Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2012

Ability Disabled

Ability Disabled I've been trying to pin down a hazy idea that's been floating about in my blog-head for a few weeks now. Disability. People greater...

Ability Disabled I've been trying to pin down a hazy idea that's been floatin...

janiceray

•12 years ago

9 Replies

Norfolk Lupus Group

For all Norfolk Lupies, we will be having a meeting on the 24th March at 11.00am in Room 12 at the NNUH. Please try and attend as this is our first one of the...

For all Norfolk Lupies, we will be having a meeting on the 24th March at 11.00am...

lupiedeb

•12 years ago

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My Lupus story, The other side affect: Soul searching.

I wanted to share my story because I have found strength from reading others. I am 27 and was diagnosed with Lupus 6 months ago after months of not...

I wanted to share my story because I have found strength from reading others. ...

Sandhu

•12 years ago

25 Replies

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still fighting

Hi everyone really fed up at moment was on e.s.a now they have taken it away gave me a giro for 48.22 dont know how they expect me to live. been backwards...

Hi everyone really fed up at moment was on e.s.a now they have taken it away ...

Lifeback

•12 years ago

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Hi. How can I find out how many People with Lupus live in Southend on Sea, Essex?

AnaBorges

•12 years ago

7 Replies

Anyone had to have medical for D W P?

I currently get DWP benefits but have had to apeal each time it needed renewing , and now I have recived a letter suing that I need to go for a medical ....

I currently get DWP benefits but have had to apeal each time it needed renewing ...

Kerro

•12 years ago

3 Replies

Getting a diagnosis

Hello, I'll try to keep this brief but you know how these things go! I have a 'sort of' diagnosis of seronegative Rheumatoid Arthritis. My current...

Hello, I'll try to keep this brief but you know how these things go! I hav...

Hidden

•12 years ago

2 Replies

Diagnosed last month but what does my future hold.

Ive been told I have lupus, a low white blood cell count and very defficient in vitamin D, and the buttetfly rash on my face, feeling very down. Prescribed...

Ive been told I have lupus, a low white blood cell count and very defficient in ...

moontreegoddess

•12 years ago

16 Replies

Throat swelling medication

One of my main symptoms is swelling round my throat. It feels like my windpipe is being cut off and can be extremely frightening. I have to sit up in bed at...

One of my main symptoms is swelling round my throat. It feels like my windpipe ...

ChocolateTeapot

•12 years ago

6 Replies

Kidney Biopsy another hurdle in this consant battle completed

well i had my first kidney biopsy on friday what a toal crap day that was i was told to ring the day before to make sure a bed was avalible so i did yes i was...

well i had my first kidney biopsy on friday what a toal crap day that was i was ...

helen3d

•12 years ago

9 Replies

re benefits/work/Lupus

Hi :0), any advice on how I can go about things... was dx'd with Lupus late last yr, was really struggling working...since moved in Jan '12 & still job...

Hi :0), any advice on how I can go about things... was dx'd with Lupus late l...

Smiler1

•12 years ago

8 Replies

Hi , is anyone on skype, we could help each other with what we can and vice versa. Diagnosed with sle in2009, and fibromyalgia in 2010

linda36

•12 years ago

7 Replies

Butterfly Rash question for the ladies

I suffer with the butterfly rash across my nose and i cant seem to find the right make up to hide it best i can as im fed up with everyone asking are you sun...

I suffer with the butterfly rash across my nose and i cant seem to find the righ...

Jennie73

•12 years ago

9 Replies

MMF or Azthoprine?

My consultant wants to increase my MMF by a further 500mg for a few months whilst I am still on 5mg steroid. He is hoping that in the next few months for me to...

My consultant wants to increase my MMF by a further 500mg for a few months whils...

Lulabelle

•12 years ago

17 Replies

FEET!

My boyfriend recently bought me a pair of these because i was having a lot of problems with my feet caused by lupus, i have been wearing them for the last few...

My boyfriend recently bought me a pair of these because i was having a lot of pr...

Samx

•12 years ago

7 Replies

Incapacity benefit

Feeling a little down at the moment after 30yrs of problems with SLE, Fibromyalgia and S/S . Two Tia and everything else that pops up with having these...

Feeling a little down at the moment after 30yrs of problems with SLE, Fibromyalg...

Gillyg

•12 years ago

3 Replies

I am really down, I fall over constantly and cant get up unaided. Is any one else like this? I feel alone please help.

linda36

•12 years ago

32 Replies

does anybody get there treatment via intrevenous drip

my medication not working consultant starting me on new drugs via drip

ladylou

•12 years ago

2 Replies

ST.THOMAS HOSPITAL

Does anybody know how to get an appointment with ST.THOMAS HOSPITAL do I have to go through my GP or my hospital as my mum contacted my consultant today...

Does anybody know how to get an appointment with ST.THOMAS HOSPITAL do I have to...

Jennie73

•12 years ago

9 Replies

Could anybody confirm lupus group in brighton

Hi my daughter was in starbucks in Brighton the one near the new library and there was a sign up advertising Lupus group next meeting 16 March 11am in...

Hi my daughter was in starbucks in Brighton the one near the new library and the...

bettie

•12 years ago

4 Replies

Keeping Fit

I would like to hear from you as to how you manage to keep fit. As all Lupies know, some days you can walk half mile, other days you are lucky to be able...

I would like to hear from you as to how you manage to keep fit. As all Lupi...

tiredmum

•12 years ago

14 Replies

I have a band of tight pain around my hip area, I think from those muscles which makes me so stiff that it makes it hard to walk.

Also my groin on both sides fells very inflamed. Does anyone else have this? and any tips to ease it?

Also my groin on both sides fells very inflamed. Does anyone else have this? and...

jomul

•12 years ago

5 Replies

March's Blog Topic

March is here, so let's begin the discussion on our next 'Topic of the Month'. Our topic for March is 'Itchy Rashes' Do you have any tips on how to...

March is here, so let's begin the discussion on our next 'Topic of the Month'. ...

Paul_Howard

Partner•12 years ago

17 Replies

vomiting now i just feel like giving up :(

As well as blisters tiredness mouth ulcers skin being itchy bowel problems im now suffering with vomiting theres just no end to it all can't stand it dont know...

As well as blisters tiredness mouth ulcers skin being itchy bowel problems im no...

Jennie73

•12 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2012

Ability Disabled

Norfolk Lupus Group

My Lupus story, The other side affect: Soul searching.

still fighting

Hi. How can I find out how many People with Lupus live in Southend on Sea, Essex?

Anyone had to have medical for D W P?

Getting a diagnosis

Diagnosed last month but what does my future hold.

Throat swelling medication

Kidney Biopsy another hurdle in this consant battle completed

re benefits/work/Lupus

Hi , is anyone on skype, we could help each other with what we can and vice versa. Diagnosed with sle in2009, and fibromyalgia in 2010

Butterfly Rash question for the ladies

MMF or Azthoprine?

FEET!

Incapacity benefit

I am really down, I fall over constantly and cant get up unaided. Is any one else like this? I feel alone please help.

does anybody get there treatment via intrevenous drip

ST.THOMAS HOSPITAL

Could anybody confirm lupus group in brighton

Keeping Fit

I have a band of tight pain around my hip area, I think from those muscles which makes me so stiff that it makes it hard to walk.

March's Blog Topic

vomiting now i just feel like giving up :(

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