why dont the rhumy and drs give straight answers to questions, all everyone keeps doing is giving more tablets and creams. No one explains

[luupysue]

anything feels like iam being passed back and forth. Dont think I can take much more feel so alone and feel like screaming

[Acorn1]

You poor thing, I really sympathise with that feeling. I find it's best to write down exactly how I'm feeling and the questions that I need answers to. Then I can just pour it all out at the next appt. Immune conditions are so different so there's no divinitive answer, plus the docs are black and White, in that every condition has a medication to treat it, that's unfortunately mainly what they do. They don't have the answers as to what will happen in the future or how it all began. I have Lupus just becoming very active, I've started on steroids and anzethiaprine which are making things better, a little! I try and get through each day in small sections ignoring the things I can't do anything about but concentrating on the important stuff like interacting with my family. It's a battle but worry and stress will make your situation and condition worse. Have you considered alternative therapies along side your meds?

I hope you have a good day today, you're definitely not alone.

Alison

[witch2]

It is hard I saw a locum who gave me a steroid injection when I had specifically said I did not one (official complaint in hospital and they are running around like scalded cats) He now is giving a different diagnosis saying I have full Lupus when my usual consultant says I have many symptoms but it is hard to be specific does your head in

[Hidden]

it my be worth writing a letter to the rhuematologist you may get some plian answeres or try your hospitial compliants department

[Paula1968]

I agree with Acorn1, I now write things down and check that I have said all I wanted to say before I leave the room, I have left so many times and thought - I didnt ask this or that! Not any more!!

[Binkey]

I feel so sorry for you as I feel exactly the same.If you ask a question or are wary of the meds,they get quite agressive and are told,'What do you expect us to do if you don't want to take the pills'.Well they should understand for a start,they are not having to take the meds and will not suffer the side effects.I wonder if they would volunteer to be an experiment.Chin up you atre not alone.

[Lupoid]

You're far from alone in this. My rheum takes me off pred, for the derm to put me on pred, for the GP to up the dose, for the rheum to take me off...

The practice nurse is the only one who seems to actually listen to me and is even trying to get them all in the same room to discuss what they're doing!

Good luck to her, I'm not holding out too much hope on that one.

[luupysue]

Thank you everyone I have taken onboardeverything you all said and contactedthe rhumy nurse and went in with a list, she is taking my notes to him and going to sit down and discuss all the new things with him in the mean time they have put me some antidepressants to help with the pain anfd hopefully get me some much needed sleep.

THANK YOU ALL