Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,729 members • 28,088 posts

All posts for October 2011

Feeling relieved!

Just wanted to share my news that after seeing my private specialist he has prescribed me Hydroxy. I have mild lupus thankfully.I feel very lucky after...

Just wanted to share my news that after seeing my private specialist he has pres...

•13 years ago

Slowly getting back to normal life!

Some good news finally. Getting back to work next week - only part time but hey that's better than no time at all. Going stir crazy not being able to work or...

Some good news finally. Getting back to work next week - only part time but hey ...

•13 years ago

Pregnancy, lupus and hughes syndrome

Im 24, have no children and have been diagnosed with lupus a few months ago. Has anyone had any experience of pregnancy with lups as I also have hughes...

Im 24, have no children and have been diagnosed with lupus a few months ago. Has...

•13 years ago

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20 Simple Ways You Could Help Spread Awareness and/or Raise Funds for Lupus Awareness Month

1.Send a tweet about lupus 2. Share our new video; http://www.youtube.com/watch?v=_B6c6k3Ktqk 3.Ask an employer to do a fancy dress...

1.Send a tweet about lupus 2. Share our new video; http://www.youtube.com/wat...

Partner•13 years ago

Hydroxychloroquine

I have been on 1 a day hydroxy for a week.I am supposed to increase this to 2 daily but,they specify to take the medication after or with a meal.I don't eat in...

I have been on 1 a day hydroxy for a week.I am supposed to increase this to 2 da...

•13 years ago

hospital again

well have been to the hospital again for some blood results so hear we go thay have found out atlast that i have "lupus anticoaulant (sle) with antinuclear...

well have been to the hospital again for some blood results so hear we go thay h...

•13 years ago

Reactions

I read in a Lupus book written by an expert[can't remember the authour]which was recommended for me to read when I was first diagnosed,that reactions to insect...

I read in a Lupus book written by an expert[can't remember the authour]which was...

•13 years ago

New to this

I have only been diagnosed with sle for a few months. My pain got so bad I could'nt walk and at one point had to use a wheelchair. Thankfully I got my...

I have only been diagnosed with sle for a few months. My pain got so bad I could...

•13 years ago

My Blog

It's about time I got to using this 'ere thinga-ma-wotsit. Even if it is just to advertise that my blog isn't here. It's on wordpress. It has so far got...

It's about time I got to using this 'ere thinga-ma-wotsit. Even if it is just to...

•13 years ago

wots the differance from SLE and Cerebral lupus.???

•13 years ago

has anyone had to give up work due to there sle, and been granted DLA.

•13 years ago

i have been prescribed anti depressants, for pain- and my mood which i dont feel there is a problem has anyone had these prescribved

my pain has got more severe over last few month , ie. mucles acking from head to toe,daily, as with all thge joint pain, doctors suggested i go on anti...

my pain has got more severe over last few month , ie. mucles acking from head to...

•13 years ago

doctors again???????

well im of tomorrow to the hospital as normal he will take loads of blood; scrath his head and say see you next month,, but if he say's again go swimming it...

well im of tomorrow to the hospital as normal he will take loads of blood; scrat...

•13 years ago

Vomit (again)

Well I have a run of good times and then I have a bad time I have now worked out what it could be... Overtiredness!!! But I am also vomiting and have the...

Well I have a run of good times and then I have a bad time I have now worked out...

•13 years ago

Important new tools to help recently diagnosed lupus patients

We are very proud to announce that LUPUS UK is releasing a brand new DVD and handbook for newly diagnosed lupus patients to help them, and their families...

We are very proud to announce that LUPUS UK is releasing a brand new DVD and han...

Partner•13 years ago

Anyone had a cystoscopy?

Please wish me luck tomorrow - I am having a cystoscopy - to investigate persistent non-visible haematuria. Supposed to be 'just' a 5 minute procedure, but I...

Please wish me luck tomorrow - I am having a cystoscopy - to investigate persist...

•13 years ago

allergies

Allergic rash,to what I don,t know.Taking the Hydroxychloroquine[one week now].Really suffering and miserable,hope this passes soon.Does anyone else have this...

Allergic rash,to what I don,t know.Taking the Hydroxychloroquine[one week now].R...

•13 years ago

We had a fight because I'm so tired

I'm shattered this weekend and to top it off after a day of wahsing and getting school uniforms ready my husband decided to tell me cheer up as I look...

I'm shattered this weekend and to top it off after a day of wahsing and getting ...

•13 years ago

why dont the rhumy and drs give straight answers to questions, all everyone keeps doing is giving more tablets and creams. No one explains

anything feels like iam being passed back and forth. Dont think I can take much more feel so alone and feel like screaming

anything feels like iam being passed back and forth. Dont think I can take much ...

•13 years ago

Weaning off prednislone

i have SLE and I'm currently being weaned off steroids because they were getting too dangerous for me. I'm down to 1mg now and take my last one on the 12th...

i have SLE and I'm currently being weaned off steroids because they were getting...

•13 years ago

On 60mg prednisolone and 2g mycophenolate mofetil daily - anyone else on similar and what side effects should I expect other than moon face?

•13 years ago

does any one have problems with hypermobility and SLE? im very mobile, and get a lot of pain from my joints been too flexible.

•13 years ago

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