With Lupus , if you have a flare , what do you do to limit the damage ? do you need to go to the docs to get something else ? At the mo i have been diagnosed with a connective tissue disease but may have lupus !!!! ????
I am not flaring at the mo but just wondered incase i eventually get diagnosed with it !
From what I can gather- rest...
It depends how bad the symptoms get, if you are in terrible pain or can't breathe etc, you'll need to call your rheumatologist and see what he/she suggests. At some point one gets to recognise the symptoms and their likely progression and how to cope with them but at the beginning everything will be unexpected and worrying, so more calls to the doctors.
A flare is a funny one, u can never b sure how it will affect u or how long it will last. My flare began 2 years ago and I THINK it's starting 2 calm down now, albeit too slowly 4 my liking :0/ I guess the best advice I could give u is 2 learn 2 listen 2 u're body, it'll let u know what u need 2 do 4 the best & take things easy ;0) x
So, if you are on meds, your |ANA still positive 320, and you feel crappy on and off, does that mean you are OK? Is flare the days you feel sore and headachey, or is that just a way of life and a flare is when you can't move?
a flare is different 4 every1, my ANA was showing up neg when I was bang in the middle of a really savage flare, it's now showing positive when everything is starting 2 slowly get back on an even keel. Meds don't always make a difference, I was having meds literally coming out of my ears but nothing helped, it's different 4 us all, with my flare, everything just came on with a vengeance & just totally knocked me off my feet, whereas previously I'd always been pretty good.
Pericarditis from flare.
First recognisable flare
Flu/cold or Lupus flare?
Blood clots with flare
One continuous flare?
