Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2011

Has anyone found citalipram helped their condition? hope to reduce as been on 20mg a day for 2 years worried this will make condition worse.

I was only recently diagnosed despite various consultants pondering over condition for 4 years. Also taking amtriptiline for shoulder arm and hand pain,...

I was only recently diagnosed despite various consultants pondering over conditi...

AlisonK

•13 years ago

4 Replies

Busy busy

I've officially been fever free for nearly 3 weeks now so decided it was time I got out and did something.. even if it was only grocery shopping with my Dad in...

I've officially been fever free for nearly 3 weeks now so decided it was time I ...

teecayc

•13 years ago

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Vitamin D deficiency

Have been told that i have a vitamin D deficiency and these are the reason i have been experiencing muscle and joint pain. Has anyone else had experience of...

Have been told that i have a vitamin D deficiency and these are the reason i hav...

erky

•13 years ago

10 Replies

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If there's only one blog entry you ever read...

...please make it this one - http://lupoid.wordpress.com/shameless/ Please follow the link on the site and show your support for the petition. x

...please make it this one - http://lupoid.wordpress.com/shameless/ Please fo...

Lupoid

•13 years ago

3 Replies

Hi

I am new to this site, discovered it today whilst on FB. I suffer with Discoid Lupus, although was treated for SL for many years as I have all the aches and...

I am new to this site, discovered it today whilst on FB. I suffer with Discoid L...

PeterWoolnough

•13 years ago

2 Replies

Unite

O.K everyone.How good would it be for a walk in centre to be available,no more waiting when the flare-ups start.More accurate bloods could be assessed instead...

O.K everyone.How good would it be for a walk in centre to be available,no more w...

Binkey

•13 years ago

2 Replies

Has anyone used Thalidomide

My Consultant is going to be starting me on thalidomide soon as all other medications dont work for me, and was wondering if anyone has used Thalidomide.

My Consultant is going to be starting me on thalidomide soon as all other medica...

PeterWoolnough

•13 years ago

1 Reply

How long can a flare last?

Hello again, Could someone please explain how long a "flare" can last? I have extremely painful arms and limbs, and feel very tired. I have been off of...

Hello again, Could someone please explain how long a "flare" can last? I ha...

frog

•13 years ago

4 Replies

I am 16 and have now had lupus for 4 long years, can anyone offer me tips on how to carry on a normal teenage life, i am finding it hard

Jessabella

•13 years ago

7 Replies

Been a while........

Haven't written anything for ages as my symptoms never sound as bad as anyone else's. I feel as if I'm going mad - I have had what I considered to be a...

Haven't written anything for ages as my symptoms never sound as bad as anyone el...

senorascully

•13 years ago

3 Replies

cold sore, mouth ulcers, boils and thrush.

Anybody else bothered with any of these - I seem to be going round in 'square' circles with them and the never ending anti-biotics don't help with the SLE...

Anybody else bothered with any of these - I seem to be going round in 'square' c...

irenestephen

•13 years ago

6 Replies

Am back!!!!!!!

Well they are not going to silence this fairy.... I am really good and I no longer am going to let the Lupus or anyone bother me anymore... So here is a...

Well they are not going to silence this fairy.... I am really good and I no long...

tinkerbellquo

•13 years ago

2 Replies

Back to work

Well, went back to work yesterday after my enforced sick leave and was tired by the time I got there! Took it easy though and really enjoyed the day .........

Well, went back to work yesterday after my enforced sick leave and was tired by ...

lucyloo023

•13 years ago

1 Reply

Good and Bad.

I have just been to my GP with quite severe muscle pains, and wondered if it was Lupus related. He said no, as Lupus was a joint disorder. I am afraid i...

I have just been to my GP with quite severe muscle pains, and wondered if it was...

frog

•13 years ago

3 Replies

Appointments System

I have just spent most of the afternoon trying to get some help as I know I am having another flare.The earliest appointment reumatology can give me is...

I have just spent most of the afternoon trying to get some help as I know I am h...

Binkey

•13 years ago

6 Replies

Does anyone suffer extreme head pain like there is a something inside causing pressure, it affects my eyes with light too.like migraine

lucy-may

•13 years ago

11 Replies

Is there anyone below the age of 25 on here? if so how do u cope with normal day to day things?

franklin853

•13 years ago

4 Replies

Fibromyalgia is a problem

My fibromyalgia is very bad at the moment, I am finding it hard to control pain also finding my memory is worse remembering names etc. If I say to anyone about...

My fibromyalgia is very bad at the moment, I am finding it hard to control pain ...

Gillyg

•13 years ago

18 Replies

does anyone else have natural HIGH cortisol (not steroid related) with their Lupus?

Results of my DEXA scan showed a T score of -1.83 on my spine with a comment of "significant risk of osteoporosis", but my GP said that no treatment is...

Results of my DEXA scan showed a T score of -1.83 on my spine with a comment of ...

KatieA

•13 years ago

2 Replies

does anyone else find that their hair loss is worse with hydroxychloroquine?

I go to my rheumatologist every 4 months and he asks the same questions. No answers. My pain is getting much worse. I have sort of electric shocks up thru...

I go to my rheumatologist every 4 months and he asks the same questions. No ans...

Blancanieves

•13 years ago

4 Replies

have people been offered a flu jab? my doctor says i am not eligible?

Joybell

•13 years ago

21 Replies

bridge nose pressure / ache

Hi I have this pressure / burn on my bridge nose for 4 weeks now... Always there; at night, if i wake up I feel it. Not that much in the morning but gets...

Hi I have this pressure / burn on my bridge nose for 4 weeks now... Always ...

danielah2011

•13 years ago

1 Reply

Has anyone been diagnosed with interstitial lung disease due to Lupus? How is it progressing/ effect of medication ?

I've been diagnosed with interstitial lung disease for 2 years now, and have remained stable on a triple therapy of Prednisolone, Azathioprine, and...

I've been diagnosed with interstitial lung disease for 2 years now, and have rem...

anne59

•13 years ago

5 Replies

Help

I have just literally dragged myself back from getting my groceries.I am aching so bad and such a fever,I am soaked yet,I am ice cold to the touch.I did speak...

I have just literally dragged myself back from getting my groceries.I am aching ...

Binkey

•13 years ago

6 Replies

Whats the general concensus regarding having the flu jab?

tiredmum

•13 years ago

6 Replies

Are muscular aches in arme, hands poss related to Lupus?

Hello, i have been getting a lot of aches in my upper arms, and it has travelled into my right hand, making even holding a cup of tea painful, I have just...

Hello, i have been getting a lot of aches in my upper arms, and it has travelled...

frog

•13 years ago

4 Replies

Why is the joint pain so much worse during very hot weather?

Anne_john

•13 years ago

7 Replies

Has any one used flaxseed oil tablets,

Has any one used flaxseed oil tablets, they are a herbal medicine, that hav good results...i asked my doctor but she said to not go on them

Has any one used flaxseed oil tablets, they are a herbal medicine, that hav good...

mojo

•13 years ago

5 Replies

Does anyone get blood in their urine?

Every time I get my urine tested, it shows I have blood. The urologist has checked and I have no kidney stones, he thinks it is something to do with lupus but...

Every time I get my urine tested, it shows I have blood. The urologist has chec...

Yols

•13 years ago

16 Replies

diagnosis

So fed up with different drs saying different things. Have many symptoms that indicate Lupus never been caught in blood recently had a positive ANA but no...

So fed up with different drs saying different things. Have many symptoms that in...

witch2

•13 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2011

Has anyone found citalipram helped their condition? hope to reduce as been on 20mg a day for 2 years worried this will make condition worse.

Busy busy

Vitamin D deficiency

If there's only one blog entry you ever read...

Hi

Unite

Has anyone used Thalidomide

How long can a flare last?

I am 16 and have now had lupus for 4 long years, can anyone offer me tips on how to carry on a normal teenage life, i am finding it hard

Been a while........

cold sore, mouth ulcers, boils and thrush.

Am back!!!!!!!

Back to work

Good and Bad.

Appointments System

Does anyone suffer extreme head pain like there is a something inside causing pressure, it affects my eyes with light too.like migraine

Is there anyone below the age of 25 on here? if so how do u cope with normal day to day things?

Fibromyalgia is a problem

does anyone else have natural HIGH cortisol (not steroid related) with their Lupus?

does anyone else find that their hair loss is worse with hydroxychloroquine?

have people been offered a flu jab? my doctor says i am not eligible?

bridge nose pressure / ache

Has anyone been diagnosed with interstitial lung disease due to Lupus? How is it progressing/ effect of medication ?

Help

Whats the general concensus regarding having the flu jab?

Are muscular aches in arme, hands poss related to Lupus?

Why is the joint pain so much worse during very hot weather?

Has any one used flaxseed oil tablets,

Does anyone get blood in their urine?

diagnosis

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