Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2012

Does Anyone else also have Lupus Panniculitis?

I've asked this before but there's a lot more people in the group now, maybe able to answer..

I've asked this before but there's a lot more people in the group now, maybe abl...

teecayc

•12 years ago

15 Replies

Lupus and pre-menstrual flares

Hi, Just wanted to say I have written a short blog post on my website regarding lupus and premenstrual flares...

Hi, Just wanted to say I have written a short blog post on my website reg...

Ani-

•12 years ago

9 Replies

SLE and HUV are they connected?

Hi I was recently diagnosed with SLE in early November 2011. However I have seen two consultants and one is not convinced that SLE is the right...

Hi I was recently diagnosed with SLE in early November 2011. However ...

Fresita

•12 years ago

2 Replies

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NEW YEAR POEM

I felt like writing a poem last night and I'd like to share it. Hope Worn out - wearing out What's it all about? Loopy or not Frustrated we carry on...

I felt like writing a poem last night and I'd like to share it. Hope Wor...

umbrella

•12 years ago

3 Replies

Facial rash

Hi, i am aware of the butterfly rash, and wondered if anyone has has experienced the following... I have been extremely tired, and my face feels like it is...

Hi, i am aware of the butterfly rash, and wondered if anyone has has experienced...

frog

•12 years ago

2 Replies

WHATEVA

C'mon people!!! Everyday is tough!.... BUT We're luckier than some.... I just walked (ok stumbled) my well fed...grumpy, content and if I'm honest pain in the...

C'mon people!!! Everyday is tough!.... BUT We're luckier than some.... I just wa...

JoolsN

•12 years ago

4 Replies

That that doesn't kill you makes you stronger ;-)

Hi everyone, I sitting here considering how the first ten days of 2012 have been, and honestly I can think of better ways to start a new year. My Lupus has...

Hi everyone, I sitting here considering how the first ten days of 2012 have been...

wanderer72

•12 years ago

8 Replies

sle and poor balance

I have sle and have been having problems with my balance. I dont seem to have any core balance and have been falling over. I am not dizzy just become unsteady...

I have sle and have been having problems with my balance. I dont seem to have an...

lindabrown

•12 years ago

9 Replies

Help with Rituximab?

I am due to start the iv treatment Rituximab, as the other steroid sparing drugs have not stopped the lupus from killing off my white cells, and I am not...

I am due to start the iv treatment Rituximab, as the other steroid sparing drugs...

Karen34

•12 years ago

6 Replies

best chocolate brownie ever

i went to a little cafe today to cheer myself up and decied to have a chocolate brownie, this cafe makes its own tripple choc brownies, they had only come out...

i went to a little cafe today to cheer myself up and decied to have a chocolate ...

Hidden

•12 years ago

3 Replies

Here we go again!!!! Just what can I do.....

I have had Lupus for 26 years and apart from the first few years and my times having my children, two miscarriages, followed by losing my first baby at 4 days...

I have had Lupus for 26 years and apart from the first few years and my times ha...

schnauzersmudge

•12 years ago

14 Replies

i took your advice and went to the Doc's!!

Last week I asked the question regarding palpitaions and on several of you advising me to go to the Doctors I did just that. Well what a surprise I had in...

Last week I asked the question regarding palpitaions and on several of you advis...

Tich

•12 years ago

6 Replies

tips: tiger balm, pillow, medition. Any other ideas...

I take max painkillers so for direct joint pain I use tiger balm, the white is more menthol, the red is stronger I get my husband to put it on at night and not...

I take max painkillers so for direct joint pain I use tiger balm, the white is m...

NiksB

•12 years ago

3 Replies

Vasculopathy

Please can I ask if anyone else has been given differing information from the neurologist and rheumatalotogist. I had neurology appointment today and have been...

Please can I ask if anyone else has been given differing information from the ne...

annie330

•12 years ago

2 Replies

Has anyone been prescribed pregabalin(lyica) for pain?

I am very sensative to drugs and my Rheumy has given me these to try like to know if anyone else has had a good response with them

I am very sensative to drugs and my Rheumy has given me these to try like to kno...

witch2

•12 years ago

8 Replies

Skin soreness

I have been pretty wiped out for the last week, so so tired. I have just started to get a lot of pain in what seems like my skin. It is mainly on my arms....

I have been pretty wiped out for the last week, so so tired. I have just starte...

LoopyLupus

•12 years ago

9 Replies

going to GP tomorrow - question about insomnia

My insomnia is off the scale for Lupus, psoriatic arthropathy, hughes syndrome, sjgroens and hypothyrodism. So.... have read that sometimes a muscle relaxant...

My insomnia is off the scale for Lupus, psoriatic arthropathy, hughes syndrome, ...

MaryF

•12 years ago

13 Replies

Any of you had kidney failure due to Lupus and a subsequent transplant? Mine's almost 6 yrs now, works fab! Anyone had Lupus attack after?

MandaM

•12 years ago

6 Replies

why i am gressive?

Toya

•12 years ago

3 Replies

HI

I try fight my lupus and need help

Toya

•12 years ago

14 Replies

Fed up with waiting

Hi everyone this is my 1st blog. have been waiting a year now for someone to tell me i,ve have lupus have all the symptoms last visit to rheumy was dec 14th...

Hi everyone this is my 1st blog. have been waiting a year now for someone to tel...

Lifeback

•12 years ago

1 Reply

Right my first blog!

Right, Hi, I'm Lewy, 28 year old male with relatively active SLE....I've had pretty much all the problems one would expect since I was around 13....rash,...

Right, Hi, I'm Lewy, 28 year old male with relatively active SLE....I've had...

Lewy

•12 years ago

4 Replies

Lips peeling of skin!!

Does anybody else have peeling of the skin insides the lips? t his problem comes and goes for me.It is not really troublesome but sometimes leaves aspecially...

Does anybody else have peeling of the skin insides the lips? t his problem comes...

Hidden

•12 years ago

4 Replies

So do we have any positive stories about living with Lupus or do we communicate on these sites to share our woes?

I'm not trying to accuse anybody of "moaning". As I'm sure you are all aware lupus sufferers are made to feel they are always whinging and problems are passed...

I'm not trying to accuse anybody of "moaning". As I'm sure you are all aware lup...

Lewy

•12 years ago

25 Replies

Finally at the age of 46......

Having had the most extreme water retention and time in bed 10 days a month on and off nearly every month since age 13, repeated pericarditis, and inflammed...

Having had the most extreme water retention and time in bed 10 days a month on a...

MaryF

•12 years ago

2 Replies

My Daily Prayer,I hope you like it.

God.Com Dear Lord, Every single evening As I'm lying here in bed, This tiny little Prayer Keeps running through my head: God bless all my...

God.Com Dear Lord, Every single evening As I'm lying here in bed, Thi...

janiceray

•12 years ago

8 Replies

New year, new challenges !

Well, I was happily reaquainted with my old Rheumatologist in December. It was him who diagnosed and very successfully treated me with SLE and Rheumatoid...

Well, I was happily reaquainted with my old Rheumatologist in December. It was ...

Hidden

•12 years ago

4 Replies

A nice comment about my review into diet/nutrition/lifestyle and lupus

Hi everyone, I just throught I would update you - after I blogged about negative comments from doctors regarding a link between...

Hi everyone, I just throught I would update you - after I blogged about ...

Ani-

•12 years ago

5 Replies

Hydroxychloroquine

Having taken this medication now for about six month's I am almost certain it attributes to the paranoid feeling's.I can't wait to speak to reumatology about...

Having taken this medication now for about six month's I am almost certain it a...

Binkey

•12 years ago

5 Replies

In pain

i know how you feel, i have had this painful knee seen DR at hospital and she was so good that she told me that i needed my knee to be drain as it was full of...

i know how you feel, i have had this painful knee seen DR at hospital and she wa...

Bal121

•12 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2012

Does Anyone else also have Lupus Panniculitis?

Lupus and pre-menstrual flares

SLE and HUV are they connected?

NEW YEAR POEM

Facial rash

WHATEVA

That that doesn't kill you makes you stronger ;-)

sle and poor balance

Help with Rituximab?

best chocolate brownie ever

Here we go again!!!! Just what can I do.....

i took your advice and went to the Doc's!!

tips: tiger balm, pillow, medition. Any other ideas...

Vasculopathy

Has anyone been prescribed pregabalin(lyica) for pain?

Skin soreness

going to GP tomorrow - question about insomnia

Any of you had kidney failure due to Lupus and a subsequent transplant? Mine's almost 6 yrs now, works fab! Anyone had Lupus attack after?

why i am gressive?

HI

Fed up with waiting

Right my first blog!

Lips peeling of skin!!

So do we have any positive stories about living with Lupus or do we communicate on these sites to share our woes?

Finally at the age of 46......

My Daily Prayer,I hope you like it.

New year, new challenges !

A nice comment about my review into diet/nutrition/lifestyle and lupus

Hydroxychloroquine

In pain

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