Hi I've Lupus S.L.E and Fibromyalgia, recently I'... - LUPUS UK
Hi I've Lupus S.L.E and Fibromyalgia, recently I've had uncontrollable shaking in my hands, arms and sometimes whole upper body. Any ideas?
hiya i would get the same type of things in my hands and legs like they have a mind of their own like hit out and have no control of them....i would love to go and see bout it but scared to sometime as u get lookd at like uv 2heads x
could i ask wha is fibromyalgia xx
hi there i also suffer with lupus sle with anti-colagelent problem ( i get blood clots forming in my body ) but i car'nt help you with the other why not try to google it..i have also suffed with the uncrontrollable shaknig in hands feet and upper body it feels like you have no control in your body..i talked to my gp she checked my thiroid which i also have a underractive one which is also a automune problem which can go hand in hand with sle...my gp also put me on ( 40mg) of propranolol daily and it worked for me been on them 8 wks and have to stay on them for life so i hope this might help you best wishes to you keep on at your gp as thay are there to help you tracey x
i missed out that propranolol was for the shaking with your whole body... it helps with your nerves system as lupus can attack that to ..x
I get the shakes and have not, as yet, come to an answer as to why. I did think it was my diabetes for a while, but this has now been ruled out. So I would be very interested to know if you find an answer.
I too have uncontrollable shaking in my arms and legs so I went to the docs....yep was looked at as if i had lost the plot!!! If anyone finds out what it is would much appreciate a shout x
Hi everyone - so great to hear all this - I have had uncontrollable shaking in my arms and legs since having a brain haemerage in 2007 when I was diagnosed with my SLE and Fibro - before they got my meds right - I would have 20-30 in a day sometimes 20 one after the other - sometimes lasting from fiveminutes - sometimes 40 minutes or longer. Since getting my meds right I now get them very seldom - usually if I over exert myself or do too much - but have meds to take when I feel them coming on - sometimes I can get it under control but sometimes have to go to a and e - but only problem is - they never know what to do there - so wish the nurses and doctors would be more prepared to know how to deal with these problems....................best of luck to you allx
