esa o points awarded

Discoid lupus !

Brighton support group !

flare !!!??

Mrs Lupus

facial rash

does anyone get a weird metal taste in their mouth !!!???

Great news about The National Migraine Centre

I have Lupus

anti-biotics and lupus

Mycophenolate and methotrexate?

Scleritis

toes !!!!! ouch !!!!

Photosensitivity & New Ultra Bright Headlights?

pigmanorm cream

April's Blog Topic

itching everywhere !

suddenly !!!!!!!

plaquenil - good fr clots?

facebook group !!!!???

short term memory loss

fibroepithelial polyps have been found what next

Dermatomyositis

I have a constant dull ache on right side of back but its not my kidneys... what is it??

Change !!??

mild Lupus

Plaquenil !

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