I am 16 and have now had lupus for 4 long years, ... - LUPUS UK
I am 16 and have now had lupus for 4 long years, can anyone offer me tips on how to carry on a normal teenage life, i am finding it hard
I was diagnsed just before my 16th birthday, now 19, the only thing i can suggest is get as much rest as possible when you can, to help you going and keep up with others. 
Hi Jessabella,
Here at LUPUS UK we have some information booklets about lupus in young people. If you want I can send one out to you in the post, just send me your address in a private message.
Also, there is a short video about lupus in young people, made by the NHS that you can watch here - bit.ly/r6gynY
If there is anything else that we can help with then please don't hesitate to contact us. Take Care
I was diagnosed at the early age of 19, I am now 33. At first I felt as if my life had ended, but then I decided to not let Lupus control my life but just to be something I have to live with. I listen to my body and when it needs to rest I do so, but on the good days I try to make good use of them. Do the things you used to do if you still can, if you cannot, find something else that piques your interest, but do not let it consume your every thought. Live! you are still alive!!!
Some good advice there Jess I'm 64, had SLE for over 6 years. Pacing yourself and resting are excellent ways to go. Make sure you have good friends who understand and are willing to support you with whatever you feel you can do.
I was diagnosed at your age & I'm now 49.
You poor thing it's not nice feeling so tired & worn out all the time.
Don't try & keep up with your mates you really need to listen to your body & get as much rest as you can.
I was diagnosed at the same age but I'm 24 now.
Good friends are really good to have. When you miss classes and days of school, they'll be the ones there who miss you and let you know that.
Take it super easy. If it hurts, slow down, take a deep breath, and work your way around it. If you're feeling arthritic pain in your joints, take it REALLY slow and see if you can get an effective heat pad. Listen to your body and take baby steps.
Talk to your teachers if you haven't done so already and let them know. They probably already know if your school's admin knows, but regardless, it adds in that personal touch. If they're human, they will do their best to accommodate you.
Stay educated on the disease as much as possible, but don't let it consume your mind. Depression is really easy to fall into and trust me, it's a struggle to get out of it. Try to stay happy, optimistic, elevated, positive! See the brighter side of things, so to speak.
I do hope you all the best.
