Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,726 members • 28,086 posts

All posts for November 2011

Drugs trial

Hi, I am 37 years old and was diagnosed with SLE 9 years ago.....it has been a hard struggle. I have had numerous treatments over the years and, steroids,...

Hi, I am 37 years old and was diagnosed with SLE 9 years ago.....it has been a h...

lexus

•12 years ago

4 Replies

well i got married not the day i planned tho thanks lupus

well the week before my wedding had arrived and i got that familiar pain in my side so off to docs it was.. oh you have the start of pluracy take these pills...

well the week before my wedding had arrived and i got that familiar pain in my s...

helen3d

•12 years ago

9 Replies

Side effects

I finally saw my own GP today(tricky getting appointments).I am taking Hydroxychloroquine and have been taking it for about two month's now but,have been...

I finally saw my own GP today(tricky getting appointments).I am taking Hydroxych...

Binkey

•12 years ago

6 Replies

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I have my first appt with rhuemy on 6th Dec! What should I expect or prepare for?

pollyanna

•12 years ago

6 Replies

Research study into lupus arthritis

Caroline is seeking assistance for her student research study on Lupus Arthritis and how it affects well-being and quality of life. If you have lupus arthritis...

Caroline is seeking assistance for her student research study on Lupus Arthritis...

Paul_Howard

Partner•12 years ago

1 Reply

Day 19 of NO smoking :)

I thought I would share how well I am doing with my NO SMOKING :) I never thought I would end up stopping, as I have no will power, but I have got this far,...

I thought I would share how well I am doing with my NO SMOKING :) I never tho...

pollyanna

•12 years ago

10 Replies

Changing my life

I'm 17 yrs old, and was diagnosed over a year ago with SLE. Its awful when you tell people what you have but you can tell they have no idea what Lupus is....

I'm 17 yrs old, and was diagnosed over a year ago with SLE. Its awful when you t...

zamtacz

•12 years ago

13 Replies

Hydroxychloroquine

Thankyou to everyone who replied to my question on Hydroxychloroquine.I have an appointment with my GP tomorrow and HOPE to get some help.

Thankyou to everyone who replied to my question on Hydroxychloroquine.I have an ...

Binkey

•12 years ago

1 Reply

Flare Ups

I am 45 years old and have been having a Flare Up for the last 12 months, my blood test showed that my disease is at its highest point. I am more likely...

I am 45 years old and have been having a Flare Up for the last 12 months, my blo...

dlp5

•12 years ago

3 Replies

Yes Christmas is great.

I got my Christmas decoration out 4 days ago but didn't have the energy to put them up, then my eldest daughter asked me if I wanted my grandson for the night,...

I got my Christmas decoration out 4 days ago but didn't have the energy to put t...

lou1

•12 years ago

13 Replies

Herts and Beds support group

Thank you to those who responded to the blog calling for volunteers to help get a new group started in Herts and Beds. Thanks to this site and facebook, a...

Thank you to those who responded to the blog calling for volunteers to help get ...

Hidden

•12 years ago

3 Replies

Possible side effect?

Has anybody possibly found that they have had a side effect of paranoia from Hydroxychloroquine.I have had such bad feelings of insecurity and depression.I...

Has anybody possibly found that they have had a side effect of paranoia from Hy...

Binkey

•12 years ago

7 Replies

Anyone on Cytoxan?

I've been having Rituximab treatment which has not gone well this time round. I wondered if there is anyone who has has treatment with Cytoxan if so please...

I've been having Rituximab treatment which has not gone well this time round. I...

june_jdr

•12 years ago

2 Replies

Has anyone had experience of osteomyelitits of the upper jaw & titanium implants?

The left sinus infection I've already posted about (starting late oct early nov) won't go away. Am on 3rd week of flucloxacillin 500mg 2x per day, with at...

The left sinus infection I've already posted about (starting late oct early nov)...

Barnclown

•12 years ago

4 Replies

Mirtazapine

The Docs think they have found out why my liver is not working properly, Citalopram. I felt really well on these but they are changing me to mirtazapine, is...

The Docs think they have found out why my liver is not working properly, Citalop...

bettie

•12 years ago

5 Replies

Has anyone tried acupuncture to relieve joint pain or other SLE symptoms?

Bebe76

•12 years ago

5 Replies

Steroids & weight gain and stretch marks anyone???

When i was 15 and very unwell they gave me 60mg of steroids , I went from a size 6 to a size 12 in 3 short months :,( my body was ruined from horrible stretch...

When i was 15 and very unwell they gave me 60mg of steroids , I went from a size...

elodielupus2

•12 years ago

11 Replies

I love this time of year!

My Dad loved Christmas and was Father Christmas at a local childrems ward for 50 years. He made Christmas magical for me and I have always trired to do the...

My Dad loved Christmas and was Father Christmas at a local childrems ward for 50...

jonesy1

•12 years ago

7 Replies

Just wondering if anyone here attends The royal National Bath Hospital for Rhuematic diseases? Any info would be great thanks

lupienat

•12 years ago

5 Replies

I have dicoid lupus, I use f50 suncream, in UK and still get raised marks on my skin. Go to Tennerife my skin is great with f50?? Why???

Berny

•12 years ago

6 Replies

What will determine my longevity

I would like to know if there are any tests to determine my longevity.like gene mapping or any other Dna test.many a time i think i will die soon.but what is...

I would like to know if there are any tests to determine my longevity.like gene ...

mahe

•12 years ago

5 Replies

Does anyone else take Omacor Omega 3 ?

I have mixed Hyperlipidaemia ( Cholesterol and Triglycerides) ~ but cannot take Statins as I also have a high base level CPK which goes up sharply with statin...

I have mixed Hyperlipidaemia ( Cholesterol and Triglycerides) ~ but cannot take...

Thaddeus

•12 years ago

6 Replies

Does anyone live on the Isle of Wight?

pollyanna

•12 years ago

3 Replies

Does anyone live in the derby area?

lou1

•12 years ago

3 Replies

Adaptable, resourcefull and reslilent

I just wanted to express how much I get out of reading everyone's blogs. It occurs to me how determined everyone is to be the best they can be despite the...

I just wanted to express how much I get out of reading everyone's blogs. It ...

Hidden

•12 years ago

4 Replies

Being woken up!!!

At the moment am being woken up in the middle of the night in agony - feels like my feet are in a vice and being squeezed till I can't bear the pain anymore....

At the moment am being woken up in the middle of the night in agony - feels like...

senorascully

•12 years ago

7 Replies

How to make our doctors understand my situation

I really think most of the doctors are not well expertise in treating lupus.whenever i tell them something he simply prescribes me some antidepressants which...

I really think most of the doctors are not well expertise in treating lupus.when...

mahe

•12 years ago

4 Replies

Arthritis from lupus - anyone else have it mostly on one side only?

I know that arthritis from lupus usually affects both sides of the body, but does anyone else mostly have joint pain/swelling on only one side? I'm right...

I know that arthritis from lupus usually affects both sides of the body, but doe...

FullerRun

•12 years ago

4 Replies

SMILE - it helps!

Hello everyone I have been close friends with Lupus for almost 30 years; since I was 15. It went undiagnosed until I was 29 when I thought I was becoming a...

Hello everyone I have been close friends with Lupus for almost 30 years; sinc...

Helsbels

•12 years ago

11 Replies

Magic word "remission"

Just home from the renal clinic where I was given the fabtastic news that my meds seem to be working and my lovely friend lupus is beginning to go into...

Just home from the renal clinic where I was given the fabtastic news that my med...

lucyloo023

•12 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2011

Drugs trial

well i got married not the day i planned tho thanks lupus

Side effects

I have my first appt with rhuemy on 6th Dec! What should I expect or prepare for?

Research study into lupus arthritis

Day 19 of NO smoking :)

Changing my life

Hydroxychloroquine

Flare Ups

Yes Christmas is great.

Herts and Beds support group

Possible side effect?

Anyone on Cytoxan?

Has anyone had experience of osteomyelitits of the upper jaw & titanium implants?

Mirtazapine

Has anyone tried acupuncture to relieve joint pain or other SLE symptoms?

Steroids & weight gain and stretch marks anyone???

I love this time of year!

Just wondering if anyone here attends The royal National Bath Hospital for Rhuematic diseases? Any info would be great thanks

I have dicoid lupus, I use f50 suncream, in UK and still get raised marks on my skin. Go to Tennerife my skin is great with f50?? Why???

What will determine my longevity

Does anyone else take Omacor Omega 3 ?

Does anyone live on the Isle of Wight?

Does anyone live in the derby area?

Adaptable, resourcefull and reslilent

Being woken up!!!

How to make our doctors understand my situation

Arthritis from lupus - anyone else have it mostly on one side only?

SMILE - it helps!

Magic word "remission"

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