Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2012

gentle reminder

for all Norfolk Lupies and carers, we are having our first meeting of the year on Saturday 24th March at the Norfolk and Norwich University Hospital at 11.00am...

for all Norfolk Lupies and carers, we are having our first meeting of the year o...

lupiedeb

•12 years ago

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Washing additive?

Hi, Ive read that you can buy laundry additives that increase the UV protection level of clothes from about 5 to 30, the only product I've been able to find...

Hi, Ive read that you can buy laundry additives that increase the UV protection...

Jojo387

•12 years ago

5 Replies

esa medical assesment

went for medical for esa yesterday . in pain today she took blood pressure told her its giving pins & needles in arm she said its alright was not her bloody...

went for medical for esa yesterday . in pain today she took blood pressure told ...

charmaineholmes

•12 years ago

6 Replies

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Hi is anyones hair thinning due to steriods?

SARA-M

•12 years ago

8 Replies

As a sufferer of Lupus, plus now one of my children, I have had had some good care and some awful care.

This petition started by the original Staffordshire whistleblower who stood up for patients and lost her job as a junior doctor, but won her case against the...

This petition started by the original Staffordshire whistleblower who stood up f...

MaryF

•12 years ago

2 Replies

Lupus Rash- tips and advice please :).

I'm finally back on 400mg of Hydroxychloriquine but my rash seems to itch now and spreaded down my back and on my front chest and tummy. I itched it and it...

I'm finally back on 400mg of Hydroxychloriquine but my rash seems to itch now an...

kaw86

•12 years ago

8 Replies

I think i'm in love with my steroids!!!

After six weeks of really struggling, my GP finally agreed that I could have yet another course of steroids. I feel like a new woman!!! I can stay up...

After six weeks of really struggling, my GP finally agreed that I could have yet...

tiredmum

•12 years ago

12 Replies

Stoke on Trent

Is there any support groups for the stoke on Trent area. Feel like I need to connect with others in my area :)

Is there any support groups for the stoke on Trent area. Feel like I need to con...

moontreegoddess

•12 years ago

5 Replies

Live Band Night for World Lupus Day

I am organising a Live Band Night for World Lupus Day to raise awareness and money for Lupus UK! This will be at the Wetmore Whistle in Burton on Trent on the...

I am organising a Live Band Night for World Lupus Day to raise awareness and mon...

HelenSalter

•12 years ago

2 Replies

Hi,I read somewhere recently in the reply there was the comment "100% of people with lupus have allergies" do you think this is true?

Hi, I posted on another forum recently, and I had a reply that included the statement that "100% of people with lupus have allergies" Do you all A; Believe...

Hi, I posted on another forum recently, and I had a reply that included the stat...

Jojo387

•12 years ago

17 Replies

Does anyone know if theres a likeleyhood of my son also having Lupus too

Hes almost teen age, showing signs of dry eyes/mouth, light sensitivity, exhaustion,.. I'm trying not to show concern in front of him BUT with both my GP and...

Hes almost teen age, showing signs of dry eyes/mouth, light sensitivity, exhaust...

Nanuuk

•12 years ago

13 Replies

raising lupus awareness

Hi guys. 45 years old, lupus since 1999, transplant neede thanks to lupus. Nearest specialits for me 300 miles away in london, trying to raise awareness...

Hi guys. 45 years old, lupus since 1999, transplant neede thanks to lupus. Ne...

amandalilley

•12 years ago

3 Replies

looking for any information on RITUXIMAB, due to start and any info would be appreciated

ladylou

•12 years ago

6 Replies

Looking for help with which drug to go for.

Hi everyone, Im Paul, 44, diagnosed SLE in november, bit of a shock, always been fit active and busy, but stressfull situations at work have taken their toll i...

Hi everyone, Im Paul, 44, diagnosed SLE in november, bit of a shock, always been...

pfoz88

•12 years ago

10 Replies

HELP AM I SUFFERING FROM HYDROXYCHLOROQUINE SIDE EFFECTS !!!

please can anyone tell me if they have had bad side effects from this drug, i have had in the last week or two really bad stomach cramps and bad...

please can anyone tell me if they have had bad side effects from this drug, ...

Hidden

•12 years ago

16 Replies

pains in lower legs

hi everyone i have had lupus now for 20 years i feel tried all the time often going to sleep during the day now i have very bad pains in my legs and some times...

hi everyone i have had lupus now for 20 years i feel tried all the time often go...

else5

•12 years ago

7 Replies

Is there a support group in cardiff

helly400

•12 years ago

2 Replies

Biopsy results :(

well got my biopsy results yesterday not great news there infected so i have to have an iv drip every 2 weeks for the next 3 months im so sick of this lupus...

well got my biopsy results yesterday not great news there infected so i have to...

helen3d

•12 years ago

3 Replies

I wish Lupus would give me a break

Still feeling the same and another sleepless night :(

Jennie73

•12 years ago

4 Replies

Do you have problems healing?

I had a skin graft in January due to a malignant melanoma (possibly linked to MMF) and the donor site is refusing to heal. I am 8 weeks post op and the nurses...

I had a skin graft in January due to a malignant melanoma (possibly linked to MM...

Hidden

•12 years ago

2 Replies

Leukocytes in urine

Hi has anyone had leukocytes in their urine without infection? It has been sent off for a urinylsis but just wanted to know abit more about what it means?

Hi has anyone had leukocytes in their urine without infection? It has been sent ...

jenni85

•12 years ago

1 Reply

Save the NHS petition

Please sign the petition to try and save the NHS. On Monday afternoon, the House of Lords starts its final votes on the NHS changes. An influential...

Please sign the petition to try and save the NHS. On Monday afternoon, the H...

fabwheelie

•12 years ago

2 Replies

hi, I've been under a consultant for 3 years now and as my illness overlaps several

they say I have undifferentiated connective tissue disorder. I had a urine test taken which was positive for leukocytes, but without infection and wanted to...

they say I have undifferentiated connective tissue disorder. I had a urine test ...

jenni85

•12 years ago

5 Replies

Will I get anywhere?

So tomorrow I have an appointment to see the local MP. I sent a very informative email on Tuesday (regarding my ESA being stopped), just trying to explain what...

So tomorrow I have an appointment to see the local MP. I sent a very informative...

teecayc

•12 years ago

15 Replies

MY POWERS OF COPING NOW HAVE ALMOST GONE COMPLETELYCAN I GET AN APPOINTMENT AT ST. THOMAS'S BY SELF REFERRAL OR DOES IT HAVE TO BE MY GP?

I was diagnosed 9 years ago now and since that date I have been told I have got Lupus SLE 100%, no question, the next visit......I am not sure if you have got...

I was diagnosed 9 years ago now and since that date I have been told I have got ...

MandieR

•12 years ago

8 Replies

Strawberries and Bananas

Hi I have been told by a friend who also has Lupus not to eat strawberries and bananas. I am not sure why does any one know why this is?

Hi I have been told by a friend who also has Lupus not to eat strawberries and b...

TonyaM868

•12 years ago

25 Replies

wround the world by fabric

Hi i cant travel much any more and really really miss it but have learnt to sew so i am making a round the workd quilt and asking my friends when ever they...

Hi i cant travel much any more and really really miss it but have learnt to sew ...

Hidden

•12 years ago

4 Replies

ESA Has just been withdrawn, as had it for over 12 months!

I have just had a phone call informing me that due to the new legislation, that was passed through parliment 2 weeks ago and as I have been in receipt of this...

I have just had a phone call informing me that due to the new legislation, that ...

pollyanna

•12 years ago

28 Replies

catarracts

I was referred by Boots the optician and went for 1st consultation today and I am having one of my catarracts removed in the next 12 weeks. Cannot believe it,...

I was referred by Boots the optician and went for 1st consultation today and I a...

daisy11

•12 years ago

5 Replies

Off to hospital today for my check up.. hoping to find answers

Recently been having a lot of flare ups. I was diagnosed 5 years ago this year and gone through a cocktail of drugs. Since being off short term steroids the...

Recently been having a lot of flare ups. I was diagnosed 5 years ago this year a...

Hidden

•12 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2012

gentle reminder

Washing additive?

esa medical assesment

Hi is anyones hair thinning due to steriods?

As a sufferer of Lupus, plus now one of my children, I have had had some good care and some awful care.

Lupus Rash- tips and advice please :).

I think i'm in love with my steroids!!!

Stoke on Trent

Live Band Night for World Lupus Day

Hi,I read somewhere recently in the reply there was the comment "100% of people with lupus have allergies" do you think this is true?

Does anyone know if theres a likeleyhood of my son also having Lupus too

raising lupus awareness

looking for any information on RITUXIMAB, due to start and any info would be appreciated

Looking for help with which drug to go for.

HELP AM I SUFFERING FROM HYDROXYCHLOROQUINE SIDE EFFECTS !!!

pains in lower legs

Is there a support group in cardiff

Biopsy results :(

I wish Lupus would give me a break

Do you have problems healing?

Leukocytes in urine

Save the NHS petition

hi, I've been under a consultant for 3 years now and as my illness overlaps several

Will I get anywhere?

MY POWERS OF COPING NOW HAVE ALMOST GONE COMPLETELYCAN I GET AN APPOINTMENT AT ST. THOMAS'S BY SELF REFERRAL OR DOES IT HAVE TO BE MY GP?

Strawberries and Bananas

wround the world by fabric

ESA Has just been withdrawn, as had it for over 12 months!

catarracts

Off to hospital today for my check up.. hoping to find answers

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