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LUPUS UK

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All posts for January 2012

Diagnoised with Antphos.Synd. awaiting Lupus result however extreme pain with Neck and shoulders.

I have extreme pain in the top of my neck and shoulders, and it swells, I had my steroid injection in December and a new set of blood tests. Has any one else...

I have extreme pain in the top of my neck and shoulders, and it swells, I had my...

denisep

•12 years ago

2 Replies

Sjorgens, Lupus

After much debate I was diagnosed With Sjorgens, yet have alot of lupus symptoms, however I recently had a small itchy mole removed from my temple. My...

After much debate I was diagnosed With Sjorgens, yet have alot of lupus symptoms...

Dorrie

•12 years ago

11 Replies

Raynauds swallon and red and ache like heck

I was told i have raynauds but most of the books say about white tips to fingers etc.. but i wear cotton fingerless gloves which helps with the cold, get...

I was told i have raynauds but most of the books say about white tips to fingers...

NiksB

•12 years ago

10 Replies

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neurologist's letter

I saw the neurologist last week and he has copied me in on hs letter to my GP and the rheummatologist. Sorry in advance if this is long winded he has...

I saw the neurologist last week and he has copied me in on hs letter to my GP an...

annie330

•12 years ago

1 Reply

Waiting patiently..........

Living with SLE for nearly 20years and now 36, I have been dismissed yet again by an employer on the grounds of ill health. The job was working as a care...

Living with SLE for nearly 20years and now 36, I have been dismissed yet again b...

loopylady

•12 years ago

12 Replies

Hi, I' like to know if anyone experiences there hands shaking when having a flare and for a while after?

I am 41 yrs old and have had Lupus for 10years. And been on steroids since then

JGee

•12 years ago

11 Replies

Where can I find information for equivocal results.

I have now had two equivocal results for Lupus taken the appropiate times apart. First one i had wondered if a small cold I developed had thrown it the second...

I have now had two equivocal results for Lupus taken the appropiate times apart....

JJ76

•12 years ago

1 Reply

why i'm i the only one in my family with this

i got told in july 2010 that i have lupus i still dont know anything about it all i was told i cant have a family.

i got told in july 2010 that i have lupus i still dont know anything about it al...

mitchel

•12 years ago

21 Replies

does anyone have stiff person syndrome as well as lupus ?

hey there everyone, my name is nerri and i am new to lupus uk. i really need some support with learning to understand and live with lupus. The last two and a...

hey there everyone, my name is nerri and i am new to lupus uk. i really need som...

nerri

•12 years ago

22 Replies

lupus, sjorgens, marfan and raynauds

I was not feeling up to much today so thought id surf ive just found on you tube 6 part talk on sjorgens called at the beginning from the USA, i found this...

I was not feeling up to much today so thought id surf ive just found on you tube...

NiksB

•12 years ago

4 Replies

Heart disease risk and diet

Hi, I just wanted to let you know I have posted some new information on my blog about diet and heart disease - I thought it might be of interest because...

Hi, I just wanted to let you know I have posted some new information on my bl...

Ani-

•12 years ago

2 Replies

Hospital admission

I was admitted to hospital 2 days ago . I was in a new flare and then suffered terrible gut/bowel problems. I am now on IV anti biotics but CRP still rising...

I was admitted to hospital 2 days ago . I was in a new flare and then suffered t...

Kirsty2510

•12 years ago

20 Replies

A little advice please, re sore chest area!

I have for the last few weeks woken feeling sore and tender around the chest area and round to my back, feels as though I have been used as a kick bag! It does...

I have for the last few weeks woken feeling sore and tender around the chest are...

pollyanna

•12 years ago

18 Replies

Good day today!

After a day mostly spent in bed yesterday with what I thought was going to turn into a major cold, I woke up this morning feeling great. Spent the day doing...

After a day mostly spent in bed yesterday with what I thought was going to turn ...

lucyloo023

•12 years ago

6 Replies

Topic of the Month

Happy New Year everybody. I hope that you all had a wonderful Christmas and your 2012 is off to a good start. We’ve decided that we’d really like this blog...

Happy New Year everybody. I hope that you all had a wonderful Christmas and your...

Paul_Howard

Partner•12 years ago

32 Replies

Purple rash (petechiae)

My daughter has today developed a small rash on the inside crease of both elbows. To begin with, my sister in law suggested it might be heat rash. I thought...

My daughter has today developed a small rash on the inside crease of both elbows...

ChocolateTeapot

•12 years ago

3 Replies

kids.

i mainly have discoid. Been having really bad throughout christmas constant colds. Just started with another one which seems a little worse. kids getting...

i mainly have discoid. Been having really bad throughout christmas constant col...

tracyxx

•12 years ago

3 Replies

OOOPs what have i agreed to!!!!

In a moment of insanity i have decided to agree to present a patients view point of what its like to be a patient with lupus to a lecuture theater of 150...

In a moment of insanity i have decided to agree to present a patients view point...

Hidden

•12 years ago

33 Replies

7 consultants

am i just greedy or it this just a multisystem disease for you. i have a Rheumatologist, gastroenterologist, immunologist, nephrologist, neurologist, bones...

am i just greedy or it this just a multisystem disease for you. i have a Rheuma...

Hidden

•12 years ago

7 Replies

parents with children who have lupus or loved ones

hi im just wanderin if there are any parents who have children who have lupus sle as my daughter was diagnosed with this when she was 15 years old she is now...

hi im just wanderin if there are any parents who have children who have lupus s...

kathy43

•12 years ago

4 Replies

parents with children who have lupus

hi im just wandering if there are any parents who have children or loved with lupus as my daughter was diagnosed with lupus sle when she was 15 years old iam...

hi im just wandering if there are any parents who have children or loved with lu...

kathy43

•12 years ago

6 Replies

slightly odd consultant

saw my new renal consultant today who decied he would sort my huge 3 stack set of note into chronilogical order while i was sat with him, get a third year...

saw my new renal consultant today who decied he would sort my huge 3 stack set o...

Hidden

•12 years ago

9 Replies

Im another newbie !!!!

Hi all its been great reading all your blogs and questions i got diagnosed just before xmas and had never heard of Lupus before so its great to read what...

Hi all its been great reading all your blogs and questions i got diagnosed just ...

Becky74

•12 years ago

3 Replies

Have Lupus will travel..

There is so much bad news connected with lupus that I wanted to share my recent positive experiences. I was diagnosed 8 yrs ago and have been doing well ever...

There is so much bad news connected with lupus that I wanted to share my recent ...

emmalemon

•12 years ago

8 Replies

How do i get my doctor to keep close eye on my condition

I was diganosed in 2009 with lupus now since then i have been to several doctors surgies in my area and it feels like no one cares all i get told is there is...

I was diganosed in 2009 with lupus now since then i have been to several doctors...

Aly1989

•12 years ago

18 Replies

Early days

Hi I am a mum to a 14 year old son who was diagnosed in September after a year of being ill and finally had 1200ml of pericardial fluid drained.He is finding...

Hi I am a mum to a 14 year old son who was diagnosed in September after a year o...

Cariow1

•12 years ago

4 Replies

Going right for once

Thought I'd share a bit of good news. If I can get past this coming Monday it will be the longest time I've not had a fever flare for in about two years!...

Thought I'd share a bit of good news. If I can get past this coming Monday it wi...

teecayc

•12 years ago

13 Replies

Hi Does any-one have intense itchy skin, which gets very sore?

anne6

•12 years ago

6 Replies

DLA.

I had to give up my work 18mnths ago and at present dont get any benefits. I have applied for Disability living allowance and have today received aletter to...

I had to give up my work 18mnths ago and at present dont get any benefits. I hav...

lindabrown

•12 years ago

7 Replies

plz help answer (rituximab)

hi all, can any1 help answer my question.....i am waitin on info about rituximab treatment as im not reponding to any other drugs, how long does each session...

hi all, can any1 help answer my question.....i am waitin on info about rituximab...

jodie

•12 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2012

Diagnoised with Antphos.Synd. awaiting Lupus result however extreme pain with Neck and shoulders.

Sjorgens, Lupus

Raynauds swallon and red and ache like heck

neurologist's letter

Waiting patiently..........

Hi, I' like to know if anyone experiences there hands shaking when having a flare and for a while after?

Where can I find information for equivocal results.

why i'm i the only one in my family with this

does anyone have stiff person syndrome as well as lupus ?

lupus, sjorgens, marfan and raynauds

Heart disease risk and diet

Hospital admission

A little advice please, re sore chest area!

Good day today!

Topic of the Month

Purple rash (petechiae)

kids.

OOOPs what have i agreed to!!!!

7 consultants

parents with children who have lupus or loved ones

parents with children who have lupus

slightly odd consultant

Im another newbie !!!!

Have Lupus will travel..

How do i get my doctor to keep close eye on my condition

Early days

Going right for once

Hi Does any-one have intense itchy skin, which gets very sore?

DLA.

plz help answer (rituximab)

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