Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2012

Floppy hats and the sun

does anyone find wearing a floppy hat in spring/summer really help for protection of uv sun my husband wants to go abroad this year and im worried about the...

does anyone find wearing a floppy hat in spring/summer really help for protectio...

Hidden

•12 years ago

15 Replies

Eye tests and cataracts???

I have been taking steriods continuously various doses for 7 years, I am 44 and have been having yearly eye tests for the last 4 years. I need glassess for the...

I have been taking steriods continuously various doses for 7 years, I am 44 and ...

deadasadodo

•12 years ago

3 Replies

Potentially about to enter a new relationship, suffering with mild lupus, do I tell all or break them in gently?

They know I've been ill, and take meds everyday to keep me ok - but do I go the whole hog of how bad it could get, but also I may not get that bad... Only...

They know I've been ill, and take meds everyday to keep me ok - but do I go the ...

Nickle

•12 years ago

7 Replies

Want to take advantage of all our features? Just log in!

St Thomas Hospital

please can anyone tell me if they have been successful in getting an appointment at st thomas as im going to try and get my doctor to refer me.

please can anyone tell me if they have been successful in getting an appointment...

Hidden

•12 years ago

4 Replies

News & Views - Spring 2012 - OUT NOW

The Spring 2012 Issue of News & Views was packed in a record-breaking time today, especially considering the need to add raffle tickets and World Lupus Day...

The Spring 2012 Issue of News & Views was packed in a record-breaking time today...

Paul_Howard

Partner•12 years ago

2 Replies

Doctors...

Just to inject a bit of positivity into things ;0) I finally got a Dr this week!! :), she doesn't know much about Lupus (yet ;> ) so has referred me to a...

Just to inject a bit of positivity into things ;0) I finally got a Dr this we...

Smiler1

•12 years ago

3 Replies

Should I return to work (a primary school) where there are many cases of Slapped Cheek? Is it safe or am I at risk?

I take methotrexate, hydroxychloroquine, warfarin, nifedipine and escitalopram. I have SLE, raynauds and antiphospholipid syndrome. I have been off work for a...

I take methotrexate, hydroxychloroquine, warfarin, nifedipine and escitalopram. ...

Yols

•12 years ago

8 Replies

Lower back ache

I was diagnosed with lupus recently and I wondered if anyone here has a lower back ache. I had a baby 10 months ago and since then I've been in pain every day...

I was diagnosed with lupus recently and I wondered if anyone here has a lower ba...

moontreegoddess

•12 years ago

7 Replies

St Thomas' Hospital Visit Update.

Hello! So I have seen the specialist and had the usual tests, lol I love it when they say not gonna be too many bloods taken then they take like 14 tubes...

Hello! So I have seen the specialist and had the usual tests, lol I love it w...

kaw86

•12 years ago

3 Replies

Buprenophine

Hi everyone,,heu i was wondering if anyone else had tried Buprenophine? i am using in the patch form,,apply to skin and after 7days apply a new one.I have...

Hi everyone,,heu i was wondering if anyone else had tried Buprenophine? i am usi...

Hidden

•12 years ago

1 Reply

does anyone get the feeling of light headed and get the shakes.

i keep feeling lightheaded during the day & my hands can start shaking even when im just sitting down it comes & goes i am on hydroxychloroquine 200mg x...

i keep feeling lightheaded during the day & my hands can start shaking even whe...

charmaineholmes

•12 years ago

6 Replies

New Member!

Just stumbled on this website. I am new. I was diagnosed 10 years ago. By the time I was diagnosed, Lupus had attacked on of my lungs, creating Fibrosis. On...

Just stumbled on this website. I am new. I was diagnosed 10 years ago. By the ti...

muchoka

•12 years ago

8 Replies

Help with TIA and new medicine

Ok have been to the doctors this morning about reacurant UTI, I am short of breath and very feel extremely tired. The last two seem to be common with me when I...

Ok have been to the doctors this morning about reacurant UTI, I am short of brea...

Gillyg

•12 years ago

3 Replies

Im new to lupus just been diagnosed.

Sadly i have just been told i have lupus it was such a shock as it has been well over a year since my first symptoms started.After a lot of doc visits he...

Sadly i have just been told i have lupus it was such a shock as it has been well...

Hidden

•12 years ago

25 Replies

Been to the doctors and hospital about my Lupus

I'm still down still got all my flare ups my mum took me to see my GP and then to the hospital to see my consultant both occassions sobbed my mum had to speak...

I'm still down still got all my flare ups my mum took me to see my GP and then t...

Jennie73

•12 years ago

8 Replies

whom suffers chest and lung pain, is it fybriomialga or lupus....

does anyone whom also suffers from fybriomialga experience sever pain in there chest and also there lungs, i know chest pain is a syptom but iam also...

does anyone whom also suffers from fybriomialga experience sever pain in there c...

mojo

•12 years ago

5 Replies

Beware of the sun!

Can't believe it, went for a meander round the bootsale yesterday morning, trimmed the strawberries for half an hour in the afternoon and fed the ducks at tea...

Can't believe it, went for a meander round the bootsale yesterday morning, trimm...

tiredmum

•12 years ago

5 Replies

baby or no baby

My daughter and her husband are thinking about starting a family,only thing is they are worried his mother has Fibromyaligia, I have lupus, sicca, underactive...

My daughter and her husband are thinking about starting a family,only thing is t...

luupysue

•12 years ago

11 Replies

Azathioprine and acne

I'm having horrible acne on my face and upper body and wonder if it's connected to azathioprine?

I'm having horrible acne on my face and upper body and wonder if it's connected ...

Eleri

•12 years ago

5 Replies

Brassed off and worried about my future

Hi all. I have lupus with all the usual symptoms, lethargy, fatigue, aches and pains, itchy permanent rashes and so on Just been told I am diabetic and...

Hi all. I have lupus with all the usual symptoms, lethargy, fatigue, aches and p...

Jeffmoz50

•12 years ago

4 Replies

Life will never be the same !!

Hi all im sorry but im in need of a moan and no one else seems to understand how i feel!!! i was diagnosed with lupus in dec 2011 after 3 years of going...

Hi all im sorry but im in need of a moan and no one else seems to understand how...

Hidden

•12 years ago

11 Replies

if anyone out there with lupus needs a shoulder im here

karen75

•12 years ago

8 Replies

Hi there, was wondering if anyone out there has antiphospholipid syndrome contracted from SLE and had children??

Sarahmac

•12 years ago

10 Replies

Another diagnosis!!

Went to my Consultant yesterday who now says I've got fibromyalgia as well as lupus - am a bit relieved as knew something else wasn't right and thought I was...

Went to my Consultant yesterday who now says I've got fibromyalgia as well as lu...

senorascully

•12 years ago

8 Replies

living with lupus talk well recieved

i took part in a lupus talk for new doctors today giving a patient perspective, it seem to go well and lots of possative feedback though was very nervouse....

i took part in a lupus talk for new doctors today giving a patient perspective, ...

Hidden

•12 years ago

6 Replies

All thou ive been diagnosed for 3yrs i realised that i had this on its path for 26yrs so i just wanted to give some hope and smiles.

I have become stuck at home for the last 3yrs since my last bad bout of plerisy etc and after that i got the diagnose of mixed connective tissue disease( which...

I have become stuck at home for the last 3yrs since my last bad bout of plerisy ...

NiksB

•12 years ago

1 Reply

Tribunals who is a represenative??????

My question is has anyone taken a rep with them to the tribunal, they offer that you can but who should this kind person be??? I am getting info from CAB etc...

My question is has anyone taken a rep with them to the tribunal, they offer that...

NiksB

•12 years ago

5 Replies

West Midland Lupus Group AGM and Open Meeting Sunday 11th March

Our AGM is taking place this Sunday afternoon, 11th March starting 2.30pm. We have 2 speakers, Sarah Logan a LUPUS UK specialist nurse and a workshop...

Our AGM is taking place this Sunday afternoon, 11th March starting 2.30pm. We ha...

Jude65

•12 years ago

1 Reply

Rash ...

Hi all have put a pic up of my rash ..... please has anyone ever had one like this all over there body like me.... Hope your all having a gd day .... xx

Hi all have put a pic up of my rash ..... please has anyone ever had one like th...

discoqueen

•12 years ago

13 Replies

How did you come to terms with your illness?

I was wondering if anyone could help me? I have been allergic to the sun for three years but whenever I returned home from holiday and spoke to a doctor I was...

I was wondering if anyone could help me? I have been allergic to the sun for thr...

lilliekinz

•12 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2012

Floppy hats and the sun

Eye tests and cataracts???

Potentially about to enter a new relationship, suffering with mild lupus, do I tell all or break them in gently?

St Thomas Hospital

News & Views - Spring 2012 - OUT NOW

Doctors...

Should I return to work (a primary school) where there are many cases of Slapped Cheek? Is it safe or am I at risk?

Lower back ache

St Thomas' Hospital Visit Update.

Buprenophine

does anyone get the feeling of light headed and get the shakes.

New Member!

Help with TIA and new medicine

Im new to lupus just been diagnosed.

Been to the doctors and hospital about my Lupus

whom suffers chest and lung pain, is it fybriomialga or lupus....

Beware of the sun!

baby or no baby

Azathioprine and acne

Brassed off and worried about my future

Life will never be the same !!

if anyone out there with lupus needs a shoulder im here

Hi there, was wondering if anyone out there has antiphospholipid syndrome contracted from SLE and had children??

Another diagnosis!!

living with lupus talk well recieved

All thou ive been diagnosed for 3yrs i realised that i had this on its path for 26yrs so i just wanted to give some hope and smiles.

Tribunals who is a represenative??????

West Midland Lupus Group AGM and Open Meeting Sunday 11th March

Rash ...

How did you come to terms with your illness?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive