About medication: I am finding out more about... - LUPUS UK

LUPUS UK

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About medication

Binkey profile image
9 Replies

I am finding out more about medication recommendations and,believe I have had my fair share.A pill is not the answer to all the problems and we must be aware of what the side effects of these drugs are.I have had some real surprises.Thankfully I really check any recommended medications and suggest we all do the same.

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Binkey profile image
Binkey
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9 Replies
Binkey profile image
Binkey

I must admit,I would have thought somebody would have commented about the medication options,which was what I was hoping for.Somebody must have some answers?Choises,options,types of medication?

teecayc profile image
teecayc

I'm lucky that I haven't had any reactions to any of my meds, although was thought in the beginning that I had a reaction to everything because of the Lupus symptoms! I take it you've had some bad experiences in the past, have you had any problems recently? I think the only thing I worry about at the moment is that I need to get my bum for an eye test as I've been on Hydroxychloroquine a while now!

Binkey profile image
Binkey in reply to teecayc

The Hydroxychloroquine was one of the drugs recommended.Fortunately I had my tests before I was supposed start this medication.The result was ,after an eye test,not to take it.Please go for your eye test.

teecayc profile image
teecayc in reply to Binkey

Yes I will do. it's been a niggle in the back of my head, need to make it a priority really.

Binkey profile image
Binkey in reply to teecayc

Please do,it is very important as we should be able to have a quality of life with the help of medication not suffer bad side effects.You must listen to your body,only you can.

witch2 profile image
witch2

I am someone who is sensitive to meds especially pain killing meds - I recently had a side effects from a steroid injection. Allergic to Hydroxychloroquine Don't get a lot of support from some of the doctors. I am luck with my Consultant when I can see her and one GP so not all bad.

Binkey profile image
Binkey in reply to witch2

Am going to the hospital today[reumatology].I know the feeling of being desperate to get help.All thtat seems to happen is pill after pill after pill,all to no availe.Let's see what happens today.

dawnepearse profile image
dawnepearse

I have decided today that the hydroxy is doing me more harm than good. It was ok for about 6 weeks, then I had an allergic reaction (not sure what too), spoke to the chemist about the hydroxy, she said she didnt think it would be that. But since then I have had worse problems with my skin in the sunlight than i ever did before, I have only been taking half the dose (kept forgetting to take the evening one) and so today have decided to give it up all together, I dont have an appointment until Nov with Dermo, so I will see how things go and report to them them!!! Feel a bit rubbish today, as the sun is out and I feel like a prisoner in my own home :(

Sheenas profile image
Sheenas

When I started hydox about 6 years ago, it didn't agree with me atall.. but took it slower than recommended as my body works very slow and dosen't like anything i put into it!! (which i have now discovered more as times gone by) so took one every other day in morning only then progressed to 1 everyday and so on now i take 2 in morning as it works best for me. I thiink with us luppy people we are all different and have to work out whats best for us. I was sick/could't get out of bed/headaches and alsorts but was not willing to give up as the benefits weigh out the bad and long term it helped, and thank goodness i stuck it out.. And it will take a good 6 months for it to work properly. I have to do this with alot of tablets adjust to how my body works best.. Just a thought.. Take Care xx

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