Endometriosis

[Chapter]

Has anyone had any feedback on how Endometriosis and Lupus are connected? Have read that there is some thought that Endo is autoimmune.

[Looby]

Hi there Chapter - interesting question....... In my mid twenties, I had endometriosis for almost two years, and also two miscarriages after that. I don't know if there is a link with Lupus, but it would be worth investigating......

[Adamine]

Interesting... I had this since being 17 and at the ages on 40 had a total hysterectomy.

I have never heard that there night be a link before!!!!!!! I suffered for years with the most awful symptoms and pain. In total I have had 10 pregnanacies with 2 live births (one being at 27 weeks the other on her due date)

XX

[Welshexile]

Hi

I suffered badly with endo from the age of 14 (back then Drs told me "it couldn't be endometriosis as I was too young and hadn't had any children"!!) after 20yrs of excruciating pain (for 10 days EVERY 3 weeks) I was finally diagnosed and advised to have a total hysterectomy as the damage caused meant I would never conceive or carry........ I have Lupus and Hughes....think there was mention of a link with Hughes but don't quote me

[Nightjar]

In my view there is a connection - as lupus is known to affect the hormonal system. Despite a lot of health problems right through my teens (..wasn't diagnosed with lupus until many years later!) - and given umpteen doses of antibiotics for 'this, that and the other'..!!). I had a daughter at 25, then two miscarriages and an ectopic pregnancy over the next two years. I almost died as surgery was delayed (because "she didn't look sick"..!) and was told afterwards it wasn't likely I would have any more children. However, three years later I had another daughter. I have no doubt there is a connection between Lupus and Endometriosis.

[Chapter]

Thank you, I believe they are related. I complained about sore stomach and associated symptoms for years but nothing was ever said about endo. I had never heard of it until after hysterectomy, for other reasons, when surgeon informed me that it took her twice as long because of the endometriosis attached to everything.

Next question - anybody had it come back again. I was left with one ovary so hormones would still be available. You know how it is, doctors don't always respond to, "it hurts right here", so I am looking for possibilities.

[Hidden]

I had a hysterectomy at 39 due to endometriosis and had symptoms of Lupus for about 6 years before my crash & diagnosis last year.